Just diagnosed, in treatment, or finished treatment for ILC.
Hi, I’m in NZ - stage 4 lobular and looking at the tests that tell you what chemo will work. I’ve done Foundation One which my oncologist recommended. I’ve just found out about the Geonostics Exacta Test - snd the Gradient test I’m confused so just wondering if anyone knows what the differences are - or which one is best.…
Does anybody know people, or are you someone who has survived ILC long term, (more than 5 to 10 years) without a recurrence? Please post! I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure. Thanks! Nancy
Hi, Was hoping for some long term survivor stories. Found so much conflicting information on ILC. Not sure where the truth lies. I know each person is unique but overall hard to find good information on it.
I am wondering anyone with ILC stage 3 diagnosis and made it to 10 year without any recurrence.
I have stage 1 node negative invasive lobular breast cancer. Oncotype score of 9. I met with my radiation oncologist who gave me the option of the 3 week whole breast radiation with 1 week targeted boost (standard of care) or the ultra hypofractioned 1 week whole breast with same 1 week boost. Studies show it is equal in…
Hi everyone, I was diagnosed with invasive lobular breast cancer (ER+/PR+/HER2-) in January 2024. My oncologist says it’s closer to luminal A than B, with a Ki-67 ranging from 10% to 40%. I went through chemo, which reduced my tumor by about 80%, and had a quadrantectomy with clear surgical margins and negative lymph…
I thought I would start a new thread for those DX with ILC. I belong to a wonderful IDC Warrior group here and love it. It is a large group whom I love but I am the only one with ILC. So, feel like I need to get to know some of the women out there dealing with this sneaky lurking dang disease. I dont see nearly as many of…
Hi everyone, it’s still feels strange to say that I have breast cancer. I’ve had a long journey with breast screenings, biopsies and surgeries. In 2017 I was diagnosed with LCIS which I was told was not cancer. I was given the option of preventive mastectomy or the watch and wait option as I had no genes for cancer,…
Anyone else have family members with ILC? I just found out i have ILC stage 2 i am 62, i see sugeon september 18 so many questions. My mom had ILC early finding at 50 she has mastectomy and lymph node removed no radiation or hormone treatment she lived to 83. My grandmom had breast cancer at 83 and 86 took both breasts and…
Hi there . I was diagnosed with ilc, had lumpectomy of right breast stated barely stage 1. Treatment: tested one of 2, it’s at 25 which means radiation yet sending back other sample to get tested because over 25 would be to do chemo , then radiation . Stated stats : with chemo 1% of returning , without 12% of returning I…
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