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Important Links About ILC
For helpful information, check out Breastcancer.org's ILC section. Podcast: Imaging Tests for Lobular Breast Cancer Lobular Breast Cancer Alliance Brochure - Information for Patients There is also advice and personal experiences from other community members here on the discussion boards, including: ILC Long Term Survivors…
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Imaging Tests for Lobular Breast Cancer
Imaging Tests for Lobular Breast Cancer Nov 9, 2023 Maxine Jochelson, MD, explains the imaging tests for lobular breast cancer, as well as why lobular disease is harder to see on mammograms. Lobular breast cancer is cancer that starts in the lobules, the glands in the breast that produce milk. Lobular breast cancer is the…
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ILC diagnosis
Hi- New to this group and to the diagnosis of ILC. I’ve been told I’m Er+, PR -, HERS2- , grade 1, stage 1A, 17mm cancer area -of course all subject to change after post- surgical biopsies in October. My question (concern?) is with ILC such a sneaky cancer and my inability to do a contrast MRI due to a severe allergy to…
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Newly Diagnosed with ILC (Lobular) • Seeking Advice While Waiting for Oncologist
Hi everyone, I am new to the group and recently received my biopsy results. I have been diagnosed with invasive lobular carcinoma (ILC). My markers came back ER+, PR+, and HER2-. I don’t know my stage yet, as I am currently waiting for the call to schedule my initial consultations with a medical oncologist and a breast…
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Has anyone who's had a unilateral mastectomy, had a lift of the other breast for symmetry?
I'm in treatment for ILC, ER+, PR+, HER2-. I had a unilateral mastectomy (left breast) with a tissue expander on August 10. (Stage 1b) Fortunately the lymph nodes were not involved, so I won't need radiation and it's unlikely I'll need chemotherapy. (I meet with the medical oncologist next week for the first time.) My…
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Arimidex/Anastrozole and Osteoporosis
Hi, I am 64 was diagnosed in April 2026 with Stage 1 Invasive Lobular, ER+, PR-, HER2-, clear lymph node, Oncotype score of 22. I chose a bilateral mastectomy and it was not as bad as I thought it might be. I do not need radiation nor chemo, my oncologist is recommending I take Anastrozole for 5 years. However, I have…
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ILC Er+Pr-Hers-
Hello ILC sisters. I am 66. I was high risk after an ALH was found and went on Tamoxifen which didn’t prevent the ILC from invading my right breast. Clean mammogram in Feb then a needle biopsy in May after my yearly breast MRI came up positive for ILC. Unfortunately, I also had 6 nodes positive, 4 with macro metastases…
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Neuadjevant endocrine therapy for ILC
Hi Has anyone else with ILC tried hormone therapy before surgery? After many months I finally have a positive response. Originally on tamoxifen but had tumor growth so switched to Lupron and letrozole. Took 4 months but my entire cancer, the main tumor plus its satellites have gone from 6.8cm to 4.4cm. So grateful and now…
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Invasive lobular carcinoma
I am new to the forum, felt I needed some support to go through this whole process of my diagnosis. I am 73 years old, biopsy report invasive carcinoma, 7mm, her2 negative, ESTROGEN/PROGESTERONE POSITIVE GREATER THAN 90%.. appointment with surgeon 1/6 hopefully have surgery date set up. Due to the nature of this disease I…
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Unilateral or Bilateral Mastectomy - Pros & Cons for ILC
Hi, I learned on April 12th that both biopsies taken from my left breast on March 26th have ILC. The MRI showed at least three more (Stage 1a). They are all very small, but given there are now at least five, the surgeon's recommendation is unilateral mastectomy. I am about 95% certain I'd like to just go for the bilateral,…