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Off Topic - A Family Matter
My stepson is in his 40s, married with a couple kids; one’s a teenager, one’s a tween. They live about three hours away from us. SS has been a part of my life since the late 1980s when he was a tween and I married his dad. He’s undergoing tests for some form of blood cancer. It doesn’t sound good. When Dh and I visited…
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Numb Chin Syndrome - feeling terrified
Hi everyone, I hope this is OK, I am posting this on behalf of a dear friend with MBC, Maria. Shes sitting next to me as I type this but is feeling too overwhelmed to do this herself and asked me to post. Maria is 53 years old and was diagnosed stage IV in 2015. She currently has mets to her liver and bones (mainly bones…
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Any long-haulers living with bone mets?
Long story short: managed to get rid of my brain met. No mets in the rest of my organs. Scans showed bone mets shrinking. I read people with stage 4 BC with mets lived longer than those with mets on the organs, but could not find a difference in the asinine 5-year survival rate. Can anyone with bone mets here can confirm…
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Can breast cancer stage 4 de novo defeated ?
Hello! I am from Romania and I received the diagnosis of breast cancer in September 2021 (in both breasts / stage 4 de novo with metastases in the axillary nodes / invasive ductal carcinoma / luminal B/ ER+ PR+ / HER2- / the genetic test is OK and I did not present genes mutant / I did chemotherapy, then radical masectomy…
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About metastases
Hello ! I am from Romania and I received the diagnosis of breast cancer in September 2021 (in both breasts / stage 4 with metastases in the axillary nodes / invasive ductal carcinoma / luminal B/ ER+ PR+ / HER2- / the genetic test is OK and did not show any mutated genes / I did chemotherapy, then radical masectomy of both…
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Positive specially for newly diagnosed
I am 3 years 8 months from my CT which diagnosed me with widespread pulmonary and chest metastasis. I had chemo , targeted therapy, chemo again then for 1 year I have been on no systemic treatment but had 2 brain surgeries , 1 SRS and this month diagnosis of some new brain lesions. I have been working all the time ( part…
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My New Treatments: Piqray and Orserdu
Today is Day Six on the former, Day Two on the latter. Wish me luck! Tina
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Diet changes?
has anyone had success with reducing their bone mets or remission by changing their diet? I don't do refined sugar but it diesntseem to be enough.
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Travera
I may be overly optimistic, but I feel like I cannot share info about Travera enough. Travera testing can help to predict which cancer drugs are likely or unlikely to work for you. HOW AMAZING IS THIS? You might not have to go through the side effects, waiting, anxiety, etc. to wonder if a particular drug is going to work…
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Just started Verzinio bone mets
I just started verzinio yesterday at 50mg. I have lots of allergies to meds so we started at the lowest dose as a precaution. I am also taking letrozole, and zoladex with zometa infusions monthly. Any advice,cautions,things I should expect,things to avoid or do? I'm Nervous about the side effects.
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Have not found the right doctor
I am on my 5th oncologist. He is an asshole (medical gaslighting). Good thing he left to practice at another facility. I am hoping the one to replace him won't gaslight me or would at least give a fuck about my wishes. To those who found the right one, how many oncologists did it took to find the right doctor?
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Lobular Stage IV Imaging Issues - I Know I’m Not Alone
Hi, everyone. I was thinking about starting a Facebook group for those of us who have so many issues with imaging. I got some feedback from others that they did not want me to start a separate group, so I am starting a group here. Below is my post on Facebook so that you can get a sense of the imaging issues I've had.…
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Piqray
hi, I would like to hear from people who are stage 4 and are taking piqray. I'm supposed to start this medication on Monday. It seems to have a lot of side effects. I guess all the treatments do. However, I would like to hear from people taking this. Thank you Melissa
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Elacestrant (ORSERDU)
Starting this topic to share info about the new medication elacestrant. Elacestrant (ORSERDU) was recently FDA approved for ER+/HER2- MBC for patients with the ESR1 mutation. Just before it was FDA approved, I was able to obtain the drug through an expanded access program (thanks to WeninWI for the info!). The expanded…
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Progression and New Treatments
All, My most recent scans in early January indicated that my lung mets had enlarged considerably. I have stopped Faslodex after my nearly 12-year run and will beginPiqray together with another treatment which is still being worked out. I start the Piqray tomorrow. Any tips? There's not a lot of info on the thread here, but…
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Trodelvy Now Approved for Hormone Receptor-Positive MBC
Trodelvy Approved for Metastatic, Hormone Receptor-Positive Breast Cancer Feb 3, 2023 Trodelvy is now approved to treat metastatic, hormone receptor-positive breast cancer, rather than only triple-negative disease. Read more...
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Another day, another lump
I am so fucking sick of this shit. Is this part of the disease to find another lump on a different breast. I have been taking Ibrance, Anastrozole and Zometa for this disease. I've changed my diet since I have been diagnosed 3 years ago along with supplementation prescribed by doctors. I exercise and managed to build more…