Illinois ladies facing bc
Comments
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Yeah boobie prizes tend to be wider than the real thing.
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Dear All:
Oh my...so much happening and I so admire all you brave ladies who keep moving forward to the other side of wellness. So many are in the midst of it.
My news seems very trivial but Rita popped in with some words that helped me understand why at this later stage (somewhat of a pun intended), I was freaking out about the mammo and the mri. I think I was in lala land when the real drama was happening and it all happened so fast that I am now finally worried it will all come back to haunt me. Indeed it appears it has not as the mammogram and the mri were just fine. Rita, cutting down on the sugar is hard, but I am going to try!
Have a great day and hope all are healing!
Susan(Zap)
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Susan I too am sugar challenged but I've been really good the past 2 weeks. Dropped a couple holiday pounds too.
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An oldie but a goodie and nice to remember at times:
Worry never robs tomorrow of its sorrow,
it only saps today of its joy.
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Leo Buscaglia0 -
Hello All,
I am new to this board. I am from Chicago area and am looking for recommendations for Radiation Oncologists. I just had a lumpectomy for DCIS and am trying to decide whether to have radiation or not. I want to find a Radiation Oncologist who specializes in Breast Cancer.
Thank you all!
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Susan and Lago....Cutting the sugar is really hard at first but it gets easier and you lose that craving. I do not go entirely sugar-free. Every once in a while I just have to have a little dessert and I can't pass up a good piece of pie but I usually only eat part of it. I try to use stevia for cooking and sweeten cereal and toast with honey, which is natural sugar. I have to admit that when I eat most of my sugars as natural sugars, I do feel lots better. So glad that mammo was good, Susan. That should relieve your mind for awhile. Hugs to you!
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pink I ended up not needing him but I was going to see James Ruffer. He is out of Good Shepard in Barrington, if not other hospitals. He is part of the Advocate group my docs are from and since he was so highly recommended I was happy to go see him.
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Littlepink I sent you a PM with info to the rad onc I saw.
Rita I have done it and I agree the longer you're off it you don't miss it. But a couple of cookies and I'm hooked again.
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littlepink,
My RO was the favorite of all my doctors. Very compassionate, competent, and spent a great deal of time with you. First appointment was 2 hrs.
Sent you a PM.
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Ok ladies a few of you are talking about cutting sugars out of your diet, is there a specific reason because of cancer????
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Cateyz2, there are some indications that sugar may feed cancer cells. I'm not sure that the proof is definite to determine a direct causal link. For most of us, cutting down the sugar probably isn't a bad thing anyway. I've cut back on my sugar intake because I was eating too much..if it helps to starve the cancer cells than even more benefit.
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I'm not sure about the research on sugar itself, although I have heard this theory. But insulin promotes cell growth and it's bad for anyone with cancer. that's why they're doing the Metformin study, less insulin, less cell growth, is the way I understand it. So far the results are supposed to be good. Diabetics do get more cancer as does anyone overweight.
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I'm not convinced cancer feeds off sugar but (refined) sugar is very bad for heart disease and a bunch of other stuff. I keep reading articles about it.
This on Wikipedia
"…Sugar has been linked to obesity, and suspected of, or fully implicated
as a cause in the occurrence of diabetes, cardiovascular disease,
dementia, macular degeneration and tooth decay."0 -
littlepink, I also see Dr. Ruffer at Good Shepherd. He is my favorite of all my docs, and I love my team. He just has such a great manner, great team working for him. Good luck to you!
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I have been keeping sugar out of my diet since dx as best as I can. I also cut out all white/processed foods like bread, pasta, rice, things that contain white flour, etc... I try to only eat whole grain and lately I have been going gluten free too because gluten just promotes inflammation. There are a lot of other whole grain choices out there so that part isn't so hard. I love desserts so no sugar is hard at times. My regular treat is very dark chocolate or fruit. I sometimes bake with agave, honey or stevia instead of sugar so I can enjoy some occasional sweets. I also cut out all food containing hormones and that are estrogenic. May sound extreme, but my son was only 4 when I was dx so I want to try everything I can.
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Calm provides clarity. Pause to consider
the gifts you have been
given,
the difference you have made
and the direction in which you are
headed.
- Anonymous0 -
I've always pretty much heard moderation in all things, but that can be hard on the sweet things. I do believe in only putting small amts. if eating sweets and lots of chewing. I do try to watch out for sweets and only make certain things now and then.....because I will go overboard on the things I truly adore.
Blessings,
Jackie
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Hi ladies:
I am reading this book by a Lakota Indian (Jackie, you would love it) and it is about the best chances for survival. This is not physical survival as that may be out out of our hands.......but emotional survival as we encounter problems big and small and emotional survival can lead to physical survival. FLEXIBILITY amd RESILIENCY are the keys to emotional survival and the author feels we can learn how to be both! Nice, as I am not that great at either, but I am working on them.
One of the ladies who once was a "regular" on this thread is witnessing her protocol for stage IV cancer beginning to fail her. It worked for two years. She, in my opinion, is one of the most flexible and resilient ladies I have ever met. She just amazes me. Keep our Illinois friend in your hearts (prayers and/or thoughts) as she pushes to find another protocol that buys her lots more time. Thank you!
Susan
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Zap sound like a book I would look into what is the title? Prayers for one of our regulars
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Good morning Ladies. Littlepink, my RO left the practice so I can't help you but I would say try to find somewhere close to your home or work because going every day can be a chore if not.
Zap I hate to hear the news about our stage IV sister. Praying she will find a new effective treatment. And sorry to hear that so many years later you can still worry. You definitely have time on your side. I would also be interested in knowing the title and author of the book you read. Right now I'm in a good place because treatment is done and I'm throwing myself into other things like diet and exercise. But I am prone to the same kind of moments. You read something not so favorable and its hard to get out of the black hole.
I think it may be important for us to reduce sugar and all carbs. I try to keep my carbs to no more than 72 per day and cut out almost all grains and sugars and its not as hard as I thought it would be. The most evidence is for keeping your weight in a normal range and exercising, so however you can do that is probably step 1. I had copied an article that I thought was a good look into dietary recommendations. I'll go back and see if I can find the link for you ladies. I thought it would be really hard to change the way I eat but it turns out I can do it.
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Hi Ladies -I haven't posted here in a long time. For those of you in the beginning of your journey, I am almost 7 years out with a 10 cm ILC tumor! I feel so blessed and think of all my sisters often. This thread is so wonderful and was so helpful as I went through my journey. I hope everyone is doing as well as can be!
I was wondering if anyone had a recommendation for an endocrinologist in the area (preferably western burbs). I have osteopenia (bc is the gift that keeps on giving) and was referred to a Dr in Naperville. She is very nice and I have seen her for the last year but her office staff is deplorable. They never answer the phone and won't return calls! I have been trying to set up an infusion since before the holidays. They originally told me it wouldn't be covered by insurance. Since it was covered last year, I called my insurance company and they stated that maybe they submitted it under the wrong code. The insurance co has been trying to call them and can't get anyone to answer the phone. I have left many messages and no one will return my call. The one time I got someone to answer the phone they told me the appropriate person was on the phone and would call me back - no call back! I am done with them. I have my annual check-up with them on 2/10 and I can't decide if I want to go to it just to give them a piece of my mind for $45!
Thanks! Hugs to everyone!
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Conniehar that's interesting. I had osteopenia from the start (before treatment). It wasn't till this October when I was diagnosed with osteoporosis that I was referred to an endo. I have an appointment with one next month but she is really booked up. Originally it was in mid May but then they found a cancellation. She is at Northwestern recommended by another one of us IL Ladies. I'm PM you the info.
BTW their office sucks too although I do get called back. The problem now with cost cutting is the support staff is over worked and in many cases incompetent, inexperienced or under trained. Everyone is hiring cheap. If you like the MD I would stick with him/her. I know my BS office office staff had alot to be desired. The stories I could tell you. Like the wrong biopsy ordered (even after I questioned it. Had to wait an hour in my gown while the Radiologist had the room re set up for the proper procedure) or when I got someone elses order for blood work (Hmmm that breaks HIPPA laws). I stuck with him and I'm glad.
Good to see you.
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Hope I don't get the dreaded lines. Things were working well as of late, but might have changed again.
If we make our goal to live a life of compassion
and unconditional love, then
the world
will indeed become a garden where all
kinds of flowers can bloom
and grow.
Elisabeth Kuebler-Ross0 -
Hi Connie,
How great to see you and even more so that you are at 7 yrs. out. Interesting how some "offices" thrive when they have staff that apparently are not there to help people. Of course, I'm much too far away to help you out. I think osteopenia seems to get diagnosed a lot after a cancer diagnosis and treatment. For some of us ( I think you are younger ) it is something we would likely have anyway. I also found that you might have it many, many yrs. before any sort of change. For that reason I opted out of using correction drugs. Just sounded too risky to treat something I really didn't have.......at least not at the time.
Keep up the good work and fingers crossed that someone will come up with a viable name/office that will be a better fit for you.
Zap, you are so right. I would love that book I'm sure. My heritage is Cherokee but I think something all the Indians shared in common was a great handed down wisdom as well as deep reverence for the Earth which they saw in a mothering sort of way. Sad that the very thing which gave them such strength as the caretakers of the Earth they lived on led to their eventual downfall.
Many prayers for healing and hope that a better drug with positive benefits will show up for our Illinois friend. Hoping she warriors on for a very, very long time.
Snow ( just dusty type ) showing up again. Not done with it yet either. This is starting to be a long, cold winter but Spring always lurks for me so one of these days. Thinking of all of you.
Blessings,
Jackie
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Thanks Lago - I will think about your suggestion. I am usually tolerant of people making mistakes, etc but have no tolerance for people just ignoring call back requests. I know endo's are in demand and hard to get appts with. I know I had to wait 6 months to get into this one. Just soooo frustrating!0 -
Happy New Year all.
Zap- What is the name of the book? Have you read "Neither Wolf, Nor Dog"?
Take care everyone.
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Adey -- I looked up "Neither Wolf, Nor Dog"!!! Powerful simplicity comes to mind from the review excerpt.
Blessings,
Jackie
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The Wolf at Twilight is the follow up and just as good.
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When we are afraid of someone or something, it is because we do not feel
that particular person or thing is a part of us. When we have established
conscious oneness with the Absolute, with the Infinite Vast,
then everything there is part of us. And how can we be afraid of ourselves?
Sri Chinmoy0 -
Looks like I have a couple of books to add to my list. Chilly here this a.m. but due to warm slightly and then snow showers or just a bit of rain. We are going to make a quick jump toward warmness for a day and a half before we go back to cold. Sigh !!!! We just can't seem to decide whether it should be hot or cold, sunny or wet, or just snow 15 inches worth.
Well, just a few more weeks and maybe we can settle into something which hopefully will have at least some consistency. Wild winter so far.
Thinking of you all and hoping for a fabulous week-end.
Blessings,
Jackie
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