Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
"In your pocket": I've always imagined all my friends here shrunk down to teeny tiny size, so they all fit in my pocket, telling jokes and singing and munching on delicious snacks, while I'm laying on the scan table. It gets me through it, every time.
Feeling a bit sad today, had two friends tell me how BUSY they were this past weekend, and how much busier they'll be over the summer with vacations and trips... and I am definitely not busy. I do like having my quiet time and space, don't get me wrong, but my low energy does not allow me to "do" anywhere near what I used to. Yes, I'm planning a little retirement party in June, but it's not something that I'll be squeezing in amongst 8000 other activities, it's so far my only activity planned. I'm not complaining really, just feel a little down about it all today. Blah.
sf-cakes
Re: My Husband, My Life, My Love, My Family, My Cancer
@mkestrel Sorry to hear of your progression. I had liver and bone mets with my original dx eight years ago, but am stable now. The liver mets became inactive the last few years, but a new one popped up on my last scan although very small. We will see how it is going with my new scan on the 20th.
Carol, I will pray your meeting Wednesday goes well and you are feeling well.
Lately I have seen my parents in my dreams even though they have been gone ten years. I miss them. Wishing everyone a pain-free and comforting mother's day today.
Re: What do you wish you had known when you (or your loved one) were first diagnosed?
I want to tell myself, after my diagnosis, that the primary treatments (surgery/radiation) were just round one. Accepting what you can't control is round two. Try not to overthink everything/anything as it can create unnecessary anxiety and stress, and that is round three. There are more rounds to go, you will learn with each round. Just remember to stand up and get ready for the next one. You got your team, and important folks that are dear to you, supporting and cheering for you.
zen1028
Re: De Novo Stage IV
Just wanted to share the good news that I'm 16 years NED this month after a de novo diagnosis in 2007. At least based on CT scans and markers done in August last year.
Olma, I'd change Kierkegaard's quip to "dancing". I think that's my secret. With Zumba everything is all right.
Re: Please share stories around Mother's Day! Happy, sad, any reflections!
My mother was a kind woman who somehow managed to put up with me for a long time as we shared a condo together and shared the cost as well. We got along well almost all the time but she had a hard time with anxiety when I was first dx with cancer. Once I was stable, she was dx with lung cancer late 2018, too late for any treatment so there was two of us dealing with cancer. She died in Jan of 2019 and I was glad because all her worry, pain etc was gone and she was at peace finally. I was lucky enough to let her know what a good Mom before she passed away, hope she heard me but I know that I felt better. She also was worried about me looking after myself so she asked DB and SIL to keep in contact which I am grateful for. Thank you Mom.
Starting year 18
For those who remember me, when I first got here and was out-of-my-mind-afraid, thought I would update. 17 years has gone by…time flies. Cannot believe I'll be starting year 18…lots of other stuff to deal with (myself and DH) but so far, no BC recurrence that I am aware of. I mostly post on the what's for dinner or the drink-of-the-day thread.
Hard to imagine how many changes have happened with BC dx/treatment in those years (for the better!)
Best to you ladies.
wallycat
Re: Unfortunately it appears I am back.
Thank you for responding KBL. I remember you from the days following my initial diagnosis in Oct 2019. I know it’s a crap shoot, but hearing how long you have thrived with Mets, gives me some hope I can at least be here for my daughter until she’s safely established in her own life..,..not that 100 years would ever be enough to be here to love her……..
kmom57
Re: My Husband, My Life, My Love, My Family, My Cancer
I go home tomorrow! I could have gone home today but they set the picc line today and I just needed some time for re-entry as it were. Besides, it was fish cake night.
Chemo won't start until next Tuesday and should help clear out whatever is in there causing the hip pain and swelling and mobility issues. Onc acknowledged I've had a terrible year of pain and challenges and to top it off now get told I have to have iv chemo which was helpful but doesn't get me that time back now does it.
sondraf
How could I ever have foreseen...that I'd be here at year eighteen?!
Checking in on my survivor sisters with my traditional cancerversary post. I remember how much it used to help me when I saw posts from Stage III-ers who were WAY out from diagnosis (and there weren't as many back then),
Here's wishing you HOPE, which is one of the most important things we have in our toolbox!
Hugs to all - Julie
sugarplum
Re: Brain Mets Sisters
I thought that I was handling WBR fairly well but this week things have gotten harder mainly cognitively. I am having a hard time with memory and hanging on to thoughts or coming up with words. I used to be a very patterned person and organized in my processes and now I can't seem to remember what I was doing or wanted to do. I have become dependent on lists and taking someone with me to appointments so I can remember and understand what was said. Does this sound normal and will get better? I have session 5 of 10 today so I'm halfway there. I am a little off kilter and feel slightly dizzy when I walk but not enough to fall. Just not steady like I used to be. I also have mets to the cerebellum and that could be part of it. I don't know. My egg just feels a little fried this week.
emac877