TIME TO CIRCLE THE WAGONS GIRLS
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Oh Goodness...............I am holding all of you close to my heart......sending hugs
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I am so self absorbed right now....I have not kept up on how anyone else is doing....I hope well.
I think I should not have come to work today. The walk with my friend helped but I am still a ball of nerves. I wish I didn't have so many steps to get through to get an answer....
Off to try and be productive...
Deb C
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Hey Girls,
I know this isn't that big a deal compared to what else has been going on lately, but I got the results of the genetic test and of course I am positive for the BRCA2 gene. The genetic counselor couldn't get over the fact that I was so calm on the phone, and kept saying she knew what a shock it must be, but frankly, I was expecting it. I would have been more surprised if she called and said I was negative, but that would have been a good surprise at least. So, I need to get started scheduling an MRI and mamm (last one was in May), and then an appt to discuss ooph and pro mast (I had lump and rads) among other things. I thought I was prepared for this result, but well, you guys know... And I am approaching the 3 year mark, which is a pretty big deal for my little triple negative node positive self. I was actually starting to feel like maybe I would be "OK for real, and for a real long time" lately, and now I feel like a new bigger, badder cloud is right there to take the place of the one that was slowly drifting away. Again, I know BRCA positive is nothing compared to mets/recur, so I'm trying to keep that perspective, I'd just really love it if I could just get some straight-out good news you know? And for example, that I didn't have the knowledge that those blasted suspicious calcs have been hanging out there on my non-cancer side for almost 2 years and I haven't even had a freakin' MRI to check them out.
Not surprisingly, my rib cage, sternum, and bc side boob are all suddenly hurting like nobody's business, and I can't take any advil because I have the surgery tomorrow on my skin cancer on my ear. I'm feeling a little bit like the Morton's salt girl right now, when it rains, it pours.
OK, stopping myself again! But felt compelled to come here anyway, as I need some, "chin up" and "you'll be OK" from my friends.
((((Deb)))) I felt funny even saying something with the scare you're in the middle of right now, but when I thought about it, I knew you'd say that was crazy talk. I hope the walk with your friend helped out some. I'm not good when I'm scared, I'm more of a lie on the couch and stare into space kind of girl, but I'm sure it's a much better idea to be productive and keep yourself distracted.
Everyone else, I'm sorry, I didn't even read. Hugs to you all and I hope all is as good as it gets...
xo,
Colleen
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Colleen: I know you are feeling overwhelmed right now but you are gonna be ok. I left you a message in the dreamer thread. Sending big hugs your way.
DebC: Glad the walk helped some. I would be a bundle of nerves too.
I hate this blasted disease.
Nicki
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Colleen I don't know what to say. Boo for your results. And three years is great for someone who is triple neg. The longer away from diagnosis and your odds keep getting better (more or less). Sorry you have to deal with this complication.
And I totally understand about every part of your body starting to hurt. It happens to me too! HUGS HUGS HUGS
susan
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((((Deb)))) Wish I could make the time go faster for you. Praying for B9. I am not a good waiter and would be a bundle of nerves too.
((((Colleen)))) - that stinks but you are almost three years and that is good. You will be okay. We are all right here with you.
Love and hugs,
Suz
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Deb, glad you kept the date with your friend. This is one of those times that
it is going to seem like a year has passed until you know something. I saw Shokk's post and Gina's at the Hampton's too. Both have good thoughts and advice - only way to know for sure is the scan and the biopsy. We're all praying that things are B9 and this can be explained.
Shokk, years ago after my son's illness had just settled, my DH and I were dating and he got very, very sick. It was his lungs and they said he had sarcoidosis - he was put on steroids too. Unfortunately we were in a crisis situation when they finally figured it out and he didn't have to be transferred to a major medical center. I am so very sorry that there has been a progression with you. You REALLY should share these things, you know. I pray you feel better soon and know that many are here for you too.
Colleen, got your hand. I'll be there tomorrow when you have your surgery.
LOL and big hugs to all, Brenda
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{{{{Shokk, Deb, Puppy and Colleen}}}}
And to everybody..........{{{{{{{{{}}}}}}}}}}}
Neesie
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Love and prayers for all the sisters struggling with uncertainty and fear right now. God bless you and keep you and make his countenance to shine upon you and give you peace.
Love,
Bren
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Please all go to the 'Prayers for CY' thread .. Charlie's last post:
CB3 
User since: 11 Nov 2007
69 Comments12 minutes ago I have the very sad news to share that Cheryl has been admitted to UW Medical Center yesterday. She is now under comfort care only, as there is nothing more they can do for her due to a blood infection that has gone septic. Her kidneys are unresponsive and the cancer may have spread into her spinal column, but under the circumstances, all feel it unnecessary to put her through the barrage of tests and pain to find out the why's when the diagnosis of the blood infection/septic abdomin is so clear.
She is still with us right now, but at this point is only slightly responsive on occasion. She is in no pain and we are doing everything within our power to make her comfortable. Her wishes were made clear by her this morning that there will be no further treatment only comfort care. Scott, and the rest of the family are by her side. After a 36 hour vigil with her we are now splitting up into shifts of being with her and getting sleep. It is my time in the sleep zone and I hope I will. I go back and spend the night thru with her tonight.
Hugs to all as I know each and every one of you have been a comfort and a joy in her life.
Pray for peace and God's mercy for her.
Peace,
Charlie
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Thanks Charlene for posting that here.
Amy
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Thanks Char -
I hate this disease.
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Dear friends, please join hands in a circle around our CY
May she feel our love pouring over her
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I am joining hands in the circle around our sweet CY.
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Joining in the circle around CY, may she feel our love and prayers
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I am stretching my hands out to join all of you. May CY know she is loved and feel the strength of our prayers.
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Count me in. Cy is a very special person.
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May Cheryl feel the warmth from our circle of love.
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I'm joining in too - with tears in my eyes ... Cy you are loved by soooo many. We are surrounding you with love and support - and will be there to help your family any way we can.
Doreen
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Your smile surely made all of our days....
I love you, Cy.
May God Bless and Keep You Always
My heart is broken tonight but I will remember your smile, your strength, your hope and your love....
'til we meet again,
Gina
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Joining the circle and hands. I know CY loved this place.
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Cy,
I don't know what to say.
I Hate this Disease.
Valerie
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Joining the circle, joining hands to wrap Cy in the love and warmth of a place and group that she loved. Lots of tear stained faces tonight. Cy, we will sit with you tonight, we have your hand in ours.
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I'm here joining with my sisters Cheryl.
susan
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Joining the circle of hands of love for Cy,
Bren
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What a beautiful woman inside and out.............Shokk0
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Our beautiful sweet angel, wife, mother, daughter, sister and friend, Cheryl Y. Thomason, went peacefully and comfortably to be with God and all his sweet children tonight at 9:12 PM Pacific coast time
I couldn't help but notice: Genisis 9:12 "And God said: "This is the sign of the covenant which I make between Me and you, and every living creature that is with you, for future generations:"
This is the covenant of the rainbow... and I believe her way of letting us know she is in a beautiful - peacful place.
She wants everyone to know that her wings are pink and purple and all shimmering and glittery, she said like fairy wings. And that she cherishes each and every one of you so much. She wants you to be watching for her at Pinkstock because she's going to be there!
HUGS... Charlie
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Joining our tear stained faced sisters in sorrow.
I love you CY and will carry you forever in my heart.
May God hold you close until we meet again.
So many words in my mind and heart...can't get them past the tears right now.
Scott and family...my deepest symathy to you...
Love
Vickie
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