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Illinois ladies facing bc

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  • samedaynurseJan
    samedaynurseJan Member Posts: 162
    edited April 2009

    Susan.....

    raising my hand.....ham here.....with homemade AuGratin potatos, asparagus, and mac n cheese for the kids....no lamb cake :( while I am a decent cook I am not the worlds best baker....DIL will bring the dessert.....thats my menu and Im stickin to it.

    jan

  • donnadio
    donnadio Member Posts: 674
    edited April 2009

    Thanks Susan!!!!

    JAN.. menu sounds tasty to me!!!

  • illinoislady
    illinoislady Member Posts: 40,902
    edited April 2009

    It is difficult Donna but you seem to be doing pretty well.  It is hard for other people.  Susan had it right...people do feel awkward.  My personal take on it is that they are secretly glad it's not them and then feel so bad for having that thought ( almost like they wished it on you ) that they lose their verbal footing.  One of the big reasons why it is nice to be able to come here through treatment---and beyond. 

    Hope you all have a good evening.  I'm off to my recliner ( trying to stay awake already ) for the rest of the evening---hope there is something good on the boob tube....I do have a couple of good books by my chair if not.  See you all in the morning.

    Hugs,

    Jackie

  • elf_song
    elf_song Member Posts: 148
    edited April 2009

    Laura- I love to meet you and other ladies of course~! It doesn't matter I am staying here or leaving I am so there.. 

    Rita- You are totally right, I was secure with my medical team and I really don't wanna start over again..   ah..   

    Jan- I don't have LE and I went on vacation without sleeve and was fine.. flight was 4 hours one way.. My doctor didn't say anything either..

    Hope4cure- That's why my husband wanna go there.. all that reasons..  Before we came here, we were in california..  I don't mind cold weather and snow but my dh got tired of it..  However, he used to live up in north side of  chicago, when he was teenager..  Of, course things been changed so much since then..

    Christina- It must be difficult for you to see what your mom is going trough..   I can only imagine..  hang in there and be there for her every step she takes..   

    Donna-  Of course, your hair will grow back (like mine, right now) like Susan said, sometimes people says things that meaning less.. 

    I hope everybody sleeping good through the night~!


    Dx 9/2008, DCIS, 3cm, Stage IIb, Grade 2, 1/11 nodes, ER-/PR-, HER2+

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited April 2009

    Morning!  Up early today so I have time to chat....

    JulieB...you sound like you need a few hours in my fort!  C'mon over!  Otherwise.....I am there with you.  Going to see a doctor, any doctor now I guess will always mean anxiety for us.  I've seen my GP, onc, rad onc and had my mamm and I have been pronounced great.  But today at 9am I see my surgeon, first time in a year....and I am terrified.  Go figure.  But hugs going out to you honey!  Let us know what's going on....(funny about the lamb cake and the butcher!!!!)

    Elfsong....see you were up again!  You need some sleep!!!!

    Christinalynn.....very sorry that your Mom has to deal with BC and her husband.  I agree....try the ACS...they have vounteers to help her with the driving etc,  What type of assisitance does she need with the medical bills?  Could you tell us maybe exactly what she needs...one of us will surely have an answer.  We are here to help...and if we can't, we will find someone who can.

    Donna....Like I told you, once the hair is gone, it's gone and there's nothing more to do about it.  I bet you look very cute!  But with this weather, I bet you head is cold!  No one asked me any silly questions about my wigs...except why didn't I just go bald and support my BC sisters????  Duh....cuz I looked really bad bald, that's why!  Good luck tomorrow!  I will be thinking about you!  If you have any anti-anxiety meds, take them tonight.

    Jennifer...so glad you are doing so much better!  Like Jackie says...baby steps.

    Not much new around here....just like everyone else I am waiting for spring to get here.  This snow and cold I think is really getting to everyone.

    OH....RITA......I just finished Maeve Binchey's newest "Heart and Soul"...I had to wait a month for it from library, it was so popular.  It's a new story, with lots of visits from her old characters.  It was a nice read!

    Have a great day everyone....you are in my thoughts every day!

  • donnadio
    donnadio Member Posts: 674
    edited April 2009

    Today is pre med day and BIG DAY is tomm. We  have to be at Rush around 7:30 and we need a good hour to get there. Feel ready.. head is a  bit chilled today!!!LOLOL.  The weather is crazy!!

    Thaniks ALL for letting me vent as sometimes i feel as if iam goin nuts with the waitng and listening too closely to those who are trying to say what they feel is right and have no idea. Today i feel peace as i feel i am gettin ready for  a major fight!!!   I go to PT today too as they want to have me on tread mill and see what level to maintain when chemo starts.

    Have  a grreat day everyone and good thoughts too all!!!!

  • illinoislady
    illinoislady Member Posts: 40,902
    edited April 2009

    Morning everyone as I finish my second cup of coffee.  We have sun --- not super bright yet, but makes me hopeful for the day.  Not going to be super warm either but yesterday was so strange. Rain, the snow, then the sun woule peek out for a few minutes and then the whole process over again and not always the same order.  Little white MG Midget is back.  Even Dh who is not tall nearly has to fall out of it to get out.......this is not a car for me and as well......if I were young it wouldn't mean so much, but I could not feel safe in this car.  Way too small and sitting on the ground ( at least to me ).  Now Dh has two vehicles to choose from --- but I bet it's only the white car if the truck is not available for some reason.  Not so long ago......we onlly had my Blazer so great for me.  I am spoiled about my car and don't like to 'share'.  Least not too often. 

    Donna, we will all be thinking of you in the coming days....and sending healing thoughts to you.  You are I think well prepared.....as much as any of us were, and we will be here waiting for you when you get back to help in any way we can. 

    Julie B....Wendy's fort is a magical place where only good things exist.  When all else fails you go to the fort.  It's a healing experience.

    Got to run take care of my wild flock. 

    See ya'll later.

    Hugs,

    Jackie

  • buddy1
    buddy1 Member Posts: 529
    edited April 2009

    Donna.  I know you will be fine.  The anticipation of getting started is the worst.

  • ritajean
    ritajean Member Posts: 4,042
    edited April 2009

    Hi gals!

    Donna, I'm glad you're more at peace today.  People say the darndest things because they just don't understand.  They really want to help but they just don't have a clue.  I shudder to think that I was probably just like that myself before I started on this journey.  I will keep you in my thoughts and prayers.  HUGS!!

    Julie B...I'm squeezing your hand tightly.  Now if I could only get rid of some of that anxiety for you, I'd feel much better.  Hang in there.  I know that knotted stomach feeling and the nervous tension that goes with those standard check-ups.  I'll be walking right along beside you. In fact, I walk pretty fast so I'll probably be pulling you right through!  Hugs, thoughts and prayers are also being sent your way.

    Wendy, thanks for the heads up on "Heart and Soul."  I'll have to look for that one.  I just picked up Nora Robert's "Tribute" at the library last week and I was a little disappointed in it.  I love Nora Roberts when I want an easy, relaxing read and this was slow-moving for her.  I finally got into it about midway through and had the ending figured out way before the start of the last chapter.

    Jackie...so glad to hear that you have a comfy recliner, too.  I don't know what I'd do without mine at the end of the day.

    Jan,once you make your decision, you're going to be on the way to a wonderful vacation.  All that stress is just going to fade away!  Your Easter meal sounds so good.  I don't know what we are going to have. My DIL and son are doing the cooking and I'm going to keep those little boys out of their way while they're doing it.  Only a few more days and I'll have that blanket that Wendy made wrapped around my new little grandson!

    Well, I've got a hair appointment this afternoon.  Mary Jane and I had a late shopping spree yesterday and I didn't get up and moving as fast as usual today to I need to get in high gear. 

    Wishing all of you a great day!

    Rita

  • BustersMom
    BustersMom Member Posts: 260
    edited April 2009

    Good afternoon ladies!

    Just popping in again to say hi & let ya'll know I'm alive & kicking. 

    Kristi, glad you found the gang!  

    The job search is kind of - well, SUCKING - for lack of a better word.  Even the temp/employment agencies are apparently overwhelmed with applicants.  And I've got a pretty specialized resume, so that makes it even harder.   Oh well...  onward I go.

    In the meantime, maybe Spring will actually show up Cool

    Big hugs to everyone!!!  Juliet

  • ritajean
    ritajean Member Posts: 4,042
    edited April 2009

    Juliet, contact WendyTY.  We were talking about you just this last week.  She saw where Susan G. Komen was hiring somewhere up in your area and we thought you'd be perfect for the job.  She can tell you more about it.  Email her if you're interested as she doesn't stop in on the thread everyday!

  • donnadio
    donnadio Member Posts: 674
    edited April 2009

    Thanks Jackie and RIta!!!! Appreciate the words of encouragement. Take Decadron tonight and curious to see if i sleep.. lol.

    Buddy...How are you doin with this week and treatments?  It does sound doable and the waiitng is enough already!!!!Hope to get thru this and then say it all myself!!!! Keep me posted on you and hope your golden is behaving..lol

    Thanks and will update when done with TX#1.

    Hugs,

    Donna

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited April 2009

    Welcome to the new girls! So sorry you qualified. But...you've come to the right place!  

    MaryJane - Glad Ozzie is okay! Whew...  

    JulieB - Too FUNNY! ha-ha... And... too funny about your Chinese friend! lol Nice of you to invite her! Hope your appt went well today. Did he order any tests? How's the pain in your abdom?  

    Jackie - Did you get your oven hooked up yet?  

    Jennifer -  Best wishes to you as you start back to work and back to your bed and your life! Enjoy and prosper!  

    Donna - Good luck with chemo numero uno manana! I know the hair "thing" is tough... hang in there!

    --------------------------------------

    On Easter - in the forest, we will feast on: ham (w/pineapple & brown sugar glaze), home-made potato Pierogis, corn, crescent rolls, sweet potatos, green bean casserole!  

    My niece - Shelby is on spring break this week, so she's here hanging out with me and dh and Paulie! Paulie's feet HAVEN'T TOUCHED THE GROUND since she arrived! lol I hope he remembers how to walk! lol 

    Hope you're all having a great day.

  • buddy1
    buddy1 Member Posts: 529
    edited April 2009

    Hi girls.  I just got home from the Onc.  My bi weekly visit.  He had me stay for IV fluids.  Said I was too dehydrated.  He said if I feel like it again to come back in a couple of days for more.  I knew I wasnt feeling good.  I didnt realize why.  I am still not drinking.  I just cant find anything I can taste.  I feel so much better after the IV.  I am sucking on a cherry Icee now.

    Donna I have no problem sleeping.  In fact I am usually out by 7 p.m.  I take 4 steroids for 5 days.  I am so happy that you are getting started.  Please make sure you drink lost of liquid.  Let us know how you are doing. 

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited April 2009

    BuddyLisa....how about Luigi's Italian Ices?  All grocery stores carry them.  Crystal Lite lemonade too worked well.  Hang in there!

    Juliet...darn chemobrain...what is your area of greatness?????  I know it was something with "numbers" but I can't remember what you did exactly.  I might know of something.....

    Brrrrrr.....chilly out there!  43 and windy!!!!!  Everyone....have a great night!

  • buddy1
    buddy1 Member Posts: 529
    edited April 2009

    Wendy  Thats a great idea. 

  • illinoislady
    illinoislady Member Posts: 40,902
    edited April 2009

    Buddy/Lisa....yes not enough moisture will make you feel crappy....Luigi's is great --- I resorted to Kool-Aid when I couldn't find anything else.  It is sometimes as hard to drink as it is to eat for a bit....I usually went four to five days without eating more than an egg and piece of toast all day if that.....but then the 5 or 6th. day I craved tuna fish on toast so made it.  Usually finished most of it off too.....and a fresh batch the next day

    My stove will be regulated ( only the oven ) on Thursday morning.  I was excited to get the stove, but didn't bother me to have to wait for one more week to get the oven going. 

    Have an appt. tomorrow at the V.A. Oncologist's office.  I'm assuming that they have another one now...though they did not say that.  I may be meeting with ????? who knows but not thrilled to drive all the way there and I don't know for sure why or who I will see. Anyway, I think it's just a check-up by the new guy.  The Dr. that got me through the chemo transferred to Florida....just about the time my chemo was done.  Here's hoping I can work as well with who they have now.  I'm crossing my fingers.

    Hope you all have had a good day today. Will be thinking about you tomorrow Donna.  The first one seems to turn out rather anti-climatic for most I think.  It looms large and a bit menacing and then we find out that we are well taken care of and generally....nothing much happens and we don't feel very bad after all. 

    Talk with ya'll later.

    Hugs,

    Jackie

  • InspireEmpowerConnect
    InspireEmpowerConnect Member Posts: 3
    edited April 2009

    I am just popping in quickly to tell you how much I appreciate all the warm welcomes from so many of you. I already feel your support and friendship on this journey we share. I'm grateful to know I have a safe place to hang out during this uncertain time. The next few weeks are super busy in my business while I juggle various appointments with doctors and others. So until next time, I'm sending you my smiles and hugs and a gentle reminder to always take care of you!

  • elf_song
    elf_song Member Posts: 148
    edited April 2009

    Is it just me or chemo makes you cranky and mood swing..   I cried few times today because I just couldn't stand the mess kids were making and on top of I was extremely tired.. So, I yell and scream at them...  Oh, boy~  kids got scared and cried..  I feel bad for my kids...    Since I started chemo, I got sensitive and cranky so easy and very inpatient..  which is not like me..  Even my mom told me I'd been changed and she was surprise..  She also told me that people who received the chemo, their personality been changed..  not everyone but some.. Does anybody hear that before??   How do you get rid of the stress??  I've been too much stress and it's keep building up and I can't take it anymore and probably that's why I am so cranky, I think..  I try to sucking in too much instead letting it out..  I need SCREAM~~   I am a busy bee.. like a person who love to go out and used to work a lot (before the kids) and crazy about singing but that changed since we left las vegas and my dh got a job with the railway company and that's how we've been moving around a lot..  I used to have my own car but now we have one car with too kids and my dh work at night so, if I wanna go some place, I have to make sure I come back on time for his work..  And when his days off, he wants rest.. and rest..   I am the person who rather go out and do something than staying home but he is opposite way..  And every time whole family wanna go some place, we (me and kids) have to wait on him to get ready...  OMG~!~!  it driving me nuts~!  I can get ready and get kids ready faster than my dh..    I told him so many times not to do that but nothing changed... guess you can't teach the new tricks to old dog, huh?  There was few times he got ready before me... I was impressed~~   These are the biggest complains I have..     Since we moved to chicago, I had a baby, got sick, didn't know anybody and stayed home most of times so, it was keep building up until now..    I love social life and I miss that..   Ah...  I feel a lot better.. Tongue out    However, I never asked my dh to do laundry or cleaning around the house..   He does more laundry than I do sometimes..  (probably that's why my friends are envy me)  We are both are clean and organized.. 

    Everytime when his leaving for work, me and kids are standing by the door and wave at him.. and I get tears in my eyes and realize I do love him very much...

    Already 1 am...   time flys when you sitting on a computer doesn't it??

    Like I said, I feel much better now and thanks to you ladies~!   

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited April 2009

    Morning  and a Very Happy Birthday to you, Blackjack!  Rita is our Queen and it seems Juliet is our princess....so I guess I will call you our House Bunny....the lady that keeps us all in line, thinking about our health, always making sure that we remember to have fun.  Thank you so much for all you have done, every day...you mean so much to all of us.  My life is surely richer with you in it.  Have a wonderful, happy day!  Hugs!

    Elfsong...welcome to the world of afterchemo!  I think for the most part we all suffered personality changes.  For me, it was well...I'm done now.  Now what?????  And then when I didn't get back to being myself,  I got angry and sad and cried so much it was crazy.  In fact I thought I was going crazy.  I think it is just another part of the whole process.  Try and not stress too much about all you are facing.  Your life will simmer down but (and here I think I can speak for most of us), it just will never be the same.  How can it be?  We have been in the belly of the beast and that beast has chewed us up and spit us back out.  We are changed.  Life will never be the same.  But it can be a great life, filled with much happiness and joy.  You are right now, in that "special" place, waiting to get back your life.  It just doesn't go "poof" and you are all better.  The people in our life think that this is the way it happens.  It can take a long time for that to happen.  We will get back some of what we lost, but unfortunately our mortality is staring us in the face now and we make a lot of decisions due to that fact.  And our family and loved ones don't get that.  But alll of us here get that.  So...just take a deep breath and relax.  Your kids and DH know that you love them.  You will get thru this.  Things will get better.  And this will someday be a bad dream.  And please honey, talk to someone about your not sleeping.  How can you function without a good night's rest?  This really is the first thing you need to tackle.  With sleep, most things seem a whole lot clearer.

    Jackie....glad to know your stove will be "adjusted"!  Otherwise, your Easter dinner will be a little "charred"!

    Off to start some laundry and then a hair appt.  Gosh Rita....we always seem to be going at the same time!

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited April 2009

    •  
      • BLACKJACK - Have a wonderful day!
  • ritajean
    ritajean Member Posts: 4,042
    edited April 2009

    WendyTY and I are walking in an hour but I just wanted to pop on quickly and wish Blackjack a Happy Birthday.  I have no cute graphics to go with my wish....just a sincere "Have a good day!"  HUGS!

  • illinoislady
    illinoislady Member Posts: 40,902
    edited April 2009

    Happy Birthday Bj

    There is no cure for birth and death save to enjoy the interval.
    --George Santayana

  • illinoislady
    illinoislady Member Posts: 40,902
    edited April 2009

    Good morning everyoneSmileIt is a really pretty day so far with the sun out.  Jimmie the cat is helping me as I write this ---  such people kind of guy....who looks on Baby Boss with haughty disdain.  Fun to watch the two of them.  Not used to having a cat in my lap as I type and don't really like it----but Jimmie almost insists.

    Bj....such a quick year huh!  Hope your birthday is great.....

    Long day for me today having to go to Marion late.  Maybe we will find some  place to eat and that will soften the blow.  Hope you all have a marvelous day.
    Elfsong.....Wendy said it perfect --  we go through cancer and come out the other side with the need of another kind of normal for ourselves.  It's  an adjustment and you will get there but the time spent doing so will be much better for you if you do get some more sleep. 

    Talk to ya'll later.

    Thinking of you Donna.....do well.

    Hugs,

    Jackie

  • conniehar
    conniehar Member Posts: 585
    edited April 2009

    Happy Birthday Blackjack!!

    Thinking of you Donna as you head for your first chemo.  I still remember that day and how scared I was.  I remember being pleasantly surprised afterwards at how good I felt.

    buddy1 - yep I had a lot of popsicles and italian ice during chemo.  I am a big water lover but it just tasted horrible!

    elf-song - sorry you are stressing.  It is a tough journey and I think our loved ones get back to normal much faster than we do.  That makes it tough because we haven't forgotten what we went through and it seems that others do.   I take a sleeping pill every night now.  It bugs me, but it is much better than the alternative.  Best of luck to you.

    Hi to everyone else out there.  I ran out for lunch today - it's really nice out there!! 

  • tdbear
    tdbear Member Posts: 286
    edited April 2009

    Animated Holidays - Birthdays

    BLACKJACK!!!  Have a cosmo or 2 you deserve it!! How time flies!!

    Our family is mostly March and April. So we have a BIG Easter /Birthday get together at my SIL house on Saturday, it's a potluck, but her & I do ham turkey and meatballs!! Plus several sides! I think last year we had about 75 + people PLUS the little kids!! Easter Sunday after church we have lunch w/ MIL at the assisted living....

    Friday is my "yearly" with my PCP....Hopefully it will be a "good Friday"!! I always get a little nervous, it was April both times I was DX'd!

    Better get to work!!

    HAPPY BIRTHDAY BLACK JACK!!!

  • donnadio
    donnadio Member Posts: 674
    edited April 2009

    Hi ALL.. jackie,Connie, Laura ,Susan Buddy.et al... thanks!!! ALL went well for first treatment. Feel drousy and will go lay down after this. Had no reaction or any surprises!!!!Thanks to GOD!!! Just having a grateful moment and it is one down that is so important . The neulasta shot is picked up and ,my DH will do that for me.

    SORRY ELf Song.. life is not easy period!!But with all one goes thru with this process.. more of life is even more challenging. Do what it takes to simplify and being good to yourself during the day.

    HAPPY BIRTHDAY BlackJack...!!Enjoy!!!!

    Oops.. is this chemo brain ( even if it is only first one..lol).. l forgot to shut the dark print off..sorry!!Goin to take a nap. Anxioius to say thanks and let everyone know, i got thru it and am home.

    Buddy..Luigi's itaian ice is good@!!   I bought some lemon. try it. AM drinking water now while i can tolerate it and you keep drinking anything!!!!!Glad you are hydrated now. Also. slept ok last night but i also had a Lorazapam!!!

    Be well and thank you for being here...

    Donna

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited April 2009

    I just talked to the Birthday Girl... her internet service is down! She is quite distraught! lol lol lol ( I told her about all the b-day wishes here at our site.)

    She asked me to tell you - THANKS for all the BIRTHDAY wishes... She really appreciates it!  Hopefully, her provider will come through soon, and she will be able to respond to all of us real soon.

    In the meantime... she really does appreciate your sincere wishes....AND btw - as we were talking on the phone... she was eating a big piece of birthday cake, chocolate ... her favorite!

  • buddy1
    buddy1 Member Posts: 529
    edited April 2009

    Donna  Yeah!! For you.  Hooray.  I am so glad the first is over. 

  • zap
    zap Member Posts: 1,850
    edited April 2009

    O man.....so busy these days!  Happy birthday, Blackjack.  I too arrive with nothing colorful.

    ElfSong, you sound very lonely and you need to be with some adults and have some fun.  I forget where you live. Where do you live?  Also, how old are the children?   You have so many things going on.  Chemo didn't change my personality, but the fears of cancer did.  Chemo did affect my emotions.   It is very scary.  I am still struggling with those fears and I do not have two small children.  I want you to stay here, but you asked about Albuquerque.

    (OMG, that town is hard to spell.  Finally came close enough that the spell check took it!   Anyway, it IS GORGEOUS!  We went to visit my cousin there and I fell in love with the place.

    Donna, you sound good, girl!  Don't get too grandiose, though, as it takes a few hours for the se's to kick in.  I like the bold type as it is easier on my CHEMO EYES! 

    Later!

    Susan