Illinois ladies facing bc

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  • Kimbr7
    Kimbr7 Member Posts: 6
    edited November 2012

    Thanks guys!  My needle biopsy came back negative for cancer today.  Huge relief on my part, but will really feel better once I have the wire guided lumpectomy and get that mess out.  Dr sounded very confident today...she took a ton of tissue and it all came back great.

    I am going to use Dr Mammilito (SP?) for my wire guided lumpectomy.  I hear she is one of the best in the Peoria area.

  • timbek2
    timbek2 Member Posts: 64
    edited November 2012

    She's my surgeon. Very qualified. She's blunt but is gifted and knows what she's doing. Just follow her guidance and you'll be fine. Glad everything turned out for you. God bless!

  • camillegal
    camillegal Member Posts: 15,711
    edited November 2012

    Kimbr great for u and now it sounds like u'r surgeon and it' ll all come together.

  • spunkyboobster
    spunkyboobster Member Posts: 563
    edited November 2012

    glad to hear your good news Kimbr

  • illinoislady
    illinoislady Member Posts: 41,005
    edited November 2012

    Rely on the ordinary virtues that intelligent, balanced human beings have relied on for centuries: common sense, thrift, realistic expectations, patience, and perseverance. John C. Bogle

  • lago
    lago Member Posts: 11,653
    edited November 2012

    Yay Kimbr. We ♥ B9

  • momto7
    momto7 Member Posts: 114
    edited November 2012

    Hope everyone had a great thanksgiving!  Did anyone hit the black friday sales my oldest 2 had hit a lot of them  and got some good deals me I  stayed home  maybe this coming week I may hit a few don't like big crowds  I like to shop when hardly no one is in the store

  • doxie
    doxie Member Posts: 700
    edited November 2012

    My black friday was spent hanging out with family and friends.  Walking through the woods (burrrrr!) in MI, chatting, reading, and eating leftovers.  You couldn't drag me to those crowds.  But some love the thrill of the bargain.  

    Ditto to the "Hope everyone had a great thanksgiving."

    Yay!  My vision has healed and I'm back on a different ESD.  Better that than daring a recurrence.  

  • kjiberty
    kjiberty Member Posts: 687
    edited November 2012

    Hi Ladies!  Happy Belated Thanksgiving!  I spent the holiday in Michigan, and was gone for nearly a week, so just catching up now.

    Kimbr:  I live in the area and Dr. Jalovec was my surgeon. My understand is both Denise Mammolito and Lynn Jalovec are equally well-respected in their field.  I have never heard a bad thing about either. My PCP is on the board of the Komen Foundation (his sister died of BC at age 38) and he recommended Lynn.  I trust him, so that's who I chose.  Both, unfortunately, have a wait, though, so you have to be patient (pardon the pun).  Annette Le-Lindqwister is my MO and I really like her.  PM me if you would like further info.  

    Spunky:  Has your DD made any decisions on college yet?  

    Lago:  That turkey looked AMAZING!  

    RoulaG:  I know exactly where you are coming from!  We had 37 people at my aunt's house, and it was a combo of American/Lebanese food.  It's back to the gym for me tomorrow!

  • lago
    lago Member Posts: 11,653
    edited November 2012

    Doxie so glad the visions is back and they found a new ESD for you.

    I have yet to do a Black Friday… to be honest it scares me a little. Odd for someone who grew up shopping at the original Filenes Basement in Boston. 

    I'm hoping my husband makes another one of those Turkeys Christmas weekend.

  • doxie
    doxie Member Posts: 700
    edited November 2012

    Thanks, lago.  I wasn't happy being off of anastrozole for so long, but I didn't want to lose my vision either.  Hope exemestane doesn't cause the same SE.  

  • illinoislady
    illinoislady Member Posts: 41,005
    edited November 2012

    Let us be grateful to the people who make us happy; they are the charming gardeners who make our souls blossom.Marcel Proust

  • spunkyboobster
    spunkyboobster Member Posts: 563
    edited November 2012

    Off to the Bears game-brrrr!  I promised my husband I wouldn't wear my Green Bay Packer garb, but it's really cold-I may have to don my scarf at the very least.

    Enjoy a sunny, but brisk, Sunday!

  • lago
    lago Member Posts: 11,653
    edited November 2012

    Spunky it is nice but you do need to bundle up since there is a breeze. I was power walking and got warm (had to loosen scarf and open puffy vest) but I still had the headband around my ears and gloves one.

  • Graceembraced
    Graceembraced Member Posts: 86
    edited November 2012

    Hi ladies,

    Has anyone experience weakening of muscle with chemo. I'm having trouble straightening up when sitting too lone. I just turned 50 three weeks ago, but this has never happened before. I am hoping it will get better, but its been a couple weeks now. Could be the extra weight I put on, that I hope come off quickly.

    Also I feel as if my hearing has been effected too.

    Is this all chemo or radiation side effects?

  • lago
    lago Member Posts: 11,653
    edited November 2012

    It could be. You must report these symptoms to your onc. Muscle weakness is not uncommon.

    I know some folks experienced tinnitus from chemo but your symptoms might or might not be something more serious.

    www.breastcancer.org/treatment/side_effects/hearing_probs 
    www.ncbi.nlm.nih.gov/pubmed/16135407  

  • Lynn27
    Lynn27 Member Posts: 50
    edited November 2012

    Graceembraced  i agree with lago - report to your MO.  However, I have experienced the same cumulative muscle fatigue (not on the same meds as you, though).  It just got harder and harder to do the same physical things.  Heartrate monitor during exercise also showed it wasn't just mental - I was working harder to do the same routine.  I've only been off chemo for a week and so it's too early to report how long it takes to come back to "normal". 

  • camillegal
    camillegal Member Posts: 15,711
    edited November 2012

    Grace so many things csn be "normal " with chemo but always tell u'r onc. what's going on it's better for u sometimes with certain things they can help and they do want to know everything about how u feel.

    OK I'm leaving for my scan pretty soon so I actualky have to get ready--to be locked in a room. LOL

  • illinoislady
    illinoislady Member Posts: 41,005
    edited November 2012
    • Not what we say about our blessings, but how we use them, is the true measure of our thanksgiving.W.T. Purkiser
    • Living thanks is better than giving thanks.
  • zap
    zap Member Posts: 1,850
    edited November 2012

    Grace, all that is being said here comes form the voices of experience and wisdom.  Chemo can cause just about anything an that  is what makes it devilish tricky, as it could be something else that needs attention.  My husband is on chemo (not for breast cancer) and he had temporary hearing loss that was very scary.  He went to the doctor and they discovered that he had some sort of weird side effect that resulted in an accumulation of ear wax.  It was all drained and he his hearing was normal again.  Very alarming

  • lago
    lago Member Posts: 11,653
    edited November 2012

    Just saw invisible today for a quick lunch. She looks fabulous and is doing well. Hair is growing!

  • momto7
    momto7 Member Posts: 114
    edited November 2012

    Hi every one has anyone ever had loss of memory while taking chemo? I have been reading up on side effects and found that some has loss of memory this is all I  need  i have CRS already lol

  • lago
    lago Member Posts: 11,653
    edited November 2012

    momto7 I took 500 mg Acetyl-L-Carnitine all through chemo and still take it. It's a memory booster. I have no memory loss although I don't remember names and phone numbers… but was never very good at that. Ask your onc if it's OK to take it.

  • illinoislady
    illinoislady Member Posts: 41,005
    edited November 2012

    "The happiest of people don't necessarily have the best of everything; they just make the most of everything that comes along their way."

    Author Unknown

  • joan888
    joan888 Member Posts: 711
    edited November 2012

    FYI... just heard an NBC news teaser.  The NBC Nightly News is going to have a segment on chemo brain tonight on their 530pm news time. Just thought some of you might want to tune in if you can.

  • lago
    lago Member Posts: 11,653
    edited November 2012

    Just came home but here's the video link:
    video.msnbc.msn.com/nightly-news/49986490/#49986490

  • momto7
    momto7 Member Posts: 114
    edited November 2012

    Thanks lago and Joan!

    Really interesting  to know this i wish I knew weather or not my mom went through this she never mentioned  memory loss but her cancer was Hodgkin's  disease  and she had chemo for a long time it seemed.

        On the brighter side i got my drains out today yayyy  but the BS was concerned about the fluid build up on my right side after she took out the drain it like gushed out so I am hoping next Tuesday  when i see her again she will not have to put in another one or drain it with a needle i am doing arm exercises  did not realize it would be hard to put my arms over my head ugh!!

  • joan888
    joan888 Member Posts: 711
    edited November 2012

    Thanks for posting the link, Lago.  Good to see the additional web version.  Oh, just remembered that I bought some of that Acetyl-L-Carnitine.  Now, if I could just remember where I put it. LOL.

    Momto7... congrats on losing the drain.  It is sooooo freeing to be drain free.  Hope things continue to go well.  I am pretty sure that they never put drains back in, but its no big deal if you have to have your doc aspirate with a needle.  Just keep an eye on any swelling.

  • lago
    lago Member Posts: 11,653
    edited November 2012

    Momto7 you'll love being DrainNo. It's nice to be able to turn and not feel the sting of the drain! Keep healing!

    I'm now officially a certified Reach to Recovery volunteer (ACS) and an Imerman Angel. I haven't been paired up with anyone one yet but I'm sure that will happen soon enough.

  • illinoislady
    illinoislady Member Posts: 41,005
    edited November 2012

    Your inner knowing is your only true compass.
    - Joy Page

    To know the whole world is nothing
    when it is compared to knowing your own inner mystery of life.
    - Osho