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Anyone starting Chemo in Feb?

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  • Alyson
    Alyson Member Posts: 3,737
    edited March 2007
    Morning all
    Another day and even less hair/fuzz. Marsha I like the idea of namimg the hair especially as I intend getting another one in a different style. That should get even more reactions. The students have been wonderful about everything. I told them on the first day of term. Feb 12 here in NZ so they were expecting the wig.
    Leah, like you I am not impressed with the colour of the fuzz. I started out life with red/copper coloured hair which darkened a bit when I had my children. I started colouring it regularly about then and said that I would not let it go grey until I retire from teaching. Well there is so much grey in it --ugh! I just hope I will have hair and be able to colour it by the time of my daughter's wedding in January.
    Amused a friend last night by showing her how the lint roller worked on my head. I remove the wig as soon as I get in because it is very hot and humid here at present but last night I did wear a scarf while cooking dinner.
    The last two days have been quite dificult at school as I have been so tired. I get home and collapse, as soon as I sit down I go to sleep.
    Linnie, yes the heartburn is a real problem. I often get a bout in the middle of the night and have to get up. Herbal tea seems to work especially the ones with ginger in them.
    I do like the idea of mango slices, pineapple is another thing I find I can eat.
    Hope those having treatment don't have too much bother and everyone has a good day.

    Alyson
  • SammieKB
    SammieKB Member Posts: 164
    edited March 2007
    Catherine, That is funny, you had a boat from Rockport. We traveled to Denver to buy our boat. Mike found it on the internet. It was just what he wanted. Actually getting it from Colorado was an advantage, as it didn't sit in the humidity of the Gulf Coast. I am like you, I love to go sailing, but am not the enthusiast my husband is.I am a fair weather sailor. He reads and researches sailing all the time. Our sailboat is 26 feet, about as large as one can go and still trailer it. We pull it behind our truck.
    Well this is a yuk day for me. I bought a month's worth of groceries yesterday on the decadron high. Today I feel it. Diahrrea and nausea. Tired. Depressed related to hair loss. I got my order from the Headcovers.com site and I will be sending all of them back. Just not me. I look like a washer woman with scarves on my head. Guess it will be bare, wigs and baseball caps for me. I put on a black scarf I ordered (thinking I wear a lot of black and white and tan) and all I could see was a nun.LOL Not me. I want some funky hats. I am a young looking 67 y/o with a 55 y/o husband. I need to look funky, not like an old nun. Right? Anyone who knows of a funky hat site, let me know. I am all about accessories too. I did buy my BIG hoop earrings in gold and silver. Ready to go.
    Thinking of all of you guys stepping up to the bar today. Hope all is well. Carynn, hope you don't get a headache this time.
    Annie Lennox, that an encouraging thought. She doesn't look bad without hair. Marsha, that's a compliment. What a funny thought, your wig flying out of your convertible and landing on someone's windshield. LOL
    I am going to lie down and wait for my zofran to kick in and then go feed my plants. The growing season has started here and they took quite a hit from the last freeze we had. Love all of you, Sammie Kay
  • SammieKB
    SammieKB Member Posts: 164
    edited March 2007
    Allison, isn't it ironic that this fuzz is not the color of any hair we have had in my lifetime. I have always had
    blonde hair that went dirty blonde as an adult. I have highlighted for years. Well this fuzz is black. I can't believe it and lots of gray to. Well, we are not having that. Oh no! If it comes back in black, well all I have to say is "that's why we have hairdressers and bleach" LOL.
    Take care of yourself and rest. I admire those that work fulltime. I only work one or two days a week.
  • SammieKB
    SammieKB Member Posts: 164
    edited March 2007

    Lulu, sorry you are going to have to go under the clippers. It is comforting to know others have traveled down that road. I think reading about it here, helped soften the blow. I didn't cry when it was buzzed. My friend cutting it did. I think it was not so emotional for me because I didn't feel alone about it because so many here shared their experience with me. Thanks to all. I hope your wbc's come back up. My rbc's are down and they said the shot for that took 4 to 6 weeks to work. So they keep giving me one every week, Procrit I believe. I think you get Neupergen or something like that for wbc's. But I would think they work the same, on the bone marrow to stimulate it to produce more blood cells. Take care of yourself. Hugs, Sammie Kay

  • SammieKB
    SammieKB Member Posts: 164
    edited March 2007

    Hey Marsha, Know what you mean. Brendal and a group of divers had just come in and were unloading while we were waiting to go sailing, a sunset cruise. Well, I look over and he has a hose and is pulling his wetsuit off and holding his trunks out, hosing down the big bamboo. LOL. He isn't shy. A delightful fellow, we really enjoyed him on the cruise. He has a very interesting history. He told us his life story. I can't remember all of it, but one thing was that he had been diving since he was a young boy. Hope you are doing well. Love, Sammie Kay

  • talbrig13
    talbrig13 Member Posts: 358
    edited March 2007
    Hi all,
    I got home from the bar with it being an uneventful time (for once!) Felt tired and took a nap, but was able to eat and feel okay now.
    Speaking about haircolor....my wig is ginger brown and close to my natural pre-gray color. But I haven't colored it since Dec, right around the time of my biopsy. Figured why spend the money if it is going to fall out anyway. So here I am with 2 inch gray roots showing and my hair looking lighter. So when I do put the wig on it will look really dark...Well, I figure, just another change to get used to.
    If I feel okay tomorrow...will try to go to work. We will see.
    Glad the bar visit went well for us today...Piper...Caryan and Freethought...how are you?

    Love to all
  • linnieva
    linnieva Member Posts: 80
    edited March 2007
    SammieKay,

    I just ordered a baseball hat from Hats,Scarves,andMore.com (something like that.) I've bought some items from headcovers but this new site seemed to have more Spring/Summer style hats, less knitted items. Maybe you can find something there to make you feel hip and sassy.

    Lulu(Linda) - Glad your trip to the bar went well and here's hoping no HEADACHE!

    Alyson - When I was in on Tuesday for treatment, they gave me a 30-day sample supply of Protonix to try and it's really working. No more feeling that someone is sitting on my chest.

    Linnie
  • Overthemoon
    Overthemoon Member Posts: 33
    edited March 2007

    Dear Jel, I hope things turn around in your favor really, really soon. Sending you love and strength, as I know we all are. xoxo Sybil

  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited March 2007
    Hi girls..I must have stayed too long at the bar, feel a bit of a hangover coming on.

    Here is my story for today -

    Because I mentioned to the Onc that the tumor is shrinking, she wanted to see me prior to starting chemo to see if she could feel a difference.

    So, off to the exam room DH and I go waiting for Dr. B. Shortly a (very) young PA who I have never seen before, walks in and starts asking me all the typical questions. While we are talking, in walks Dr. B. So here we are all four of us crammed in this tiny room. Dr. B takes a seat and the PA keeps asking questions.

    Because I already had the port accessed, the nurse had asked me earlier if I wanted a gown, or was I comfortable just lifting my shirt for the Dr. I declined the gown.

    So...on and on goes the PA when finally Dr B saays I cant wait anymore Carynn, I want to see. So as she stands up and walks towards me and she says, so how is the best way to do this? I immediately in one fell swoop grab the shirt and bra and lift them up about chin level (Think Marde Gras asking for beads) and turn to "flash" hubby, Dr B and the PA. DH and Dr B get a terrible case of the giggles, and the PA turns red as a beet an puts his head down without saying a word. I say, do you have any beads for me? He keeps his head down so I ask "are you looking in your pocket for my beads?" Surely you have beads for me. Well everyone is busting a gut except the poor new guy who is terribly embarassed and not sure where to look.

    So she does the exam and agrees it's shrinking. We talk a bit and she leaves. The poor PA has still not recovered and is trying to get thru the rest of the exam. He asks me to stick out my tounge and gasps HE - "why is your mouth blue:" Me -Cuz I'm drining grape gatorade! Look at all the stories you can tell when you get home. You got flashed by a blue tounged cancer chick!

    Dr B told him what to write for me as a script should the headache come back (it is). He sat and wrote it out and I thought put it in my file for me to get at check out.

    I go get chemo - have 2 wonderful stories there too, but I'll tell them later.

    We are finally done and go to check out. I asked the girl if she had a prescription for me. Looks in the file, no. Starts asking everyone, no luck. Finally she asked me who I saw and I turn around and see the PA. I point at him and say Bead Boy. She cracks up, others gather around and ask why I call him Bead Boy. I tell them the story, he turns bright red and starts thumbing thru my chart. Finally he sticks his had in his pocket, and there it is. Now the office girls are on the floor with laughter and I gave the new guy what seems to be a permanent nick name.

    All in all, I feel good, but the headache is starting. I'm going to go pop a pill and think somemore about Bead Boy.

    Hugs!
  • Primel
    Primel Member Posts: 652
    edited March 2007
    Sweet dreams and no rough seas to all of you back from the bar...
    CatherineH
  • marshakb
    marshakb Member Posts: 796
    edited March 2007
    Carynn:

    Marde Gras beads: 99 Cents
    Bottle of Grape Gatorade: $1.09
    Your story: PRICELESS

    I LOVE IT.........Marsha
  • marshakb
    marshakb Member Posts: 796
    edited March 2007
    Linnie: Bless your heart, Bozo?? I say it is time to shave THAT off! Glad to hear from you after #3. Fatigue is just another name for "someone else do the housework".

    LuLu, glad to hear your cocktail went down smooth. Are you doing Dose Dense? If your white count is slow to come back up they would probalby just move you to a regular 3 week schedule.

    Alyson, I am hearing from everyone that the hair grows back somewhat different and alot of times much better. Wouldn't it be great if you got that red/copper color back and by the time the wedding comes, people will think you are the sister of the bride? HAHA

    Sammie Kay, you go girl, you have a younger man! 12 years you naughty girl. You sound like a very cool, hip 67. And Ok here is the abridged version of the big bamboo. On the dive boat there are 10 of us. Brendal is at the front facing everyone pulling up and on his wet suit. He gets it on, we are all watching fascinated, and he starts "adjusting" till he has that big bamboo pointed upwards to about his chest. I am rolling and screaming with laughter, my hubby and our friend Bert are poking me to get me to shut up and all I can think is "that is the biggest baked potato I ever saw". At this point everyone else is turning their heads away except me, my eyes glued on him. Then I whisper loud enough for the rest to hear "Do you think that is an extra breathing tube" LOL There wasn't a dry eye on that boat.

    Terry, glad you did good, I have found chemo day is the day to eat whatever you want, food taste and goes down pretty well that day.

    Catherine, how you doing girl? Your posts have been kinda short and we so love all your literary descriptions. Hope you are doing well.

    Have a good day girls and hope everyone who had treatment this week sails smoothly through the weekend. Hugs and kisses, Marsha
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited March 2007
    Good morning! Been up working from home since 3! NO HEADACHE! My chemo friend wondered also if it could have been caused by the Emmend. My Onc thought most likely Aloxi, or possibly the Cytoxan. They slowed the push of Aloxi to see what happened there. Since I was able to control the headache yesterday with just one pill, I'm thinking that it was the Aloxi too. So, just now took the Emmend. Since I do take that for 3 days, I'm real curious to see if I get one today. If not, then viola!

    Ok, so yesterdays two other stories. I will keep them short. I would have given anything for all of you to have heard these. The place was packed yesterday and I ended up in kind of an over flow area by myself. Looking around, I was the youngest person in the room. Just the way things were scheduled, but pretty much everyone else was 60+. So everytime a comfy chair opened, I would tell the nurse to give it to the next person as I was comfortable but the chair was very low to the ground and an elderly person would have had a hard time sitting there.

    Finally a chair opened up between two ladies. One was 70, one was 73. I struck up a conversation with the 73 y/o as she was all done up in westernware. Turquiose, mocassions, a darling wig (that I really thought was her own hair), the whole nine yards and looked sharp. Turns out she had ovarian cancer which had spread. She was midway thru her treatments and they were seeing improvement. Her class and dignity were inspiring. She lives alone and drives herself to all of her treatments even tho she has tons of friends who would do it for her. Her neighbors family has adopted her and she receives cards and letters from all over the country cheering her on. We shared our stories and a lot of laughs - told her about bead boy - and she just made my day. When there was a break in conversation, the other lady - dressed in cute jeans, shirt and an awesome fedora without a scarf underneath - told me she has b/c and asked me if she heard me right that I was doing chemo first. She did too; she has 2 more to go and there's no outward evidence remaining of the tumor. She tipped her hat to me showing her beautiful bald head and yes, she really did look gorgeous underneath!

    The three of us with her & my husband listening in (both prostate cancer survivors) all started talking about how we handled the initial dx. We all just moved into fix it mode. And we all laughed that at some point or another thought gee, maybe theres something wrong with me that I'm not melting down! We all also shed tears only once and that was after the 1st onc visit where the "you'll lose your hair" statement was made.

    Girls, I cant convey in this post just how inspiring and uplifting these chats were. But I tell you, when we shave my head today, these woman are who I will be thinking about. Maybe this is what they mean when they say cancer is a gift. I may never see these brave women again, but their thoughts, encouragement, dignity and grace will always stay with me.

    I hope wherever your cruise takes you today will be smooth sailing.

    Hugs!
    Carynn
  • NarberthMom
    NarberthMom Member Posts: 382
    edited March 2007
    Good morning all!

    Thanks for making me laugh! I've been suffering from depression that tagged along with the cancer diagnosis (wow -- two diseases to battle!), and one of the only things that can make me laugh (besides my six year old!) is reading some of these posts.

    The porcupine quills have mostly shot out. It's funny -- my hair color was salt and pepper, though with more pepper than salt. Almost all the black hairs are gone, leaving a grey fuzz!

    The nausea has finally dissipated. Yesterday I was starving, but ate sensibly so I wouldn't get sick. Alright, so half a pint of Ben and Jerry's Chocolate Brownie Low-Fat Yohgurt isn't exactly sensible, but it is low fat!

    Today, I'm hoping to feel well enough to have lunch with some girlfriends.

    Anyone have any good suggestions for scalp conditioners? I don't want to start nioxin until I'm done with the chemo -- why get the little buggers to grow if they are just going to fall out again.

    As today is Friday, I'll start taking reservations for next weeks cocktail lounge.

    Hugs to all ...

    -- Hillary
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited March 2007
    Hi Hillary! Ok so now you made me laugh cuz I do consider ice cream to be in the 4 essential food groups. I lost 25 lbs before dx, and I still allow ice cream nightly! So your dinner sounds sensible to me!

    As for the scalp conditions - Since today is the big buzz day for me, I read here that someone was using scented baby shampoo. I thought I'd try that first before spending on something just for scalps.

    Have fun with at lunch! Hope they have ice cream there!

    Hillary - just had another thought. I use Paul Mitchell products and on the back of the conditioner it says its an "excellent skin conditioner and can be used for shaving legs and arms." So I was thinking if your looking to moisturize the scalp, that might be a good product to try too!
  • Pepper1073
    Pepper1073 Member Posts: 49
    edited March 2007
    Cruisers, I did get the headache again. Made my appointment for tomorrow morning to get my head shaved. DH going with me. I don;t think I am going to shave it all the way though. I am going to leave 1/2 inch just so I can see some hair. When that starts to bother me I will use the lint brush.
    Marsha, I am dose dense. doing AC right now. I am opting out of the Taxol because of my neuropathy concerns. Just have to let the onc know next time I see him. If it has to be moved back a week I will have to just reschedule my trip to see my son in Omaha.
    I do find I am more fatigue after this tx than the first.
    I don't know much about blood counts. Is there anyway to help while cell counts go up besides the shots? Lets all think on this one.
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited March 2007
    Hey Piper! DH and I did both our heads this morning. I am absolutely shocked to tell you it was NO big deal. We took pix after and I'll post some later. He tried his darndest to buzz me so that I'd have hair left, but once he got in there, there were so many bald spots, we just Brittney Spear'd it.

    I'm off to get the shot now. Will try to post the pix later:) (never in a million years did I think I'd show you a bald one!)But they came out cool!

    Carynn
  • MelanieW
    MelanieW Member Posts: 276
    edited March 2007
    Wow! I had a lot of catching up to do, reading all the posts and I am so glad I did. I got a good giggle from the Brendal stories and Carynn's PS story...broke him in good girl!

    My friend went to her PS day before yesterday and took another friend with her. When they were doing a fill in her expanders, she said they must have hit a nerve because she almost came off the table. Well...her friend says she needs to step outside for a minute. My friend figures she needs to make a phone call...NOPE...she fainted right outside the door! She was okay other than a headache.

    Also learned a new word the other day. Phlebitis. Vein irritation from the chemo drugs. So, now I am on antibiotics and warm moist cloths to the hard, swelled, tender veins. I am saying this pretty much settles the port issue. I don't think my veins can handle this.

    Loved the pics Marsha. See...I told you about the big 'ol wet rat thing.

    I think I will also post my "barber shop" pics...or at least try. I finally got my avatar posted! The pic was taken in October at Disneyworld, a month before my dx. We took our 4 grown kids and our grandkids...had so much fun!

    Everyone have a great weekend and do something fun!
  • Mtnfrog
    Mtnfrog Member Posts: 16
    edited March 2007
    Hi all... took your advice and wacked at my hair today...Wow it feels and actually looks so much better. I feel human again.....well at least til next week when it all starts to bite the pillow.

    Question? Why do some get DD every two weeks and some every three weeks. Doc still hasn't got some of my test results back...so I don't know for sure if I will be going the 16th or the 23rd for #2. I'm on day 8 of #1 and feel pretty good. No nausea, no headache, nothing except for a sore throat....but no fever. Guess the only thing good for that is cherry chocolate ICE CREAM!!!! I sent my hub to our cabin to snowmobile this weekend. I figured he needed a break from all this and I could veg and watch some good ol movies. We are supposed to have 70 degree weather here on sunday so I will definitely get out.
    Have a great weekend all...
    Sunshine and love
    Patti
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited March 2007
    image

    Superbowl Sunday - almost never wear my glasses, but I liked this one.

    image

    Ah...the deed is done:) Note hubby shaved his too!

    image

    Red! Didnt spend much time styling it, just wanted to give you the idea. We took the bald pix to the Onc when I got my shot. Its another story to share later.

    Hope everyone is well. Fatigue setting in here, but I feel soooo much better than the first time.
  • horsegal
    horsegal Member Posts: 72
    edited March 2007
    Carynn -
    Your pics are so cute! I like the red! My hair is blonde, but I ended up getting a dark rooted frosted short wig - similar to your cut - and everyone loves it! No one thinks it looks fake, so good thing!

    I have been using Johnson's Lavender Baby Shampoo ever since I buzzed my head, then I use the Johnson's Lavender Baby Oil on my entire body, including my head before drying after taking a shower. I have not had any issues with my head at all, not even any soreness. I figured if it was gentle enough for a baby's head, it would possibly work for mine! So far, so good - and cheap, too!!

    Jen
  • freethought
    freethought Member Posts: 13
    edited March 2007
    Hi Ladies---

    Well, I tried to post earlier, but then it wouldn't take it...guess I spent too long reading all your wonderful posts? Carynn and Marsha, you crack me up! Thanks for your humor...Marsha, I have to confess, the first thing I thought of was not Alfalfa, but a Who from Whoville.

    2nd treatment went smoother, but this time I had no head cold, period and infected boobie like the first time...the doc added Emend this round, and although my stomach is rolling around itself, none of that icky mouth taste that makes me think an oops is just around the corner. I also had the Decadron high all day, ran errands all over town, and promptly fell asleep in the chair in front of the tv for over 3 hours....so it will be interesting to see if I have enough strength to go to the pre-St. Patrick's day parade tomorrow, or if it will be College BB on the sofa....Rock Chalk Jayhawk!

    My sinus headaches/migraines seemed to get better with a humidifier and Sudafed-type sinus meds (the ones with pseudophedrine that you have to sign for in case you are meth-maker on the side). With the hair buzzed, I'm just using my normal wonderful smelling body wash on my head, but am slathering Eucerin on the head as usual after my shower...greasy at first, but soaks in while I finish getting dressed and keeps the soreness at bay, especially if it wear a tighter hat or scarf.

    As hard as it was to lose my hair (watching it come out, in denial that it would all come out, bawling in the shower for hours), I have to say I'm really enjoying the sensations of being buzzed...standing under the shower I can actually feel the shower sensation, and wind feels more like a gentle stream caressing me than air currents. And before this, "accessorizing" to me meant finding matching earrings...and I'm really having fun with hats and scarves, but getting more comfortable every day going "Commando", though it's mostly in and around the house...though I have shocked the flower delivery men a couple of times!
    Hope you all have a restful and fun weekend...HUGS!
  • wildabouthorses
    wildabouthorses Member Posts: 458
    edited March 2007
    Carynn you look great in red hair too! My hubby has his head shaved but he did it before I lost my hair. I think he may keep his this way as he's had alot of great compliments on it.
    Enjoyed your stories!
  • Overthemoon
    Overthemoon Member Posts: 33
    edited March 2007
    Good Evening, It's a great night for cruising. I've been reading all your posts -- wow, I just got my head buzzed today, too. at first I thought I looked like an alien (from another planet) in the mirror. My hairdresser friend said "I have a birthmark just like yours". I said "what birthmark?" So he gave me a hand mirror to look at the back of my head -- there it was a cute little strawberry kiss at the base of my skull. I never knew I had it! Such a relief to not be shedding anymore, I kept feeling like there were ants crawling on my arms, only to be picking off stray hair.
    But my head feels so cold. I put a ski cap on, it was all I could find. Strange gear for Southern California weather. Good Night, All. Sybil
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited March 2007
    Good Morning FCC's!

    Boards have been quiet! Hope thats cuz everyone is feeling great and out and about these days.

    So yesterday, DH says are you ready to do the hair? I told him to give me a sec and I'd be right out. I come outside and he's shaved his own head! Without a mirror, he only got the top done right and the sides were totally "bozo." I laughed so hard, and cleaned him up. Then we did mine cracking jokes the whole time about "what the neighbors think." The dog and cats were in on it and like I said, wasnt bad at all. About an hour later, a friend of ours (who evidently knew the plan) shows up bald as a cucumber! What a nice thing for him to do. The three of us really should go out commando somewhere. Did go out to dinner with just a scarf last night. Got a few looks and smiled and waved. And yup, they waved back.

    Sybil, if there's not a ACS society office near you (for free wigs, scarves, turbans and caps) hit Target or Walmart. They should have something for that cold bald head! Hubby complained last night that his was cold. I had bought a sleep cap from headcovers, which I thought may be a waste for here in Phoenix, but it was great and I was glad I had it!

    Thanks Jan! I should have styled it so all could see that it looks pretty natural when not just slapped on. Wore it to the Onc's and the nurses just raved! They probably do that to everyone, but it felt good nonetheless! My other wig is blond and if I were to wear only that one, it matches my hair so close most probably would never know. But I decided I had to have some fun and change them out. I knew I read here that someone was using the baby shampoo! When I use up the Paul Mitchell, I'm going to give that a try. Lavender is my fav so I know I'll love it!

    Freethought, too bad we dont live closer. I had the decadron high yesterday too! Put in a 14 hour work day from home! Crashed hard about 7:00, but still couldnt sleep. Got about 5 good hours and of course took the 2nd dose this morning. If I could get a good 8 hours, I'd feel pretty close to normal after this last round!

    Shaping up to be a gorgeous 88 degrees today. Hope to be able to get out and do something, or just some running around.
  • ErinsGram
    ErinsGram Member Posts: 150
    edited March 2007

    Good Saturday morning Mates! Back from Bike Week. Had 5 pages of posts to read - loved the stories and the pics. Leah, Carynn, Marsha - you all look great. Also, happy belated BD Marsha. GI Jel - thoughts and prayers are with you. Leah & Carynn - congrats on successful implementation. No hair on my head - just jaggeries. Probably get rid of them after next cocktail - think I'll have a strawberry margharita(sp?) this time. I'm bellying up Monday morning. ttyl. Lots of stuff to do to get ready for time change tonite.

  • wildabouthorses
    wildabouthorses Member Posts: 458
    edited March 2007

    A few more strands of hair came out from the top back of my head but still have my fuzzy look. Found out a weird thing, I have no feeling at the tip of my nipple, all around it I have sensation but not at the very tip. Guess my lumpectomy cut that nerve!

  • swimmingmom
    swimmingmom Member Posts: 121
    edited March 2007
    Wow so many posts to read I can't get to all of them now.

    Just wanted to report that trip #2 was not as bad as the first. Still having lots of nausea on day 2 and 3(today) after but I did cancel by IV fluids for yesterday. I feel like I have the flu all the time. But I am able to eat and drink, with the phenergan. However, it makes me sleep most of the day away and I feel weird.

    Trying to get the nerve to stop wearing a hat at home. It is a bit of a bother. Afraid it will make my kids see me as so much sicker though. Not sure how to take it off the first time with them.
    Karen
  • marshakb
    marshakb Member Posts: 796
    edited March 2007
    Wow lots of posts to read! I wanted to tell everyone about my weekend, so am posting first and will go back read. Keep in mind this is my "good" weekend. This is a little lengthy but I think you will enjoy it.

    I have been friends with Sheila for 22 years. We have a one in a million relationship, BEST friends, soul mates. I'm loud and funny, she is quiet and artistic. I like bright colors, she likes blacks and whites. We LOVE each other. Always know what each other is thinking/feeling without words being spoke. Actually kinda spooky (teehee) She moved to Atlanta 10 years ago, we might go months without seeing or sometimes even talking. As soon as we got together, no time had passed.

    3 years ago my 39 y/o friend had a Massive Stroke. Not expected to live. Had to remove part of her brain because of swelling and then reattach. I managed to visit her in the hosp about a month later. Her mom said they don't know if she is aware. I took a photo album and sat and showed her our funny pics over the years and tell the story behind each. I saw her eyes looking at the pic. When I left, I leaned over to give her a kiss and she puckered! Her mom was flabbergasted. The stroke affected her right side and the area of the brain that controls communication. She knows everything, knows what she WANTS to say, but it just won't come out.

    In the last 2 years, being so far apart, Sheila not able to communicate well and her mom not really understanding our friendship, we lost touch. A week ago I got a b-day package from her. She has since moved to Cedar Cay Fl, is living alone in a cute little lake cottage, doing speech therapy and managing fine with her mom/dad living in the same town. Friday I drove over to visit, we were laughing and crying so hard I just decided to spend the night. Went to a bar where everyone knows her, we were such a hit! Sheila with her walker and me with my bald head. Everyone wanted to come talk to us, and I answered for Sheila when someone ask more than a yes or no question. I could still look in her eye and know exactly what she wanted to say. Well the loud flashy one lost her boob and her hair, the quiet artistic one lost her ability to speak well and paint. (She now does photography) We were quite the odd couple tooling around this historic little gulfview town in my convertible! Hope this wasn't too long. Marsha
  • Primel
    Primel Member Posts: 652
    edited March 2007
    Marsha, not only it was not too long, but so moving... you said it all as far as friendships are concerned, and those "soul mates" (usually not many) we have in life, beyond our DH or equivalent. These friendships are the ones forged in early youth, really, hard to develop such bonds once we are deep in adulthood... This visit must have meant the world for your friend. I hope she is not in pain. And it is great to know she can do speech therapy and do not have to communicate only through lid-blinking... I wish you both to travel together as much as possible on this road to recovery, trips in the convertible and bars that are not too chemical should help...

    Now, regarding "Mardi Gras beads"... I clearly have a real cultural blank, here, because I do not have the faintest idea of what it is, so I missed a lot of Carynn's story at the onc's office... I liked the way you recaped, Marsha, like the TV add about the TG turkey, apple pie, and a full house... Anyway, if you do not mind, I need some deciphering, here... I love your stories, both of you...
    I have a very uneventful life, because I go out only to walk, turns out... but I think cabin fever will strike soon...
    Life has been normal, feeling energetic, and my stomach calmed down completely the last 2 days (just in time to be hit on the head again...), walked for ever in spring temperatures, and can't wait to resume working in the yard: after 2 months under snow, everything is sprouting vigorously and it will be fun to see what survived and plant more blooming plants (the planting/growing season is really short in Denver).
    Still have a fuzz on my head (I, too, hope, the 2nd chemo will help get rid of it). Look like the nasty little ugly character in Lord of the Ring (forgot its name... good thing they tested me before chemo for the "chemo brain study", because my brain is even more of a swiss cheese...)

    I am glad to read that most are fairing reasonably well, I wish you all a restful week-end. Can't believe that next Tuesday is #3...
    Big hugs to all, wonderful ladies.
    CatherineH