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Comments
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Just finished meeting with onc. and we finally have a plan. I have 'chemo class' tomorrow morning and will start the first AC treatment on Tuesday 02/27. Feeling very nervous but re-reading the posts from those of you who have finished round 1 helps. Onc. also gave me a prescription today for Xanax as have been a couple of episodes this week of just breaking down sobbing (of course one was today in the onc. office!). I've never taken this before so I will have to wait until after I pick the boys up from school. I am trying so hard to stay positive but it seems to be getting harder instead of easier. I do think I will feel better now just knowing the plan and the dates... It really is helpful reading all the posts and getting positive energy from all of you. Joining the cruise next week.
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Wow I am having a hard time keeping everyone straight now that the cruise has gotten so big. Had no idea when I booked it we would have so many on board. I think it is Piper, Carynn and Terry who started today and I am thinking of you.
Angelflight, I feel so bad for you. But like others have said it sounds like you need to ask for help. This is really hard for me, I like to be the one giving the help but hate asking. As someone else said though it is a privilege to help someone. I hope it all works out for you.
Marsha, what an experience. Now you may know why I called that tech for my MUGA an idiot as he stuck me in the same place and I still have a bruise four weeks later. I have to tell you that unfortunately in healthcare sometimes you just have to put your foot down and demand things. When I went to get my port put in and arrived in radiology they wanted to put in my IV and I said no I want the IV team. The nurse looked a bit put off at first but when the IV team had trouble I was glad I insisted.
Mary they had trouble accessing my port the first time too. "Stabbed" me three times with a one inch needle in the chest before she finally got it. All I could think of was OMG now I have a pneumothorax. I am sorry you have to have it done again. It wasn't fun the first time around.
Ronnee I sobbed on and off for weeks. At home, in the car, at the grocery store, at work....... Took ativan and it really helped. Don't be afraid of it, with time it became less frequent and now I rarely take one and only at night.
Theresa and Scott I enjoy reading your posts and how you are truly experiencing this together.
Nausea is still there a bit there but tolerable. Bone pain is finally letting up today. Tomorrow I am off to the state swim meet to watch my son. I have a little cold but not too bad. So I figure a good weekend and then next week it is back to the chemo chair to start over.
Time to pack,
Karen0 -
Hi all - just a quick note to let you know how the tea party went.
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Name/User Name Loc Chemo Start
1 Karen swimmingmom Ohio 15-Feb
2 Hillary narberthmom Southeastern PA ACX4 (every 2wks), TX4 (every 2wks)
3 Marsha marshakb Florida Chemo 2/7
4 Melody maj01 Texas 2/5 port 2/9 Chemo 4xAC
5 Phyllis erinsgram Central PA 2/12 4xAC (2 weeks) 4 xP 2 Weeks
6 Cynthia cynthis1962 California 2/16 - surgery and port
7 Linnie was Linda #1 linnieva Virginia 2/6 Chemo 4xAC (2 weeks) 4xT
8 Pat wayover20 Texas Chemo 2/8 big birthday on 2/11 and need for hugs!
9 Catherine cahterineh Colorado Chemo 2/13
10 Leah leahrc Massachusetts BX on 1/29 Chemo on 2/1 Our first + thoughts for March Surgery
11 Linda lindasuzy Seattle 1/29 surgery Chemo late Feb
12 Kim nynurse NY Start 2/1 (first of the group)
13 Mary reggio113 South Jersey Port 2/5 Chemo 2/14 Happy Valentines!
14 Jen horsegal Ohio Chemo 2/6 - 4xAC (3 weeks)
15 laronson laronson Surgery the week of Feb 5th
16 LuLu (Linda #3) piper Port 2/12 - Chemo 2/22
17 SammieKay Port 2/5 Chemo 2/13 12 wks taxol - Then FAC
18 Terry talbrig13 Altoona, PA MUGA 2/7 Chemo 2/9
19 Sheryl49 Sheryl49 Chemo 2/7 4xAC (3 weeks)
20 Jan wildabouthorses Claremont, OK 4xAC (3 wks), 4 xT 3 Wks
21 Nancy Nancy053 Chemo 2/8 4xAC (2 wks) 3xT (2 wks)
22 Joey85 Boston, MA Chemo 2/9 4xAC (2 wks) - 12 Wks Taxol 1 Yr Heceptin
23 Sharon Misspell Chemo 2/19 or 2/22
24 KimberlyC KimberlyC Ventura County Chemo 2/20 ACIV dose dense x4 - Taxol x4
25 Julie for Mom (jch) jch Chemo 2/6 AC
26 Tracy madoline Texas Chemo 2/8 ACx4
27 Scott and Theresa lightphoto
28 Carynn comandobarbie Arizona Port 2/19 Chemo 2/22 DD AC + T
29 Jel hockeymomfl FL
30 Lynn maclean
31 Steph TampaChick
32 Angel Angel
33 LindaDK
34 FreeThought 2/13, Chemo 2/14
35 ronnee07 MN Start 2/27
36 Tonimad9
37 Sallyann
38 Tropicmom
39 Lorilat Eastern Ontario Chemo 2/23
40 Taurie
41 Alyson Chemo 2/22
42 Angelflight- CA Chemo 2-28 6x Taxotere,Adriamiacin,Cytoxin
43 Playwriter Texas0 -
Carynn, great news. Boy, you're a brave trooper... and a moral booster for all of us.
Karen, our very best for your son's competition tomorrow, he has a very supportive mom... take care of yourself.
I did not post for a couple of days (but read everything)... Did not jump over board this cruiseship to swim to less chemical shores, no, I was simply very busy being "normal", shovelling snow for sheer exercise and the pleasure of moving around in the sun (my long morning walks are nice but not "strenuous", I have to let my doggy read the p-mail), cooking, doing house chores, etc. A nasty little virus made me feel under the weather days 3 through 6 after the chemo (never went over 99.6, though), but apart from a funny nasal voice, I am back to feeling as if nothing happened... Next Tuesday seems awfully close, though... for round 2. So far, day 9 after 1st AC+Avastin, the only thing I took, apart from Emend, was the Ativan at bed time, which worked great (but stopped 2 days ago, and was able to sleep decently). Did not touch the Kytril. I religiously followed the instructions for mouth rinsing (salt + baking soda), but have a few sore spots on my tongue (I'd get those "normally" when eating walnuts and swiss cheese... so, not too worried).
I hope it won't be worse next time, and that I'll be spared the cold. I am amazed how "normal" our (very quiet, contemplative) life could remain with all this going on... Now the hair issue is looming... will try to get it short tomorrow or Saturday... or maybe later... does not fall yet, but...)
Thinking of you all (a little more difficult to recap with 43 cruise members), and wishing you a good evening. Special hugs to those who need it the most. CatherineH0 -
CommandoBarbie...glad you were with me today. They used my port for the first time too today. It's been in since Friday and was still swollen. But it was not too bad. Hope yours went well. I had no reaction to the Taxotere, so I guess the Decadron did the trick. Although my BP was really up and my fingers were swollen and it gave me a headache. The nurses said the Decadron can do that. All those symptoms were gone my the time I was done though.
Hey Marsha...don't do anything rash! Are you getting a port? They can then do your blood draws from it also...you can avoid suicide attempts.
Next cocktail is March 8th. I have appt on 2/28 to get stitches removed from the port site. Appt with Radiation Onc for consultation for impending radiation treatment after chemo is over.
I feel pretty good tonite and if I feel good in the morning I think I might go to work. Sat & Sun were my worst days last round.
Still have hair this evening....no signs yet.
Love to all.....Happy sailing!
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Thanks Catherine, Hillary, Marsha, Linnie and all for thinking of me (us) today!
Catherine, shoveling snow? As good as I feel that would never cross my mind, of course living in Phoenix might have something to do with that! hehe
Terry, I just had my port put in Monday. The nurse who did the blood draw warned that since it was still swollen, it might hurt some. The stick was a bit uncomfortable, but truly not bad. I'm soooo glad I got one! Are you doing DD too? Sounds like we are on the same schedule. I'm going to work from home in the morning, run over and get the shot tomorrow afternoon, then hopefully go by the ACS for a wig, come home, finish up any work loose ends remotely. Ahh, the joys of IT! And yes, I too still have hair...hehe
I'm hoping for a good day Saturday, as I'm thinking of getting one nice human hair wig for work. I want to to the LGFB program, but scheduling seems to be a problem. Oh well, hopefully March!
Alyson, are you out there? Let us know how you did!
Good night all:)
Carynn0 -
Well 2 days post tx. #2 and doing well. I had a couple of tired days and today decided to go walking. It is 79 degrees and sunny here in So.Texas. I strolled 2 miles and felt pretty good. I am anemic, requiring procrit inj. I had increased back pain last night, maybe from injection.
Carynn, about Taxol and hair loss. Teresa, my daughter's best friend just finished chemo. She had 6 doses of A/C, lost her hair after 2 weeks. Then hair was coming back in and when she started Taxol, seemed to slow hair growth. But hey, everyone is different. I will just enjoy my hair while I have it and quit complaining about washing and drying my hair. I have some really cute wigs and when the time comes I'm sure I'll enjoy those.
Thanks to whoever sent in the link for headcovers. I have the feeling that with our hot and humid weather, I will probably be wearing scarves and caps.
Thanks for changing my name on the list. Hey, maybe by the time I am finished with cancer I will be computer literate.
I was wondering if I could get some more info on the oral care products that some of you are using.
Hugs and prayers for all of you. Thank you for being here with all your good info and encouraging words. Makes the journey much easier. Love u all....Sammie Kay0 -
Catherine -
I too had a little sore on my tongue the other day - I think from eating something, not the chemo. I rinsed with the Biotene mouthwash at night, and the next morning, it was GONE! Yippee! Just thought I'd let you know -
I feel same way so far, that this has not been as hard as I expected SO FAR. I am day 17 from #1 tx - and no real issues. Two days ago tho, my hair did seem like it was dead and it started falling out (much to my dismay!) I think I was hoping way too much that I would be a lucky one that didn't lose their hair! Today, while cleaning - I was shedding worse than our dog, so took the plunge and buzzed it off myself! OH BOY! Now, I feel like a cancer patient darn it. But - I just thought about if my hair cells were dying, so were the cancer cells - just trying to keep up the positive attitude that everyone says we need!
Take care - and hope you keep your hair longer! Jen0 -
{{{{{Ronnee}}}}} Hey the "melt downs" as I call my crying jags seem to come less often as time goes by. However, my friend Teresa who has finished chemo and is starting radiation had one recently. She is quite a bit ahead of us. You know what, I feel like sometimes crying cleanses my soul and releases toxic feelings I have bottled up. God bless you.
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Hi ladies,
Hope you are all well this evening?
Angel, you certainly have your hands full. My prayers are with you in the hope that you can come up with a good solution.
Marsha, Those nurses are unreal. I know what you mean. I agree with another writer who said sit on your hands until they listen.:) Loved the fact you made a scene, good for you. LOL at the suicide cancer patient.
Carynn, Glad to hear you are doing so well. Good for you and congrats on nodes.
Keep on sailing.....
G.I. Jel0 -
Hi Dawn, welcome aboard our cruse ship. Sorry you are having to do this again. We are all here for you, hope you find encouragment and comfort here. I have a 32 y/o niece with metastatic breast cancer. She is 5 years out from diagnosis. She has been in several clinical trials. I hope you are at a good cancer treatment center and get the best care possible. You are in my thoughts and prayers. Sammie Kay
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Angel, I am on a different regimen than most here on this board, but I started with Taxol only, not in combo with any other chemo drug. We call it chemo-light because the side effects are not as severe as the A/C. That is no nausea, slower hair loss, if any. Not as immunosuppressive. I am also not taking DD. I will have one Taxol a week x 12 weeks. I understand from others the effects are cummulative and as I have more treatments under by belt, I will probably have more fatigue and hair loss. I was anemic after one treatment, so there you go. That is a side effect. They gave me Procrit to stimulate my bone marrow to produce more RBC's. Everyone is different and this is just my experience with 2 doses of Taxol, "regular strength". LOL Hope this helps. Sammie Kay
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Hi ladies,
I need your input. I know this problem doesn't compare to others, but it really has me sick with the thoughts of making a decision.
Well, I started my chemo treatment of 4 rounds of TC. First round, the Cytoxin burnt my nose during transfusion so they slowed it down and I was fine. Then I got an allergic reaction to the Taxotere. My neck, face, ears all went red, and my breathing was affected. So they stopped the IV and gave me more steroids, Benadryl and saline and it went fine then. They told me that this would not happen next time.
I went for TX number 2. Took 3 steroids night before, 3 the morning of TX and then they gave me more steroids, benadryl, saline, zofran and then Taxotere. Once again I got a reaction within the first minutes. Worse this time, turning red from my neck, to my face, and ears, breathing was affected and had pain in my arm and back of my head. They ended the treatment and I got more steroids and was sent home.
The oncologist called and said we will stop the TC treatment. My options were to say I gave it the college try and just go ahead and take Tamoxifen or, take AC. She also said that I most likely would react to any chemo given. Well I am concerned about the affects on the heart caused by AC due to family history of heart problems, so I am not sure what I should do.
I asked her what on my pathology report would cause her to give me chemo, she said nothing only my age and the size of the lump, 1.6cm.
So here I am asking myself why would I take AC and potentially cause myself heart problems for a 3 to 5 % benefit from Chemo. My oncotype score was 19.
I really would like to hear your take on this and what you would recommend, based on your experience, or other information.
All input is appreciated.
Worried and Concerned.
G.I. Jel0 -
Wow Marsha, I missed your post about the IV sticks, but I kept reading it in other folk's posts.. So I finally found it and LMAO. I think I might have been yelling "assault". They had no right to treat you that way. Makes me very angry. I am a nurse and feel very strongly about patient's rights. Not to sound like an old foagie,sp. ck. but some of the newer,younger nurses seem to have missed the "patient's rights and respecting the patient's wishes" classes in nursing school. What really gets me is when they start calling me "sweetie" . Do you think they will be giving you a port? Take care and keep that wonderful sense of humor. SammieKay
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This is a P.S. for Angel - I am so sorry about your husband and son. I had not read that post, when I responded re: Taxol. Didn't want you to think I was ignoring your plight. Bless your heart. You are all in my thoughts and prayers. Sometimes when it rains it pours and you just have to laugh. Like what else can go wrong?
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HockeyMom..
I know how you are feeling. I too had a reaction to Taxotere - 3 different times on the first treatment. Do they premedicated me the day before with 5 decadrons (20 mg total) and that seemed to do the trick...maybe you needed more??
But I was in the same boat..tumor was 1.2 cm, postmenopausal. No nodes involved...the turning point for me was my oncotype was 47...so I don't know.
I too have a family history of heart problems, so they are doing carboplatin, taxotere in place of AC...along with herceptin (I am her2+)
Carboplatin is less toxic to the heart. There is some info on this site if you search Carboplatin.
Best of Luck to you!0 -
CommandoBarbie,
Glad you are doing well. My labs were still good, so no shots today. I feel pretty good today, so am going to work and maybe leave early this afternoon, if I would feel bad.
I too am DD, but they are letting me go out an extra week in March so I can go to my daughters dance competition...so next is 3/8 then not until 3/29...Are you doing AC? I am on Carboplatin, taxotere and herceptin for 10 treatments then radiation, then herceptin every 3 weeks for a year, so I thought the port was the best route with all of those sticks. Mine was still swollen too, but it really didn't hurt too much. It should be better next time.
Well....running off to work...Glad your are doing well.0 -
Hi Terry! So glad you are feeling well and off to work! I pretty much doing the same thing! I normally get up at 4:30 for work, and my eyes flew open at 4:15. By 4:30 I was logged in and have been hard at it til now. Stopped for a break, took the roids, and having some starbucks.
Yes, doing ACx4 DD, then Tx4 DD. Arthiris is already in complete remission, so I'm a little anxious about the shot today. Onc made me feel good tho. I guess not everyone has the same reaction, and other than the headache, I didnt have much of a reaction to the chemo at all. But, I have vicadin, tylenol, or even the arthritis anti inflamatories ready should there be any bone pain.
I'm triple neg so no Herpicin for me, rads next. So my dance calandar is full for a while!
May go over to ACS on the way to get my shot and look at the scarves and wigs. Too bad there's no one else here in the Phoenix area, I could give you the scoop.
Smooth sailing everyone. Talk to you soon!0 -
Jel -
I also had the same concerns about the Adrimiacin ("A") effects on the heart. I too have a bad family history with heart disease. My family history is all clogged artery related. My onc said that "A" causes damage to the heart muscle itself, totally unrelated to my family history of clogged arteries. When they run the MUGA scan, they are testing the strength of your heart muscle - seeing what % the heart is pumping out blood into the body. The higher %, the stronger the heart muscle is, and that is the number they use to determine if you can tolerate the "A" drug. Just so you know. Don't know what your particular family history is, but talk to you onc about it.
I agree however that it seems very questionable to be given chemo on such a regular basis anymore for even the slightest "benefits" of hopeing for a non-recurrence. I too was faced with this same decision (or close). My tumor size - 1.0 - and age 47 are the actual factors they used to decide for the AC. I did not get the oncotype score, as I do have micrometastisis in my sentinel lymph node and opted NOT to have the additional axillary dissection done. My onc as well as a second opinion onc BOTH said I would get chemo even without the lymph node involvement, just due to tumor size and my age.
I am only getting 4 AC tx - then radiation, then hormone therapy. We decided to go ahead with the chemo as a precaution (for ME, more for the lymph node involvement) merely because I trust my onc and she is saying that it is the BEST chance for long term survival even with the risks involved with the "A" drug.
Tough decisions we all have with this horrible situation we find ourselves in, no doubt about it! Good Luck -
Jen0 -
Jel -
I was honestly more afraid of the treatment than my dx. I've been lucky, no dark thoughts, no sheer terror, more like, this sucks! Who can I hire to fix me! Then I met my Onc, who I adore, and she gave me the handouts about AC, and then I got scared. There are a staggering number of people in my family with heart disease. Most have cardiomyopathy and generally the 1st symtom is sudden death. Literally. Once it's known that its in a family they can check for it with echograms and now muga scans, and treat it. I had an echogram previous to dx, and it showed no evidence. But I went ahead and did some research and found that TC was eaiser on the heart. Since no cure is not an option, I put my fear in check and decided once I had my MUGA score, I would look into other treatments if necessary. Well, my MUGA was 59 and anything over 50 is normal, so on to AC.
I truly understand how unsettling this is for you. My sister died suddenly at age 39 of cardiomyopthy. For a day or two, I thought if I did this, I'd be next. The MUGA completely put those thougts out of my head. I trust my Onc, she knows my history and I believe whole heartedly that she will only do what's right.
Why dont you talk to yours about options besides TC? If you find that you'd still have a reaction, I'm sure there's other txs out there. I would be curious to how a paitient with active heart disease is treated.
Dont give up girl! You might want to try a little googling but only if you promise not to read the scary, dry, clinical stuff. Check here first on the tx page.
Hugs to you. Chin up, you WILL slay this beast!0 -
Hi Terry, Jen, Carynn,
Thanks for your kind words, support and information.
She is telling me it is my age 43, premenapausal and 1.6cm that is driving the treatment, not my pathology report.
Will look into the other options you mentioned.
Thanks,
]el0 -
Fellow cruise members. I had my first tx yesterday. About two hours after I got home I got a headache and still have one although not as bad. took tylenol but did nothing. other than that everything ok. I had gotten my port on 2/16 so they said it would be tender. the onc nurse told me to take a deep breath as she was putting in the needle and I did not feel anything. I was really surprised. Everyone at the office was so nice. Carynn and Terry I am so glad everything went well for you.
My next tx is Mar 8. I can actually count down now.0 -
hay, ya'll,
is there a page on this site with common abbreviations? i get what dx and tx and onc are, but some of the other abbreviations y'all use, i have NO idea what you're talking about.
got my bone scan, CAT scan, echo and other m'gram scheduled. now i just need to find out when the SNB is, and when i get my port put in.
i may have to start a March cruise, looks like my travel plans are delayed...
terri0 -
Hi Karen,just started chemo,yesterday,Feb 22,2007.Doing clinical trial was selected for FEC q 3wks x 6,I was pretty groggy,they had given me ativan,zofran,and benedryl iv for 30 minutes before starting my chemo, so i pretty much slept through my chemo session.No one told me my first chemo session would be so long, i was told chemo would take 2 hours, my husband took me, thought he would be working later that day, my appt was 9:30 didn't leave the cancer center until 3:00, may want to have someone run out for a lite lunch for you, otherwise you will miss lunch and you need to keep your strength up. I am a stage IIA grade3 IDC,had a Left Lumpectomy,SNB-negative,ER-PR-,HER2-,LV+/pet scan looked good, was so happy with that result.Keep your spirits up we will survive!
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Hi fellow chemo cruisers,
Hope everyone is feeling well today. I had my 2nd A/C on Tuesday and I feel a little more queazy and tired this time around but not too much. It's definitely manageable.
The hair is really beginning to shed but I've decided to leave it alone as long as I can. Like my onc nurse said, it could just end up patchy and it's nice not having to put on a wig yet. I ordered a couple of hats today on headcovers.com and a hairpiece that velcros to the bottom of any hat. Thought it might be more comfortable than the wig for running around in. Marsha, they also have a couple different kinds of baseball caps which might be good for Florida.
Catherine, I have to say that the strength that I feel from you in your postings always lifts me up. It's good to hear that you've recovered from your bug. I can't believe you were out shovelling snow! You had mentioned that you were seeing a PT. Can you tell me what kind of advice you're getting to improve your arm and avoid lymphedema? I'm waiting for a referral from my primary care to have an evaluation. I've been really working on the flexibility and it's going well but I haven't added any strengthening/toning exercices yet. And here you are shovelling. Maybe I'm being a little too cautious, eh?
Thinking of you all, there's so many of us now.
Leah, we haven't heard from you lately. Hope you're doing well after your 2nd tx.
Linnie0 -
Hi Linnie, glad to read you're not feeling too bad. Well, you're 50% done with AC...
Regarding the physical therapist, I liked her a lot and I believe the one session I had so far was helpful, but she is so busy, my next appointment in March 8th. In the meantime I am supposed to do the stretching exercises, but for some reason I have a hard time squeezing that into my days... I feel less discomfort when I move, and I try not to put too much weight on my right arm (but the left has the port...). I shovelled snow to put it where it belongs, at the foot of trees and bushes, instead of a big pile on the pavement. But I did it at a leisurely pace, with a smaller shovel for not taking too heavy bites from the pile. My left arm was getting the weight. An exercise I feel helpful is to lift your arm not in front of you but on the side (like to fly) but as you lift slowly you have to do an exagerated "bye-bye" motion with your hand and you go as high and a bit bakward as you can to feel the stretch, then you hold it 5 seconds, breathing in deeply and slowly, and lower your arm making the same hand motion while exhaling slowly. To be repeated 3 times, twice a day... My armpits are incomfortable and feel like a tight rope, but there is nothing I cannot do with my arms (no real pain when using my arms, quite the contrary, the more I move and stretch the better I feel). My chest is still sore as if I had been hit by a base-ball bat accross my top ribs... I guess bilat mast is not a minor surgery, after all... It's worse at night and when I wake up, but then I forget about it as I go about my business. I must say that fatigue has not been in the picture so far (I am not a mom with kids to take care of, I do not have to go to the office, since my office is at home and I can take what I want as a free-lance translator, so, of course I am not tired like many are). My days are 7:30am to 10:30pm, as before, and I sleep well with nothing now (I go to sleep listening to classical music in my MP3 reader, imagining these energizing, luminous pieces -- Mozart or similar -- chasing down to my big toes the terrorized, and hopefully shaken by chemo, BC cells, aggregating them in those traps and exploding them with decibels (or is it my brain??)...
Have a nice evening and good rest this week-end.
Hugs to all of you, hoping your day was as good as expected.
Catherine0 -
Hi all - 2 questions - the headache has been back all day. Sometimes just below the surface, sometimes with a vengance! Got the Nuelasta shot and told the nurse about the headache. She suggested since just about everybody gets the bone pain, I take a vicadin to kick the headache and ward off the bone pain. Well, no bone pain yet, just the headache! Yesterday the tylenol and the nap took care of it. Today I cant sleep, probably the steroids....So, what does anyone who gets the headache do to get rid of it??!!
Question 2 is off topic. Did I read here along time ago that someone else has a catahoula? I do too and dont meet too many other owners of the breed. Just curious....
Talk to you all soon.
BTW...no other side effects so far! 0 -
Carynn, did you try to switch to Advil? They say it's ok to alternate, it may work differently... a nice cold wash cloth on your forehead, while resting in a comfortable, relaxed position...??
BTW, what is it you have to do at 4 in the morning as far as IT work goes...? Your projects are in Europe? I do not mean to be nosy, you understand, I am interested...
You take care and hopefully Tinckle-Bell will fly by and, poof, the headache is gone... I believe in fairies and guardian-angels... my weak spot...
Hope you'll sleep OK,
CatherineH0 -
Hi Catherine,
Thanks for the info on the arm exercise. I'll let you know if I get some good tips from my PT if I ever get the referral from my dr. Can't imagine what the holdup is and why I haven't rec'd a call back. But I'm trying to gain patience thru this whole ordeal. Everyone is doing the best they can from their own state of conciousness. Your DD like I am so your second tx must be next week. I hope it goes as well as your first! I'm also fortunate that my work is being so flexible with me. I'm working a little from home and I just found out that my intermittent disabiity went thru so that was a big relief.
Carynn, I had heard about people getting awful headaches and it seemed to help them if the tx was slowed down. Talk to them about it for next time. I talked to my onc nurse before my first tx and she did my cytoxin at 1 1/2 hrs to help eliminate the possibility and I haven't had any pain either time.
Love to you all,
Linnie0
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