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TIME TO CIRCLE THE WAGONS GIRLS

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Comments

  • purplemb
    purplemb Member Posts: 593
    edited February 2008

    deb...glad to hear itsn a jar...we will hold your hand till we find out..hugs my friend...and now  the chat of the day...B9B9B9B9

    mb

    ok fly by from home checking in..

    Liz...hugs...gentle ones....

    off to check on pinkstock...

  • MargaretB
    MargaretB Member Posts: 771
    edited February 2008

    Deb, rest, you deserve it.  B9B9B9B9.  Check in when you can.

  • Sandra1957
    Sandra1957 Member Posts: 1,064
    edited February 2008

    Wow, Deb, talk about rollercoaster rides, you've been on a wild one for the past few weeks!   Praying that you continue the ride with NED.  B9, B9, B9....

    Hi Girls!!!

  • Unknown
    Unknown
    edited May 2008

    I wonder why the other oncologists didn't think to do this.  I'm keeping you in my thoughts and prayers for B9.

  • AlaskaDeb
    AlaskaDeb Member Posts: 1,159
    edited February 2008

    OK....my eyes are open now!  I was so rummy last night I almost couldn't think. 

    Thanks for all the B9B9 chants and prayers.  One thing that raised my hopes was the conversation with my Onc about all the things it could be that are NOT cancer.  We talked about sarchoidosis (sp?), a possible inflammatory process like RA, or some type of immune suppression process.  None of that sounds like fun, but hell, none of them are cancer!

    Jas - The other docs thought of doing the FNA test, but the node was in such a hard place to get too, they didn't think they could safely reach it.  This Rad doc said if I was willing to try, he was too.  By the time they got me in a position that he could get a needle behind my collar bone without hitting either of the big blood vessels I was laying on a table with my feet higher than my head, one shoulder on a wedge pillow, my head turned as far as it could go in the opposite direction and my chin pointed at the ceiling....Then, after taking almost an hour to get me in position, I had to stay in that position until the used the ultrasound to watch while they stuck 6 different needles in the node to gather cells.  All in all it took over an hour and a half.  I have to take it easy for a day or so in case the nicked one of those veins.  If they did I may bet a really big bruise, but so far, it looks fine. 

    SO....now we wait....again....

    I'm going to try and stay busy and not think about it.....LOL,,,,at least it sounds good J

    Hugs

    Deb C

  • shokk
    shokk Member Posts: 790
    edited February 2008

    Deb that is what I have been dx with is sarcoidosis........most of the time for most people it is not too much of a problem but for us cancer patients the pet scans and x-rays cannot tell the difference if it could be cancer or the sarcoidosis...........my lymph nodes are swollen in my lungs (hence the lung biopsy two weeks ago) and now in my neck and behind my eyes......causing my eyesight to be affected........but its not cancer......treatment is steroids and in some cases a mild oral chemo..........I asked my pulmonary doctor if the sarcoid and cancer could somehow be related but he said no..........if you get a dx of sarcoid there is a great website and support group......just let me know..........Shokk

  • AlaskaDeb
    AlaskaDeb Member Posts: 1,159
    edited February 2008

    Hey Shokk -

    I remembered you said you had sarcoidosis (next time I get something funky, I would like a disease that is easy to SPELL....sheesh)  They are not saying I have it yet, but that some of my weird symptoms could be explained by sarcoidosis.  If the biopsy comes back clean (please God!) then we will explore further to see what might be causing all these symptoms.  I am interested that your doc said the cancer and sarchoid are not related.  My Onc said that there is some thought that all of the toxic treatment we get may start the process in people who are already pre-disposed to it.  She also said that it might just be that after cancer we get out lymph system checked more than the general public....

    By the way, I seem to hear an echo in here.....everyono OK??

    Thanks

    Deb C

  • newvickie
    newvickie Member Posts: 2,941
    edited February 2008

    We are all holding our breath for good news...

  • shokk
    shokk Member Posts: 790
    edited February 2008

    Deb I think that may be true but I have had symptoms of sarcoid for twenty years.......I have had a cough for so long I was talking to the ex about it and when my daughters and I were cleaning up in the summer we came across my oldest daughters (she is 20 now) baby shower tape and I was coughing then........basically sarcoid is arthritis of the lymph nods or inflammation of the lymph nods...and it has caused me some pain.......especially in the neck....and even in the lungs when I am having an "episiode"........I will cough for about a month and then go into "remission" for about 5 months......but I think I remembered you said that they had seen this in November and that it is smaller now and when you said that it made me think at the time it might be sarcoid because that is exactly how it behaves.......the lymph nods are always enlarging and then shrinking........it's scary because of course we as cancer survivors and now as living with sarcoid I always default to cancer first.......keeping you in my prayers and I hate to say this but I am chanting "sarcoid"............Shokk

  • AlaskaDeb
    AlaskaDeb Member Posts: 1,159
    edited February 2008

    Wow...the coughing thing is spooky.  I use to have "episodes" of coughing that lasted months at a time when I lived in Michigan.  My docs thought it might be alergies, but the drugs didn't help much.  It would just kind of go away after a while.  Since we moved to AK, I have not had it happen.....now I wonder if that had something to do with this??

    It sounds like sarcoid can be rather hard to Dx.....hmmmm.

    I guess time will tell

     Thanks for the info

    DebC

  • shokk
    shokk Member Posts: 790
    edited February 2008

    Thats the weird thing about sarcoid is it can go into remission and know one really knows why........there are different stages of it just like cancer and for some reason mine has always been active and is progressing.......but it progresses very slowly and I am still more concern about cancer then I am about the sarcoid.......mine was discovered at the time of bc dx when I had all my scans.....of course when you were dx with bc and you had not had your cough since moving to Alaska......you could have been in complete remission and the nods in your lungs would not have lite up.........but you know Deb we are both triple neg, both have 2 daughters both had/are married...........umh.......anyway get some rest.........Shokk.....oh and have you been running a low grade fever????........that's another side effect of activated sarcoid........

  • AlaskaDeb
    AlaskaDeb Member Posts: 1,159
    edited March 2008

    Well, it's not sarchoid.  The cancer is back and it is stage 4 mets.

  • Sandra1957
    Sandra1957 Member Posts: 1,064
    edited March 2008

    This is where we all say the "F" word in unison.

  • Sandra1957
    Sandra1957 Member Posts: 1,064
    edited March 2008

    Is there anything I can do for you Deb?  I just don't know what to say, except I love you.

  • CherrylH
    CherrylH Member Posts: 189
    edited March 2008

    Deb,

    I don't know what to say. You are a strong woman and there are things that can be thrown at this beast. We're here for you. Let's kick some cancer a$$.

    Cherryl

  • Unknown
    Unknown
    edited May 2008

    OH NO!  Deb I am so so sorry.  :(

  • CherrylH
    CherrylH Member Posts: 189
    edited March 2008

    Could somebody fire up the magic carpet? I'm a little too stunned to drive it right now. Deb needs us.

  • Boo46
    Boo46 Member Posts: 261
    edited March 2008

    OMG - Don't know what to say. Praying for strength and comfort for you Deb

    Sue

  • newvickie
    newvickie Member Posts: 2,941
    edited March 2008

    saying the F word in unison with everyone else

    Damn...

    Sending love, hugs and prayers for you...bugs and fishes and whatever you need...just say the word dearest friend.

    Love you

    Vickie

  • bluedahlia
    bluedahlia Member Posts: 302
    edited March 2008

    I'm too upset for words.  I'm so so sorry Deb.

  • Peter
    Peter Member Posts: 297
    edited March 2008

     Oh Deb like the others lost for words mate, Praying as hard as I can for you

    Peter 

  • Biker54
    Biker54 Member Posts: 1,042
    edited March 2008

    Oh Deb, I am so sorry.  I am saying the big F word also.  This is so not fair, my friend.

  • Sige
    Sige Member Posts: 334
    edited March 2008

    F

    Okay everyone...climb on...on our way to Alaska...lots of room for everyone...WE'RE COMING DEB...

  • Bren-2007
    Bren-2007 Member Posts: 842
    edited March 2008

    Deb,

    We're on our way.  We'll be with you and won't leave your side.  No soldier left behind!!  We'll fight and we'll fight hard.

    love you,

    Bren

  • Bren-2007
    Bren-2007 Member Posts: 842
    edited March 2008
  • TheShopMama
    TheShopMama Member Posts: 276
    edited March 2008

    Standing here stupidly with tears rolling down my face, reaching my hands out for my sisters.... time to circle the wagons girls.....now...for Deb..... will you join me?

    Pam

  • bluedahlia
    bluedahlia Member Posts: 302
    edited March 2008

    I'm here.

  • newvickie
    newvickie Member Posts: 2,941
    edited March 2008

    This has been a rough few days...
    It is time for us to hook up our horses and circle our wagons around some of our dear sisters who need us the most right now.

    Hitch up the wagons and bring them back girls. 

    Time to group together as one and put our Deb and so many others back in the center of the circle so we can protect and care for them. 

    We CAN do this...We HAVE to do this...Its why we are HERE! 

    I am asking for everyone...all of us that need this place so badly to PLEASE do this!  Its more important than you will probably ever know.

    We need a cook, we need a spa, a pissy tent, a drinking tent, a medic tent, we need each other.  We need prayers, healing light, angels, hope and happiness.  Together we can do it.

  • AlaskaDeb
    AlaskaDeb Member Posts: 1,159
    edited March 2008

    Thanks girls.  I just feel hollow and broken.  I am always the one who has some idea on how to make things OK.  I can't see a way to make this OK...I just don't know what to do.

  • Peter
    Peter Member Posts: 297
    edited March 2008

    I can cook a bit but will need some help, save some room on the carpet for me.....Deb feel the love and support heading your way mate, it has always been there for everyone but as Vickie said it is needed more that ever now.

    Peter 

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