Just diagnosed, in treatment, or finished treatment for ILC.
For helpful information, check out Breastcancer.org's ILC section. Podcast: Imaging Tests for Lobular Breast Cancer Lobular Breast Cancer Alliance Brochure - Information for Patients There is also advice and personal experiences from other community members here on the discussion boards, including: ILC Long Term Survivors…
Imaging Tests for Lobular Breast Cancer Nov 9, 2023 Maxine Jochelson, MD, explains the imaging tests for lobular breast cancer, as well as why lobular disease is harder to see on mammograms. Lobular breast cancer is cancer that starts in the lobules, the glands in the breast that produce milk. Lobular breast cancer is the…
I have just been diagnosed with invasive lobular carcinoma in my left breast. I have had my consultation with my surgeon and he suggests I get a lumpectomy and then radiation. I have a second opinion visit set up but after speaking with my children they were set on me getting a double mastectomy. I emailed him and he met…
Hi i Just got diagnosed with ILC and feeling really shook. I’m a young, active 57yo in “great” health. I have two tumours in my left breast and multiple complex and funky looking cysts. Right now I’m in the waiting game to get in to see my oncologist and get surgery. I was wondering if anyone out there was in the same boat…
I’m curious. I will have had chemo, DMX , and radiation and Tamoxifen when all is said and done. I was stage 3 because of the larger size and a few suspicious lymph nodes. But they were never tested before chemo and after surgery they were negative. I also got an over 2cm or more margin all around. I know this is a dr…
Anyone have any experience with doxorubicin? When do symptoms start to come on? Were you able to work while in treatment? How sick did you get? Just looking for any info available. I have been diagnosed since 5/19. Had a lumpectomy and anixilarry dissection. Start Chemo this Thursday, 7/25. Scared and nervous.
I was diagnosed with stage 2A ILC 2/10/25 and can't get an appointment with surgeon until June At that appointment they will refer me to a plastic surgeon for immediate reconstruction after the mastectomy but it will take another 3 months to get in for that consult. I am really nervous because by the time I actually have…
Has anyone developed arthritis after developing bone mets? I have a theory that the anti-hormone treatment has caused arthritics to develop earlier than it should. Arthritis and joint pain are affecting my quality of life much more than the cancer at the moment. It seems to be very hard to get on top of it, along with the…
What a crazy and bizarre diagnosis. Am I the only Pleomorphic here?
Hi, I’m in NZ - stage 4 lobular and looking at the tests that tell you what chemo will work. I’ve done Foundation One which my oncologist recommended. I’ve just found out about the Geonostics Exacta Test - snd the Gradient test I’m confused so just wondering if anyone knows what the differences are - or which one is best.…
Does anybody know people, or are you someone who has survived ILC long term, (more than 5 to 10 years) without a recurrence? Please post! I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure. Thanks! Nancy
Hi, Was hoping for some long term survivor stories. Found so much conflicting information on ILC. Not sure where the truth lies. I know each person is unique but overall hard to find good information on it.
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