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Ribociclib/Kisqali with Letrozole - Any one on this combo?
I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…
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Enhertu
good morning wondering how many people lost there hair on enhertu ?
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mets to lung
hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all barb
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peritoneal carcinomatosis
I am looking for others who have peritoneal carcinomatosis who would like to share their stories and treatments.
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Tumor marker results and changes truqap
I have stage iv metastatic breast cancer in my bones. Multiple sites. I was on ibrance. Now on Truqap. . My tumor markers jumped 25 points recently . My oncologist does not seem very concerned. What kind of jump have you had that the oncologist was concerned about?
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Faslodex Girls Thread
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
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Just diagnosed with ILC mets
Hi, all I had ILC back in 2008. Had radical mastectomy on the right breast and prophylactic on the left. Chemo AC→T, radiation and 7 years of Arimidex. 16 years later I am back in the game. Still in discovery phase. Had FDG Pet Scan that shows liver uptake, had endoscopy that shows little spot in the stomach consistent…
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Newly diagnosed stage IV
I am newly diagnosed. I am also a year into a systemic sclerosis/scleroderma diagnosis. Looking to connect. I am angry and in denial after the past five years of fighting diseases to now be diagnosed with this.
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Information on GATA 3+ Cancer
Hello Friends, Thank you for accepting me in the group. I am ER+, HER2+ and GATA3 +. I was recently diagnosed (December 12, 2022) with Stage 4 Breast cancer with metastasis to Bones, lymph nodes and spleen. My chemotherapy regimen includes Trastuzumab(once every 3 weeks), Paclitaxel (every week) and Zoledronic acid (every…
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Stomach issues & severe weightloss
Hi all, I’m hoping that one of you has had similar issues as my doctors seem stumped. I was initially diagnosed in 2011 and had a double mastectomy and chemo. In 2019 I was diagnosed with metastatic cancer in my bones and lungs. I was on Ibrance and Faslodex for almost 4 years. I gained 20 lbs due to the swelling in my…
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Stage 4 with peritoneal carcinamatosis (sp)
After 14 years my cancer came back with a vengeance. I didn't want chemo again but they convinced me to try abema and an aromatase inhibitor. It's not too bad so far. My biggest problem is that I live with a narcissist and I'm tired of fighting for my needs or even my wants. They say this regimen could give me 2-5 years. I…
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Gemzar
Hi everyone! I had my first dose of Doxil last week and had an immediate anaphylaxis reation. My Oncologist said we can rechallenge the Doxil after premedicating with steroids but I am too afraid. I will be starting on Gemzar next week. I cannot find any recent postings about this drug. My Oncologist said other than…
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Cryoablation Therapy
I read this interesting article about the effectiveness of cryoablation therapy combined with immunotherapy. I might consider trying the Williams Cancer Institute if I have progression. Anyone else familiar with cryoablation?
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Enhertu start
Hi everyone, I'm starting a low dose of Enhertu today, been resisting for a while as I'm more than done with hair loss and any more reduction in quality of life. Side effects don't seem to be consistent with most patients I've observed from research, am very trepidatious. Any thoughts? Thanks
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Have MBC and looking for advice re. caring for a loved one/friend
Hi everyone, I'm new to this forum. Diagnosed with Stage 4 Mets to bone, which started out with breast cancer. Now it spread to my thorasic, lumber, and upper cervical spine. I have a private FB group to share my journey with family and friends. I would also like to join a community group for some more support. With that…
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Anyone on Piqray?
I’ve been on Ribociclib/Faslodex tx for liver mets since July 2023. Recent MRI indicated several new liver lesions. I’m rather disappointed that the above tx only last 15 months. Going to start Piqray this week. I’m concerned about the side effects of hyperglycemia and diarrhea. could you please share your experience on…
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How Many Stage 4 Girls are getting SS disability..
Seems like a lot of stage 4 US citizens are getting Social Security Disability Insurance payments. So lets see how many there are! If you were denied, please comment if it was for medical issues. My understanding is denials are more "not paid in enough" issues than medical. PLEASE TAKE POLL ONCE ONLY!
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Afinitor/Aromasin
I am waiting for my pills to arrive and fearful of starting a chemo after almost seven years of anti-hormones. I immediately started looking for info on this site, and the Afinitor topic was started in Jan. 8, 2012 with 35 pages of comments to go through. Do you think it is possible to start a new topic now that this med…
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Lynparza/Olaparib Anyone?
I'm looking to share side effects or just any updates on Lynparza / Olaparib. I just started targeted therapy on Jan 12th. Aside from a little heartburn at first (helped with OTC pill), I've now started some daily Immodium, which the pharmacy sent WITH the Lynparza. Lol. I've started to just feel plain odd and very…
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Difficulty breathing
I was recently diagnosed with metastatic breast cancer in my bones- de novo at 41 years old. I have been having difficulty breathing on and off for the past few months. It feels like air hunger - every day, like I just can’t get enough air. They’ve checked me for a blood clot twice now, so that’s not it. It does get worse…
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Tips and tricks on addressing Side Effects
Hi, All As I am going through my treatment of mBC ILC I, like many others, have Side Effects that I’m trying to overcome to be on the treatment and lead my life as normal as possible. So I decided to post some tips that worked for me. When my recurrence was discovered during endoscopy I had small lesion in my stomach…
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Guardant 360 testing
I didn't see a top for the Guardant testing so I thought I'd start one. Does anyone know what it means when the first Guardant test showed a PIK3CA mutation, and then ten months later, it doesn't show that? I might need to change my treatment if I no longer have this mutation!
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Feelings and insights about Breast Cancer Awareness Month as people with MBC
October is Breast Cancer Awareness month, which can be an overwhelming time for many women and men affected by breast cancer, especially for those with a metastatic breast cancer diagnosis. We'd really like to have everyone discuss here what you think and feel approaching this month. Thank you ❤️
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18 plus years now
I like to post here occasionally, this forum helped me a lot early in my dx. I am living well with stage v for over 18 years. I am triple positive and on herceptin and Aromasin. For the last nine years I have had no signs of cancer. The last time the cancer was active it was in my bones and lungs. I know stories like this…
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Ixempra
After failing Kisqali/aromasin, abraxane and halaven, I’ve now begun my journey with Ixempra. I get treatments once every 3 weeks. Tuesday was my first tx - in between meltdowns (due to report of progression), I slept a lot. Until that night. I was up all night long. I’m sure it was the steroids in the premeds. Wednesday…
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I was just now dx with skin mets
Hi, I've not had good news since forever—since suspected recurrence in August 2023 anyway, looks like I won't be getting any either. I had some red raised places — not bumps, not nodules, that would get red, then go away, etc. that appeared Nov. 23, the same month I was dx with St. IV. PET scan didn't show this. CTs-four…
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Liver met
Frustrated and angry. I've had MBC for 4 years now. I did really well on Verzenio/abemaciclib and was told I had NED in July. I just got my CT scan back and it shows a probable tumor on the liver. PET scan and liver biopsy coming up. My tumor markers have been rising too. Lucky to have had 4 good years so far, but just 3…
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Kisqali Exemestane
Hello, Anyone on a Kisqali and exemestane combo? I'm just finishing my first cycle--after 8 rounds of paclitaxel was getting to be too much for me, my onco and I decided to try this oral chemo. Noticing my hair thinning, which is extra upsetting as I cold-capped with the paclitaxel expressly because I did not want to lose…
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Elacestrant/Orserdu
1QT.2024 My TM CA-15-3 went up. I am very nervous. I just started Elacestrant its my 2nd week and i am getting mixed messages here about that it causes spikes in tumormarkers activity for some patients and not so much for others. I was taken off my previous meds Kisqali+Letrozole on Jan 5th after PET scan that showed new…
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Bone Mets diagnosis 18 mos, lesions on liver on CT last week
Hello, my wife was diagnosed with stage IV breast cancer with bone met about 18 mos ago. She is currently on kisqali (400 mg), and Letrozole with monthly Zolodex shots and Zometa every 4 months. On her most recent CT (last week) the report said she has 3 lesions on the liver, 14 mm, 14 mm, and 15 mm. Still awaiting report…