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Given my dx, should I adopt a dog?
Okay, bear with. Last year was the sh*ttiest year of my life, bar none. My DH was dx with prostate cancer (now in active tx), I had my own crappy dx (in active tx), and probably the worst hurt was that we had to say goodbye to our own fur girl, Preshy, who had been in our family for 13 years. She was my soul. Got me…
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Are you currently (or have you been) in a Clinical Trial?
I am about to start a clinical trial and am wondering about the experiences of others. I'm feeling a little rocky and at sea, because I've been in the care of a wonderful oncologist for the past three years, and I knew without a doubt that his prime objective was the same as mine - to keep me stable and maintain a good…
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patty
Does anyone have info on Patty? Haven't seen her here for awhile.
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Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis
Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis Mar 1, 2024 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on embracing what matters after being diagnosed with metastatic breast cancer. Living with metastatic breast cancer can bring many changes,…
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Lobular Sucks!
Invasive Lobular Cancer (ILC) manifests very differently from the more common Invasive Ductal Cancer (IDC). It is considered an "old lady disease" and I should not be having to deal with it at my age, but here I am. It was difficult to scour the boards for patients like myself in order to learn from the experiences and…
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Anyone on TRUQAP?
Hi all, it looks like I'm going to be starting TRUQAP soon as an alternative to Piqray. However, it looks like TRUQAP and Piqray both come with some pretty nasty side-effects. I was hoping T would be easier than P. From what I've read, it sounds like Imodium AD may become my newest friend. Yuck! I was hoping for an easier…
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leptomeningeal metastasis
so I have been diagnosed with them (lesions in posterior cerebral fossa on cranial nerves and in spine). chemo changed for Enhertu trying to stave off a disease while the preparations for intratecal chemo via Omaya reservoir going. Looking back in the hindsight there were symptoms of it in August, just not visible on…
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Numb toes
I'm starting a new thread because I don't see anything recent in the discussions. I've been having a weird feeling in the bottom of my feet. I don't even know how to describe it. Now, I'm noticing numbness in the toes in my right foot—mostly the little toe. It doesn't hurt, and I don't think it's neuropathy like I had when…
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Enhertu Dose Reduction Results
Hi! I've had 8 infusions of Enhertu at the full dose level and have experienced side effects of fatigue and general crappiness, not in keeping with my quality of life wishes. Because of this, I'm seriously considering going to a lower dose of 4.4 mg. I can't find any data on how effective the drug is at this lower level,…
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opinions needed
So I'm highly hormone positive, but failed ibrance after 5 years. Got a new triple negative. Did carbo/taxol. Mastectomy, then new hormone positive mets after 8 months of xeloda. Doctor wants to do enhertu because she is worried about hormone treatment resistance and possible triple negative cells still floating around.…
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Life does not end with a stage IV diagnosis (really!)
Our sister, kayrnic, started a thread celebrating being 2 years (hooray!) out from her stage IV dx. I was thinking along those same lines when I read her post. So often, those newly dx'ed stage IV, think they've been handed an immediate death sentence and panic or plunge into some very dark places. This is understandable,…
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Surgery for newly diagnosed stage 4 MBC?
Hey there. Newly diagnosed with stage 4 MBC ER+PR+HER-, multiple spots in lungs. When the lump was first discovered the expectation was that it was curable as there was no spread and the lymph nodes looked clean - that all changed with the PET scan. So…question: The only option offered now is hormone treatment, but the…
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Little rise in tumor markers, terrified
Hi everybody, I know markers for somebody work, for somebody not...i'm talking about CA 15.3 Mine were high before the cure, and low when cancer was stable (i started Capecitabine September '23). they were always about 20/23. Now they went up to 31.7 Normality is up to 31, but the 35% increase really scared me. I have a…
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Changing time/symptoms, mets in lungs and spine
I am very new to having stage 4 metastatic breast cancer to my lungs and spine. I was initially treated as stage 2 in 2019, had surgery and radiation and was placed on Tamoxifen. In June 2023, I developed this persistent cough that wa making it hard to breathe. I had a PET and biopsy in August that confirmed my cancer…
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Lynparza High Liver Enzymes & Blood Glucose
This will be week 5 on Lynparza. I’ve noticed since I’ve started my ALT, AST & blood glucose are in the high range. Curious if anyone else has had anything similar. Diabetes runs in my family, would like to get ahead of it. My last A1C was normal but at that time I wasn’t on Lynparza. I’m going to vent; if I bring it up…
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Afinitor/Aromasin
I am waiting for my pills to arrive and fearful of starting a chemo after almost seven years of anti-hormones. I immediately started looking for info on this site, and the Afinitor topic was started in Jan. 8, 2012 with 35 pages of comments to go through. Do you think it is possible to start a new topic now that this med…
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Getting scan results today, scared
Getting scan results of bone and CT after 3 months of tx. Nothing really to compare them to, since I had PET and MRI for dx. I'm scared, and need reassurance. Thanks.
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tnbc mutated to hormone positive?
Has anyone had their tnbc mutate to be hormone positive? I was originally 99% er+ and 1% pr+. Then I was tn. Now I'm 95% er+ and 75% pr+! My understanding is that breast cancer usually becomes less hormone positive, not more…I'm not sure what to think…
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Battling triple-negative, non-hormone-sensitive metastatic breast cancer
Hello dear community, My name is Yvonne, I am 56 years old and from the Netherlands, and I am currently battling metastatic, triple-negative, non-hormone-sensitive metastatic breast cancer. After undergoing treatments with capecitabine and paclitaxel, my oncologists have identified Trodelvy (sacituzumab govitecan) as a…
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Scanxiety and accuracy of scans
Hi all, I am right now having tremendous scanxiety about two scans I had on Tuesday. One was a nuclear bone scan, the other was a CT scan. They were supposed to reveal progress (or progression) after 3 months of Fulvestrant and 300 mg of daily Verzenio. I never had a bone scan before. The stupid technician came in after it…
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Kisqali (Ribociclib), Faslodex (Fulvestrant), Femara (Letrozole) - is anyone on this combo?
After many years on Faslodex and Femara, my onc has decided to add Kisqali to the mix as my tumour markers are rising to the 100s although my ct scans appear stable. I haven't noticed anyone posting about this particular combination. I'm very nervous about the side-effects and I'd love to hear how people are doing. Is it…
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What’s on your bucket list?
I am currently working on my bucket list and it got me wondering what everyone else wants to see and do. My list below in no particular order. Go parasailing (done May 2018) Go on a cruise (done Feb 2019) Go to the Bahamas (done Feb 2019) Go to Jamaica Go to Hungary and Ireland See the Northern Lights See Hepcat (Ska band)…
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Skull mets
I was told back in the beginning of 2021, after a brain MRI, that I had skull mets to the calvarium. I wasn’t offered any treatment for them. I’m assuming because I had no symptoms. Lately I’ve seen a number posting about skull mets and having SBRT. Am I assuming if I had no symptoms and I’m covered from skull to femurs in…
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"What a revoltin' development this is."
When I was very young, my grandparents and I would watch a TV comedy, "The Life of Riley." The protagonist would turn to the camera at some point and declare, "What a revoltin' development this is" when something untoward had occurred. It always brought a big laugh from the soundtrack. Several weeks ago, I had a bone scan…
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Mastectomy after dx with liver Mets stage IV
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Curious about time to recurrence for Lobular (ILC)
Hi there fellow lobular thrivers, I was basically a De Novo Stage IV as I had progression shortly after I was diagnosed when I had just started neoadjuvant chemo. But I’m curious how long it was for others between their first diagnosis and recurrence to a distant (non-breast) metastasis. My theory is that the statistics…
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Experimental Inavolisib Seems Promising for Certain Metastatic Breast Cancers
Experimental Inavolisib Seems Promising for Certain Metastatic Breast Cancers Dec 7, 2023 If approved, the medicine may be an alternative to Piqray for treating certain cancers with a PIK3CA mutation. Read more…
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Piqray users, what is your experience?
I just started on Piqray and Faslodex after Ibrance and Arimidex stopped being effective. I am weakly ER positive and PR negative, so I can't say it was a complete surprise that at some point that would occcur. I would be interested in hearing from others how you are doing on this very new medication. So far, the only side…
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Argh, close to panic again
Getting some super strong scanxiety. Insurance denied PET (I guess because the first one didn't reveal any bone involvement, according to the denial) so they won't allow a PET. My MO wants a CT and a bone scan. The bone scan looks for c in bones, and the CT-well, you know what it does. I went from 1 scan scheduled for…
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Starting new medication (Xeloda ) today I live alone and worry what to expect.
Hi everyone I am starting on Xeloda today 7 days test run. I live alone and pretty nervous on what to expect. Can you share plese what I really need to pay attention to and what would be the signs if any to rush seek medical attention. Thank you .