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Comments
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a few rough days...pulled muscle lower back can hardly walk. made for fun bathroom trips...NOT!I was sitting on side of bed and bent over to pick up a bowl on the floor and bam! Finally starting to get some relief from it, muscle spasms when i stand up or sit down. But fine in bed. Bad timing because hubby had out pt surgery for his brokne plate. He has home health care nurses giving him shots, they have done a few things for me too but otherwise my poor hubby has been doing things I just can't. I had opted out in taking him to surgery because i was very fatigued and sleeping alot. Thank god for my son in law who took him for that.
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Hi Killary,
Glad to see your counts are back up. I also had the same problem with Compazine. The Zofran worked great.
Enjoy those 6 year olds:)
Jel0 -
Hi Everyone!
I survived my son's 6th birthday party! It is a big relief to have the party out of the way before I lost my hair. I wanted my son to enjoy his party and be the center of attention, rather than having it focused on "poor me". Now I can be more relaxed about telling more folks - won't they be surprised!
We're getting lots of snow here now - wouldn't be surprised if my son is off from school tomorrow. He'll be thrilled to have a day to play with his new toys. Snow should stop by Tuesday, my second chemo treatment.
OK -- I'm exhausted -- off to relax ...
-- Hillary0 -
Hello everyone, I hope your weekend is going well. Today, Sunday, bring a new stage for us. The hair loss is finally happening. We had hoped that Theresa might have been one of the few lucky ones that way. It took 19 days. Outside of the hair loss now, she is still feeling great.
Someone made a statement earlier that really made an impact on me concerning the hair loss. It is a clear indicator of the treatment doing its thing. Encouraging, to me anyway. Thanks
We are extremely thankful for the friends and family that we have that encourage us in soooo many ways. This morning at church, a presentaion was made to Theresa from several folks in the congregation. They put together a collection of images and music loaded onto an iPod Nano for her to use during treatment. There is also about 50 different people that recorded messages of hope and scripture readings loaded. Priceless
Scott0 -
Hey Cruiser buddies I'm home from the slumber party. The 5 of us had a great time. Kinda hard to relay all the funny moments, kinda one of those "you had to be there" thing. One of my DFs' is on Weight Watchers and my docs want to make sure I don't lose any more weight. She's counting points and I am counting Anti-Weight Watchers! Kinda felt bad drinking that beer and eating Klondike Bars, etc right in front of her. We laughed cause she brought 30 pretzels as a snack. HAHA We played alot of pool, none of us very good but every time a ball went in we did the woohoo dance.
Watched The Devil Wears Prada, what a great chick flick.
I shared a bed with my friend Tina and when the lights went out she reached over and grabbed my hand and said very softly "how's it going Marsh?" Tina had moved 70 miles from all of us and I really hadn't had a quiet moment with her since BC. I just quietly started crying and telling her. My head was tingling, hair felt sore and I'm shedding.
We had a nice little cry and I said "I'm gonna shed in your bed" She thought I said "I'm gonna s**t in your bed" and asked why I thought that, had I been having trouble with that? Thought I would die laughing, we literally were howling with laughter. Boy that felt good. Slept the entire night without waking up one single time!
I read all the posts (wow, 20 or so) and will try to catch up with everyone tomorrow. Sounds like Tuesday, Wednesday and Thursday are gonna be busy at the bar. Sweet dreams all, Marsha
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Marsha -
I am so glad you had a great time with your friends! I normally go on a friend trip once a year end of April to a horse event called THE ROLEX in Kentucky. It's 4 glorious days of horses - and these are Olympic riders, so it's a big deal in the horse eventing world. But unfortunately, this year I will not be able to go and I am not happy about it! But things all work out I guess - we may be packing anyway, as our house is supposed to be done the first week in May, so my DH will be glad I stayed home!! LOL
Funny, but I also have a friend that I have not talked to as much the last couple of years. We've been friends for 20 yrs, but she lives a couple of hours from me (always has) so we kind of have more of a phone relationship. Funny how she now has become such a part of my life again - she had back surgery, and had more time to talk - then I got dx with this - so we are both going thru something!! She just sent me flowers last Thursday - ironically the same day I ended up buzzing my hair - sheer coincidence! She knew it was coming soon so she sent me the most unique thing! It was a big martini glass with green marble things, flowers, green apples and 2 straws ----- it was an APPLE MARTINI flower! Never saw anything like it! Totally made my day! Guess that is what friends are for = so glad you reconnected with yours as well!
Hugs, Jen0 -
Glad to have you back Marsha, first you made me cry, then laugh big time... we surely are on an emotional roller-coaster... Friendships are really important right now. A lot of my really old buddies (back to boarding school times in Cherbourg, Normandy)and from university in Paris are very present in my life, writing a lot (thank you Internet) and calling often. Same with relatives and many unexpected people who wanted to "stand up and be counted". This is a very heart warming experience (on top of having great companionship at home).
Well, today I did it: pinched my nose and jumped from the highest diving board... to reopen my eyes with less than an inch long hair on my head. DH did the buzzing... and to my surprise that was in fact pretty nice and becoming, so I am now looking forward to the Fall, when my hair will have probably grown back that length and I'll keep it short (less maintenance...)... we went and got head bands and hats to keep warm, and I think I am all set (my scalp is itching, so by mid week, I bet it will be gone...).
Quite a few of us on Tuesaday (round 2 for the DD crowd, boy, those 2 weeks went by fast!! By the same token, we'll see the end of AC before we know it...). I have the feeling of having enjoyed 2 weeks I did not expect to enjoy so much, days were so normal, with so little discomfort (if it had not been for that endless cold). I sure hope the rest won't be too too much worse, and if possibly better for those who had it a bit rough so far).
How did the swimming competition go??
Carynn, did your headache give you a break?
Jan, I hope your back is doing better and you're not in too much pain...
Well, a lot of us are going through round 2 (50% done with the AC, not bad). Wishing you all an uneventful and painless visit at the bar (watch your veins...). we know more and are better prepared than the first time... let's hope it won't be much worse...
You all have a nice evening, now, and a good night sleep (the "most repairing" hours are before midnight...)
Big hugs,
Catherine0 -
Well it's done...I had my daughter give me the buzz cut this evening and it's done. I tried to seem non-chalant about it for her sake but at one point I looked up and saw her looking a little teary-eyed. I told her it was ok and I was ok with it. The hair clipper I purchased was Remington from Walgreens and it came with several sized attachments depending how short you wanted to go. We picked the shortest since it's falling out anyway. Heck yesterday it was so breezy outside and as I was doing yardwork I'd see bits of my hair flying by! And this morning my scalp was SO tender and my pillow had to be sticky rolled to clean it of my hair. Anyway, this is the part I was dreading and now it's done.
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Ah, the hair! So many of you had the same experience I did, I am amazed at that. So now we all kind of know what to tell next month's cruisers.. I also think the buzzing it short is the right thing to do. The look of a cat with mange has to be worse than looking at your GI Jane cut!
Round #3 for me this coming Thursday. I had to have another procrit shot in between (I am anemic naturally, so this isn't helping) but I feel fine. For all my IT sisters, I will admit that I haven't logged on from home once I did my 10 at work. This is my concession to the chemo...
Today I need to go see a dermatologist and my gyn.. having lots of skin related issues, which may not have anything to do with chemo. I am postmenopausal, the weather here in New England has been weeks of 10% humidity days, so I am in agony skin wise. The chemo may be making things slightly worse, so I will see. But this is a pretty common thing for me.
Marsha, I busted a gut laughing at the end of your bed story...
Catherine, I too have connected more intimately with friends with whom I had had the usual once a year Christmas letter relationship. We have a new level of intimacy which feels wonderful.
Hope everyone had a restful weekend. Where's that bartender?! She will be busy this week!
Love to all.0 -
Happy Monday fellow cruisers,
Marsha - what a great story! Sometimes a good laugh and a good cry are better than any xanax or other med. (I say this as I wait for a call back from the onc nurse for a prescription for anxiety).
I think I'm the lone holdout on the hair. I have it really short and it's shedding alot (Day 21 and 2 A/Cs done) but I'm just going to wait and see. I can buzz it anytime, right?
I'll be thinking of all of you tomorrow who are going thru your next cruise....
love to all,
Linnie0 -
Made it back from the weekend. The meet was long but fun and I am so glad that I was there to watch my son swim. He did great.
Got a nasty, nasty cold though and decided t stay home today in hopes it would improve. I have my DD chemo on Wed and do not want it delayed. The cold kind of scares me but my temp has not gone over 100.
Read everyones post to keep up. I did find advil really helped with the bone pain but I had to take it as soon as the pain started or it seemed to get a bit out of control.
I had intended to shave my head with my son before his meet as a bonding thing. But then with the nausea I backed off and did not feel good enough to go out. I haven't lost any hair yet at all. I have baby fine hair too so a few strands would make a big difference. I suppose any day this week it will start but glad I had the extra time with it. Maybe I will wake up bald one day and it will all be in the bed. Marsha I still laugh about the "shedding" story.
Good luck to everyone as we approach our second and third rounds.
\Karen0 -
Too funny Linnie, i am sitting here also waiting for the xanax prescription to be refilled today. My hair is still there too, shedding alot, afraid to wash it. LOL Also just waiting to see, thinking it is just "thinning" alittle. I snorted coffee out of my nose when I read Leah's post about looking like a cat with mange. The hair thingy is freaking me out more than the mastectomy or chemo so far! How stupid is that? Going to the drugstore to get my pills and gonna pick up some self tanning lotion, just in case cause I absolutely refuse to have a WHITE bald head! Hugs, Marsha
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Marsha,
I thought that maybe I was reacting so badly to the hair loss because I have not been through any of the breast surgery yet. But I think it is because it is so visible, and when you look in the mirror, it really does say "cancer patient". Who else opts for this look other than a few women affirming their gender orientation or Brittany???
It is a shock. Yet my boss told me that he is "surprised" every day when he looks in the mirror, cause in his own head, he is still 29 and has loads of hair! But he had 20 years to lose it. One day is a shock.
I do like my wig though. And I guess that is the saving grace. Maybe I will learn to love my bald head also.
But just know we all seem to be struggling with this, and i think that is very ok.
Much love.0 -
Hi!
This is my first post. I start chemo on Wednesday, the last day of Feb. so I'm not sure if I belong here or in the March group. I was diagnosed on 1/3/07 and had a bilateral mastectomy on 1/29/07. I was wondering if anyone has ordered a wig from Wigsalon.com or if you have advice about where to order a wig? I will be in a clinical trial so I find out tomorrow if I get AC or Taxol. I believe with AC I will lose my hair, not sure about Taxol.
Nice to meet all of you!
Wendy0 -
Welcome Wendy! You should join our group. You will find tons of support here and we'll be a little ahead of you which can help you along the cruise. I ordered a wig from headcovers.com, returned it and had to pay a hefty restocking fee but I think others have had better luck on the internet (maybe I'm too picky). I already have one that's ok but I'm thinking of biting the bullet and paying the salon prices (alot higher) to get something I like more.
Marsha, I wanted to be the super strong person who didn't need a mood enhancer but the "hair thing" along with all the rest is just too much so screw it. Just took my xanax and waiting for it to kick in. Day 21 and I am shedding like a golden retriever today. At least we're all in good company. As many times as I tell myself, it'll grow back, I can't convince myself that it makes it ok. What a crappy side effect. We just need to keep focused on the positive -- kickin' cancer butt. The rest is superficial. Do I sound like I'm convincing myself?
Linnie0 -
Hi cruisers!! WEll, one more day for my cocktail party. Getting nrevous even though all your wonderful posts have really given me lots of encouragement.
Marsha, you are so funny. Even when you write about something difficult ( getting stuck) or poignant ( crying with your frined), you have such a great sense of humor. I always smile or laugh when I read anyting you have written.
I'm glad you're the captain for our cruise.
Keep it up girl!!0 -
Name/User Name Loc Chemo Start
1 Karen swimmingmom Ohio 15-Feb
2 Hillary narberthmom Southeastern PA ACX4 (every 2wks), TX4 (every 2wks)
3 Marsha marshakb Florida Chemo 2/7
4 Melody maj01 Texas 2/5 port 2/9 Chemo 4xAC
5 Phyllis erinsgram Central PA 2/12 4xAC (2 weeks) 4 xP 2 Weeks
6 Cynthia cynthis1962 California 2/16 - surgery and port
7 Linnie was Linda #1 linnieva Virginia 2/6 Chemo 4xAC (2 weeks) 4xT
8 Pat wayover20 Texas Chemo 2/8 big birthday on 2/11 and need for hugs!
9 Catherine cahterineh Colorado Chemo 2/13
10 Leah leahrc Massachusetts BX on 1/29 Chemo on 2/1 Our first + thoughts for March Surgery
11 Linda lindasuzy Seattle 1/29 surgery Chemo late Feb
12 Kim nynurse NY Start 2/1 (first of the group)
13 Mary reggio113 South Jersey Port 2/5 Chemo 2/14 Happy Valentines!
14 Jen horsegal Ohio Chemo 2/6 - 4xAC (3 weeks)
15 laronson laronson Surgery the week of Feb 5th
16 LuLu (Linda #3) piper Port 2/12 - Chemo 2/22
17 SammieKay Port 2/5 Chemo 2/13 12 wks taxol - Then FAC
18 Terry talbrig13 Altoona, PA MUGA 2/7 Chemo 2/9
19 Sheryl49 Sheryl49 Chemo 2/7 4xAC (3 weeks)
20 Jan wildabouthorses Claremont, OK 4xAC (3 wks), 4 xT 3 Wks
21 Nancy Nancy053 Chemo 2/8 4xAC (2 wks) 3xT (2 wks)
22 Joey85 Boston, MA Chemo 2/9 4xAC (2 wks) - 12 Wks Taxol 1 Yr Heceptin
23 Sharon Misspell Chemo 2/19 or 2/22
24 KimberlyC KimberlyC Ventura County Chemo 2/20 ACIV dose dense x4 - Taxol x4
25 Julie for Mom (jch) jch Chemo 2/6 AC
26 Tracy madoline Texas Chemo 2/8 ACx4
27 Scott and Theresa lightphoto
28 Carynn comandobarbie Arizona Port 2/19 Chemo 2/22 DD AC + T
29 Jel hockeymomfl FL
30 Lynn maclean
31 Steph TampaChick
32 Angel Angel
33 LindaDK
34 FreeThought 2/13, Chemo 2/14
35 ronnee07 MN Start 2/27
36 Tonimad9
37 Sallyann
38 Tropicmom
39 Lorilat Eastern Ontario Chemo 2/23
40 Taurie
41 Alyson Chemo 2/22
42 Angelflight- CA Chemo 2-28 6x Taxotere,Adriamiacin,Cytoxin
43 Playwriter Texas
44 WendyPetru Champaing IL. Chemo Start 2/280 -
Hi Wendy! Welcome aboard our cruise. Here you will find a wealth of information, or just lots of shoulders.
We are always sorry to see someone new join, but glad that you found us. Check in often to let us know how you are doing.
As for the wigs, I got mine thru the American Cancer Society. They will give you 2-3 wigs, scarves, hats, you name it, to use for as long as you want. When you are done, just return them and they get them ready to be used again. I chose one used (you cant tell at all) and one brand new with tags, etc still on. I ordered some scarves and a little sleep hat from HeadCovers and while I havent needed to use them yet, I've been very happy with my order.
Marsha, so glad you had a good time! It sounded fabulous!
Talked to my Onc today and got the scoop on the headache. I guess this can be a pretty common reaction to one of the anti nausea drugs they give beforehand. She's going to work on it for me before the next treatment, but honestly if its this or nausea, I think I can take the 4 day headache as long as I know what to expect and take for it.
Went back to work today! I only put in 7 hours, and that was only indirectly chemo related. I slept great for about 4 hours, then was up the rest of the night.
But I'm feeling more normal now and looking forward to getting back in the grind later this week.
Hope everyone is having a great day!
Carynn0 -
Sweet dreams, everybody... we'll hold hands, Tuesday ladies... It's getting difficult to remember who is on 2, who is on 3, and then the new members just starting out... Take care, and we'll report as soon as we can...
CatherineH0 -
Hi - got room for an Aussie girl on your cruiser? Started chemo on 23 Feb, 4 rounds EC followed by 12 Taxol/Herceptin, then 9 months Herceptin. Dx Jan 3, Left Mastectomy and Ax Clearance 10 Jan (6/19 nodes involved, several tumours, largest 4cm), ER-/PR-, Her positive. Right mastectomy (mainly for my mental health - no sign of cancer but no-one can rule it out - my cancer came from nowhere, had clear path results 6 months before DX) on 1 Feb. Married, 5yo daughter, live in Adelaide South Australia. More later . Would be nice to share the journey. Best wishes to you all. Belinda. 0
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Welcome on board, Belinda... wishing you a smooth journey through your treatments and hoping you'll find here the comfort offered by women's solidarity at work. We are not pleased to see the number of passengers grow so much... we were half a dozen when this thread started... it reminds us how universal our ordeal is... but we have today better ways and better knowledge to fight this, andwe will do just that all together...
Welcoming Hugs,
CatherineH0 -
Hello all! Just wanted to share something good! I did buy a wig, shorter hair than I normally wore mine. Tonight went to our favorite local restaurant for dinner with my Mom who is in town to go to my #2 chemo tomorrow. I know nearly all the workers there as we have been going for years, my son even worked there in high school.
The bartender said she loved my new hair cut!! She said she didn't even recognize me at first, until she saw my DH! How about that! She didn't have a clue that it was a wig, so I guess it was worth every dollar!! Yippee for something good for a change!
Hugs to all this week going thru whatevers!!
Jen0 -
Hi Marsha,
I cried when I read about you and your friend crying and laughed a lot about the s--- in the bed. shed of course. Glad you had a nice weekend with friends. I love your idea about the self-tanning lotion. I don't want a glowing white head either. LOL
Catherine, I laughed so much at your description of holding your nose and diving in. I bet you look nice with the short do. Amen to the low maintenance. Actually, this morning down at the coast I wore one of my new wigs to go out for breakfast. I was ready in 5 minutes flat. Big improvement over messing with my baby fine hair that actually needs to be washed and dried every morning. I will be thinking of you tomorrow as you have your next treatment. I am on dose 3 of Taxol, of course it isn't DD, just the once a week deal.
Hillary, congrats on the birthday party. Glad you made it through. I know your son was thrilled. Maybe the anemia is causing you to be tired. Man, I had trouble getting through a 6 year-old's birthday party without chemo. LOL
Theresa and Scott, you are in my thoughts and prayers as you go through the hair 'deal'. You know the 'crowning glory', I believe that has to do with the trauma of our hair loss.
Pat, I don't know how you held it together with your daughter shaving your head with tears in her eyes. I admire your composure to protect your daughter.
Leah, I bet you look beautiful with your GI Jane haircut. One of my friends who went through cancer with her husband made an interesting comment to me. She said "I see these beautiful women with their big earrings, beautiful make up and shaved heads and I feel like they are wearing a badge of courage." We are courageous and can hold our bare heads high.
Linnie, you aren't the lone "hair holdout", I am there with you. Maybe I will get a prescription for xanax to have on hand for that day. LOL I am sure I will need it.
Karen, Congrats on your son's state swim competition. I know it meant very much to both of you for you to be there. Take care of that cold and yourself. We are havinga flu surge here, so I am avoiding crowds for now. Keeping on top of back and joint pain is important. Seems if it gets real bad it is hard to catch up, so to speak. I have had chronic back pain since 1996 due to an injury and Taxol really kicks it up a notch, know what I mean?
Welcome Wendy Petru and anymore new folks. This is a wonderful website. Lots of good information and sincere caring and concern. Keep coming back. We need you. If there is anything I can do for you just let me know. I got my wigs at a wig salon. The lady told me that most insurance will pay 500 dollars a year for "hair prosthesis" as my oncologist called it on the script he wrote for me.
Carynn, thanks so much for updating the list. Take care and God bless.
I hope all of my fellow cruisers had a wonderful weekend. My husband and I spent 2 days at the coast sailing. It was wonderful. I am not as much help as I was before chemo. Weaker with less endurance. But my captain was understanding and actually overprotective. I think I could have done more. However, I have to watch out for pridefulness. I have always taken pride in being in good shape and strong. Today I have to accept myself as I am, weak from chemo and 4 surgeries in one month. The weather was beautiful, 75 degrees and sunny. Winds just right for sailing. Spring is right around the corner here in South Texas. Hallelujah.
Hugs and good thoughts to all of you. You and your posts mean a lot to me.
You are in my thoughts and prayers as we all go through chemo. Seems like now we have someone or several having chemo each day of the week. God bless and keep smiling. Sammie Kay0 -
Hi, All, I would like to cruise with you. I am tired of trying to get through this on my own. I had my first chemo on February 15th, only have 3 more to go - Taxotere and Cytoxan every 3 weeks, next one is March 12th (my daughter's 36th birthday). Physically, after a few rough days starting with the 3rd day following, I seem to be doing better than I expected. The problem is emotional; while I realize I am very lucky with Stage I IDC, ER/PR+, HER2/neu negative (2+ per FISH but 2 onc's and the pathologist consider 2+ to be Borderline, therefore Negative), I am still having a terrible time, I am a complete wreck at times and I seem to be in "avoidance" mode much of the time. I usually hit things head-on.
For instance, I already have my wig. I have long blonde hair and my onc suggested I go get my wig before I got too emotional about my hair loss. So when my daughter and her boyfriend visited from Boise to see me through my first chemo tx, we all went to pick one out at a wig store in the Oncology Center. As I tried on about 8 wigs and we giggled and laughed through all of them, I heard one of the three very nice, very helpful "wig shop gals" whisper, "Watch, she'll get the very first one she tried on, they almost always do." Ha, not me, on the advice of my daughter, I bought the last one I tried on - and it turned out to be 50% off - whoohoo! Here's where the avoidance comes in - I agreed with my daughter's suggestion that I have my long hair cut off short to get used to it, and donate my hair to Locks of Love. I have a friend from high school who is a hairdresser (stylist? what do they like to be called? I don't want to offend anyone) and I just adore him, he is such a kick, I just know he would make it fun. I just can't seem to do it. I think about it and I just want to cry. It's as if having my hair cut off makes this whole cancer thing too real. As if the surgery and the first chemo didn't...well, I tried to skip the chemo, too, (there's that avoidance again)until my Oncotype DX came back a 35, high risk...
Anyway, if you will allow a basket case on your cruise, I would like to come, too, but first, will someone please tell me what DH and DD stand for?
You all sound like a great group of women. Love from Sybil from Orange, California0 -
HI:
I had lumpectomy surgery Feb 13th. had tumors 2.0 cm & 2.5 cm and 15 lympnodes taken out with only 1 positive. i have appointment with medical onco. wed. feb 28th. they say it is border line stage II.
I still think they are going to tell me they have made a mistake. I still can't believe this. My husband doesn't understand how come I'm so calm. I cried the night I found out, and than just a bit when I had to tell a few folks.I don't believe this. If I can finaly get the drainage tube out this Wed.
My surgeon said the port installation & another surgery since my margins were not clean maybe on the 6th. than in about 10 days may start chemo march 16th0 -
can anyone help me with this denial.
Also after your 1st chemo. treatment was anyone sick right away? I'll have an hours drive home from each treatment.
CINDIE
IN MICHIGAN0 -
Sybil,
DH = Dear Husband
DD = Dear Daughter
everyone,
SO frustrating today. i want to get this show on the road. maybe God is allowing me to keep my hair a few more days.
when i had my 1st visit to the onc last week, i went to the desk to check out, paid my copay, and the lady handed me a couple of papers w/o saying anything. one of them said "Receipt" at the top. one, i figured out was an order for an echo to be performed at the onc's ofc. so i called to schedule something, but there was no "press X to schedule an echo" option. left a v/m for the dr on Wed.
Thursday, i glance at the bottom of the "receipt" and see that the lady has scheduled me for an echo 3/1 and a F/U visit today! she didn't TELL me she was scheduling these appts for me; she didn't ASK me when i was avlbl.
So I go today for my F/U visit to the onc.
nurse: what tests did u have last week?
me: none
nurse: did u have a port put in?
me: no. i called the surgeon's ofc, and they said 'he'd talk to the oncologist.'
nurse: ok, well, i'm not going to charge you for today then.
SO glad i drove the 20 miles for THAT visit! i am seriously considering changing doctors. i live in Houston, and we have MD anderson, a cancer hospital here in town. it's a fair drive, but they do everything under one roof.0 -
Cindie,
I think you will find that no one is "sick" right after chemo... your "cocktail" will include some anti-nausea meds, and you may get to take some before you even get to the treatment. Most of us are told to take the first anti-nausea pill about 4 hours after treatment, or for those in late afternoon, at bedtime. So you should be fine. Would not worry about the drive home (though I assume you won't be driving- the anti-nausea stuff makes you a bit sleepy sometimes, so you should have someone else drive you home).
BTW, you should assume you **won't** be sick. If you read thru the beginning of this thread, most people are not. And the rare ones who were were able to get their medications changed the next time to avoid this. There is no reason to "be sick" with all the great drugs available!0 -
Well I talked to my onc today and will definitely have to put off the chemo for at least another 2 months because of the situation here right now. I guess that will put me in the May or early June crowd instead of Feb. God I was hoping to have this all over with by the middle of June and not be sick during all the hot months of summer.....grrrr
Angel0 -
Welcome to Wendy, Belinda and Sybil, our new cruisers. I can't believe how large our cruise has become ... it's sad how many there are of us, but we're such supportive passengers! I really this use this site when I need a dose of reality away from my normal day-to-day existence.
OK, by my calcuations, Jen, Catherine, Tropicmom, Ronnee07 and I will be at the bar today, in case anyone wanted to find us!
Phyllis and Dawn (and Melanie!) were yesterday (how did it go?). Theresa, Marsha, and Wendy have bar appointments for Wednesday, while Tracy, Melody, Pat, and Leah are on Thursday. Have I missed anyone? We sure are a bunch of lushes!
Angelflight -- even though you are Involuntarily getting off, you need to check in and keep us updated!
Carynn --Is the headache accompanied by dizziness? I was feeling basically "hung-over" all the time. We think that it was a reaction to the compazine, so I've been switched to Zofran for the second round.
Marsha -- Are you every AC every three weeks? My onc has me every two weeks. I only started feeling good (though tired) on Friday and I've got to do this again today!
Lynne45 -- We're neighbors ... I live in Narberth. Have you tried the biotene products for your mouth sores? I'm prone to them, so I've been using biotene prophylatically and it seems to be working OK. Also, avoid very hot or very spicy food.
Jel -- How did you oncology appointment go on Monday?
Karen -- Glad to hear your made it to the swim meet! I had the scary temp on day 6. The onc nurse did not think that it was directly related to the chemo drugs, but instead thought it was my body fighting off an infection. We'll see this time!
On the hairfront -- it's just starting to come out today, right before my second AC. I assume it will all be out within a few days. Will put in a call to my hairdresser while I'm at the bar!
Take care everyone ... I'll try to check in later today to see how we're all doing.
{{{{Hugs}}}} all around and lots of virtual hand-holding!
-- Hillary0
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