CMF Question
Comments
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Happy New Year to all my CMF bc sisters and a very warm welcome to you, Susan. I am so glad that you are close to Carol. She'll be a great source of help, info, and comfort to you. The rest of us will help you in any way that we can.
We had a nice celebration last night at a friend's house. All of us quickly learned that we are NO good at Wi golf and not much better at Wi bowling! LOL Amazingly enough, we didn't get home until 1:30 a.m. and I was still awake! LOL
Dave and I took down the tree and Christmas decorations this afternoon and it looks so good to have the house back to normal. Now we'll just work at getting our life even more back to normal.
Rita
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Hi my cmf friends,
I am so sorry that it has been sooooooo long---after skimming quickly through reems of pages of posts, I realized how long--wow!!!
Yes, I did get the job. A very belated "Thank you so very much for your prayers and good wishes on this!" I actually wrote quite a lengthy post, after getting the job, but it vanished and I was just too pooped to re type it. Sorry.
Sending you some belated "Merry Christmas" and "Happy New Year's" wishes. I hope everyone, those finished treatments and those going through them now, had some good comforting time with family and friends!
So much has happened here. My thoughts and prayers have been with you all.
Rita, I'm so glad you got good results! Just in time to have a good Christmas and not have to be worrying about it---wonderful!
Carol, sorry that your port removal did not go so well. My scar area was sore to the touch for quite sometime. A few months ago it finally disappeared. So don't worry if it takes sometime, it will heal!
Annie, I love the photo of you and your family---gorgeous!
Jill, my prayers are with you that you get through this new treatment very well and very effectively! Bless you! ((((((((((hugs))))))))))))
Blessing to all the new ladies who have joined us here and are going through CMF treatments. You can do it! You have great support here and a great legacy of ladies who have come through treatments and are now 'THRIVERS AND SUVIVORS"
Hugs to Harley, Carol, Lisa....
Just a little update: I found out I got the job at about 4:45pm on a Friday and was at work for 7:30am on Monday! After more than 5 years of not working full time (I was a student for awhile, part time teacher, and yes the bc stint, as well as other non-related surgeries...) this has been quite an adjustment. For the first month I put in crazy hours (lots of 12-14 hour days and weekends. Part of my concern for accepting this job was that I would "jump in with both feet" like this---a work-a-holic pace for sure. Like I have done in the past. But I have vowed to myself and my husband, that I will achieve a more balanced pace, after the first month. Hopefully, I have learned some lessons from my bc---balance is so important! I have to remind myself now: it is ok to say "no", taking time to eat right, exercise and relax is vital, and try not to internalize the stress as much as I used to....I have to admit, as much as I am so thankful for this job (a job I really aspired to for about 15 years!), I am concerned about the impact of the stress, on my health. I work in a High School and it can be a very stressful environment. It also very strange that after having bc you see things so differently (like stressing over the small stuff is just not a good idea---and then you work with people who are doing this---and almost feel pulled back into it. How are you other ladies, who are back to full time work doing? Any changes in how you do your work? It is an adjustment, and it can be difficult because, we have been through this bc experience...but then again, that can fuel us! I truly feel that I have been given a "second chance" and aim to do my best to serve and love others, but again, within a healthy balance.
So I am hoping that we all maintain that healthy balance and life in 2009! May God richly bless you and your families with joy, peace and hope!
Love,
Ginny
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I had my 4th tx today. Went pretty well until the nurse had to stick me twice. She tried my hand and could not get it, but it hurt like he... She then was able to get it in my arm. Was feeling a little fuzzy and tired when the onc office called and said that I needed to come back on Monday for more blood work. She said that nothing was wrong (which I am grateful for) but that my blood coagulated and it needs to be done again. I am so mad. I have small veins and I hate to have to go back again after the hard time I had today. Has this happened to anyone?
I know that I should not stress over the little things, but lately everything is upsetting me. I had a bad day yesterday when I was by myself for a little bit. I was like I am just starting to feel pretty normal and I have to go again and do it all over. But I quickly remembered that this is what I have to do to get rid of this and my motto is that Someone is alway worse and I should be thankful that I can handle this and this what I need to do this to kick this. Well I hope that I can enjoy the weekend. My nephew and his wife have taken my kids for the weekend so at least I don't have to be always saying Mom is ok when I just want to lay down and sleep. Friends & Family are so great!!!
Susan - Welcome to this group. I am sorry you have to be a part of it, but I am also new to this group. Started tx on 12/2 and I am half way there. All of these ladies are great. They give so much comfort. You can vent and actually feel better after and they also always have good advice.
I hope everyone has a great weekend & SE Free
Colleen
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Oh Ginny! I am so relieved to hear from you! You had me a bit concerned! I am so glad that you got the job. It sounds like you have a good idea about the amount of stress associated with it and I'm sure you'll find the perfect balance! Are you actually teaching hs students and if so...what subjects? Please check in every few weeks...it nothing else just to say that all is going well!
Colleen, I'm so sorry you had to be stuck twice this last time. That sets the entire mood of the treatment, doesn't it? Just think, though, you're on the down-hill slide now, gal! Your emotions will be on a real roller-coaster ride now. Sending good vibes that you'll have no side effects and be able to rest up and enjoy your weekend. HUGS!
Harley and Annie...how'd your Christmas go? Did Santa bring you the perfect gift? LOL
Although I thoroughly enjoyed the holidays this year, I must admit that it's good to get back to a slower pace! I've misssed my recliner! LOL
Hope everyone is doing well tonight!
Rita
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Hey everyone....Happy New Year! So happy 2008 is behind us. It was a terrible year all around.
After coming home from my tx on Monday, I found out a friend of mine was killed in a skiing accident. He has left 4 children behind and he was so young. '08 really ended on a bad note. The year will begin with services for him. Needless to say, I am not my usual self thru this treatment. Not sure if its the CMF or a combo of everything going on. I did feel more nausea this time and little to no appetite.
Colleen - I do think it is the age. Mine (12 1/2)does get moody but this week she was terrific. She knew how down and out I was and just did so many little things for me that meant a lot. I bought a box of 10 puzzles yesterday and we had so much fun putting the 1st 500 piece one together. It was nice because with her busy schedule, we don't get that much time together. My son has been as good as could be expected but he has high anxiety and this week it was hard to deal with especially since mine its thru the roof.
Susan - Sorry you have to be here with us. Everyone has been terrific! I don;t know if I could have gotten thur this without everybody. I began on 10/28 and am half way done. I've had a pretty easy time with it.(I have to stop saying it because I may curse myself) I actually asked my onc if it was working because I felt so good. He assured me it was. Ask away with questions, someone will be able to answer.
Thanks again to all my CMF friends! You are all so Wonderful!!!!!
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Hello beautiful ladies:
Ginny, congrats on the job! That is terrific!
It sounds like everyone is doing pretty well in the main and I am very thankful for that for all of you.
Susan, sorry you had to join the club, but you won't be sorry you did! Some of the best friends I have ever had are right here, and the encouragement, support and caring (not to mention the great info) has been truly extraordinary.
Sorry, I have been so MIA..........firstly, shared computer, so I don't get it much!
. Chock full of family, college BF of my daughters' and his parents, new kitten, jealous other cat, the usual,, it's been nuts, but so much better than last year, that I am really thankful. I don't remember last christmas as it was just post surgery and I had had extensive recon work done, so was bombed on painkillers. I think I had fun, I'm told I did, .However, I vastly prefer this year, I must say.
I am sorry to read of bronchitis, Mandy, it's just smart to take a small break til you feel better. I hope you are!
Colleen, I am sorry about the sticking issue, I have small veins also, and I think I'm pretty immune to it by now.......I always had a gigundo vial of blood each and every time, still do. It's a necessary evil, it's a useful info for you and for them so that you can remain healthy thruout chemo txtmnts.
Julie, I did have to laugh, sounds like too much christmas for your little one, I'm glad she was running around again quickly. I'm really sorry the drains are there, but remember, it's giving you the best chance of success this time, right? They do an important job for you, better to get drains, pains in the butt that they are, than to have something go amiss. Here's hoping it all goes really really well this time. I have my PS consult on the 5th and will see what can be done, tho I have to get "spayed" in March now, as the lupron is disagreeing with me. I guess that will delay stuff somewhat.
Jill, as always, I continue to pray that this time, they cream that sucker. I have a good feeling this is the lucky time. Same thing happened to me, apparently, that HERNeu2 got a tiny start and they missed a titch of it the first time and it grew. So I hope this time is it for both of us.
Carol, as always, you are very inspirational. I have been overeating, having christmas fun and goodies, and I need to reprioritize health again. A little fun at the holidays is a good thing, but I have to seriously get my ass in gear again, so I thank you for pointing out how lucky we are to be here to celebrate, and how important it is for us to prioritize our health. i wish you lived closer, tho 60 miles would put me into a cart for you to pull along and no help whatsoever.
Rita, I hope you had a ton of fun with the family when you saw them, and as always, you are also such an inspiration to me....I did not get all freaked out when I got out of the bed and the old feet hurt for the first few minutes from the arimidex, as i know both you and Carol had mentioned it.
It's actually rather convenient to blame everything on the arimidex, isn't it, or else menopause.
.Lisa, what a lovely photo. Makes me remember to stop and smell the roses. thank you!! What a talent you have.
Colleen, Scarp, Harley, everyone else I did not mention..........happy New Year to you all and blessings on your health and families.
Gotta run, Rock Band is blasting away in the other room with the new version and all i can hear in my head is "you got the beat" by the Go Gos. Yikes!!
xoxo
annie
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Susan,
So glad you found this thread! I told you that the ladies here were the greatest!
Happy New Year, everyone!
I haven't been posting much lately, but I log in and read when I can.
Ginny,
So glad to read about your new job! I am hoping that 2009 will bring a new job for me!
Annie,
So glad to hear from you!
Rita,
Thanks for asking... my Christmas was wonderful!
Mandy,
Happy to see you are still posting! Hope you are feeling better.
Colleen, scarp, Julie, Jill, and anyone I left out...
Wishing you all a Happy & HealthyNEW YEAR !!
My only news is that my furbaby, Spike, has been coughing and sniffling. The vet thought he had Feline Herpes Virus, but we are not sure that is the correct diagnosis. So today, we drove to PetSmart, and bought him some different food. When his brother was dx'd with F.L.U.T.D., we switched BOTH their food, even though Spike was doing fine on the other food. So now, over a year later, and after noticing more sniffling, we have been giving him L-Lysine, but tonight, we will start his 'natural' food again. We used to feed them Blue Buffalo dry food and Purina Pro-Plan canned cat food. Spike really liked it and I think he did better with it. So we shall see!
Hugs to all!
Harley
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So the holiday festivities have come to a close around here. We topped it off last evening with a fondue dinner (steak, shrimp and scallops) and then fruit with chocolate for dipping to cap the evening off with friends. What a fun dinner as it takes longer than 10 minutes to eat ... although it leads to a bit of extra wine drinking for some, (thankfully the dh and not me this time)! I had gotten a massage just an hour before our guest arrived so I knew in the back of my mind that I should have been drinking a lot of H2O.
Today we de-Christmased the house. It was quite nice to have the dh help out. In the past he usually handled the outdoor decos and I did the indoor. This year we opted not to do the outdoor lights, so his extra help getting everything stowed away in the attic was so great. This afternoon I'm just in heaven knowing that we have no social engagements to attend and no entertaining to gear up for. The calendar is looking pretty blank for the month of January. Time to focus on eating a bit healthier, exercise and my general well being. I'm looking forward to getting back in the groove of Yoga twice a week and I'm also scheduled with a massage each week for the next 10 weeks (with my insurance picking up the tab). Although most of my discomfort from that darn Femara is in my joints of my hands, elbows and shoulders I'm thinking that trying to alleviate the knots in my muscles especially in my neck and upper back could be helpful. I saw a new massage therapist as she is contracted with my insurance co, and I seemed to really connect with her. She is very familiar with bc patients and the whole le issues as her mom is a bc survivor and has had a mastectomy . She was very informed about ER/PR status and the use of Tamo/AI's etc, and the possible se's of them.
Rita, so we both stayed up to bring in the new year, we ended up getting home at 1:30 as well. You playing Wi Golf/Bowling and us shooting some pool and playing ping pong. We had no intentions of staying so late, but before we knew it we had less than an hour til midnight. Talk about screwing up my sleep pattern with a major sleep in on New Years Day and then trying to go to bed early that night for my 5:ooam wake up for work the next morning.
So today the dh went golfing with our good friends, I chose to pass as it was all of about 40 degrees out. Hmmmm, sitting in front of the fire or freezing my hind end off on the golf course. I'll save my time on the links for AZ in the spring or give that WiGolf a whirl !!!
Ginny, I'm so glad you popped in to let us know how your doing. Busy as ever sounds like a good thing, with balance of course. If your able to just fire off a little update every now and again that would be great.
Colleen, shucks gal, sounds like this last go around has been a bit tougher. Keep hanging in there which I know you will, seems to me that there we're some txts that we're a bit tougher than others with no real rhyme or reason to it. Remember to make sure your as well hydrated as possible before getting poked. Remind me of this next month will ya, I will be having my first infusion of Zometa not using a port (YIKES)! That was kind of your nephew to help out with the kids, you'll look back and remember those acts of kindness fondly.
Scarp, what can I say ... my condolences to you. This thing called life seems so unfair at times. I'm sure that trying to deal with chemo on top of the emotional ride of losing someone you loved is beyond tough. I hope that the start of a new year will soon bring you happiness.
Annie, there you are ... I was hoping that you we're busy with holiday fun, and it sounds like you have been. I'd have a hard time sharing the computer although a bit of a break from it might not be a bad thing for me ! So is college daughter back in school next week?
Harley, thanks for sharing the info with Susan in regards to this post. I gave her a call a couple days ago, I hope that she will continue to use the posts as a support system when needed and that she will feel at ease to phone me as well. This network is an incredible thing !!!
Jill, I'm thinking your in Laughlin with dd and Mom and hoping that your having a blast of a good time.
Well, as with Rita, I'm totally a happy camper to have found my recliner this evening, and even more hyped to have no plans on the agenda for tomorrow. Never knew how much I can enjoy some down time.
A pleasant Sat night to all, Carol
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Oh Carol, your massage treatments sound so good. I've contracted a cold that just won't go away. Besides the Arimidex aches, I now have the usual cold-related aches also and a massage sounds so soothing! How lucky you are that your insurance pays for them!
scarp..so sorry to hear about your friend. I lost a really good friend a few months ago. It's so tough and I feel your pain. I think we are extremely emotional during our chemo months anyway. You are so right...we are not our normal selves at that time. HUGS!
Harley, good to hear from you. I'm glad that you had a nice holiday and hope that Spike improves with the diet change. Isn't it amazing how attached we become to our fur babies? My inidoor cat is curled up in his basket right by my feet. He's such a comfort.
Annie, it sounds like you've been busy with your family and that is so nice! They grow up way too fast, don't they? Didn't it feel good to be able to enjoy them and the holiday season this year? Colleen, you will be thinking the same thing next year! It's quite a journey but there's sunshine at the end of the trip.
Carol...wise lady! I would have opted out of 40 degree golf, too! LOL
Well,I need to tackle some laundry before it's time to go bowling this evening. We are really enjoying this mixed couple league on Sunday nights. Unfortunately, we are continously fighting for last place! It's a good thing that it's fun!
Gotta get going! Hi to everyone. I hope you are all doing well today!
Rita
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Carol,
I'm glad that you live close to Susan, and can help her through her tx.
Rita,
Sorry that you have a cold! I hope you are feeling better soon!
Thanks for the warm wishes for Spike. I feel so helpless, because I don't know what is triggering these episodes. The vet thinks he has feline Herpes virus, and it will remain dormant, but stress will trigger it. The only problem is that we are out alot, and I guess that is a stress factor for him. When we went away to visit my siblings a month ago, my MIL stayed with my cats, and she said that the first day, Spike was coughing alot, and she said she was scared. But after the first day, he was ok. She thinks that when we are gone alot, it causes problems for Spike. I feel guilty. I love him, but if I get a job, I'll be gone even more.
Spike & Thor were such a comfort to me, while I was getting my tx. They are really a part of our family!
Thanks
Harley
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I have not posted in a few days. This last tx has really kicked my butt. I have been in bed since Friday night. And I still do not feel good. I had to go back today and give more blood. The sample they took on Friday was not good. The nurse said if I was still feeling bad tomorrow to call the onc. The nausea is bad this time and I am not really sleeping that well. So being so tired and feeling sick all day takes it toll. I just hope this goes away soon because I will be going for tx #5 on Monday. I hope this was just not a good one and not a look at how the next 4 will go. I am glad everyone had good holidays I am looking forward to a better weekend.
Think I will try to sleep again,
Colleen
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Hi Colleen!
I sent you an email, but I want you to know that I am sending you a cyber hug as well.Feel better.
Mandy
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Hi CMFers...
Colleen, I too had trouble with #5 and #6..I think it is cumulative..actually, for me I know
it was...they have better nausea meds now than when I was going through it eight years ago
now..I had all my friends who flew grab the air sickness bags out of the seat backs and bring them
them home to me to keep in my purse..Hope you are feeling better..make sure they check your liver
funtion blood tests...
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Colleen: Sorry to hear you don't feel well. You're 1/2 way thru. #4 waa tough for me, too. I usually feel great by day 3 but it took until day 5 to feel good. Be tough! Rest as much as you need. I know its hard but I'm sure the kids are back in school. Who cares if the laundry gets done, right? Have you thought about pushing the treatment further apart? I know you want to get it over but it may not be worth it. I just so look forward to march 23rd...my last day.
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Oh Colleen, I'm so sorry that you're having a tough time. Scarp's idea of pushing the next treatment back might not be such a bad idea.....something to ponder anyway. I'll send good vibes your way as well as lots of cyber hugs!
Rita
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Good evening ladies!
Sorry it's been a while for me checking in as well, My DD, mother and me had an awesome time in Laughlin. We did'nt win anything, but it was nice spending time together. To be 21 again!! I had my appointment for my upcoming tx. and will start on the 16th. 12 pills a day- 2 weeks on 1 week off. I'm hoping this this will be what kicks the cancer right out of me!!! The thing I don't look forward to is he still wants me to get my bloodwork done weekly. Without a port and my poor veins, it will not be fun.
Last night I meet up with a few ladies from the Phoenix area for dinner from this website, and it sure is a small world!! We were talking away and one of the gals said she has a cousin that posts on the Illinois thread and her name is RITA!! She is such a sweetheart and I can see how you are related!! It was nice getting to know these ladies and we plan on meeting once a month.
Well got to go clean up the kitchen dishes.
Talk to you all soon.
Jill
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Jill,
Glad to hear that you are doing well. I wish I could have met up with Rita's cousin!!
Rita,
Just wanted to give you a quick update... I got a call from Reach to Recovery! My trainer called with a referral. I called her, and she lives nearby, in N. Myrtle Beach, so we are going to meet on Friday for lunch!! We talked for about 40 minutes. She was happy to talk to someone who had been there, done that... It will be nice to help someone who is newyly dx'd.
Hugs
Harley
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Harley..good for you...I really appreciated my Reach to Recovery lady..she was very nice and came out to my house with goodies and a great helping attitude...more power to you!!
The ironic thing was that the gal who was sceduled to meet with me was on a trip to Chile and couldn't do it...as it turned out she was an old friend of mine who had moved away...
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Hey, Jill! You are right! It is a small world. You are in good hands if you've discovered my cousin, Sue. I hope she told you the story about how we met again after many years because of bc. I'm glad that you've found an "at home" support group. That really does help. I will be keeping you in my prayers as you start this new treatment plan. I think you're right. This is the one that's going to kick that crap right out of your body!
Keep us informed.
Rita
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Hi All!
I just want to thank Juliechicago for messaging me with a suggestion for my nausea. I had my third tx yesterday and took her suggested pills of Emends and Kytril. So far I do not have the nausea that has plagued me after chemo. I thought I'd put those medications out there for anyone else who might be having problems controlling nausea. I am also going to try some acupuncture to see if that reduces the chemo side effects of which I am having many. It sounds wonky, I know, but my internist confirmed that some of her patients have found that it helps them. I will report back.
For everyone else who is on thie journey right now, I hope you breeze through without side effects.
And for Jill, I am sending you healing thoughts that your new treatment plan will be the one for you!!! Lots of people have more than one treatment plan and do great.
Thanks to all for your support!!!
Mandy
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Hey all today is day 6 and I am finally feeling much better. I did sleep well last night, so I am up tackling the laundry and other house hold chores that I have neglected. I have thought about moving my tx further apart, but then I would have to come off the trial and everything would be pushed back. I really would like to be done with tx in Feb and my surgery is scheduled for March 23rd. I figured by mid spring I could return to somewhat normal again. I will see how the 5th tx goes on Monday and I am going to talk to the onc and tell her. I am hoping that I had such a rough time because I was run down from the holidays! Hope everyone has a good day.
Colleen
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Howdy Ladies,
Well its back to the normal week, no holidays, snow days, and plates of sweet treats at the lunch table here at work. Hit the gym after work yesterday, yeppers ... the place was packed with the New Year's Resolutioner's. I am going to try my darndest to not fall into that category of pooping out after a few weeks.
Susan, thinking of you, I have this hunch you are armed and dangerous with your list of questions for your lengthly doc appt today. I'll be looking forward to hearing what you find out, give a shout out when time permits.
Jill, although you did not bring home any big jackpots, sounds like your weekend was splendid just the same. So did I read your post correctly, "12" pills a day ??? Holy smokes gal, do they suggest a ton of water on this regime as well? Is there a chance your weekly bloodwork will be done with just a finger poke? You're a trooper gal and I know you will put on your "big girl panties" and conquer this once and for all.
My goodness, it truly is a small world after all. Meeting Rita's cousin, I couldn't believe what I was reading. I'm glad that you have found some local gals to chat with, there is something about that eye to eye contact with those of us walking in like shoes.
Did you ever get a PM from a gal in Chandler looking for an oncologist? I had notice a post one day a few weeks ago, and I mentioned your posting name and told her you might be of some assistance.
Colleen and Mandy, shucks ... here some of us told you gals that nausea was not a problem and then whammo, you've both had some issues with it. I hate to beat a dead horse but have you been taking your "anti" nausea pills all of the time or after the nausea hits? Hang in there ladies ... I can see the light getting brighter through the fog. Hopefully your both feeling better as I type this today.
Harley, its great that you are finally getting the chance to meet with a Reach to Recovery trainer, that has been a work in progress for you.
Rita, have we recovered from your nose full?
Aahhh, work calls, off to be useful ...
Hugs to All, Carol
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Hi Carol
Thanks for the good wishes. I did take my nausea pills as directed and they just did not work for me. That can happen sometimes. I don't believe in toughing it out. But yesterday they changed my meds to kytril and emends and wow....no nausea! So it can be the meds and if they change them, it may make a difference. I would encourage anyone with nausea to complain to the onc.
Have a nice day.
Mandy
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Hi gals! I'm still sniffing and snorting so I'm off to see my primary care physician in a few minutes to see if she'll prescribe something for this sinus infection. I hope...I hope.....
Mandy, you are right to try different anti-nausea meds as we are all different. The Kytril did not work at all for me but the Compazine did if I took it immediately after the treatment before the nausea got started. I guess that is why they have so many different kinds of meds.
Colleen, so glad you are feeling better today. Take it easy and don't push too hard yet as you are getting some serious doses during your treatment. Be kind to yourself. The jobs around the house will wait, and if not, it's time for a family meeting! LOL
Harley, I can't wait to hear how your first Reach to Recovery Consultation goes. I'm so glad that they gave you a case and so disappointed that the program is so rotten in our area. I was so excited about the training, etc., and have still heard nothing..........zilch! You'll have to tell me all about it.
Carol..I hear you! Time to get back to the routine and the good diets and exercise. I'm using this sinus infection as an excuse but hopefully I'll be pretty fit again in a few days and can dig into a routine and program, too.
Well, I need to get my stuff together for my appointment.
Catch you all later.
Rita
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Rita,
Thanks! I was so happy when my trainer called, with the information about my new consult. The trainer/co-ordinator is very nice, but when she said "I know that you are happy to be getting a call, even though you are not happy that someone has been dx'd with bc." I felt like I couldn't be too happy, because it meant that someone new was dx'd.
We talked for about 40 minutes, and it was nice. When I was trained, I was told that we are not supposed to talk very much, because it is about THEM, but she kept asking me questions about my bc experience, so I wound up sharing alot of my experience with her.
I hope you are able to get something to help get rid of your sinus infection. I think mine came back, and I am not sure whether to get my new Rx filled, or to wait for my pcp dr. appt. on Monday. See I still wasn't feeling quite up to speed on Dec. 26, so I went to see my pcp dr. again, and asked for another Rx for the z-pac. He gave me a new Rx for it, but I felt better on Dec 29th... so now, I am feeling like it's back again. What should I do??
Hugs
Harley
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I am officially joining this group as I started CMF today. So far, I feel fine! I have to go in weekly for the M and the F and take the C orally. I down, 23 to go I guess.
Overall, I am very happy to have chemo. I was worried because my oncotype is in the grey area, but my oncologist left it up to me to decide but said she would do CMF if she were in my position, so there!
This thread has been wonderful to read and help me get ready for the next 6 months!
Susan
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Oh Susan, so sorry that you've had to start this journey but so glad that you found us. The gals on this thread are great sources of information and have some of the largest hearts in the world. We will help you through. Hopefully you will just breeze right through those treatments!
I was in the gray area, too and debated about chemo but decided that I wanted to give it my all the first time around in hopes that I never have to face this again. I knew that I would be one who would always wonder if it ever came back and I hadn't gone the chemo route. CMF is pretty doable....it's not a walk in the park but you can do it! Some have had almost no trouble with it.
Best wishes for an uneventful chemo experience. We are here for you..........whether you need us or not!
Harley, if you think that your sinus infection is back, get something for it before it gets as bad as mine. I'm playing catch-up on it. I came home with four different prescriptions. YIKES! Something for the infection; something for the drainage, etc., etc. I swear I seldom took any meds before this journey. Now I chug them down like a pro! LOL
I'm so glad that you're there to help the new gal in your area. They also told me not to talk about myself much but I really think that they do want to know how it was for you and want that assurance that they will be O.K., too.....that the journey is not a walk in the park but is doable. I'm sure you helped her so much!
Well, I'm drugged up for the night so I'm actually skipping the recliner and making a bee-line directly for the bed tonight. Hopefully, I can sleep!
I'll check in tomorrow!
Rita
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Holy Smokes Susan ... talk about not wasting any time getting started ! I remember that while I had my visit at SCCA they talked about the weekly infusion schedule to me as well. Since I had decided to get my txt on this side of the pond, I chose to go with the regimen that they we're familiar with which was over a 6 month period, but had 15 days of chemo holiday each month.
So refresh my memory, do you have any off time from the oral cytoxan? I'm assuming that you got the run down on all the particulars of possible se's ... yada, yada but remember that if you want to fire any questions off of us we're here to offer what knowledge/experience we have had. Trust me, no question is off limits here ... I swear I talked about my GI tract (for lack of a better words) on a "regular" basis !!!!!
I'd love to chat it up in person as well when the time is right for you.
Carol
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Hi! I haven't been on in awhile, but thought I would check in with my fellow CMF'ers. I am curious to know if anyone currently on CMF knows their dosage amounts. I am trying to figure out why I need 12 treatments when others seem to be getting less. I thought if I knew how much of each chemical an individual was getting and how often, I could build a case for myself and discuss it with my onc. I figure every doctor has his/her own idea of which is best, but it would be nice to know how all you guys are doing with your treatment plans. I take 2 tx a month, then get 2 weeks off for 6 months. 1200mg of C 70 mg of M, and 1.075 mg of F . Any info would be greatly appreciated!
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swm63 - I don't again until the 20th so I'll find out then. I go once every three weeks for a total of 8 rounds. All of mine are thru IV Only 4 more to go!!!!.
It is strange how 5 of us are undergoing tx and all 5 of us are doing it differently, I know Mandy is more the same as me but she will begin radiation before her tx is done. My radiology onc. said no when I asked. Colleen is dose dense . Susan goes in Mon/Fri for the M and F and takes the C orally. You have 12 treatments......
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