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  • colt45
    colt45 Member Posts: 383
    edited May 2015

    Shelleym1, my dad's 1st cousin was diagnosed at age 32. I do not know her precise diagnosis, but I do know her treatment included a bilateral mastectomy and chemo----and possibly rads, though I'm not sure about the rads. That was 29 years ago. I've seen her in the last 10 months----and she looks fantastic. She got her doctorate and is doing wonderfully. 1 day at a time.

  • sgreenarch
    sgreenarch Member Posts: 253
    edited May 2015

    been wanting to write for the first time because of a story that inspired me recently. I love this thread and it has buoyed my spirits on many occasions. I hope you've all read about Happy Rockefeller, who died last week at age 88. The nytimes obit (you can google it) mentioned that she had had breast cancer in the 1970's. Said she had one mastectomy then another one five weeks later. Like Betty Ford and Shirley Temple, other long time survivors before the age of antihormonals. And let's not forget Julia Childs, who died at 92. And these are just the famous ones

  • carmelle
    carmelle Member Posts: 134
    edited May 2015

    Hi Shelley...I was 35 when my lump appeared and not diagnosed until 38 with cx both breasts and 5 pos nodes...that was 2003 when this post began. All distant memory now. Also my bc.org friends are still doing well from that period who were in same age bracket.

    love you pic....I have boston and pug.

  • shelleym1
    shelleym1 Member Posts: 111
    edited May 2015

    thank you so much Carmelle and Colt

  • Deblc
    Deblc Member Posts: 154
    edited May 2015

    Shelley, forty years ago, my Aunt had BC in her 30's, it did recur once, but she lived 20 years after that until she was 60+. Two of my husband's relatives have had BC in their 30's and it's almost been 20 years later for them and they are both doing great.

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited May 2015

    Wonderful stories ladies.. I love this thread.!!

  • ladyb1234
    ladyb1234 Member Posts: 1,239
    edited May 2015

    Love this thread. I ran into a 20yr survivor here at work yesterday. She really encouraged me!

  • sandie1973
    sandie1973 Member Posts: 39
    edited May 2015

    Love this thread too :) hope i get to post in 20 years time when this horrible disease will be a distant memory. Keep them coming as its been 13 months 13 days since diagnosis and been feeling wobbly recently :(

  • artsee
    artsee Member Posts: 701
    edited May 2015

    Wobbly ??

  • Italychick
    Italychick Member Posts: 527
    edited May 2015

    met a 15 year survivor the other day. She had double mastectomy, reconstruction, rads and chemo. Very inspiring! She looked to be in her early 50s, so probably diagnosed around 38 I'm guessing

  • bc101
    bc101 Member Posts: 923
    edited May 2015

    Any long term ILC'ers?

  • songbird68
    songbird68 Member Posts: 127
    edited May 2015

    Artsee - "wobbly"(sandie1973) is an English slang term meaning an emotionally upset/unstable state. A bit depressed "down", the blues?

    just thought of another one you might like: mither (my-ther) this one is northern and means to moan. I love this one! "stop mithering on" etc :)

    Here on the Isle of Wight we have other words like mallyshag(caterpillar) and nammet(quick snack/ informal lunch). "I saw a gert great mallyshag" lol. "there was a gert mallyshag in my nammet" (gert is really big)

    x x

  • Nico1012
    Nico1012 Member Posts: 1,152
    edited June 2015


    songbird68 ~ You are a delight !

  • suladog
    suladog Member Posts: 837
    edited June 2015

    Shelly,

    I was diagnosed at just about your age with what I found out later was TN bc. I was node negative but because even though the cancer was very small it was also very aggressive and high grade, I was give a poor prognosis. I was treated with 8 rounds of CMF, and here I am 25 yrs later. I was very scared when it first happened and figured I was cooked but time passed and evidently I'm not done yet!


  • songbird68
    songbird68 Member Posts: 127
    edited June 2015

    Wow 25 years Suladog! You are awesome.
    Thank you so much for posting,

    Hi Nico:)

    x x x

    :)

  • light1
    light1 Member Posts: 22
    edited June 2015

    wow..So Many Positive Stories. I was also diagnosed at age 35 I am now 36, praying and hoping to see many more years. I love this

  • littleblueflowers
    littleblueflowers Member Posts: 391
    edited June 2015

    My Great Aunt was diagnosed in the 1970s. Not sure of the details, but she did have a BMX and no recon, because she doesn't remember. She is now 102 and looking to outlive us all. Her daughter was diagnosed in the 1993 with TN. She is fine today as well. I expect nothing less for myself.

  • shelleym1
    shelleym1 Member Posts: 111
    edited June 2015

    Thank you Sula and Littleblueflowers!

  • artsee
    artsee Member Posts: 701
    edited June 2015

    Love this thread....gives me a lift !!👏

  • littleblueflowers
    littleblueflowers Member Posts: 391
    edited June 2015

    Ok this is crazy, but one of my nurses said her classmate was diagnosed with breast cancer at age 11. She was one of the youngest ever diqgnosed. She's 24 now and just fine! Kids, married, the whole bit.

  • eshinall
    eshinall Member Posts: 41
    edited June 2015

    I was diagnosed with Stage Ia in 2008 at the age of 38. I had a double mastectomy hoping to not have recurrence. I had no positive nodes at the time (that they could find). I was on Tamoxifen for 4 years and then recurred at Stage IV in July 2012. I am now approaching 3 years with Stage IV (July 2015) and have liver, lymph node and bone mets. I am blessed to be still doing OK and working full-time. My 45th birthday is next week.

    Hang in there to you all!

    Liz

  • sharita
    sharita Member Posts: 5
    edited June 2015

    wow very inspiring stories recently diagnosed with grade 3 stage 2a had bilateral mas , radiation and on Tami now my Dr said I do not need chemo just po Tami I am only 46 yrs and I have this wired pain on my scapula but my Dr does not want to do anything about it he said there is nothing , but I am so worried that it may ha e spread and I am being under treated

    I hope I will live to the 90"s 100,s as well I feel very unsure about my prognosis

    I am inspired by the wonderful stories I wish we all share what special they did to help others too to live longer !

    this gives hope to a lot and thanks for sharing

    I wish I could find another oncologist who is more open and proactive

  • Nico1012
    Nico1012 Member Posts: 1,152
    edited June 2015


    Thank you, thank you, for so many inspiring stories !

  • Youngwithbc
    Youngwithbc Member Posts: 45
    edited June 2015

    Love these - please keep going!

  • Nico1012
    Nico1012 Member Posts: 1,152
    edited July 2015


    Bump !

  • Srh242
    Srh242 Member Posts: 139
    edited July 2015

    Bump

  • artsee
    artsee Member Posts: 701
    edited August 2015

    My friend had a MX 25 years ago and couldn't be doing better!!


  • Stacy7
    Stacy7 Member Posts: 8
    edited August 2015

    bump :)

  • songbird68
    songbird68 Member Posts: 127
    edited August 2015

    Thanks artsee:)

    x xx x

  • Stacy7
    Stacy7 Member Posts: 8
    edited August 2015

    bump

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