CMF Question
Comments
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Hi everyone:
First, a shout out to Carol, what a wonderful birthday surprise I got!!! Those chocolate covered (or decorated) strawberries were a beautiful treat......you are incredibly thoughtful and I thank you. I also sent you an email, did not want to call you at work but thank you so much.
Please everyone send good mojo and prayers for tomorrow at 1:15 for the "all clear" for the MRI. Hate these damn things, but it is a necessary evil.
Hoping to get back on here with GREAT news.
love you all
annie
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Hey Rita, are you alright? I notice you haven't been on in a few days or so and I am hoping that that sinus infection is not giving you anymore trouble...post when you can so I know all is well.
I got it wrong, I am on for 1:45 tomorrow. Airmidex lack of brain.........................
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Annie....sending prayers and good vibes your way today for a clean MRI. HUGS. Thanks so much for checking on me. You are such a sweetie. I am sitting here with that Prednisone package in front of me, still debating. Isn't it funny how paranoid we get about meds and side effects after our little journey? I probably should just "bite the bullet" and start taking them. I'm much better than I was last week at this time but it is not gone and I still have alot of the drainage, which then makes me cough. YUCK!
Carol and Susan.........so glad you got to meet. Isn't it amazing how much you have to talk about? When Ginny and I met in Chicago, all we did was talk. We ate, had a celebration drink, and talked until it was time for me to leave. It seemed like we'd known each other for years.
Carol, we are heading west in late May. We are going as far as Vegas (which is WEST to us! LOL) We hope to see some of Rocky Mountain National Park, the Royal Gorge, Zion National Park, the Grand Canyon and Carlsbad Caverns. We'll probably be in Vegas for three or four days. It's going to be a pretty unplanned trip. We are driving so we can stop and see whatever strikes our fancy. We're throwing the golf clubs in the truck and just taking off. The only scheduled days will be in Vegas so we're sure we have accommodations. I also have a friend in Scottsdale so maybe we will get into that area, too. We're looking forward to it. I love this part of the country and Dave has never been "WEST." We plan on being gone for 15 days.
Well, I need to get moving.....
I'll check in later to see how Annie got through the MRI. It's really cold here....sub-zero temps so it's a good day to stay in.
Rita
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Hi ladies!
Well, all scanned and the worst part was just a crick in the neck. Of course, my ear plugs fell out, and being me, I find this funny, so had to try really hard not to laugh and stay still. They said results to my onc in 2-3 bs. days, so i hope that's good. Last year at this time, we got home to an already beeping machine with major bad news, so I hope that anything they find if they have anything to find, will be one of those little benign things, or even better, dare to hope........nothing.
thank you for all your s upport as always, you guys are just amazing. Carol, your phone call this AM really lifted my spirits. You are a blessing. (and an amazing strawberry goodie giver) Boy those were great!
Rita, I am glad to see you. You sounded good yesterday, maybe you could even bag the prednisone at this point. As we chatted yesterday, I took the 6 day, so did my daughter, it seems a popular route to take to get someone back on their feet really quickly. I took it for the bronchitis I could not shake, she took it for pneumonia. Both of us felt great so fast it was a bit scarey! But no weird or ill effect at all. Good luck, and I hope you continue to improve, as I know you will.
Does anyone besides me and my admittedly overactive sense of humour find it hilarious that your hoots hang down thru the MRI like a milking stool? My god.
Anyway, best to go see about dinner and feel that little feral beast upstairs. She is growing like a weed! Love to everyone, I'll post results when I get them.
The one thing this experience "the year after" has done for me. I am 1000000 percent getting a prophy on the other girl. I've had it. No more. They can give me a holly wood pair and be done with it. I am so damn lopsided I should be walking in circles and whether there is anything in there or not, given the HER2neu status of the 1ast occurrence, I am so DONE with having this anxiety in my life. It does give one complete clarity on that!
love you all
annie
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Annie - Sending good thoughts and prayers your way for great results. I have not been on in a few days. Again was not feeling very well after tx 5. Same se as before tired, nausea etc. The kids schedule has been pretty busy also. Today is day 5 and I am beginning to feel better, but still really tired. My mom saw the onc yesterday - the only se she is having right now is extreme fatigue. She sleeps most of the day. Her blood count was pretty good and they will recheck again next wk. I will go back on Thurs. to have blood ck and see if I can have 6th tx or I have to wait. I not sure what I want anymore. I want it all to be over, but I am tired of feeling so blah... I just seem to get a little energy back and it is time for another. So maybe it would not be the worse thing to wait. But we will let the blood decide. Sending out good thoughts to you all to have a nice weekend. And if your live in the frigid zone like here in NY stay warm.
Colleen
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Annie...so glad that things went well during your scan....except of course for the ear plugs! You are so right. The anxiety is the worst. I thought about you all day yesterday! HUGS!
I did start the prednisone yesterday. I took the first six tablets and haven't noticed any difference. There's been no side effects and really no change in how I feel yet. I may be coughing a bit more so maybe it's trying to help rid my body of that mucus. I guess we'll see what today brings. Thanks for giving me the nudge that I needed to take the silly pills, Annie. If I hadn't talked to you, they'd probably still be sitting on my counter in their nice little wrapper.
I hope all of you are staying warm. It's really cold here today and I'm worried about my outside fur babies. They both showed up to eat. Poor Roscoe, the black, short-haired male, had white frosted whiskers. I warmed up a little milk for both of them to have with their regular food. I do wish I had a place for them to get in out of the weather.
I hope all you gals in treatment are doing well. I think the winter is the best time to have treatment (if indeed there IS a best time) because there's so little you can do outside in so many parts of our country. Most of my chemo was done during the winter and then I was ready to enjoy the summer.
Well, I need to go into town today to buy a birthday card for a friend so I need to get moving. Half of the morning is already gone!
Catch you later!
Rita
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just popping in to let everyone know...............scan was NEGATIVE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Thank you all soooo much for your prayers, good vibes and good wishes and your love and support.
(still going for a prophy ASAP anyway as after this stress, well, who needs it.)
more later and love to all
annie
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YAY!!!!!!!!
Way to go Annie!!
Mandy
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Annie - Such great news! I am so happy for you and your family.
By the way, I thought the same thing at my MRI about the milking position - one of the wierder tests - my wire guiding was up there in a bit too up close and personal. Thank God I was out for the surgery.
Have a wonderful weekend - certainly will help to have the results back and so positive!
Susan
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YEA ANNIE.............Time to celebrate BIG TIME!!! Hugs and vision of good cheer are heading east to you! So glad to hear this good news.
Love ya......
Rita
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Annie
So glad that your scan was negative!! YIPPEE!!
xoxo
Harley
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Oh Harley, I love your avatar. You're a DOLL!
Rita
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Annie - I am SO HAPPY FOR YOU!!!!! You must be so happy!!!! Have A Great Weekend!!!!
Hugs,
Colleen
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Annie, I'm cheering your good news as I type ... Here's to you gal !!!
I'll be back this weekend ... Out the door in a couple of minutes.
TGIF ... Carol0 -
Thank you all ladies, what I'd do without your wonderful support, I cannot imagine.
Harley!!! Your hair is gorgeous!!! Wow you are a pretty lady, I knew it from the other photo, but it came out really large on my computer and this is more in proportion. Don't you look darling and like you feel well, too.
Carol, again I thank you for that so sweet gift. What a kind person you are.
Rita, how are you feeling these days? Getting the better of that nasty infection?
Colleen, thank you, how's your mom doing? And you?
Thank you Susan and Mandy, thank you for the PM, you sound like you are feeling so much better!
Where are we at in txtments girls? (I mean how far along?) And what do we all have planned to "reward" ourselves at the finish line? Books, videos, chocolates, dinner out, etc.? It'll be a big day!! And of course, you'll get there and you'll all beat this.
Jill, if you check in, I am thinking of you on Sunday, starting your new regime. I believe with all my heart that this WILL DO IT and conquer it once and for all. Sending lots of love and good thoughts your way. Holding your hand here in freezing CT. on Sunday.
Ginny, love to you across the miles and I hope that job is going well.
Rita, I hate to be a pest, but would you mind sending me the CMF contact sheet again? I lost it somewhere under the mess that I like to call a "kitchen table" euphemistically.
love
annie
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Ah crap, I just lost another long post! This is beyond frustrating.
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Annie, WWWOOOOOOHOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! What fantastic news! I believe "Happy Birthday" is also in order!!!!!!!!!! A great gift! I am so happy for you!
Rita, I hope you feel better really soon, sniff, sniff.
Harley, love you pic, so cute.
Carol, you always make me laugh.
Jill, so sorry to hear about the loss of your FIL. My prayers are with you and your family. Your kids look so sweet---bet they must be such a great light and joy for you!
Ladies going through CMF, hang in there, you are going to get to the finish line, as we all did.
Re: nausea: take whatever meds help (find ones that work for you), and keep taking them on a schedule
Re: Hair---The advice here has been great---use a good conditioner (for the dryness), don't blow dry very much, or at all, try a shorter cut if you don't like how thin it is getting (towards the end)--you might just end up really liking the change
Sorry, this is rush and so condensed compared to the post I just lost.
Have to get to work now on some school stuff. This year will be crazy busy, as it is a new position----but I am so loving it and am so thankful for the blessing of this job, and the fact that I am here and able to do it! God is so good!
Love and hugs to you all!!!
Ginny
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Great news Annie!!!! So happy for you. I just got the slip from the surgeon for the 7 month follow up. It stated to get my testing done prior to the appointment. I need the MRI, too. They said to get it 6 months after surgery (8/8). I was fortunate with my first one because they let me hand deliver them to the radiologist and got the results the same day.
Go for my next TX on Tues #5.
So darn cold out I can't take it any more...my toes need to be in some warm sand somewhere.
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Thanks for all the nice comments about my newest pic. I am not a 'shutterbug', and I don't take too many pictures, especially of myself, because I am not very photogenic! I have to prepare myself, just to get a decent looking picture.
Carol,
Cool to see you on Facebook! Thanks for "friending" me!!!
HUGS to everyone,
Harley
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To all the ladies who are currently in treatment:
It WILL go quickly, you may not think so now, but once you are finished, you'll look back and say, WOW! I can't believe it went so fast!
Good luck to you all!!!
HUGS
Harley0 -
Good Sunday Morning ...
After couch potato-ing all day yesterday, here I seem to be sitting again. The sun is shining brightly here in Poulsbo, but as I found out the hard way, our deck is a sheet of ice this morning. Thankfully it is a 3 day weekend for myself, so the guilt factor of not be too productive is relatively small !!!
So what's been happening ...
Jill, I believe today is the start of the meds that will once and for all knock the heck out of those pesky cancer cells. Here's hoping that you tolerate the txt well, enough is enough ya think?
Rita ... I'm hoping that your nose full is subsiding. You really got yourself a doozy ! Is it warming up in IL yet?
Your trip West sounds delightful, a game plan without a firm agenda. Golf in AZ is in true abundance and the rates in May are reduced. I sure wish that the timing we're a bit different. We'll be in AZ once again in the later part of March, and I'm planning on going to Vegas to meet a group from the Jan 2008 chemo group in mid July.
Annie, I could only hope that my hoot would/could hang down through the MRI machine !!! I still cannot believe that with my tiny hoots, I ended up with cancer in one of them !!!
Colleen, hang in there gal ... you can get through your last treatment. I know you want to be feeling chipper, but listen to your body, if you need to kick back and rest, try to do so. You getting so close to being done, before you know it you'll be trying to remember just how you felt during these times.
Harley, I love your new avatar pic. Its so nice to look at those smiling faces when I'm typing away.
Just what I don't need, another excuse to be plopped on the computer with Facebook. I kinda got into it yesterday big time. I guess it's a good wintertime activity !!!
Ginny, glad you popped in ... as far as losing a post ... I have almost put myself in the looney farm when I'd lose a post that I had spent too long typing. I always type in a word document now and cut and paste. My dh had heard me bitching and moaning too many times when I'd lose my post !!!
Susan, 2 down gal ... hope your feeling well this weekend !!!
Scarp, wow so you are already heading in for #5. I guess when your not in the txt shoes, they seem like there flying by for you gals.
As always, I check the post often ... hoping those in the East are staying warm. Will be watching some football ... have to go with AZ and The Ravens as my picks today.
Hugs around, Carol
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Good evening ladies,
First off- CONGRATULATIONS ANNIE!!!! What wonderful news. I had to laugh at your comment.
Carol- I've been a couch potato myself this weekend. Started Xeloda this morning (3 horse pills) and will take 3 more this evening along with Tykerb (5 elephant pills). No SE's has of yet and hope it stays that way. Apparently diarahha (sp?) is one, as I had the opposite on CMF. I'm on facebook as well, but still a beginner.
Harley- Love your new picture- I'm still trying to figure out how to resize a picture (make it bigger) before adding it as your avatar.
Rita- Your trip out west sounds like a lot of fun. Someday my DH and I wouldd like to drive to Michigan. We will!!
Well gonna go see what I can make for dinner- may just be another cereal night!!
Talk to you all soon
Jill
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Just popping in with quick note. Survived the rough week- wake, funeral. DH and I treated ourselves to a babysitter and sushi Saturday night. Felt like exhaling. Thank you for all the kind notes and wishes regarding my father in law's passing.
I hope everyone going thru treatments are getting through them okay-- I'm woefully behind on posts and I apologize- I'm not up on where everyone is.
BTW-- I have a facebook page if anyone wants to be my "friend." Just search julie ballenger in chicago.
hugs- julie b
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Carol,
Thanks! You are so sweet! I love your pics, too! I guess I will have to go look on your facebook page, to see your updates. I was busy for awhile, finding and friending people, and signing up for all sorts of causes, but now things are settling down a bit. You are right. I had been trying to stay off the computer and now, I am addicted to Facebook!!
I have an old friend from high school visiting this week, so I may not be around much.
Jill
Thanks!
Harley
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Hi ladies!
Jill...so good to see a post from you and to hear that you have no side effects. Let's just keep it that way! LOL I wish you the best with this treatment. This is the one that's going to do it for you!
It sounds like several of you are on facebook. I signed up, thinking that was the only way I could look over the site. Now there I am. I have no picture...a couple of friends.....and know nothing about how to use the site. That's what I get for being nosey but I had heard everyone talking about Facebook and just couldn't resist. Maybe one of these days when I have little else to do, I will get into it more. Then again, maybe I'm too old to enjoy it! LOL
I have ten days until I board that plane and head for sunny FL, leaving this cold, white, winter wonderland behind for a few days. Today I'm pulling out the summer clothes and starting to get thing ready.
Ginny, I love your sunset avatar and I'm so glad that the new career is going well for you. You sound so enthusiastic and happy. :-)
Harley, have fun with you high school friend.
Annie, I'm about done with the prednisone and am still walking around with no major side effects. Thanks for the gentle nudge.
Carol...hey! It's perfectly fine to be lazy every once in awhile! In fact, I'm not having much trouble learning "how to be lazy!" I really think that sometimes we just need to do absolutely nothing. It took me a long time to learn how to relax and I'm still working at it! I was a type A who thought I always had to be busy. Believe it or not, I even felt guilty if I wasn't doing something constructive!
I hope you gals in treatment are feeling pretty good today! Hugs to all of you!
Rita
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Hi All - Hope everyone had a nice weekend. I was feeling so much better so it was a busy weekend. My son made All County for playing the trumpet so his concert was Sunday and then of course we had to take him to dinner. And yesterday, I finally was able to get to South Jersey to see my mom. She is doing ok, she looks very frail which makes me nervous, but other then that she is doing ok. I don't know how many tx she will be able to take. It seems to be taking a lot out of her. She is not sick but extremely tired with little to no energy. But we will see. She is scheduled for 2nd tx on 1/29. Has far as me I am scheduled for my 6th tx on Thurs. but I have to wait and see what the blood ct is. Today, I am taking it easy as I have to see the PS in NYC tomorrow. Glad to see that everyone seems to be doing pretty well.
Colleen
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Colleen....congrats to your son on his musical expertise and honors. That's super. Good luck to you tomorrow as you tackle treatment 6. Hey, you're just going through these treatments in fine style. Sometimes a good dose of protein helps on the night before treatment. I always ate steak and swear that it helped keep my counts up. Also, hugs to you as you also deal with you Mom and her treatments. It is so hard to see our Moms struggling, but especially hard when you, yourself are going through a tough time. It sounds like your Mom is a very tough gal. I will keep praying that she can continue her treatments. Hang in there.
Sending good vibes to all of you in treatments.
Annie, hope that you're enjoying these "stress free" days.
Harley, hope that you're enjoying the time with your friend.
Carol....it won't be long and I'll be out on the golf course for a few weeks. The only bad thing about that is.........I then have to come back to the remainder of Illinois winter! Hope all is going well for you.
Catch you later.
Rita
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Hey All - After I posted yesterday the onc called and wanted me to come in today, 1/21 instead of Thurs. 1/22. My blood count was fine. She said I was probably fighting a virus and I did get tx #6 today. 6 down and 2 more to go YEA!!! Now I will just have to fight through the SE to get to the last tx and be finished. (Lets hope I feel that way tomorrow lol). Thank you Rita for the prayers for my Mom. It is definitely hard to see her like this. This is a women who raised 9 kids so you know life was not that easy. She was never sick or she didn't let on that she was sick. I think the whole time growing up I saw her stay in bed for sickness maybe two times. And the worse part she is so concerned about me. She calls me almost everyday to see how I am. I am just hoping that when I am done with my tx I will be able to go and be with her for hers. I hope you have a fantastic trip, you definitely deserve it. Well let me see if I can get some rest. I will check in hopefully tomorrow.
Colleen
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Hi ladies, my apologies, life has been a bit nuts lately, nothing bad, just catching up!
Rita, how I envy you flying to the sun!!! No one deserves it more than you do, and it sounds like you've finally gotten rid of that nasty virus. Have a great time getting all your outfits ready, sometimes that is one of the most fun parts! (that, and the anticipation). Wishing you the most marvelous vacation ever! Whereabouts in FL do you go to? We used to go to Naples as my in laws had a condo there and we have one in marco island (tho ours is a lowly time share). But we often exchange it for one in Disney world or have for the past ten years, so it's fun!
Harley, have fun with your buddie! I had a "friend" request from you, and I am sorry, I am not on facebook, I am such a dinosaur...also, my daughter thinks it's kind of her "thing" and the college kids tend to frown on the parents doing it, (hm, they don't want us to butt in) altho I know absolutely everyone is.........maybe when I get some time and she gets off it! In the meantime, I do check my e mail, I promise.
Jill, wonderful to hear from you!!! I am so sure this txment will be the a** kicker for cancer. No more of that for you and I know this will do it. But..........you are still in my prayers and will remain there until you get the "all clear" as I know you will. Thank god for not many side effects so far; no one deserves that more than you do.
Carol, I am glad to hear you are relaxing..........it's good for you after this past year, right? I cant' seem to be able to do it....I keep on galloping around doing stuff just for the sake of keeping busy....I guess I'll have to learn to unwind in time.
Colleen, only two more.........the light at the end of the tunnel is shining bright and almost here!
I will continue to put you and your mom in my prayers. You will finish your txmnt, help her thru hers, and you will both be AOK. I have faith this will come true for you both. She sounds like one strong lady, and her daughter is as well.
. Wow, your son sounds like a very talented kid! congratulations to him and you!!Thank you everyone once again for getting me thru this last bump....I just have to get thru the lung scan for the nodules to make sure its not in my lungs, and then the ooph/hyst. in March, my choice, and I'm not regretting it for one sec. I've already had 5 years exposure to tamoxifen and with my estrogen count will make menopause oh, about 65 or so. The lupron is giving me sky high cholesterol, and they want me off it, so...........ooph/hst. Hey, it's nothing all our moms did not do, right? I know mine did. I will go and get it done and be done with all of it. I'm so ready!
After that, if I'm still up for it, I'm getting the "good girl" a prophy job. I'm heartily tired of not matching, but more than that, I am so DONE with this cancer stuff. She needs to join her sister in a nice inner tube job. I know it's extreme, but with two times under the old belt, I don't feel it's unwarranted and my onc agrees.
Sending strength, love and protection and good vibes to all "sisters" tonight;
love you all
annie
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Annie: Talk about brave!! You are definitely a brave women and taking charge is definitely the way to go. I remember talking to the nurse in the PS office. She said that they might not be able to match my new rt. boob to the left, so they would have to make a breast reduction. I said fine with me. She was saying that my attitude was great and I said as long as the cancer is out of my body I don't really care what size my boobs are!!! That would be the least of my worries. I will be thinking about you and sending good vibes your way. When do you go in March? I am suppose to go March 23rd for the final reconstruction I hope.
Day two after the 6th tx and it is still early but I am feeling pretty good. I can only hope that it stays that way. Check back in later.
Colleen
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