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mets to lung
hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all barb
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Verzenio to KISQALI
After my original diagnosis and chemotherapy surgery radiation I did a clinical trial for verzenio for people who were not stage 4 I was on verzenio from December 2021 to October 2023 March 2025 I went to metastatic breast cancer I saw my doctor yesterday and she’s thinking that cancer may have come back when I was on…
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Anastrozole (Arimidex) vs. Fulvestrant (Faslodex)
Hi All - Does anyone know why an oncologist would treat with an AI like anastrozole rather than fulvestrant? I'm currently on anastrozole and ribociclib (Kisqali). For my initial diagnosis of Stage 1A IDC (HR+, HER2-), I had lumpectomy, radiation and started anastrozole. 6 years later (this past January), mets in my lung…
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Tips and tricks on addressing Side Effects
Hi, All As I am going through my treatment of mBC ILC I, like many others, have Side Effects that I’m trying to overcome to be on the treatment and lead my life as normal as possible. So I decided to post some tips that worked for me. When my recurrence was discovered during endoscopy I had small lesion in my stomach…
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Elacestrant (ORSERDU)
Starting this topic to share info about the new medication elacestrant. Elacestrant (ORSERDU) was recently FDA approved for ER+/HER2- MBC for patients with the ESR1 mutation. Just before it was FDA approved, I was able to obtain the drug through an expanded access program (thanks to WeninWI for the info!). The expanded…
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Doxil
stage 4 triple neg breast cancer Starting doxil soon. Telll me everything !💕 Thank you
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Guardant 360 testing
I didn't see a top for the Guardant testing so I thought I'd start one. Does anyone know what it means when the first Guardant test showed a PIK3CA mutation, and then ten months later, it doesn't show that? I might need to change my treatment if I no longer have this mutation!
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
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Capivasertib in Hormone Receptor–Positive Advanced Breast Cancer
Hello, I looked at this paper published in "The New England Journal of Medicine on 31.05.2023 with regards to Capivasertib. https://www.nejm.org/doi/10.1056/NEJMoa2214131 1. In general Capivasertib is AKT inhibitor for patients with AKT pathway–altered (PIK3CA, AKT1, or PTEN) tumors. It's given with Fulverstrant. 2. The…
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Abemaciclib Verzenio for Stage IV
Luckylegs and friends on Abemaciclib - I am bumping the Verzenio discussion in the hopes that more people have started abemaciclib. We need to get a community going. I have not started abemaciclib but it is on my short list. Like many I am very interested in how people do on this treatment do, both as a monotherapy and in…
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ELAINE 3 trial
just wanted to share with all those who have ESR1 mutation a comment from one participant. Looks like it’s working so there is hope for an approval. This is from a different site and a patient named Irit. Hi everyone, I promised an update on the clinical trial I participate in since March 2024, so here it is. The trial is…
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I guess it hit me today that my days are numbered
I’m not sure why today is any different than the last two months when I’ve known I’m stage 4 with bone mets and my days are going in the negative direction. Maybe because tomorrow is Mother’s Day, and as usual, nothing in the mail from my kids. I guess they aren’t thinking that this could be my last Mother’s day and that…
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A place to talk death and dying issues
This post is for those of us with concerns and issues about death and dying to talk about them. IF YOU CANNOT HANDLE IT, THAN GO TO A DIFFERENT POST PLEASE. We do not need people telling us to live life or to hear that other people have lived a long time, we have concerns. We are living life and would like for our…
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Tuesday night MBC group
A place to stay in touch during the week. :)
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TNBC Brain Mets - Looking For Hope
Good morning all, first time poster here - having trouble finding similar stories, much less successful stories, that fit the scary place I'm in now. Little background: diagnosed a year ago with stage 2 TNBC. Achieved PCR thanks to chemo — only to have two brain mets pop up almost exactly a year after my first diagnosis.…
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Trodelvy
Do i lose all my hair while treating with trodelvey?
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Sad News on our dear DivineMrs.M
I received this pm today. Though we all understand the inevitable, each loss still remains painful. I have known Camille for over a decade so this one hits particularly hard. “Hi everyone, this is Camille’s husband posting. I just wanted you all to know that Camille passed peacefully on January 2. My son and I were with…
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Afinitor/Aromasin
I am waiting for my pills to arrive and fearful of starting a chemo after almost seven years of anti-hormones. I immediately started looking for info on this site, and the Afinitor topic was started in Jan. 8, 2012 with 35 pages of comments to go through. Do you think it is possible to start a new topic now that this med…
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Diagnosed with stage 4 metastatic ILC
My mother ,who is 62 years old, was diagnosed with Invasive breast carcinoma favoring lobular carcinoma, Grade 2, NBR Score 6. Her IHC panel shows : ER - Positive, PgR - Weak positive, Her-2/neu - Negative, Ki-67-22% and No PDL1 expression seen. PET findings are Lesions in all quadrants of right breast infiltrating skin…
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Just diagnosed with ILC mets
Hi, all I had ILC back in 2008. Had radical mastectomy on the right breast and prophylactic on the left. Chemo AC→T, radiation and 7 years of Arimidex. 16 years later I am back in the game. Still in discovery phase. Had FDG Pet Scan that shows liver uptake, had endoscopy that shows little spot in the stomach consistent…
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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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Doxil
hi my name is Ashley I was diagnosed with stage four inflammatory breast cancer at age 28 back in 2021. I recently got changed to doxil on the 3rd of April and I can’t even keep water down. I haven’t ate in two weeks. This is the worst chemo I have ever had I don’t understand why I can’t even keep water down. I went to get…
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All About Doxil
As I haven't seen a specific page related to just Doxil treatment, I thought I'd start one because that is likely my next treatment progression and I've seen little discussion of it here. So, who has been on Doxil? What were the SEs? How did it affect you after the treatment, i.e. how long were you not feeling well or…
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CTs to Determine Circulatory Mets with Negative Nodes (warning - this is long!)
Warning - this is a book - LOL! I have just joined this group and really enjoying everyone's input on various topics, and sharing their journeys. I'm an mBC newbie, initially diagnosed in 2018 (post-meno) with Stage 1A HR+ HER2- IDC. I chose lumpectomy and radiation and started anastrozole after radiation (my OncoTyping…
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Kisqali/ribociclib, Faslodex/fluvestrant & Xgeva combo - Anyone?
I've been on this combo since Nov 2019. Since all treatment combos seem to offer their own side effects and challenges, I'd like to hear from others taking these drugs. Especially your experiences, duration of success and how you deal with the fatigue, itchiness, etc that goes along with this treatment.
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…
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Use of Signatera testing in stable disease
I just had my latest scans, and I am still stable with my current treatment plan- Lynparza, Lupron, Xgeva. In fact, the scan said "no evidence of metastatic disease in the abdomen"- I had tumors in the liver we were monitoring. I ask my MO if there was any way to monitor molecular progression- progression before it is…
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Enhertu
good morning wondering how many people lost there hair on enhertu ?
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Information on GATA 3+ Cancer
Hello Friends, Thank you for accepting me in the group. I am ER+, HER2+ and GATA3 +. I was recently diagnosed (December 12, 2022) with Stage 4 Breast cancer with metastasis to Bones, lymph nodes and spleen. My chemotherapy regimen includes Trastuzumab(once every 3 weeks), Paclitaxel (every week) and Zoledronic acid (every…
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Does anyone else still have their primary tumor?
I still have my primary tumor because surgery was not recommended at the time of my diagnosis. I have no desire for surgery but am getting interested in cryoablation. Just curious if anyone else has their tumor and what they are thinking. My tumor is deep in my chest wall and doesn't bother me at all.