Illinois ladies facing bc
Comments
-
Adey - sending you warm (((((hugs))))))
0 -
Oh Adey....I am so sorry to hear this. You will be in my thoughts and prayers. I had not noticed the stage IV that you added to your info. HUGS. By sharing your knowledge, you may have helped somebody else here. Like Jackie, I'm pretty speechless but everyone on this thread will be here if you need anything. I have a friend who has is currently living with bone mets and has been managing it very well for a long time now. I wish you much success with your treatments.
0 -
Oh Adey....I am so sorry to hear this. You will be in my thoughts and prayers. I had not noticed the stage IV that you added to your info. HUGS. By sharing your knowledge, you may have helped somebody else here. Like Jackie, I'm pretty speechless but everyone on this thread will be here if you need anything. I have a friend who has is currently living with bone mets and has been managing it very well for a long time now. I wish you much success with your treatments.
0 -
adey= so sorry = our thoughts are all with you
Ladies, so I only embarrass myself within the state and not internationally: I bought scar away, put some on, no problem. My question is- cant you just leave on in the shower? Or really need to take off, and wash?? then put on new for the day? to wash you just kind of hand wash, rub in soap, rinse? laugh, then reply!
0 -
Warmest hugs to both Tim and Adey. Thanks so much for sharing your stories. They are valuable lessons for all of us. I am almost 4 years out and still think about "what may lie ahead" everyday. Wish I could stop, but I guess it keeps me vigilant, if not a "worry wort"! Stay warm everyone.
0 -
Aviva read the instructions on AcarAway. You can reuse them for a couple of times. I don't remember how many but each time you must wash them off with some soap to remove the oils from your skin so they will stick again. Eventually they don't stick and that means time to toss them. I felt ScarAway was the best product I tried. My port surgeon was the one who advised me to use silicon strips. He gave me the brand but said there was a less expensive at Walgreens. He was talking about ScarAway.
Adey hang in there. BTW if your butt or stomach itches where do you feel it
(You know me. I'm all about making people laugh).Karen are you back home yet?
Tim hope you are doing well.
0 -
got mine at Woodmans, was about 14.00
0 -
Adey, I had actually noticed your change of stages what with my own weird move from stages. I guess the most we can do is help others while we do our own journeys.So thanks! I feel verty optimistic that you will do very long and fine...you have the right spirit!
Zap/Susan
0 -
What troubling news, Adey. I knew you had stopped out of our forum for a while. Now we know why. Even though we cannot completely understand what you are going through, we are here with you.
Karen, so sorry about your mom.
0 -
Adey I too am speechless, what a shock. Thank you for sharing, it is amazing what they can now do with stage IV--if that is any comfort===Prayers for u Adey
0 -
There is a vitality, a life force, an energy that is translated
through you;
and because there is only one of you
in all of time, this expression is
unique.
Martha
Graham0 -
From southern Illinois, good morning. We are well in the ( vortex style ) round of freezing temps. This is not going to be fun. I spend a bit of time outside each day and really going to have to rush it up for the next few days to try and minimize it.
Hope you all can stay in as much as possible knowing many work or have to go to appts. or out for groceries. It is going to be very icy in temps.
Blessings,
Jackie
0 -
Adey and TIm: I am keeping you both in my prayers and sending warm, gentle hugs your way.
I don't know if I have mentioned this before, but when I was going through chemo, I joined the April/May 2012 chemo starters group. We became quite close--similar to this group. Anyway, as a bunch of us were finishing chemo, we started our own private FB page and have become quite close. We decided to have a meet up and there are 21 of us meeting in Tampa two weeks from today staying at a condo resort. Some spouses are coming and we lost one of our gals the Friday before Christmas, but her husband and 13-year old daughter are coming. We are all so excited.
0 -
Karen how wonderful your Tampa trip sounds. Just what the Dr. ordered too.....some decent weather. I wouldn't trade any of my family or friends here and through all my travels in life, but I feel just as strongly about all the BC. Org friends. Each group has special reasons why they are divine and perfect for who they are. While the friends I've always had were for the most part fantastic, as you know, I needed a whole different kind with the reassurances that only come with someone who shares what you now have.....a dreaded and scary disease.
These friendships here, so many forged way later, have been my backbone for going through a difficult experience with people who understood perfectly.
I hope you have the best time with these wonderful, wonderful women who knew what you needed most.
Blessings,
Jackie
0 -
KJ I love that u are all doing that and certainly sorry u lost someone dear to all of u--but how nice that her DH and DD are going to meet all of u. After all u've been thru and shared.And it is so true , like Jackie said, we connect in a totally different way here and I am better for it myself, it is unique.
Are any of u watching that horrible accident in Indiana, it's all over the news with the icy roads, cars and loads of semi's it's a mess on I-94 and so many involved--o far 2 people died, The roads are all ice there.
And Jackie hole on to u'r hat, cuz after the snow this week-end the temps are all going to be below zero, that's not with any wind chill so who knows what next week will bring.
0 -
I've got a friend from high school who recently had a mammogram as a result of my BC diagnosis. They found a mass and wanted to do a biopsy right then and there, but she wanted a couple of days to process everything so she went back today. It's an 11cm mass, and she said it looked like a glowing, neon white on the mammogram. Mammogram 3 years ago was completely clear. They also already told her they will be scheduling her for an MRI. I'm just sick- she doesn't understand the significance of why they are doing what they are doing, or just how big 11cm is for a tumor. It's not my place to tell her what I'm afraid this means and I also don't want to worry her in case it really is OK. But I can't think of anything else this could be- it's clearly not a cyst, and they took numerous biopsies from all over the mass today.
I hate breast cancer.
0 -
Karen-I am so sorry for yout loss.
Adey-thank you for sharing your story-it I'd bound to help another. Praying for all the best.
Tim-Hope all went well.
A dear friend who has been battling appendix cancer has decided to remove her feeding tube and return home from hospice. Just last week I scheduled a trip to Minneapolis to see her next week. I am incredibly sad to lose her, but so happy she is able to see this through on her terms. Who could ask for more?
0 -
corpor There are tumors that are that big and all DCIS. Granted still not great news but better than IDC. Also her tumor could be mixed. Mine was 6.5cm but only 5.5cm was IDC the rest DCIS. Also even though I had an aggressive large HER2+ tumor it still didn't go to my nodes. Check out this thread: http://community.breastcancer.org/forum/47/topic/778961
0 -
"It was only a sunny smile, and little it cost in the giving, but like
morning light it scattered the night and made the day worth living."-- F. Scott Fitzgerald
0 -
((((((((Spunky)))))))) and the same to your ((((((friend))))) and you are so right. The gift of being able to choose how our end will be --- especially when it seems it has come way too soon. I feel like your friend has a wonderfully defined spirit. Prayers and sympathy to all who love and care about your friend, including you.
Blessings,
Jackie
0 -
Thanks Lago. I had a chance to look at that last night- great group of ladies! As soon as my friend has some definitive information, I'm glad I will have that as a resource for her.
corpor
0 -
Oh Karen, how fun! Your Tampa trip sounds like lots of fun and you will be amazed at how well you will all connect when you meet. You shared a very emotional part of your lives with each other and the bond is strong! I am so happy that you can do this.
Spunky I am so sorry about your friend. This is never easy. Hugs to both you and your friend.
corpor....I am also sorry to hear about your friend. Even if the biopsy comes back positive for cancer, there are many gals on these threads that had equally as large tumors that are just fine now and living a very active life so there is always lots of hope. Keep us informed.
Yesterday was a nice day on the Cape and we went out and played a round of golf in shirt sleeves. As soon as that sun went down, the jackets went on but we felt so fortunate compared to the temps that you are dealing with in Illinois. Stay warm and bundle up if you have to go outside.
0 -
Spunky: I am sorry to hear about your friend.
Corpo: I am sorry about your friend as well, and will send some positive, healing thoughts and prayers her way
Yes I heard about that awful accident. I travel on that road every time I go home.
Thanks Ladies for all your well wishes and condolences. They are much appreciated. I love you all!
0 -
To be doing good deeds is man's most glorious task.
Sophocles
0 -
Hi Ladies,
I have not been on this site for a while. I am from the Oswego area. I am about 4 years out and still nervous about this disease. The DR. are watching a spot on my good breast that has been there for years and has not changed in size or form. Still makes me nervous knowing the spot is there on the mammogram each year. I am trying to catch up with the entries on this site but just want to say thank you for sharing your stories and information here.
Karen....I am sorry for your loss
Timbuktu...Sending prayers your way and hope you are doing well
Spunky: I am sorry to hear about your friend.
Corpo: I am sorry about your friend. Sending prayers
Adey... thank you for sharing your story. Sending you prayers for all the best.
Have a great weekend!Emma
0 -
termite I know when I had my first scare my gyno recommended I see a breast surgeon just in case. Not sure if you did that or if this is something you would consider. All I can tell you is everyone said it was nothing. Gyno retired but I wasn't notified till after she left. Skipped that mammo. 4 years later the (blind) radiologists said "suspicious but not typical of cancer." When I saw the breast surgeon again he knew that I had breast cancer. Biopsy was done just to prove it.
I'm not trying to scare you. I'm sure they are doing ultra sounds which is what I was supposed to be followed up with but never happened until 4 years later when a diagnostic mammo was order. Just saying that maybe you want a new pair of eyes on your images. It might make you feel better.
0 -
Termite it's always nice hearing from u. And I agree with Lago, if this really bothers u and scare u, seek another opinion, it won't hurt and can make a world of difference. chances are it's nothing but to ease u'r mind do whatever u need to do.
0 -
Good morning everyone. I hope you are all staying safe & warm during this miserable winter we are having!
For the past 10 years I have been a crew member for the Chicago Avon
Walk for Breast Cancer. This is
not a solicitation for money - please keep reading… I have been part of one of
the most critical crews - the Route Marking team. It is because of this team that the walkers
know where to walk. We start working on Friday to mark the next day's
Route with signage (attention to detail is critical since the Walkers will rely
upon Route Marking to find their way along each day's route!). Then each day we
follow behind the last Walker to pick up all Route Marking signage, organizing
it so that it can be redistributed to continue marking the following day's
route. It is a lot of hard work over the
long 3 days but we make it fun and it is such a fulfilling experience.The walk starts at Soldier Field on Saturday and they
walk along the lakefront and throughout the city ending the day at Horner Park
(Irving Park & California). Horner
Park is the location of Wellness Village where the walkers and crew stay the
night in tents. Sunday morning they
start walking from Horner Park back to Soldier Field. Saturday’s route is 26.2 miles and Sunday’s
is 13.1 miles.For many years we have had the same people work
together on this team and we have got the routine down pretty well. Unfortunately, this year we have lost a few
of our returning members including our co-team leaders so I will be taking over
the leadership of this team. The reason
I am telling you about this is because we are looking for additional people to
join our team. The dates of this year’s walk
are Friday May 30th – Sunday June 1st. We need people who can work all three days,
who are willing to put in a long day of work (should be able to lift
30 lbs. and be on your feet all day), and who have the passion and
dedication to help fight this miserable disease we have all had the experience
of dealing with.The registration fee is $50 and as a crew member you are not required to
raise any money but you can if you want to.
Last year, the Avon Walk Crew raised more
than $570,000, making an enormous difference in the fight against breast cancer. All
money raised by the Avon Walk for Breast Cancer is managed by the Avon Foundation for Women, a 501(C)(3) public charity that funds a
comprehensive network of programs and services dedicated to serving breast
cancer patients and their families through five areas of the breast cancer
cause: awareness and education, screening and diagnosis, access to treatment,
support services, and scientific research. Unlike some other
walks, most of the funds raised are going to local organizations (http://www.avonwalk.org/see-your-impact/where-the-money-goes.html).Technically, crew is already closed but if you are
interested in joining our team for this year’s walk please PM me and I can
provide details about who to contact to sign up.0 -
Compassion is not religious business, it is human business; it is not luxury, it
is essential for our own peace and mental stability; it is essential for human
survival.
the Dalai Lama0 -
Termite-as the others have already said, a second opinion in never a wasted effort. I, too, went to the same hospital for my mammos year after year, finally one year they decided an area that was often referred to as abnormal, but never biopsied, was biopsied (probably bc i was now 50). Yep, cancer. Went for a second opinion at another hospital and I had numerous cancers in that breast and yet another cancer in the second breast. You know yourself best, if a second opinion would ease your mind perhaps you should consider it. Good and healthy thougt coming your way.
0
