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Illinois ladies facing bc

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  • illinoislady
    illinoislady Member Posts: 40,942
    edited June 2013

    Expressing gratitude ignites the light within us and is a sure path to joy.  Gratitude is one of the highest vibrations of energy we can create, it's free, and anyone can give it.  It can be as simple as being thankful for soup, being thankful one can see, walk, wiggle a finger, or tap to a beat.  One can be grateful for happy children, good neighbors, good luck, and simply being alive. . . . Part of the journey toward joy involves not waiting around for trouble, but being continuously aware of our blessings.

    Charlotte Davis Kasl

  • Bogie
    Bogie Member Posts: 79
    edited June 2013

    Spunky!! just popped in and saw you. How are things going?



    I am finally done with all my (cancer) surgeries. Breast, Kidney and a very small thyroid. I am feeling good and back to work full time. My Aromasin is kicking in full gear though giving me pain and stiff joints, muscle aches ouch!



    I am back to researching a Diep Flap surgeon in the Chicago area that takes HMO and is good to fix my botched MX and Failed Tissue expanders.



    Good to be back and catching up on life, or trying to :)

  • camillegal
    camillegal Member Posts: 15,711
    edited June 2013

    Catey I'm so glad u surgery went well and u'r Dr. sounds wonderful to u.

    Jackie u are so stubborn but so sweet--I wrote that to Ann Landers so many years ago and I saw she used it and din't care. Those were the days we used the mai and stamps. zlol

    Welcome Midwesterndoglover--I might just call u lover or Mid, I like Lover better. Well u have come to a place of serenity for questions and comfort--really--Thes wonderful women know more than some Drs.---u sounded pretty up, but now we know u'r having a hard time if u want to share believe me there will be help on these boards, (not from me) I just likethe women don't know much but do care alot so I hope u feel comfortable right away and get some stress taken away.

    Hi Bogie--either I haven't seen u for a while or don't know u, but I think it's the first---Chemo Brain and old brain. A double whammy.

    Jackie don't be upset that I keep on correcting u, I just love doing that. U'r one of the reason I like being here u live with rose colored glasses and i love it. Cuz I'm not her to give info, LOL

  • illinoislady
    illinoislady Member Posts: 40,942
    edited June 2013

    Hi Bogie....I guess I'm slipping too.  I half way feel I've see you and half way not.  Maybe I'll just sit it out in the middle here.    I am glad you are here though and  sounding like you have a good handle on things -- willing to shake things up and see what you can make happen. 

    Camille...you are so much fun -- and you know when you write those things I need to be corrected so I can give credit where it is actually due.  I do really like my rose colored glasses though.  Helps me get through some of the tuff stuff.

    Beautiful Sunday to all of you.

    Peace and love

    Jackie

  • midwestdoglover
    midwestdoglover Member Posts: 10
    edited June 2013

    Hi Everyone,

    Yes crazy things with that port..I will take my bottle of 5mg prednisone, and benadryl, and see if we can do that beforehand, or give me shots of those...And then the port stuff should be fine.

    That was scary with throat closing up, i tell u.I only remembred the beginning of it, and when i woke up

    I'm handling the chemo really well, only had 2 of them a/c so far, because of port probs last week. 

    I'm not handling the rheumatoid arthritis well, because i am off my biologic med, Enbrel. Will ask next week when i start radiation, it's once a week, for a month, if i can take that med then.

    I guess the Tax chemo is once a week for 8 weeks

    Ya, i guess i am upbeat thanks to Cymbalta, just a walking drug store, stuff i take, celebrex, etc.  Took 10mg prednisone, and pain pill Norco works well for me, for the joint stuff going on.

    Tks for the warm welcome, and have a relaxing sunday all

  • camillegal
    camillegal Member Posts: 15,711
    edited June 2013

    Oh I'm glad u have good meds I am of the belief of Say yes to drugs now, and I take them. nd I never did before all this crap.

  • Tonysgrl
    Tonysgrl Member Posts: 3
    edited June 2013

    Hi ladies someone kindly inboxed me on here To tell me about this group. I can't figure out how this works now and I can't figure out how to get back to their message they sent me. Is there a tutorial that tells you how to see if someone replies to your post? I live in the southwest suburbs of Chicago i am a mama To six kids and 43 years old. I have five daughters and a son my oldest daughter Brianna is 25 years old and was diagnosed with brain cancer December 2012. She is the mother of five-year-old little girl. Here's my story my first mammogram was January 2010 and it is actually the only mammogram I have ever had. I have been having on-again off-again left breast pain under my breast. I also been experiencing back pain right behind that same breast so I finally went to my regular doctor. I explained my concern about this breast pain. He gave me a breast exam and found a lump he said it feels to him like a cyst. Because I have an HMO he referred me to breast surgeon I can't get into see her until June 20. When I called make the appointment for her the receptionist had asked when was my last mammogram and a red flag one off my mind And I thought shoot I'm gonna go to the surgeon she's gonna send me for a mammogram and ultrasound then it'll take even longer I don't what is going on. So the next day I called my regular doctor and asked for a referral for a mammogram and ultrasound done on the same day I am scheduled to go to that in June 4 which is Tuesday. I already suffer from panic and anxiety but this is sent me over the edge I've already started planning my own funeral. Between all that I'm dealing with with my daughter and now this I just can't even imagine. My daughter lives with me and she's probably the strongest person I know. I am scared to death and part of me does not even want to know But then I read stories on here and I think if all these women did it I can do it. I should find out the part of me wants to cancel. I don't know what to do I'm scared worried and feel very alone. I don't even know how to work these message boards so I have no idea how I will even find any responses you guys post to this message. If anybody can email me directly at Tgodinez@comcast.net and tell me if there's a tutorial for these message boards and how to find responses. I would appreciate it so much

  • C-squared
    C-squared Member Posts: 338
    edited June 2013

    Just catching up after a "fun-filled" weekend at school getting packed up!  <sigh> 4 more days!  Laughing

    Catelyn~ So glad to hear your surgery went well & that the nodes are clear!  Yay!!!  And remember the mantra:  "Just because you CAN, doesn't mean you SHOULD!"  Wink

    Welcome Mdwestdoglover!  You are the epitome of a GREAT ATTITUDE after what you've been through!!  How frightening!  So glad they figured it out and here's hoping it's under control for the remainder of your infusions!

    Bogie~ Welcome back(?)!  Sounds like things are going good for you.  Please keep us informed on your progress with a DIEP doc who takes HMO.  I think that's a great resource to have.

  • joan888
    joan888 Member Posts: 711
    edited June 2013

    Welcome Tonysgirl.  I sent you a PM.

  • lago
    lago Member Posts: 11,653
    edited June 2013

    Tonysgirl sent you an email.

    Hi everyone

  • Tonysgrl
    Tonysgrl Member Posts: 3
    edited June 2013

    Thank You found my way back to the group

  • Tonysgrl
    Tonysgrl Member Posts: 3
    edited June 2013

    Thank you for the email I want you back and I found my way back here yay

  • joan888
    joan888 Member Posts: 711
    edited June 2013

    I am in the process of updating our contact list.  If anyone wants to update your info or add your name to our list, please PM with any info you want to include.  The customary info besides name, address, phone, and email is dates of birth and dates of diagnosis.  All are optional, of course.  The list is a good resource for planning get-togethers.

    What happened to our summer? 

  • Bogie
    Bogie Member Posts: 79
    edited June 2013

    Cam & Illinois, no your not loosing it from chemo fog. I am all over the place depending on the issues and have been MIA from here for quite awhile recovering from other cancer surgeries. C- squared I will let everyone know once I find an HMO Surgeon with the Diep Flap. I am giving myself a break from 2 years of surgeries, love living life again as if nothing happened. Does anyone know when the joint pain gets so bad from the A's is this doing permanent damage to bones



    Tonysgirl, if there is anything I have learned and I am sure others agree. Take one day at a time, it does no good to get ahead of yourself. Stay strong for your daughter and get in for your tests and appt with the breast surgeon, don't be afraid it could be a cyst.

  • camillegal
    camillegal Member Posts: 15,711
    edited June 2013

    Tonysgirl if u get back here and aftr talking to Lago I'm sure u can be a part of a wonderful group of ladies that not only will ur questions be answered but a lot of caring goes on here and some fears might be squashed for u. So please come back and know we are all listening to u.

    Like it was said u don't know anything yet so tae some deep breaths and try to calm down--ask u'r Dr. for something to hep u if u need to do that. All of this can not be as bad as u think, I knoe the waiting is awful--probably one of the worst parts but everyone here will help.

  • doxie
    doxie Member Posts: 700
    edited June 2013

    Tonysgirl,  Waiting is the absolute worst part of this.  Hopefully everything will be fine and this will just be a very unpleasant scare.  I'm rather surprised that your doctor didn't send you to get a mammo and US, initially.  Very smart of you to think of this.  A little secret about scheduling, sometimes your doctors can get you in earlier than what you might get if only you call.  Ask them if their nurse can make the call for an earlier appointment.

    So sorry to read about your daughter and her fight with brain cancer.  

  • camillegal
    camillegal Member Posts: 15,711
    edited June 2013

    Doxie that's so true--my GP who I've known for over 30 yrs--after my mammo made all my appt's--I didn't even know yet andI had my Us, biopsy, decision of chemo first and port putin within a week and I would have started chemo the day of the port but the ins. hadn't OK'd it so I tarted like 2 days later--so there was no time to think or worry, but he did tell me I would put if off so he took care of it and I should call and confirm--he called me back in 30 mins after calling them and said OK I checked to make sure u confirmed and when I met my BS he asked me who I was ro the Dr. cuz I was put on priority and my GP is Asian and I said well I'm not his sister.And since I've moved I like my new Drs. but they are not my older Drs. and I loved them all especially my GP. So It xan be very important in u'r relationship with u'r GP cuz they are the start and mine gave me the best--as they all do--but that's one of the reasons I was in treatment within 10 days tops, so results can be done quickly if they want--I'd have them the same day.--I don't know why I'm going on and on, maybe cuz i see a new Dr. this week and I don't know what to expect at all---but I'm supposed to wait til my brother calls me to check on all this and either stay with this Dr. or get another one?? I don't know what going on.Complicated story.

    Well I hope everyone has a decent Monday and if u can a wonderful Monday.

    And Tonysgirl I put u'r Dgtr in my prayers--I hope that's all right.

  • 2ns_Jenn
    2ns_Jenn Member Posts: 95
    edited June 2013

    Behind in reading due to being away for the last 3 days doing the Avon Walk.  Busy day ahead of me today - I still have so much I need to do before surgery tomorrow.  

    CateyZ - Glad to hear everything went well for you!

  • cateyz2
    cateyz2 Member Posts: 253
    edited June 2013

    Jenn Thank you and hope all goes well with your surgery

  • illinoislady
    illinoislady Member Posts: 40,942
    edited June 2013

    If you cry because the sun has gone out of your life,
    your tears will prevent
    you from seeing the stars.
    - Rabindranath Tagore

  • camillegal
    camillegal Member Posts: 15,711
    edited June 2013

    Jenn we;ll be waiting to hear how u'r surgery goes of course--so as soon as u can bring us in on it. Good Luck

  • illinoislady
    illinoislady Member Posts: 40,942
    edited June 2013

    Thinking of all of you, needing to do tests, have surgery or just see your Dr's and hoping it all comes out good. Hoping for a quiet un-stressed Monday here.  We are back to some very much appreciated coolness (whew ) after lots of humidity before and right after our rains.  We have water all over -- creeks very well out of their banks and flooding nearby fields and a couple of the rivers around here have not crested yet.....but it is coming.

    Peace and love

    Jackie

  • spunkyboobster
    spunkyboobster Member Posts: 563
    edited June 2013

    Bogie!!! I'm so glad to hear from you-I've been thinking about you. Sorry to hear your journey has had so many detours, praying all is well and glad you're getting a bit of a break. Enjoy the summer doing all your favorite things. Smile

    Tonysgirl-Welcome to the Illinois Ladies. I'm glad you were proactive and got those appointments set up quickly. Now that you've figured out the site, keep us up-to-date with your progress and drop in with questions or just to vent. You and your daughter are in my thoughts.

  • joan888
    joan888 Member Posts: 711
    edited June 2013

    2ns_Jenn.... thoughts and prayers are with you for your surgery tomorrow.

  • camillegal
    camillegal Member Posts: 15,711
    edited June 2013

    Jenn u' having u surgery today OK--keep us in ont it--we'll be thing about u.

  • lago
    lago Member Posts: 11,653
    edited June 2013

    Thinking about you today Jenn

  • C-squared
    C-squared Member Posts: 338
    edited June 2013

    2ns_Jenn (love that!)~ So glad you had a good experience this weekend at the AVON walk!  And so sorry it rained!!  I look forward to hearing more about it when you feel up to it.

    Wishing you comfort today and in the days to come.  Let us know how you're doing when you're up to it.  And ALWAYS remember the surgery mantra:  "JUST BECAUSE YOU CAN, DOESN'T MEAN YOU SHOULD!"  Laughing

    C-squared  

  • illinoislady
    illinoislady Member Posts: 40,942
    edited June 2013

    Life can change in a split second. If something isn't going your way, know that at any moment, it can take a new direction. And if you love what's happening, embrace it with all your heart and be grateful for your blessings!  Tia

  • illinoislady
    illinoislady Member Posts: 40,942
    edited June 2013
    Never fear shadows.... that always means there is a light shining somewhere. ~ Jonathan Santos 
  • illinoislady
    illinoislady Member Posts: 40,942
    edited June 2013

    Thinking of you today Jenn.  Hope anyone having anything done or tests preformed have it all come out good.  I hope the northern sisters are having a bright beautiful day too. We are due for more rain toward the week-end and warmer temps will return at that time.

    Peace and love

    Jackie