Illinois ladies facing bc
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Beautiful snow this morning!
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tdbear --- golly haven't heard from you in so long. Glad you dropped in. I don't know how many of us routinely get on here on Sunday so hope you will keep coming back for possible answers. As well, some of us old-timers I think don't spend quite so much time as we did originally when everything was new and a bit daunting. I bet Smerf would come up with some pretty good info for you. Anyway....it is a great pleasure to see you though I wish it wasn't because you were troubled. I hope one of us can come up with the perfect answer for you.
As to being afraid and upset about the chemo......I wil just bet to a one.....we all were. Having the big C tends to be scary all by itself --- let alone the things you may be required to do to handle it. I think someone said take deep breaths and as you do.....think and recall as deeply as you can some of your happiest moments or some of the things you have always felt would be happy.
I will say as afraid as I was.......it turned out to be very anti-climatic for me. Almost a non-event though at the very beginning I had dire un-explainable feelings, sure that WHATEVER happened would be beyond belief and impossible to describe. Then I found out that virtually nothing happened. So, even though I could not say that I in any way looked forward to my chemo treatments ( I had 8 -- three weeks apart ) I was able to go and sit patiently and not feel any un-due concern about them. This is what you do to participate in saving your own life and to be here for the people in your life who care so deeply for you and need you.
I hope you will get with your Dr. asap and perhaps get something that will help you relax and be as calm as you can. Part of the reason BC.Org is here is so that people just like you who have the fears that we all have had, can some and talk to so many others that have taken this journey to deeply participate in their own care. You will be able to do this. At times I am somewhat amazed at my own audacity in standing up to this disease and choosing to win my health back. You can choose always --- we were not able to choose to not GET this disease, but we can choose to stand up to it and take charge and come out in good form.
You have armies of women behind you holding you up and wishing only to see you be well, strong and happy. We are wishing you well and know how difficult those first steps back to wellness are. We are here and we will stay here and be here every step of your journey. You are not alone.
Peace & love,
Jackie
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Chgogemini, do you have some to take you to chemo? What area are in in? I am happy to sit with you if you need a hand. The first treatment is the worst and I know how frightened you are, but moment by moment you get through it.
I prayed nd meditated through my first treatment and kept waiting for all the SE to happen at once and I'd be on the floor in a ball. Well it did not happen, I survived and you will too.
Please PM me if you would like, I am happy to connect on the phone too.
Take strength in all the comments here, I have discovered such wisdom and love her...truly a sisterhood of caring ladies.0 -
Chgogemini, do you have some to take you to chemo? What area are in in? I am happy to sit with you if you need a hand. The first treatment is hard, because you don't know what to expect. But take it moment by moment and you will do great.
I prayed and meditated through my first treatment and kept waiting for all the SE to happen at once. I thought I would be on the floor in a ball. Well it did not happen, I survived and you will too.
Please PM me if you would like, I am happy to connect on the phone too.
Take strength in all the comments here, I have discovered such wisdom and love her...truly a sisterhood of caring ladies.0 -
I finished my round of AI (aromisin) last summer. I am a 2 time survivor so chemo last time was double dose. I have neuropathy in both lower legs and hands. I'm starting to think the neuropathy caused my hip pain because I'm unsure of how I walk sometimes. And the hip pain caused my knee pain. I'm 6 years out now so my ins won't pay for onc visit any more.
It's really good to reconnect but it does bring back "memories" not necessarily good....:(
but the best group of women ever!!!!
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Insurance doesn't pay to see onc after 5 years? Gee I was told I would be seeing my onc every other year after 5 (as well as my BS the years I don't see her).
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Courage is quietness, not martial music made. Born of facing up to life, even when afraid.
~ Emily Sargent Councilman
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Hi...Is anyone taking Black Cohash for hot flashes? My BC is estrogen + and I read that there is some controversy as to whether black cohash is similar to estrogen. My onc recommended the black cohash but wanted to see if anyone is taking it.
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Shanni I honestly don't know anything about black cohash--but someone will.
What's al this about ins. after 5 yrs.????????????
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Biopsy results--Benign! Yay! Life is good!
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Yay kjiberty!!!
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Great news. Congrats!!!
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Shannie, as I understand it, Black Cohosh works with your estrogen receptors without being estrogen. So, for some it can help with low-estrogen symptoms without introducing estrogen to the picture. I'll bet someone over on complementary or alternative treatments could explain this better.
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I'm re-introducing myself. I checked in last summer, thinking I was in Chicago mostly to stay. We were in the process of selling a house in Dallas, then one of my daughters needed to attend a program near Dallas, so back to Dallas I went for a few months. We just finalized our move 3 weeks ago, so I'm very glad to be joining y'all. I just saw Dr Feldman today for my lymphedema - what a kind man he is. I'm living near the Loop - does anyone have a LE therapist they adore who may practice near the city?
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kcshreve welcome, again. Yes Dr. Feldman is a doll. I'm sure he mentioned that wonderful Betsy for an LE therapist that moved to Ireland. She was great but I'm not hearing great things about her replacement over at Novacare on 150 E Huron. The gal was trained by Betsy but the guy who is now in charge I heard, not so great.
A neighbor of mine goes to a gal over at Rush. She loves her. I don't think she's LANA trained but if Dr. Feldman had no recommendations for you I might try her. I haven't needed any PT since Betsy left but if I did I would give her a try. She specifically lists breast cancer related LE as one of her areas of practice.
Sent you a PM with info
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Self-respect cannot be hunted. It cannot be purchased.
It is never for sale. It cannot be fabricated out of public relations.
It comes to us when we are alone, in quiet moments, in quiet places,
when we suddenly realize that, knowing the good, we have done it;
knowing the beautiful, we have served it;
knowing the truth, we have spoken it.Whitney Griswold
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Kjiberty-woot! Love that good news.
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So good to hear your news Karen. Big major sighs of relief being heard all over Chicago. Once you have this disease.....every little bump in the road seems to be worrisome, but in so many cases it turns out to be something simple and no true cause for alarm. Prayers of gratitude now for the good news.
Jackie
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Yay!
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Great news KJ!!!
kc- It's okay to see a LE therapist that's not LANA certified. What IS important is where they got their training. The "big three" are Norton, Klose and Vodder. Welcome back to the Windy City (and did ya' know the nickname has nothing to do with the weather?)
Lots of "relocaters" enjoy learning what it really is. Think politics.0 -
Thanks, Ladies!
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No one is useless in this world
who lightens the burden
of it to anyone else.Charles Dickens
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Morning everyone.....C-squared. Great morning. I did learn something I did not know. Born and raised in Illinois and never knew why Chicago was called the windy city. Being a little over four hours away, I never questioned, but political would be a better why since most of the downstaters I think carp about all the money going to Chicago --- but that is where politically everything happens. So, thanks......when someone mentions Chicago...I'll have something interesting and true to add.
Have had slighly warmer temps here for a bit. I'm glad....I am much more fond of cool....than cold. Also as most know more than two days without seeing the sun and my outlook is not so rosy....so it is good here for now. February has in the past been known to reach some summer like temps briefly. With the global shifting of temps will be interesting to see.
Hope you all have a wonderful day.
Love & peace,
Jackie
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AY B9---Love it--Such a good feeling and clears u'r mind. KJ
KC welcome back hope--hope all goes well with u'r LE
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Yeah Karen!!!! Whew! It feels so good to get that "all clear" report!
Lago, my insurance still pays to see my oncologist and I am over 5 years out. I guess this next year it will not pay for a diagnostic mammo....just the regular one since I am over 5 years out. When I get home I'm going to research this a little more, but that was what I was told when I had my last mammo this past December in Peoria.
It is lovely here, ladies. It was 80 degrees outside today. We did some fishing. We caught some fish but they were too little to keep so we tossed them to the pelicans that were gathered around the pier waiting for a free snack. It was fun to watch them try to catch them! I could get used to these winter temps very easily. Tomorrow we are exploring Pine Island with some friends from "home" that are also down here and then crashing by our pool. We couldn't have found a nicer place to stay! I wish I could bottle some of this sunshine and warmth up and send it to you gals. It does improve my mood!
Hi c-squared! You taught me something new today, too. I always thought that the Windy City referred to the weather conditions and the winds that often blow in from the lake. Glad to see a post from you!
Jackie, are they forecasting more snow and ice for your area on Friday? We have friends who will be coming through your area that day. They are going to spend a week with us. They're the ones we went on the Biloxi golf vacation with last year.
Welcome back, kc!!!!
Hi to everyone! I'll pop on later again.
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Well I knew why we are called the Windy City. Something I learned within months of living here. Guess only transplants know this.
Thanks RJ it does seem a bit strange that after 5 years one would be cut loose from the onc for breast cancer. Some other cancers maybe but not the "has no known cure" ones.
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lago~
Huh? I'm NOT a "transplant" - born and raised here! & proud to share the info.
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Still, on certain days, trying to walk through the wind gusts downtown, I just don't believe it's called the windy city because of politics.
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Lago: Happy Birthday!!!!!!
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It's birthday time--A very Happy Birthday lago and loads more and u'r kindness to people will make u'r day more special.
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