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Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Posts 39601 - 39630 (39,701 total)

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Sep 9, 2021 02:29PM Creativevintage wrote:

Lilych. Right now it’s 156. That is the highest it has gone and the elevation began shortly after I started aromatase inhibitors. It’s been up and down, but I do have significant osteoporosis that worsened with the AI. I did get prolix too, but I was relieved it had nothing to do with any liver causes

Dx 5/8/2015, IDC, Left, 1cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 6/3/2015 Herceptin (trastuzumab) Targeted Therapy 6/3/2015 Perjeta (pertuzumab) Chemotherapy 6/3/2015 Carboplatin (Paraplatin), Taxotere (docetaxel) Dx 10/15/2015, DCIS, Left, 2cm, Stage 0, Grade 1, 0/4 nodes
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Sep 10, 2021 10:44AM LilyCh wrote:

Thanks for sharing, Creativevintage. It does sound high but it is good to know that is just related to AI and should not be a concern.

Dx 6/5/2018, IDC, Right, 2cm, Stage IA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 7/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/12/2018 Perjeta (pertuzumab) Targeted Therapy 7/12/2018 Herceptin (trastuzumab) Surgery 11/20/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/13/2019 Whole-breast: Breast Hormonal Therapy 3/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 14, 2021 01:13AM gamzu710 wrote:

Finally heard back from someone who was able to interpret my biopsy report for me: I do NOT have DCIS and the findings were all benign. My guess that they listed the differential diagnosis and then the actual diagnosis was correct. They are going to try to bump up my other MRI biopsy but I won't hold my breath on that. At least I know now that the trouble is all confined to one breast and the left side is clear.

Surgery 7/29/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 10/21/2021 Herceptin (trastuzumab) Chemotherapy 10/21/2021 Taxol (paclitaxel)
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Sep 14, 2021 08:52AM ElaineTherese wrote:

Awesome news, gamzu! What a relief for you.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Sep 15, 2021 10:17AM morrigan_2575 wrote:

@gamzu - very good news.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 15, 2021 10:37AM SpecialK wrote:

gamzu - yay!

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Sep 15, 2021 12:43PM Nsbrown54 wrote:

Gamzu710 - glad you got good news!

Dx 6/16/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/25/2021 Perjeta (pertuzumab) Hormonal Therapy 6/1/2021 Arimidex (anastrozole)
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Sep 17, 2021 01:52PM gamzu710 wrote:

Thanks, everyone. Met my oncologist this morning. We are still waiting for the final MRI biopsy and the sentinel lymph node biopsy. If the lymph node biopsy is negative, then my chemo plan is Taxol + Herceptin. If it is positive, then TCHP. Obviously hoping for negative lymph nodes, and both my oncologist and my surgeon seem optimistic about that, but I am not assuming anything. Given that I thought TCHP was my only choice going into the consult this morning, I think I'll just keep mentally prepared for that right now.

At any rate, I liked the oncologist, who is the first person in this process who has sat down with me for a long time (over an hour) and tried to get to know me and hear my story in my own words.

Surgery 7/29/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 10/21/2021 Herceptin (trastuzumab) Chemotherapy 10/21/2021 Taxol (paclitaxel)
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Sep 19, 2021 10:51AM 1982M wrote:

I asked this on the general chemo forum but I’m a bit confused about hair loss.

For those of you who just received weekly taxol as chemotherapy, did you lose your hair? If so, when?

I’m not sure what to expect…. any insight appreciated.

Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)
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Sep 19, 2021 03:12PM - edited Sep 19, 2021 03:14PM by ElaineTherese

I did AC first, but you will indeed lose your hair on Taxol at some point. I read somewhere that hair loss on Taxol usually begins after two weeks. Loss can be gradual or take a few days. At least, your chances of permanent hair loss are less than on Taxotere. I'll tell you -- Taxol really did a number on my eyelashes and eyebrows. Those were fine through AC, and are still sad and sparse nearly seven years later.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Sep 20, 2021 03:16PM BigPeaches wrote:

I lost all my hair after the 2nd time with Taxotere and most of it never came back :(

Dx 6/11/2008, IDC, Right, 2cm, Stage IIA, Grade 2, 0/0 nodes, ER+/PR+, HER2+ Surgery 7/17/2008 Mastectomy: Right Chemotherapy 8/18/2008 AT Targeted Therapy 8/18/2008 Herceptin (trastuzumab) Hormonal Therapy 12/31/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/27/2018, IDC, Stage IV, metastasized to bone, ER+/PR+, HER2+ Radiation Therapy 3/27/2018 External: Bone Targeted Therapy 5/14/2018 Herceptin (trastuzumab) Chemotherapy 5/15/2018 Taxotere (docetaxel) Targeted Therapy 5/15/2018 Perjeta (pertuzumab) Hormonal Therapy 8/28/2018 Arimidex (anastrozole) Hormonal Therapy 8/29/2018 Zoladex (goserelin)
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Sep 20, 2021 05:06PM AmyCinny wrote:

Yes, I lost my hair on weekly Taxol. It started coming out around week 3. However, I didn't lose my eyelashes/eyebrows until I was almost done, but they did go. My eyebrows came back very sparsely, so I tried using a biotin product on them. Took a few weeks, but they are much fuller now.

My head hair did return, but much thinner, so now I'm also trying a biotin shampoo in hopes of having as much success as with my eyebrows.

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Sep 20, 2021 10:11PM 1946Taco wrote:

Yes, taxol does a number on hair - everywhere. It seems to me it was about 3 weeks. I liked myself bald but REALLY missed my eyebrows. Wish I'd gotten them tattooed on before I started. Permanent make-up isn't cheap but for me would have been worth it. Hair pretty much came back but I have a permanent bald spot from the AI's. I have a great collection of hats though and wear them always.

Great news about the new drug for TP ladies!

Dx 11/22/2016, IDC: Tubular, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Radiation Therapy 12/29/2016 Balloon-catheter Targeted Therapy 2/3/2017 Herceptin (trastuzumab) Chemotherapy 2/3/2017 Taxol (paclitaxel) Hormonal Therapy 12/3/2017 Femara (letrozole) Hormonal Therapy Arimidex (anastrozole)
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Sep 21, 2021 10:12AM Ingerp wrote:

Just a <belated> comment on Latisse. I had used some of those conditioner-type things several years ago and I know they worked--my sister commented that my eyelashes looked longer!! I bopped around different brands, but did not think they were working as well over time. Last time I saw my SIL she had really great looking lashes and told she told me she was using Latisse. I was going to just do the online thing, but was cringing at the $$. Next time I saw my MO, I asked her about it. She had never heard of it, but she looked it up and said sure she'd write me a prescription for it. With that and GoodRx, it cost about $30. I'm about six weeks in and think I am starting to see results. Keep in mind they say it takes 16 weeks to get the full benefit. (And my MO and her nurse want me to let them know how it's going at my next check-up!)

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/18/2018 Taxol (paclitaxel) Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Radiation Therapy 8/20/2018 Whole-breast: Breast
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Sep 21, 2021 11:03AM sarahe_butcher wrote:

Hello Everyone!

Looking to talk some things through and get a few perspectives. I was diagnosed IDC Grade 3, Triple Positive way back on July 29th, 2021. Started the process of meeting with doctors, scheduling surgery and oncology plans and got everything set up to start the end of September. (Which was a little unsettling because of the wait, but was reassured that I still had very good prognosis and there was no evidence of lymph node involvement and the tumor was on the smaller size ~ less than 2 cm.) Unfortunately, insurances became an issue and I have to start the process all over with different doctors. This has pushed the surgery date back to Nov. 2nd. (If you are counting, like I am, that's most 99 days from diagnosis to treatment). The original plan was lumpectomy followed by 12 weeks of chemo once a weeks and then 40 weeks every three weeks.

What I am mulling around in my head... the longer I do nothing, the more it grows and has the chance to spread. Potentially changing my outcome. The original oncologist didn't want to do neoadjuvant treatment for fear of over treating and prognosis was good and the tumor was small (He staged it a 1a)

Meeting with the new oncologist, the possibility of doing treatment prior to surgery may be an option. Is that something you would consider?

I know chemo is not fun but waiting another month + before I do anything isn't very appealing either. Thoughts?

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Sep 21, 2021 05:54PM - edited Sep 21, 2021 05:55PM by LaughingGull

Sarahe,

I would totally take the chance to do neoadjuvant treatment. If your cancer doesn't respond well to chemo, you will know, and you will be able to take action -there are very effective treatments for pts with residual disease after chemo, hopefully you won't be one of them, but you never know. And indeed, you cut the wait. Total win. I don't see any downsides.

LaughingGull

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
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Sep 21, 2021 07:18PM 1982M wrote:

Thanks for all the answers. I had read a post about permanent makeup tattoo and for my eyebrows and eyeliner done before hand. I absolutely love it, and I’m a simple lady.

I start chemo tomorrow and am now prepared for hair loss. I bought a few cute toques. I’m in Canada so no one will prob even notice. Lol.

Any suggestions on what week to shave my head?

Sarahe, I’m so sorry for the mess you have been experiencing. I would def ask your oncologist if you could start chemotherapy if it would make the processes quicker. See what they say! Good luck

Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)
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Sep 21, 2021 08:57PM Magonmac wrote:

Has anyone had a lumpectomy with radiation on breast 20+ year later after having radiation from a prior breast cancer. I was told by 3 doctors that it was “possible” and more recently from a new doctor definitively not. Also if you are going to MDA do you have recommendations for doctors? If it’s not appropriate to list if you can please private message me. Looking for a doctor that takes the time to listen to patients wishes and not just a number. Thank you!

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Sep 22, 2021 12:32PM morrigan_2575 wrote:

i haven't had experience burx I actually asked my RO about that and, he said it would be possible to do Radiation on the same Boob twice, if necessary. Something about the new technique being

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 23, 2021 06:13PM hapa wrote:

Ingerp - are you using the latisse on your eyebrows or only your lashes? Mine is supposed to deliver to the pharmacy on Sunday. They keep sending the rx back when they try to run it through my insurance and it's not approved. I think I have finally convinced them that I'm good for the $$, lol. I'll also use the good RX coupon (onc's office clued me into this) and it will be a little over $30.

Magonmac - I had Dr. Perkins for radiation at MDA after rejecting an RO at Mayo who just couldn't answer my questions to my satisfaction. Dr. Perkins is up on his research so if you're on the fence about rads and are getting conflicting information, I'd go see him. He was able to walk me through all the research studies that led up to the current recommendations for women in my situation (mastectomy with 3+ positive nodes after chemo). He's also very pleasant and may be a super genius. I still wasn't happy about doing rads after a BMX and ALND but at least I know for sure that it was indicated and not just something that had been done since the olden days and nobody has done a de-escalation study to see if it's really necessary (I have no idea if what I just wrote made any sense, feel free to ask for clarification).

To all the new ladies asking for advice - I apologize that I can't offer you guys more advice or encouragement but I'm getting to the point where I'm so far out of treatment that I don't think I even remember things accurately anymore.

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Targeted Therapy 3/28/2018 Perjeta (pertuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Sep 24, 2021 11:39AM - edited Sep 24, 2021 11:40AM by gamzu710

Has anyone ever had a biopsy clip really close to the skin and did it bother you? I had my final MRI-guided biopsy on the third site this morning and it was very close to the skin, so close that when they placed the clip, it somehow punctured through the nearby skin, so I ended up with two holes instead of one. This created a puddle of blood and the radiologist had to hold pressure very hard for like 10 minutes. The clip slid back in on its own and was in place when I had the post-biopsy mammo but the radiologist said it was so close to the skin that it could be irritating, and I should maybe have the surgeon remove it later. Has anyone had that and if so, how significant an irritant was it?

I guess if the spot comes back DCIS then it'll be taken out in another lumpectomy anyway, but ugh. The radiologist also said the site will "probably" scab over and keep the clip in, which I take to mean there's a chance it might fall out. I didn't even know that could happen. There has already been way more bleeding from this biopsy than from the last one which was on both sides. The poor mammogram tech had to get out more steri strips and wipes.

Surgery 7/29/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 10/21/2021 Herceptin (trastuzumab) Chemotherapy 10/21/2021 Taxol (paclitaxel)
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Sep 24, 2021 12:07PM AMG2 wrote:

Oh my lord, Gamzu, I feel like you've been through the ringer a few times recently, and I'm so sorry about the biopsy clip. No, have not had that - not even remotely, but for me, the aftermath of my relatively simple biopsy was, I swear, more painful than aftermath of the lumpectomy and lymph node removal, and I think it's because my body just didn't like the clip. I think it was 6 weeks between biopsy and surgery for me, and the biopsy was twingey and painful the entire time. I was quite surprised at how much easier the surgical recovery was.

Will you be meeting with your SO at any point? If it were me, I think I'd want to ask the surgeon. I'm sorry, I wish I had better advice, but all I can offer is empathy. Hang in there.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/3/2021 Lumpectomy: Right Targeted Therapy 9/1/2021 Herceptin (trastuzumab) Chemotherapy 9/1/2021 Taxol (paclitaxel) Hormonal Therapy Radiation Therapy Breast
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Sep 24, 2021 12:33PM gamzu710 wrote:

Yes, this was the last step before the long-awaited lymph node biopsy so I will see my surgeon soon. Good idea to ask if she has experience with this! I've never heard of such a thing or read about it on here but she's been around the block so maybe she's seen it before.

I don't know if I've been through the wringer this early in my journey compared to most other women on here, but every interaction I have with the MRI place seems cursed! The biopsy site is still oozing a bit 3 hours after the procedure, though very, very slowly and I think it should stop soon. I hope. Otherwise today will get even more annoying.

I hear you on the frustration and pain of the small things! Being stabbed with a bunch of needles this morning was meh, but being squeezed with gauze afterward was so painful. It just went on and on without letup, like a mammo gone rogue.

Surgery 7/29/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 10/21/2021 Herceptin (trastuzumab) Chemotherapy 10/21/2021 Taxol (paclitaxel)
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Sep 24, 2021 01:02PM 1982M wrote:

I’m really sorry to hear that gamzu. That does not sound fun! I hope it goes a bit smoother for you from now on! Ugh.

Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)
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Sep 26, 2021 05:18AM gamzu710 wrote:

There is a lovely hole in my breast. I've just had a shower and seen under the steri strip, which doesn't seem to have adhered properly due to blood collecting on it, and it looks like my breast has its own innie belly button near the nipple, complete with a bit of shower water collected in it. It's about 2mm wide and 3mm deep. It doesn't hurt, isn't bleeding, and doesn't look infected but I have no clue how this is going to close or what kind of stuff might get in there. It probably needed a stitch or glue at the time but now it's been 48 hours so probably too late. Neither of my other MRI biopsy sites looked anything like this at any point. Eww.

Surgery 7/29/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 10/21/2021 Herceptin (trastuzumab) Chemotherapy 10/21/2021 Taxol (paclitaxel)
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Sep 26, 2021 10:01AM AMG2 wrote:

Gamzu, I think you should call about that. I'm glad it isn't bleeding and doesn't look infected, but it doesn't sound right, and I worry about what can get in there, too.

I'm so sorry you're dealing with this, ugh!

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/3/2021 Lumpectomy: Right Targeted Therapy 9/1/2021 Herceptin (trastuzumab) Chemotherapy 9/1/2021 Taxol (paclitaxel) Hormonal Therapy Radiation Therapy Breast
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Sep 26, 2021 05:15PM - edited Sep 26, 2021 06:56PM by gamzu710

The steri-strip peeled off completely around lunch-time so I ended up calling the on-call service because it just left an open wound about 4mm across. The doctor said as long as it isn't actively bleeding and there are no signs of infection, to just keep it covered with bandaids and it should be OK. No need to get it glued or anything. There's a clot in there that's leaving spots on everything it touches but that's apparently not to be worried about so I guess I'll just be wearing bandaids for a long time. Maybe if the spot comes back DCIS and my surgeon has to take it out anyway, she can do something.

People accidentally stab themselves with knitting needles and crochet hooks and things and those heal so I'm sure it'll be fine eventually. The clot is gross but is probably also creating a barrier to bacteria.

Edit: Credit to the on-call service, though. The nurse flagged my situation as urgent and the doctor who did the procedure was on the line with me in under 10 minutes. If only all medical office communication was similar.

Surgery 7/29/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 10/21/2021 Herceptin (trastuzumab) Chemotherapy 10/21/2021 Taxol (paclitaxel)
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Sep 27, 2021 05:15PM gamzu710 wrote:

Pathology results in: benign. Dilated duct and "unremarkable skin fragment." Working on scheduling SNLB.

I have an initial appointment to start the egg freezing process on Thursday and learning what that entails has sent me for more of a loop than facing chemo. I don't know why. The whole thing seems miserable and embarrassing and I don't really want to do it but I also know that if I don't, I will probably regret it in a few years and there's no fixing it then. Anyone else been through it?

Surgery 7/29/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 10/21/2021 Herceptin (trastuzumab) Chemotherapy 10/21/2021 Taxol (paclitaxel)
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Sep 28, 2021 09:51AM 1982M wrote:

Happy to hear your results were benign! Hopefully it will all be a smoother journey for you now.

I can’t help on the fertility side. I know there is a board for young breast cancer patients as well. There might be some good insights on that board too if you don’t get it here?

Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)
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Sep 28, 2021 06:31PM morrigan_2575 wrote:

gamzu - have you had surgery yet? If not when is it scheduled or will you do Chemo first? I only ask because your diagnosis was early August and we're almost in October.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall

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