Illinois ladies facing bc
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Kater, I also received your e-mail. I did not know Joanna. I think she was at the Long Grove luncheon, though, and I was there. Yes, please keep us posted.Susan
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JOANNA - THIS ONE'S FOR YOU:
We are all wishing you a speedy recovery... get out fast girl! Even though you don't post very often...we are all thinking about you!
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Laura- I've got my dh trying your foot circle thing too! How fun!
Kater-Wishing all the best for Joanna, and hoping she is feeling better soon. Your mom too.
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HI GALS. I AM IN HOSPITOL. BEEN HERE ALL WEEK. FEVER DIAHREA DEHYDRATED STARTED SUND. ON MY WAS IN CHESTPAIN STARTED. MY RIGHT TE WAS KINDA RED AND SWOLLEN. THEY SEPNT THE WEEK LOOKING FOR HEART AND INFECTION PROBLEMS/ HEART IS FINE. LAST NIGHT THEY REMOVED MY RIGHT TE. IT WAS DOUBLE SWOLLEN FULL OF INFECTION. WHILE HERE THEY FOUND MASS ON OVARIES. HOPING ITS NOT MORE CANCER. I GET TO GO HOME TOMORROW BUT COME BACK WED FOR THE OVARIES TO BE TAKEN OUT. THIS WILL PUSH MY LAST AC DD BACK ONE WEEK. HOW MANY OF YOU GALS HAVE HAD THEIR TREATMENTS PUSHED BACK FOR ANY AMOUNT OF DAYS. LOVE LISA
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DONA I MISS YOU TOO. MY SIS BROUGHT ME MY LAPTOP TODAY.
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I spent a long day in Peoria for my one year check up. Had a mammo and sonogram, then saw my surgeon. They are continuing to monitor a benign growth in my right breast. It looks like it grew about 1mm since last year. Not considered statistically significant. I was a little worried because it took so long. I kept thinking...please don't let it be bad news.
The girl that did my sonogram ended up being the sister in law of a friend of mine. I had been praying for her since she was also diagnosed with bc last year. We had a good laugh over the fact that we knew of each other but never met before. Small world!
Mae - I had 12 Taxol treatment. I tolerated them pretty well.
Buddy1 - You are in my thoughts and prayers. Glad you get to go home for a couple of days. It was since of your sister to bring your laptop. Keep your chin up!
Donna - If I remember correctly, it started growing back shortly after chemo ended. I think I had some peach fuzz by the December get together. I should have taken pics along the way. It wasn't something I really wanted to remember at the time. Now I view it as my transformation into my new self. I have about 5 months of growth at this point. People don't look at me differently anymore (that I know of). It's kind of like wearing a wig. People see what they want to see or more accurately what they expect to see. I've met several people I didn't know before they had cancer. I didn't once think, that is a wig. In my opinion, the suffering from hair loss lies with those of us that loose it and our loved ones. Sorry I am rambling. I must be starting to feel better. I am getting overly analytical about absolutely everything.
I better get off the computer and go to bed. Wishing you all a great weekend.
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Morning! Wasn't yesterday a glorious day? That wind tho! Jeepers! Cloudy here but 68....Buddy...I am so sorry you are in the hospital. And I am also sorry that my mind is not working this morning...they removed your right TE? I am sure that is an abbreviation for something but I can't figure it out this early! Hopefully you will get to go home today and no more bad news will be coming your way. Let us know, ok?
Joanna.....thoughts going out your way!
Laura....yep...just tried that. And nope - can't do it! and WHY IS THAT??????? Interesting. OK girls - whoever has a doc appt this week, ask them! Hey smerf - ask your husband! He should know!
Rita ...did you have that top down yesterday? I took the Z out for an hour...good thing my hair is back to being short or I wouldn't have been able to see a thing with that wind.
Interesting our take on the wigs - I liked mine. Now, don't get me wrong. I sure didn't like being bald. In fact, I never asked if the chemo was going to "fix" me - I just asked about my hair falling out. But the wigs I thought looked really good - or at least I thought so! Maybe I was wrong! My last chemo was 5/9/2007 and I wore my wig thru 12/1, but I did wear it on Christmas as it was still terribly short. It grew very slowly, but I attribute that to Herceptin. Once I finished that in January 2008, it took off! Before BC, I never really thought about cancer as of course that was never going to happen to me but I would see people obviously going thru chemo and see them on TV and I always thought I would sooner take my chances than have to have chemo and watch my hair fall out. Funny what we can do when we have to do it. The worst thing about the hair for me, and I think Connie will agree with me...was NO bangs! My forehead looked so big! I hated that. I would actually pull on them every night, thinking that would help! (no - it didn't)
Off to eat some breakfast! Have a wonderful, warm if somewhat damp, day!
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Buddy.. You have to come home and get better.. What is an TE?? IN spite of all that is goin on , you take time to update us.. you are one strong and postive model and just want you to know sending you healing hugs, thoughts and good energy!!!! Miss you as it is and so glad they have you where you are getting all the personal attention. Let the other stuff go until they have the right diagnosis and info..Just wish i could do something for you.Getting the ovaries out is a absolute must and it is ok for the delay of tx. Had a friend have delayed treatment for her platlets were tanked and it all turned out fine!! Just do what the DR's tell you and don't think ahead if possilbe.. it is what it is and you will get thru it as you have this far. You are a light and a beacon of hope.
Love and Hugs Galore..Donna
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Good Mornings Gals. ,,,I'm still here. The Surgeon was just in to look at me. He said all looks good. My right Tissue Expander was terribly infected. My breast was swollen double size and red, I also had a fever. It all started so slow, My WBC was 500. As my Nulasta kicked in and my counts went up I was able to start rying to fight the infection . Thats when it started to get bad. I am waiting for the Infectious Diseases Doctor and My General Doctor to release me. I WANT TO GO HOME......I have been here sine Monday morning. So, what do you girls think the odds are that maybe the Laundry fairy came to my house while I was gone and did all of mine. NAH!!! Probably not huh. Well I have a new nick name anyway. Just call me Lefty. HUGS
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BUDDY THIS ONE'S FOR YOU!
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Ahhhhhhhhh.....TISSUE EXPANDER.....
OK Lefty - as for your thinking that the laundry fairy came to your house, you never know! There are miracles every day!
I hope the rest of your weekend is very boring!
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Good morning everyone---have been MIA just a little bit. So much going on and will continue yet for a couple of days. Got word yesterday morning that my cousin had passed away. I might have mentioned at some point that I had a cousin ( male ) that was diagnosed with cancer about the same time I was --- his was esophageal. Have another cousin ( female ) who had lung....and she is still here and doing ok. She had rads to head and neck....as well.
Anyway....wake is tonight and funeral tomorrow. Len and I had gone our separate ways out of high school, but we were fairly close growing up. I am going to miss him, a lot.
Buddy....tissue expander.....I couldn't figure that either and don't know if I would have ( too busy with Laura's project ) had you not said. Seems very dramatic and quick but I think that is how things can go when you have been putting cancer chemicals into your body. I hope and pray you are back on your feet and doing well as quick as possible. You will definitely be in my thoughts and prayers.
Donna....you are so sweet and such a great cheer-leader to Buddy/Lisa.....if it is possible to heal quickly I think she is going to be doing is just for you. You take care of yourself too.....as the ye ole' chemo struggles continue.
WendyTY....You are are so funny. But it's true.....get cancer and you have numerous people dealing with your upper body parts, and every time you turn around having to expose yourself....I too have almost gotten to --- it's not a big deal anymore. And I also like the analytical part. I always like to delve deeper into the whys.
Well, a ton of stuff on the plate today....must order flowers and get some clothiers out and a help Maggie with a project this a.m. so I need to run. Hopefully it is going to stay really pretty out with some pop-up shower possibilities here....ugg. Don't like that but someone forgot to ask me.
See ya'll later maybe.
Hugs,
Jackie
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The human contribution is the essential ingredient. It is only in the
giving of oneself to others that we truly live.
- Andrus,0 -
Donna - I had my last chemo on Feb. 6 (back in 2006) - dh inspected my bald head every morning... about a month later...on my Birthday - March 5... he noticed peach fuzz!
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Yuck...I have 3 clogged glands in my eyelid - woke up yesterday with a very swollen lid! Was lucky to get an appt with an Opthamologist. He "expressed" the glands, gave me antibiotics and said hot compresses 4x a day. One of the possible culprits - changes in ESTROGEN! Arghhhhh... that dirty 8 letter word! lol But...Flax Seed oil in your diet can help prevent them.
Two of my gal pals are coming over - they both live in downtown chi-town... they like coming out here and going to all the garden centers. And lunch of course! lol A little embarassed....my eye is not a pretty sight! lol Too bad the sun isn't out...I could hide behind sunglasses! lol I KNOW... it's always something! lol
Have a great day!
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DONNA I mis you too. You are always so kind and sweet I appreciate all of your encouragement so much. I hope you are doing well. How are the Goldens.? I miss mine so much. FYI I just called home and my kids said the Laundry fairy definitely did not show up. When is your next TX Donna? HUGS
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Buddy, I sure hope the laundry fairy came. I haven't stayed in a hospital overnight since I had babies. I truly understand how eager you are to go home. I sure hope they fix you up well.
I asked our special ed teacher about the right foot circles and the right hand six-drawring as she knows all this brain theory stuff. It has to do with the right brain-left brain connection. "Normal" people have trouble as they have a well-developed connection of the two sides of the brain. She said that some kids with learning disabilities can actually keep pattern. Now if any of you can do the two tasks together, do not jump to the conclusion you are not normal. You may just be very, very coordinated. Aren't you just thrilled it has nothing to do with BC?
WendyTY, I know how scary it is to wait and hear the news. It all sounds good.
It is raining so the planting idea is out! Take care.
Susan
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Buddy/Lefty - I'm so sorry to hear about what you are going through! Thinking of you, sending prayers and good vibes. I like that you crack jokes about stuff tho - like the Lefty comment.. that's something a lot of us here would do. Humor is the best medicine.
Hi to everyone else
WendyK, I always notice that you are up early like me - we are fellow early birdies 
I've got a couple of minor leads on jobs - if anything comes of it, i'll be sure to come here to celebrate. And WendyK, I still owe u lunch
My mom got some bad news - her mitral valve has a major leak, and she also has A-fib. She had open heart surgery 5 years ago during which she almost died... and she is really upset at the prospect of another. I'm taking her to Rush on Tuesday to meet with her Cardio & discuss the options. She's 78 y.o. and very weak/sickly for several years now. I just want her to have some good quality of life in her golden years, you know ??
I feel so bad for her. Please throw a little prayer her way - I'd appreciate it so much.take care everyone - Hugs, Juliet
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INFECTIOUS DISEASE DOC SAID I CANT GO HOME UNTILL MONDAY. WHA. WHA
I WAS SO EXCITED ABOUT GETTING OUT OF THIS JOINT...OH WELL THERES FREE ICE CREAM. AND I GET TO PEE IN A JAR. JUST KIDDING. THEY WONT LET ME LEAVE UNTIL THEY HAVE THE EXACT MATCH FOR THE INFECTION. MY BLOOD COUNT WAS 500 MONDAY AND TODAY I AM 10,000. BIG STORMS ON THERE WAY HERE IN JOLIET.
ZAP I DONT THINK THE FAIRY EVER SHOWED UP.
Busters Mom I wish your Mom the best. She is lucky she has you to take care of her.
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OH Buddy.. Rest it is! Where do you live in MONEE.I will go do your laundry..seriously. My next treatment is WED. and start the Decadron Tuesday and wait for my face turn red again!!! IS there anything else that you can do to worry all of us.. you need to stop this!!! Felt like, man , this chemo brain is wierd.. cannot figure out what TE is?!!!!Thanks for the brain overload!!!! Tissue expander.. duh!!!! Now who would of known that could happen?!!!! You still have humor and a great spirit about you .. so you know that is EVERYTHING!! will go to your house.. tell me where to go..really! I am good and fast at that stuff. Your GOLDEN has to be missing mom too!! Mine are all getting the white faces and older by the minute... but.. when it is AM and they know walk time is possillbe. they are all there likes bees on honey.They slowed in their walk too but Mommy just goes slow and then tries to encourage them. we are almost there..lol. Two walk wth tennis balls and one just keeps tripping the other. Quite a visual for all to see us all walk!!! Bags in hand, one poops there and the other waits behind the next and it is kind of like a factory line poop line!!!
Jackie.. I know.. Buddy started after me and i just have a great bond with her!!! I love my new named buddy...Lefty!!!!! LOLOL!!
Laura....This wig thing hurts too .!Went to Michigan today and went into this store/restaurant named The Stray DOG.. and bought a pink turban hat thing with DOG on it!!! My wigs hurt after awhile. What i cannot figure out, the fuzz comes and then how does that get to hair growth. seems like it will take forever!!!!I NOT liking this PART at ALL!!!!
ladies.. what about the sun thing. i wear sunsreen when in the yard. we have two acres and go to garden etc.. am i allowed in the sun if i have sunscreen on.. it gets so warm with long sleeves and such?
Well be safe from this crazy weather.. this kind of heat so fast can bring some changing weather and storms..Buddy...reall, if i can help with the kids or something with your golden,, let me know. My DH can help too. GET me now before WED!!!! You are goin to be fine cause you are a fighter and a lefty..LOLOL..You have power!!! Eat the ice cream and make a lot of noise and maybe you can get kicked out!!!
Be well all,
Donna
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DONNA YOU ARE CRACKING ME UP. OH MY GOSH YOU ARE SO FUNNY. I LOVE TO LAUGH. YOU ARE THE KINDEST,SWEETEST PERSON, HOW NICE OF YOU TO OFFER . I WILL JUST THROW ALL THE DIRTY STUFF OUT AND GO BUY NEW.....HA HA JUST KIDDING. MY HUBBY SAID HE AND TE KIDS GOT GOING ON IT TODAY. I THINK HE IS CRACKING DOWN ON CHORES AT HOME. YEAH FOR HIM. I REALLY DO APPRECIATE YOU DONNA. YOU ARE A WONDERFUL PERSON. MAYBE THERE IS SOMTHING I CAN DO FOR YOU. JUST BECAUSE YOU MAKE ME FEEL SO GOOD. IM ON TE 6TH FLOOR SO I AM KINDA HOPING FOR A GOOD LIGHTNING SHOW TONIGHT. I AM PICTURING YOU WALKING YOUR DOGS. HOW FUNNY. I KNOW HOW THEY ACT. MONKEY SEE .MONKEY DO. HUGS GALS I LOVE YOU ALL AND APPRECIATE YOUR SUPPORT RIGHT NOW SO MUCH. I GOTTA GO MAKE SOME NOISE.
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Okay, Donna, you have me going back in time to remember hair. I lost it in a October. Wore a wig to school that whole year (so until June). By August (return to school) I was never wearing a wig. My hair was very, very curly and very, very short. I think someone said it here....I looked like a person who had her hair cut way too short. Once I finished up the school year, I NEVER wore the wig. It made my head feel itchy and it is a bear in warm weather.
I am sorry to tell you that you have some time to go on this. If you can wear turbins do it! They are so pretty. My DH never fretted about the baldness so I went bald within my house. If the doorbell rang, however, I ignored it. I did ask my darling neighbor who has three kids to explain the situation to her three kids as I would sit in the backyard without the thing. They had experience with people with cancer and were were fantastic. Do wear sunscreen.
SP
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Buddy - OMG - I was just getting ready to send out the searchlight for you! You have had a tough week! So sorry! Hang in there... GET OUT as soon as you can! Be well...
Donna and Buddy - this will give you an idea of hair growth - (although, of course, everyone's different).
My hair started growing on March 5, 2006...
Taken April 20, 2006 - Didn't I look just like George!
Taken June 16, 2006
Taken July 18, 2006 (at this point hair was totally out of control - it was pointing north, south, east and west - used alot of gel and mouse!)
Taken August 19, 2006 (had a small amount trimmed off)
Taken September 24, 2006
Taken November 23, 2006
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Oh buddy....I am so glad you are doing better. It's a bummer that you have to stay a couple more days but it won't be long and you'll be home.......and hey! There's no place like home, even if there's dirty laundry waiting for us! LOL Hugs to you! Sometimes this doesn't seem fair.
Laura, I love your hair progress pictures! How cute!
Donna, I'm so glad that you and Lisa have become so close. That's what this thread is all about. Sometimes it just helps to have that person to whom you can vent, support, and compare "notes." I hope your next treatment goes well for you, too. You and buddy/Lisa will be done before you know it and I'm betting that your friendship will really blossom when you're both back to your "old selfs." In the meantime, both of you just hang in there.
Susan....have you got those days counted yet?
Wendy, I haven't had my top down yet. Everytime I've been out lately, I've had the back seat filled with yard sale valuables and I certainly wouldn't want any of my treasures to blow out! LOL
Connie,I bet your kids are getting excited about the end of the school year. Do you have a big family vacation planned for this summer or are you just spending lots of time up north?
Hi Jackie! Did you work in your yard today? I mowed and want to get my flowers out this next week. I think it looks like rain is on the way for tomorrow so maybe I can get out and buy my annuals the first of the week. I love putting the pots together even if I'm not the best at designing them. We also need to get the deck power-washed and ready to go. I really have spring fever.
Juliet, I have my fingers crossed that you'll get one of these jobs. It's about time for your luck to change in the job-search program. Keep hanging in there. Something is bound to open up for you.
Ginny, I hope you're doing o.k. on the new chemo meds. Enjoy your time in Florida. I hope the wedding goes great.
Blackjack.....how are you feeling???
I hope everyone has a great weekend. This afternoon was gorgeous even if it was pretty windy!
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I woke up with the raining... WOW~ I was gonna check and see what's going on before I go back to bed and I am still here 4 am and posting... I read 4 pages of post and I got tears and laugh..
About the HAIR thing.. I can't get over it, still can't.. I got tears reading Donnas post and I agree with what Susan said... CONTROL.. that is big word, I think.. and laugh with the WendyTYs can't keep her shirt on.. then got OMG with what happened to Lefty... And JulieB, sorry to hear about your friend and I also enjoy singing too so, keep singing and it will make you feel better~! Blackjack, I hope you feel better.. Laura, I love those pictures.. Wendy, I've been sleeping pretty good and radiation is not bad at all.. Lefty, are you at the provena st.joseph medical center in joliet? cuz you mentioned the weather..
I am doing good with the radiation and 11 more to go.. it makes me tired but I can handle it and skin looks little bit red but not worry.. About moving to NM, we are still waiting for an interview my dh suppose to have.. It's been almost 3weeks they contacted my dh's boss and got permission to do an interview.. oh well, it's still in progress so we will see.. personally, I rather stay here than move... enough already..
So, next time when we get together, Jennfier and JulieBs gonna sing for us??
I love you ladies and hope you all have a great day~!
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Buddy... How many times did they wake you up last night?!!! Swear they never let you sleep in the hospital!!!You doze off and always then they come in for something!!!Good that DH and kids are doin the laundry. Maybe this is the beginning of new change or new normal for you now if they are trained!!!! Just don;t laugh too hard if they do it wrong or make it a task that became more than they can handle!! Your GOLDEN will probably be helping too.. taking the laundry to his spots in the house!!!What a riot~!!! Now that vision is making me laugh!!!
Laurie.. What great pics and see the progression. and YOU are so pretty!!! Short hair looks good on you too thru out the process. I can see my hair goin in all directions as you say as i have alot of colics (sp?) and my hair goes all over the place as it is. Just love the pics and NO you did not look like GEORGE!!!! Just see it is defintiely a journey.Your DH looks like he ADORES you..awwww!!!
Susan...I will wear the wig mostly but do wear the turbans in the house or barehead as DH is fine with it. I probab;y will not be goin back to school to work until Sept.. wonder what hair i will have then?! Thanks for your insgiht. Thanks Rita for your encouragin words also!!!
Elf Song.. DID you get sleep?! Posting at 4AM!!!! Somehow, i am gettin sleep during this time.. thank goodness. Keep us posted on goin to NM.. interesting times to say the least i would imagine for you and your family!!! }Wishing you all good thoughts.
Buddy..Rest and enjoy the day from doin laundry.. they may not be the perfect Fairy Laundry Angels.. but at least something is gettin done. How are you feeling overall? Just know we are here and tomm you will be right where you left off as life goes on alright when MOM gets home!!!!
This swine flu thing is not something we need that is for sure. Took the shot in college and got a huge allergic reaction from it.. do not want any part of this!!Be safe and healthy!
Sunny Thoughts,
Donna
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Donna....you are so right! Every 2 or 3 hours its. somthing. You definitely dont get rest in the Hospitol. I have teh one good arm to draw blood from and I have terrible veins, So they are drawing from my feet now. OUCH! I must remember no matter how bad teh laundry is done. To just be thankful thats its done..and smile. This swine flu is really starting to scare me. I really want out of this place now. I will be sicker than I came in. Laurie your pics are so pretty. Funny thing. The nurese came in with soap and towel and a toothbrush. She put it all on the shelf in the bathroom and on the counter she left a great big black comb. I had to laugh.......
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Buddy1 - I have to admit, when I first read that you had your TE removed, I thought you meant your TOE! LOL. I couldn't figure out the connection, unless you also had gout! Hang in there, hospital stays are the pits, but it sounds like they are doing a good job monitoring and managing your infection.
Laura - What a great pictorial of your hair-regrowth. I avoided pictures for a long time during that phase, so good for you! You look gorgeous, btw.
Juliet- I'm sorry to hear about your mom. I hope the Cardio has some good news (and options) for her.
Donna - I wore my wig every day to work, but when I was at home that sucker came off right away and I wore my head scarves/hats. I also had a little soft "cap" that I slept in. I did eventually get used to the wig while I was at work and I hardly noticed it. When my hair starting coming back in though... yikes! The itching drove me mad. I stopped wearing the wig as soon as I had a decent amount of growth. People complimented me on my really short and cute Pixie hairdo.
Have a good day everyone. It looks like the storms may have passed and the sun is trying to peek through. I started the day with a terrible fight with my teenage daughter. *sigh* My day can only go up, right?
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All you Illinois Ladies-
Haven't posted lots but have been reading what you all have been saying. Believe me, it helps me figure out what to look for or ask the doctors about. You all have been a sense of calm for me as I head into my surgery on tues. I see how you may feel down sometimes, but you dust yourselves off and start fighting again. It makes me know that its okay to feel bad once in awhile but I don't let myself feel that way for too long. Just thought I'd let you know that you are all inspirations.
Jo
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Hi~ ladies I am having a great day even though I had 5hours sleep.. not tired.. and back to post our family pictures you've been waiting for~!~!~! It's nice out side now.. little bit of sunshine.. 
Just us~! from Evan's 1st birthday (this is my WIG)
Evan's 1st birthday~ on December 2008
Dean on holiday picture 2008
Happy New Year~ picture with Korean Traditional Dress
Dena's 3rd birthday on February 2009Have a good evening everyone~!
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Hi girls!
Just a quick post as I have a girlfriend coming over.
Buddy - so sorry to hear you are in the hospital. I agree - they never let you sleep!! Hope all is well.
Elfsong - your boys are adorable! I like your wig too.
Take care everyone!
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