Illinois ladies facing bc
Comments
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peki007,
Thanks for sharing about your screenname! I was thinking you were also a British undercover op (or a Bond girl)
Hope you didn't read my post as suggesting that what I went through was worse - just trying to explain why I could share about my experience with fewer treatments, but it would be pretty much an oranges and tangerines comparison. Close - but no cigar.
I think women who get whole breast radiation, or close to that, (following lumpectomy) go through something much more extensive than what I went through with the radiation portion of my treatment. And I think they face the potential for greater skin issues on that most delicate skin. I hope that your experience is a good one and that you do not have widespread, hurtful skin issues with your treatment.
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No covert operations for me, but I know in my next life I am going to be some type of dancer. I used to say Solid gold but everyone was too young to know what that was! Thanks, Donna - a girl can dream, can't she?
I would never read into your post as that - I appreciate when people share what they went through - and I do know that everyone is different. I hope taking the shorter route doesn't bring about any skin issues. I have thought about that and that is why I asked he question in my post. The unknown is always difficult.
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Did someone here mention a non profit group that sends cards to newly diagnosed bc patients? If so could u send me that link? I'm hosting a luncheon to thank friends for their support and would like to pay it forward. Thanks for your help!
Becki0 -
peki so sorry I can't offer any info about the rads. There are so many decisions to make on this journey and so much info to sift thru. Hope you get the help your looking for.
BTW. My PS is with Dupage medical and I had my MX @ CDH. I am in West Chicago.
Best wishes to all for a great, DRY, weekend!
Leah0 -
Here's that link: www.girlslovemail.com
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Lago, be thrilled you are up so high and have no basement to worry about. My house is okay and so is my daughter and SIL who are visiting Boston to be with family. Yea, I know....the timing was awful. They went the day before the storm to be with family who were so upset about what happened at the marathon. Their biggest issue is protecting the three kids from the constant bad news and keeping them happy with activities that include not going to the city to do all the fun things they had planned. The kids are small and the swingset is still fun!
I too do not know about rads. I think getting clarification from the doctor is in order. To be honest, I just accepted whatever I was told, and I now realize that is not a good way to go. You will do great. A very tiny percent of people (and I would be in that very few and I think it may be like 1%) needed to quit early as I had very bad burns. I took the pain but a doctor (not my rad doctor who wanted to keep going) called a halt when he asked another doctor to take a look. I am sure he expected her to agree with him, but my skin was blackened and she said ENOUGH. I had to stop with five more to go, and I am currently (6-plus years) doing okay.
Again, we are all so different and it is comforting we have this place to ask questions....BUT...we are all so different.
Wish you well!
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Zap we have had issues in the past with it coming though our windows and last time through the upstairs apartment windows down to our apartment. We've been lucky. Home at the time so our wood floor wasn't ruined. The building makes those kinds of repairs to the windows. No issue this year.
Glad the family is safe.
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Oh Zap what a time dor a visit to Boston--who would have thought. But I'm glad everyone is safe and they found who they were looking for.
What a crazy week for everyone.
Leah my brain is like a brick so I'm sorry if I've gone thru this before with you. I live in West Chicago and zi go to the same hospital as u do, who know we might have met. LOL Did we talk about this before? I love that hospital and my Drs. are fine. I say fine cuz they are just getting to know me (we moved here a year ago) I know they are thorough and watch me very closely, I have a Onc. app't Monday.
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When you live in the present moment, time stands still. Accept your circumstances
and live them. If there is an experience ahead of you, have it! But if
worries stand in your way, put them off until tomorrow. Give yourself
a day off from worry. You deserve it. Some people live with a low-grade
anxiety tugging at their spirit all day long. They go to sleep with it,
wake up with it, carry it around at home, in town, to church,
and with friends. Here’s a remedy: Take the present moment
and find something to laugh at. People who laugh, last.
Barbara Johnson0 -
Good morning all! It is SO nice to see sun this morning. That rain was awful. I spent the entire day Thursday bailing out my basement - we all got water in our basements over here. I am happy to report there is no more water coming in. I had my oophrectomy yesterday. All went well and I was home by 11:30am! I didn't even have nausea which is shocking since I usually puke after every surgery for a good day. I have not had to take anything at all for pain either. It's tolerable.
I hope everyone is doing well! I have written lots of letters to Girls Love Mail. I think I will write more this week while I am recovering.
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mdg glad you're pain/nausea free. In the future if you tell your anesthesiologist you get nausea from anesthesia they will put something in there to prevent it. I got it for my nipple recon/fat transfer and it was great. I know invisible too got (I think emmend) and she didn't have a problem either.
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Love your quote today, jackie. It speaks strongly to me. Thanks as always!
SUNSHINE! Today is already a better day! :-) Going to see "42" tonight. Hope it's as good as everyone says!
Have a good Saturday!
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Thanks Lago. Unfortnately I always tell them I am a bad puker and they are never able to prevent it. I have always had issues with anesthesia. I even had a reacation to the epidural when I was having my son so I ended up with an emergency c-section. I am just pleasantly surprised I had no barfing this time! I think it also helps that I was not under the anesthesia for very long. Glad it's over!
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Mdg so sorry about u'r basement--what a messy job. But it is nice to hear u'r doing OK and this wasnt so hard on u,--Glad it's over.
Rita I hear it's a great movie, so enjoy.
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I haven't checked in here for months, so in skimming over some of the posts I missed, it was nice to see that same supportive tone that this group always seems to have!
I've been in the annual "Tax Fog" part of my year, working at H&R Block for the season, but now I have emerged from the tax cocoon to get on with other things in life. My partner and I are in the middle of buying a house here in Champaign and just did the home inspections and repairs/credit request on that. It is heartwarming to inspect a house with a basement after it's been raining for days and to find the basement is dry!
May 1 I will go for my first post-treatment mammogram and sonogram. We're calling it my one-year anniversary, although it's a few weeks short of the mammogram that started this whole adventure.
Tulips in my back yard are starting to open. Spring is arriving....
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Yay for Spring and yay for the new home. You couldn't have picked a better time to test out a basement, huh !!! The part of Illinois I'm in seldom has totally dry basements. Water table here is incredible....but knowing that, when you build you can do things that totally discourage seepage.
Good for you and sure hope everything continues to go well Virginia. May you been saying the same thing ( about disease anniversaries 10, or 12, or just lots and lots of years from now.
Peace and love,
Jackie
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tulips in Champaign! Hooray!
I plan to go to Holland Michigan for Tulip Time. I was afraid that the tulips would not be there the first week in May.
But who knows? Maybe they will be!
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mdg, Ive also had bad experience with nausea from surgery this last time they gave me a scip for a patch and then anestesiologist also gave me something thru IV and it worked came out feeling great!
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Tulips! I want to see Tulips. I did notice the forsythia are starting to open here in the city.
cateyz2 so glad it worked for you. At my exchange I told them I had issues and all they did was give me that patch. Patch just made my mouth dry. It was out-patient so I was told to go home and eat saltines… right like I could do that with being all dried out from that patch. Silly nurses.
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Lago--haha did u try to whistle with the saltines too.
Virginia u'r life sounds like it's all going in the right direction and so happy for u.
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Camillegal hi neighbor! I,too, love CDH and my Dr.s are great. So glad to connect with local gals, maybe we have met:) do you go to The Living Well cancer resource center inGeneva? It has been such a lifeline for me.
Leah0 -
Oh Lago, go to Holland, Michigan if you want to see tulips. It is about 3 hours (maybe far less) near the lake. Timbuktu, you will have so much fun, The downtown is actually very upscale with great restaurants. Lago, if you go to Holland, Michigan in early May (maybe a bit later this year) you will see so many tulips that you may never need see another one for a few years! I love the history of this place as well.
I am sorry for all who are dealing with water problems while dealing with treatments. How very exhausting that must be. So many of the kids at my school have water everywhere and they are stressed because their parents are stressed. Spunky, I hear that Elmhurst was hit so hard.
Susan
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Leah I've never been to anything except here and this I started later but i really didn't need much--I don't know why. I came here because of Se's I didn't know I'd have so many and I was curious how everyone dealt with them.
Zap there was a lot of basements loaded with water in Elmhurst so they did get hit hard--we (right in this area) were OK.
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What is important is to realize that whether we understand fully who we are or what will happen when we die, it's our purpose to grow as human beings, to look within ourselves, to find and build upon that source of peace and understanding and strength that is our individual self. And then to reach out to others with love and acceptance and patient guidance in the hope of what we may become together. Elisabeth Kuebler-Ross
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Leahy - I have been to Living Well as I live in Geneva......Maybe we have met???
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Hi Virginia....so glad to see a post from you and to hear that you're doing well and that you're buying a house! Come back more often We've missed you!
Oh my gosh...If you get the chance to see the movie "42" go for it. It was fantastic and very tastefully done. We loved it!
Today we are working in the yard. Flower beds here I come! The sun is out and although the temps are still cool, it will feel good to get out there and dig in the ground.
I hope everyone enjoys your Sunday!
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MDG, as Ive recently deen diagnosed and live out in the boonies NW of Geneva, can you tell me about Living Well and what they all offer/ costs etc.
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THey have a website. THere is no cost for services. They have yoga, fitness classes, cooking classes, reiki, massage, support groups and more! They even have programs for kids. I sometimes attend the breast cancer networking group as the nurse navigator needed people that were further out from diagnosis to help offer perspective to those early in treatment. Feel free to PM me if you want to meet up there sometime to check it out. They recently moved into a brand new building...it's gorgeous! Very zen......peaceful and relaxing!
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Achieving goals by themselves will never make us happy in the long term: it’s who you become, as you overcome the obstacles necessary to achieve your goals, that can give you the deepest sense and most long-lasting sense of fulfillment. Tony Robbins
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Achieving
goals by themselves will never make us happy in the long term:
it’s who you become, as you overcome the obstacles necessary to achieve
your goals, that can give you the deepest sense and most long-lasting sense of
fulfillment.
Tony
Robbins0
