TIME TO CIRCLE THE WAGONS GIRLS
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NS, can I come to Your place?
xoxoxoxo
Pupster
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All,
Warren had his 6th grade CCD retreat tonight. At the end, they passed a candle and each child got to say who/what they would like to pray for. Not surprisingly, Warren's was, "everyone who is suffering from breast cancer." On the way home I asked him if he had my friends on this board in mind (I figured he did as he just received an afghan) and he said yes, but that he didn't know your names. Many kids prayed for a specific aunt, uncle or grandparent, and I have to tell you, at least 80% of the kids prayed for someone with cancer.
Here's the best part (listen up AMY), then he said, "I should have said to pray for that lady in Ohio who has the goat." Ohio, Alambama, apparently it's all the same to us up here in New England. LOL
I can't remember what the post was exactly. It was a poem someone wrote for Amy, before Christmas, and Warren happened to walk into my office and saw that I was a little upset, and said that IF he got a guitar for Christmas, when he learns how to play it, he would write a song for the lyrics and send it to "the lady with the goats."
Now, I'm not completely delusional, the kids was SERIOUSLY angling for that guitar, butit was still sweet. And it just really made me smile that he remembered it.
Good night all,
Colleen
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Deb,
Just walked in from work. Like everyone else, don't know about the procedure.
I do remember asking the surgeon that I saw for a 2nd opinion, because of the location of my BC (was upper inner - most are outer quadrant) how I knew of my mediastinal nodes were checked. Neither of us was happy with my surgery or my SNB; I got the impression they could be checked at that time. I got the answer of "you don't know". I certainly didn't know there was a procedure like this. I'm sorry you didn't get just an "all clear" today.
I know, it is another test, another procedure, and each time they get harder but one thing you know for sure, you will not be going this alone.
I wish I could offer some info about the procedure and I wish I could take away your anxiety and fears.
Hugs, Brenda
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Just a cut-and-paste post....tired and need to make dinner....
Quick update.....I spent about 20 minutes on the phone with my Onc today. Have I said recently how much I love my Onc? She called me on her day off! Anyway....she put the brakes on all the tests. I am going to see her on Thursday. We are going to review all the scans and she is going to give me her opinion. One of the ideas I floated is waiting a couple of months and then doing a PET. That way we would have some time to see if there are any more changes. That would give us more information than an immediate re-scan. It would also give some time for these nodes too shrink if their growth is just in response to my having a cold or something. We are also going to spend some time talking about my pain symptoms and how to address them.
SO...no real news, but I should have a better idea once I see her on Thursday. Thanks again for all the hand holding, e-mails, prayers and PMs. You guys are the best.
Hugs
Deb C
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It sounds like you have a great oncologist. Not one given to panic and unnecessary test that could be painful.
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Deb - that sounds wonderful. I am so glad she called and you got to talk things over with her. I'll be away but will check up on you when I get home.
Hugs
Liz
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Deb, I don't know your onc and I like her - and to call you on her day off! Good luck Thursday.
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User since: 27 Feb 2008
1 CommentA few seconds ago I know this post won't be here long but there's some things that I just have to say. I made a big mistake back in the fall when I got banned and I deserved banning because I was way out of line. I have regretted my rampage and apologized to everyone. That's all that I can do about that. If I could erase it believe me I would've done so before now. There are some of you that I miss, really miss. We sure had some fun.
I have a strong sense of loyalty as most all of you do. I defend my friends to the bitter end and I don't expect you to be any different. I understand the need to protect and defend those you love. I respect that and ask the same in return.
I also stand up for myself. This has been a little one sided to attack me on a web site that I cannot defend myself on. Most of you know me well. I don't do much beating around the bush when I have something to say. I don't want to be friends with Vickie but neither do I want to be enemies. To be blunt, I don't even think about Vickie. I don't know any of my friends that would have any reason to aggravate her in any way. I stand firm with the same thing I've said every time I am accused of doing something to someone on this web site....just prove your accusations. Nobody ever can. Is it just easy to blame me? Or my web site, or my friends? What gives anyway, folks? I'll grant you I can be as honery as the next person and stir that proverbial pot from time to time cos well....sometimes it's fun to shake things up a bit as long as nobody gets hurt. Does that make me so different from anyone else here? C'mon, tell the truth.
I want to make it perfectly clear that I have not sent any pm's, the last emails I sent were copies of Ginas ugly posts name calling Jazz and Vickie both. She left that part out. And I won't show them...but whenever I make an accusation, believe me, I can back it up. In order for me to tell people not to be her friend Vickie would have to be important to me and honestly she's flattering herself. If you notice, Vickie is always "Poor Vickie" now why is that? She has lots of friends that love her why would something so minuscule and childish get so blown out of proportion? It isn't me. No pm's, no emails, no phone calls. Promise. All I ask is if you accuse me of something so petty or even not so petty please prove it before you smear my name all over a site I cannot respond to. That's only fair.
I just lost my brother who was also my very best friend the same night Cheryl passed away. I have never felt such real pain in my life and I have lost alot of people. Do you all think for one minute this past week I cared one whit who liked who on the Internet? No. I just want to clear my name and your damned skippy I'll defend a friend in a heartbeat just like all or most of you. I have learned what is really important in life and that's you better tell everybody you love everyday how much you care for them because you may not get that last chance to say it.
I swear you'd think I was the Devil herself the way everyone acts around here. People are not allowed to utter my name. hahahahaha I must be really important. You can stop looking for aka's for me cos I am done. I miss some of you guys and I want to thank the friends who weren't afraid to give me their condolences on my brother. That meant a great deal to me. Debc, Colleen, you're in my prayers for your health and all rest of you that are ill. Odalys, I am so terribly sorry for the loss of your sweet Mama. I know you must hurt so bad. Life is so full of the real pain girls, please don't sweat the small stuff. Hold on tight to one another and don't let go. Cos we need each other and everything else is just bullshit. Hey to Suzfive, Boo, gosh there's just so many I'm missing and this will be my last chance. (Until somebody smears my name again...please let it drop) Also, until you know ALL sides of the story you can't possibly know the truth. Ask for evidence. hahaha
Also, if I'd done or said anything to get even with anyone or to mess with them chances are it would've been clever and I always want to take the credit for my own actions!!
Peter, I did you an injustice. You have turned out to be a fine friend to Vickie and alot of others. I misjudged you, mate. My apologizes.
Bren, dear, you are a Twit. Hey Shokk. Incidentally, I still make squares for the afghan project, hey I can't be all bad. I really am not the Devil....um....less I'm wearing that slinky blue dress.......
Pals,
Cheri
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reported this post
peter
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I have reported the post also.
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Deb, your onc sounds like she has good instincts and that you can trust her. Sometimes being patient is a good thing. I pray that you make wise decisions.
Colleen, that is very sweet of your son! I know how affected my youngest is, more so than my older children, I think. He is so sensitive to how I feel and since I've been sick the last few days, he's been especially sweet. You are lucky to have such a wonderful son.
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That's great Deb - such a nice feeling to have a good onc
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quick fly by...
Deb great news, glad you are taking your time...
hugs...
I do so love PRE Baby pictures.... congrats....
Colleen, I would really love to meet Warren what an angel he is.....
back to work..sorry so short... love to all A to Z
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Greetings all,
Well, my appt was a waste of time, as they didn't have my final path back yet. "Maybe the end of this week, or if not, definitely next week." (Are you kidding me?) I did learn that it is the standard 6 weeks of daily rads, but he was fairly sure (as sure as he could be with no freaking path!) that I could do the rads here at my existing onc instead of having to drive into Boston every day, so that's a good thing.
The one bright spot was that "in most cases, perineural invasion is associated with a greatly increased risk of local recurrence", which to an extent put my mind at ease. We all know that I am most definitely not a "in most cases" kind of girl, but this time, I'm really, really hoping that the path will be good (so crazy, but you know what I mean, as good as it can be for invasive malignant cancer cells that are spreading!) and at least I will be able to just do rads and then just primarily worry about local recurrence. I asked if I could just have a scan of head for nodes/masses (he could not feel any nodes, but didn't like the fact that I've had pain in the ear and headaches on that side) for my own peace of mind, and he seemed amenable to that, but wanted to wait until final path, which is entirely reasonable.
So, now I need to run out to fax the letter from my insurance company saying there is some problem with the $3120 bill for my genetic testing to Dana Farber. Surprise, surprise, yes this is the same ins co for which they allegedly received prior approval to do the test.
Oh yeah, and my dad was sent from the hematologist (? blood doc) directly to a gastroentologist today as he is still dangerously anemic and "low on blood" (whatever the hell that means) despite the transfusion on Friday. Apparently they are concerned about internal bleeding. He wouldn't allow my brother (who lives only an hour away, as opposed to 5 hours away like my sister and I) to go with him, so we have no idea what's happening. God bless him, the man doesn't even own a cell phone. We are hoping for some answers there as well.
I swear, when it rains it pours. And I'm sorry to be such a downer. I feel like I've been sucking up a lot of support from you all in this past week, so I'm hoping to turn that around and give some back real soon. I appreciate you allowing me to be selfish right now.
xo,
Colleen
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Colleen -- how stressful this must be for you. You are in my thoughts and prayers. Gentle hugs.
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Colleen, sending you a lot of cyber hugs. I work in the research department of a biotech firm so if you need anything researched, let me know.
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Slightly off topic but just got this in my email a few minutes ago. It is a new concert by one of our fellow bc sisters, Kristin (k4katz). If you live near South Jersey, please come and show your support:
We have been busy preparing for another show!
Saturday, March 15th, 2008
Barrington Coffee House - http://www.barringtoncoffeehouse.com/
8:00 PM
131 Clements Bridge Road
Barrington, NJ 08007
Price: $7.00 cover
Located on Clements Bridge Road not far from its intersection with
White Horse Pike. Great atmosphere, great place to kick back and
listen to some of your old favorites as well as Dichroic Glass
originals!
We will be appearing with special guest Talia Segal, who currently
has shows booked all up and down the northeast! Check her out at
http://www.taliasegal.com/.
Cover charge gets you in the door as well as $1.50 towards a
coffee/drink purchase. And Dichroic Glass continues to put the
proceeds collected from shows as well as CD sales toward breast cancer
research, so come on out for a great night of music as well as to
support a great cause!
We hope to see you there!
Kristin, Maureen, Greg and Al
http://www.dichroicglassmusic.com/0 -
hello girls deb im praying for you sister i am still fighting this flu but have come to you ladies to ask a favor from al of you i recieved a phone call this moring from sister her only child has breast cancer at 38 years old with 2 small boys age 5 and 1 i am asking you my sister to please keep her in your prayers i know you will her name is lisa thanks and god be with you all love deb from ky
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Deb -- I am so sorry to hear about your niece. You are in my thoughts and prayers.
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deb, I will keep lisa in my prayers...
hugs
MB
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Deb, sending prayers your way
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Hello All,
Just wanted to let you know that we deleted a number of posts today. We truly hope that the Circle remains calm and supportive, as it was intended.
We appreciate everyone working together to keep this a safe and friendly environment.
Best,
Melissa and Tami0 -
Deb, cancer certainly isn't fair and doesn't have prejudice regarding age. I will keep you and your niece in my prayers.
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Deb I too will remember your neice.
Amy0 -
Deb I too will remember your neice.
Amy0 -
Deb I too will remember your neice.
Amy0 -
Sorry to cut-and-paste, but I am whipped.....
Good news is that I was able, after MUCH ultrasound testing, to get a good fine needle aspiration biopsy of the "bad node". We got at least part of the puppy in a jar!!! WooHoo. I should have results on Tuesday.
I am tired beyond belief, so I will fill you guys in on the details tomorrow. I love you all and don't know where I would be without you
Hugs
Deb C
I will try and catch up tomorrow....
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Deb, praying for b9...b9....b9
Hugs, Madison
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Deb,
I'm jumping for joy ... Yippee - got part of that son-of-a-gun in a jar. Next step B9!!!!
love you,
Bren
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