This is a safe place to share your experiences of others considering or on hormonal treatment.
Hello all - Wondering if any of you can share any of your experiences regarding your BCI and what your oncologists have advised based on your results. I am nearing my 5 year mark next year for endocrine therapy and recently found out that my oncologist had run the Breast Cancer Index test on my original tumor. I am…
My doc wants me to stop taking anastrozole after 5 years (1.5 on tamoxifen). I've had two fractures, last one a year and a half ago. I'm osteopenic. Side effects are manageable, I'm fortunate to live by myself 😄. I'm a bit scared to stop... anyone else out there afraid to quit?
I am 64 years old. I was on tamoxifen for 3 years and and anastrazole for 4 years. I have been off the Anastrazole since end of 2019. I have severe osteoarthritis in both knees. Bone on bone. Have heard that the estrogen loss accelerates cartilage loss. Wondering if others have had this experience
Hi all, for some reason, I started thinking about what happens when I get off the Tamoxifen. I still have 2 years to go but of course, they are recommending the 10. Hey, 50-60% reduction of recurrence is great for 5 years, but 3-4% for the next 5, no thanks. I have the brain fuzziness, memory problems. I've had the joint…
Does anyone on tamoxifen take prescription medication for migraines? I was recently given a sample of ubrelvy by a neurologist for headaches but just read online tamoxifen can increase med levels because it’s metabolized by a cyp3a pathway. Any experience with this drug or another migraine treatment that doesn’t interfere?
My experience was??? My mental state went to apathetic. I had NO emotional feelng. One night I felt like I was dead with no brain activity. SCARY. I stopped it early as I was low recurrence risk. I feel even at high risk, it's not worth it.
After 10 years of Tamoxifen it was time to stop taking it. Just a couple of weeks after I stopped I got gastrointestinal issues. I am wondering if it is because I stopped the Tamoxifen. I have bloating, constipation/diarrohea, feeling a need to do but not doing, going often to the toilet. I had several tests and am waiting…
I'm being asked to consider aromatase inhibitor therapy even though my ER receptor level is low. Relatively new research indicates a significantly worse overall survival when AET is omitted. (Grace Mei Yee Chong et. al. And Mayo Clinic).What have others heard about this? I was HER2+, went through chemo and Phesgo,…
Its been a while. I really had to take a step back from engaging the community because the stories are so gut wrenching and sad. Nadia is doing great physically. We had a second scan in Feb. Liver Mets appear to be healing and the breast tumor is definitely smaller. They did confirm that this cancer had spread to her spine…
Lumpectomy + Oncoplastic - in June 2024 w/ Radiation Oct 2024 4 weeks. Began Letrozole Sept 2024. Lots of symptoms since Radiation, I stopped taking the AI for 3 weeks last fall, my Oncologist freaked out so resumed it. I'm anti-drug mentality and but med team convinced me due to ILC loves Estrogen, and if you get BC…
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