Stage IV/Metastatic Breast Cancer ONLY
Discussion List
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Travellers insurance advice
hi. I know I've seen some of you planning wonderful trips. I've searched but not found any specifics here about traveller's insurance for international travel. If all goes well (and I manage to renew my passport on time! Ugh, pandemic made me neglect so much) we hope to visit family this summer. I will be a few months out…
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Feeling offended
Let me say before I type any more, I am not directing this gripe to anyone in particular. I just need to vent and only my stage iv sisters would understand. My sincere apologies if I offend anyone, that is truly not my intention. I am young (under 50) with a Stage IV diagnosis. I’m grateful that I’m doing well, but I can…
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Xeloda advice
Hi all, I see there is an active thread on Xeloda but it’s been going for a long time so a lot of the information is buried. I started Xeloda today. I’m on a 7/7/7/7 regimen. Would love advice and/or info that is helpful for a newbie.
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Weekly Zoom meet up for those of us still working
The Mods contacted me via private message to see what time and day would work best for those of us who are still working and finding it hard to participate in the current stage 4 weekly Zoom calls. They are trying very hard to get a meeting that will work for us. If you could please post which day(s) and time(s) would work…
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Join us: Younger with MBC Zoom Meetup
Hi all! Join us for a Zoom meetup for those who are Younger with MBC discussing the unique experiences that a stage IV diagnosis brings at a younger age. We'd love if you could join us on Thursdays bi-weekly at 1pm ET. Register in advance for this meeting: After registering, you will receive a confirmation email containing…
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Receiving chemo despite low ANC ? - experiences urgently needed
Dear all, 7.5 yrs since MBC diag. Very widespread bone mets & numerous (small) liver. Recently on Abema, worked well for 1yr, but stopped working. ANC (neutro count) is still low here 2.5 weeks since stopping (0.8) I need to receive IV chemo, but my neutros in general seem to struggle. Thus I am seeking experiences about…
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Help needed for Treatment options (if any)..
I am a recent member of the group and was diagnosed with De Novo stage IV, Triple negative with mets in liver and lungs. I was diagnosed in Oct 2020. i belong from Pakistan and my doctors are of the opinion that my cancer has spread too much for them to do anything (chemo,Radiation,Immunotherapy) about it. I am writing…
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Skin mets thread-is there one?
cannot find a way of searching to see if this exists. If this thread exists, can someone please send me a link. thank you! D
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Nasty red itchy rash- skin mets??
I’ve have a bad rash jumping around from back to one arm and another arm. Leaves one place and goes to another. Now I’ve had it to my upper chest and neck. I don’t think it’s a rash anymore. This is so itchy and red and dry. I’m finding it hard to find info on this. Has anyone had this experience and was it skin mets?? D
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Keto? Mediterranean? No sugar? No fat? No processed foods?
I have been reading studies about how diet affects breast cancer growth and have been bouncing between them in my head and daily life. Some studies, such as keto diet, seem to contradict each other, with fierce advocates on all sides.I thought it might be helpful for us to share the type of diet (not for weight loss, but…
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Aquaintance celebrates 25 years since advanced cancer diagnosis!
Hi everyone. I just have to shout it out because it gives me such hope. She is such a gracious, generous and caring person.
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TNBC in supraclavicular lymph nodes *only*??
Hi All, My wife recently got NED from stage 4 TNBC that was in her spine. However, her most recent PET showed 3 lymph nodes on either side of her neck with activity, and a biopsy confirmed cancer. What is baffling us is that there's no sign of cancer elsewhere. How does cancer get into the lymph nodes without a tumour…
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side effects: arimidex or ibrance?
good evening and Beltane greetings 💖 tonight's question is: if you are experiencing se's and are taking one or more drugs, how do you establish which one is causing the effects? i've been taking arimidex & ibrance just since dec 2021 and have crashed in the last few weeks - can't get out of bed. unacceptable as i work.…