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Taxotere, Carboplatin and Herceptin

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Comments

  • libraylil
    libraylil Member Posts: 325
    edited April 2011

    Lisagh glad you are feel g better. You are so close to the end!!! Libraylil

  • omaz
    omaz Member Posts: 4,218
    edited April 2011
    lisa - I used acupuncture for heartburn and it seemed to really help. 
  • nmoss1000
    nmoss1000 Member Posts: 324
    edited April 2011

    Hi ladies, that sums it up Special K I will stick to the steroids. I am really trying to be kind but with all of the changes happening so quickly as you know I barely have time to wrap my head around it before another change hits. Ton Lee love the tea idea. I think I will start hitting the weights next week. I am in SF for the weekend. I will download a calorie app TODAY. I have been proteining myself like crazy!!! Im not used to it, but every meal and snack has sone sort of protein and fiber. Dragon & Lisa sorry to hear # 4 has been a monster to you. Jamieah, it is weird you mention stopping at 4 I too was considering it. Lago & Omaz thanks for explaining the purpose of the decadron, sound frightening and I will stick to it and I will try to be kind to myself, it's tough when every week you a new pant size and your an an emotional cyclone simultaneously.

  • specialk
    specialk Member Posts: 9,263
    edited April 2011

    nmoss - glad to hear from you - hope you are doing ok.  Are you doing something fun in SF?  I am a Cali girl too, born and raised.  Miss it so much!  I feel you on the pants thing - I feel like an 80 year old woman but I am starting to look like an 80 year old man with a beer belly!  I too am thinking about increasing my exercise level because I can't stop the pounds even though I hardly eat anything, what is up with that?  Fat and bald is not going to be my new look!  Meshing the increased exercise with decreased energy will be the challenge though for me.

  • omaz
    omaz Member Posts: 4,218
    edited April 2011
    specialK and nmoss - It's so tough!!  (((Hugs to you)))  You will mend when it is over.
  • nmoss1000
    nmoss1000 Member Posts: 324
    edited April 2011

    Hi Special K I am visiting friends and family. I am from Sacramento, total Cali girl!!! But I live in NJ now. Hoping to move back to Cali next year. I understand what you mean about the energy thing. Bedtime for me is 2 hrs earlier and I am moving like an 80 year old too. It's so hard when the body and brain do not meet.

  • TonLee
    TonLee Member Posts: 1,589
    edited April 2011

    You guys can do it (increase exercise).  I know just from reading you that you're strong enough, driven enough.  It's hard at first but isn't everything that's worth doing??  lol

    Nmoss, keep the faith.  Just keep up your protein and exercise...don't beat yourself up if you miss a day or two here and there.  Your body will reward you when chemo is over.  Post-chemo weight is so hard to lose.  I've read/heard it time and time again.

    I just started Tamoxifen this week and already can't sleep well.  Hope it will abate in the next couple months.  If not, I'll just have to adjust to my new non-sleeping normal....(I hate that phrase by the way...new normal...I got cher' new normal...buwhahahah)

  • nmoss1000
    nmoss1000 Member Posts: 324
    edited April 2011

    Thank Goodness I thought I was the only one who felt that way!! New normal BS!!! I know there will be adjustments but there has to be some old normal in there too!! I refuse to give into it completely..

    I am going to yoga today and plan on a 2 mile walk.

  • TonLee
    TonLee Member Posts: 1,589
    edited April 2011

    Lol, yep...hate that AND I hate the "anything short of DEATH is an acceptable SE during treatment."

    REALLY?? 

    Not for me.

    Quality of life matters to me.  I'd rather burn out than fade away!!! Wink

  • specialk
    specialk Member Posts: 9,263
    edited April 2011

    nmoss - After college I moved to Sacramento (Citrus Heights, then Carmichael) and I met my DH there when he was in training at Mather AFB.  I used to work for Procter & Gamble over by Cal Expo until I got married and moved overseas.  My best friend still lives there accross from Sac State in River Park and I go there to see her usually once a year to shop, lunch and hang out!

  • nmoss1000
    nmoss1000 Member Posts: 324
    edited April 2011

    Small World ! My dad was at Mather and we lived in Lincoln Village for about 5 years then we moved to South Land Park. I spent a good deal of time at Sunrise Mall in CH!!!

  • specialk
    specialk Member Posts: 9,263
    edited April 2011

    nmoss - it is a small world!  I am guessing I was there before your time though - I lived there when Sunrise Mall was fairly new, 1980-1983.  I seriously dropped some cash in that mall though because I needed to look cute at work!

  • kqteaches
    kqteaches Member Posts: 13
    edited April 2011

    Lilylady-

    I just made the heartbreaking decision not to finish the school year as a kindergarten teacher.  I am just beginning my TCH journey, one round done.  I am so tired, and I am so scared to enter the classroom which is a cesspool of germs, no matter how much spray and sanitizer is used.  I have one little guy who wipes his nose on my shirt at least once a day (sp.ed.).  I love my job, but I am advocating to keep myself healthy.  I feel as if I am letting my students and families down. 

    I too have had very few side effects with TCH.  I did have a weird side effect from my nausea pills that made me feel like I needed to practically be jogging at all times.  My brain would be screaming to rest and my body would literally want to run.  I couldn't lay, sit, stand still.  I made the mistake of thinking it was normal.  When my onc's nurse called with my blood count results and I told her about it, she immediately called the triage nurses who assured me it wasn't normal, and once I stopped taking the nausea pills the feeling was gone within 24 hours.  THANK GOODNESS!  My suggestion for anyone beginning treatment like I am would be, if it doesn't seem right don't just assume it's normal.  Call.  I suffered 4 days with soemthing that could have been relieved by a call. 

  • specialk
    specialk Member Posts: 9,263
    edited April 2011

    kqteaches - what are they giving you in the way of steroids?  Your reaction sounds like it could also be steroid related and coincidentally ended when your anti-nausea meds stopped?  Just curious.

  • omaz
    omaz Member Posts: 4,218
    edited April 2011
    kqteaches - Glad you are feeling better.  I called a lot.  I made charts of SEs.  I brought them to my visits.  I worried about just about everything!  Glad I have a patient Onc and oncPA!
  • gasurvivor2011
    gasurvivor2011 Member Posts: 150
    edited April 2011

    Good afternoon! Back in the land of the living after TCH Round 4- now day 9.

    Went to PS to get my next to the last fill. I have my exchange surgery date- July 6th! It felt so great-I just have one more fill in the next few weeks after chemo 5. I feel I have been in the middle of everything seeming forever, so to have this set and this will be the end of the TE- it feels so great. I have been so happy! (even if it gets moved for any reason- I still know that it will happen this summer!)

    I feel so much better today. Still eating bland foods- but no heartburn. The Prilosec is much better for that than pepcid. 

    Still feel like a 90 year old lady, but that's me! Walk ever so slowly...

    I am going into the office tomorrow. Looking forward to being in the office at work. Work alot from home, but glad to be there tomorrow. I always get giddy when I start feeling better. 

    We are making it everyone-and some already have. Cycle 5 and 6 TCH I am so ready for you! 

    Many blessings today. So thankful.

    Lisa

  • specialk
    specialk Member Posts: 9,263
    edited April 2011

    LisaGH - So, so glad you are feeling better!

  • jackifp
    jackifp Member Posts: 63
    edited April 2011

    Nmoss: I'm trying to do 95g of protein and 30g fiber daily...oof...I was raised a black-bean-eating vegan, and while I've eaten some meat in my 35 yrs of marriage to a carnivore, it's nothing like this. I haven't felt hungry since I started this amount of protein. I'm banking on it being a muscle building powerhouse.



    Cali girls: I'll smile at the sunny west coast for you, if the sun ever comes back out for more than an hour or two. I'm in northern Cali, couple hundred miles north of the city - uh, SF - when I was a kid, "the city" was NY : ) unlike some folks' view of Cali, we get snow as well as sun up here.



    kqteaches: I can completely sympathize with feeling bad about leaving your kids. I'm lucky enough to teach high school, with kids old enough to understand when I ask them not to come in the room hacking (my colleagues have agreed to take sickies in), so I'm hanging on working unless I get sick because I love my job. If I taught the littles like you, I'd sadly go, too. The up side would be the great new batch waiting for you next year when this road has been traveled. Hang in there.

  • specialk
    specialk Member Posts: 9,263
    edited April 2011

    Hey jackifp - I just got off the phone with my friend in Sacramento, made me miss it!  She said it has been a mild spring but I lived there long enough to know it will soon be hot!  When this is done I am coming for a SF/Napa wine tour and spa-fest!

  • nmoss1000
    nmoss1000 Member Posts: 324
    edited April 2011

    Hey Jack & Special K, I am in Sacramento for the weekend and I must say I will find it difficult to leave on Sunday.

  • specialk
    specialk Member Posts: 9,263
    edited April 2011

    I know the feeling - I have it every time I go there!  Right now I am watching the royal wedding!  Your royal wedding invitation name is Lady + your grandmother's first name + your childhood pet's name + your street name growing up.  I am Lady Isabella Archibald Romar, which is pretty awesome.

  • lilylady
    lilylady Member Posts: 478
    edited April 2011

    I love that. I too have been up since 4am and haven't missed a minute.

    I would be Lady Cecelia Toby RedBud-mine sounds like a hot mess!!

  • pasmithx2
    pasmithx2 Member Posts: 224
    edited April 2011

    lilylady--Sounds better than Lady Gudbjorg Koko Sandmere! I've been up since 4am as well. It reminds me of when I stayed at my aunt's place to get up with her and watch Chuckie and Di get married. I had to watch this wedding on my own.

  • specialk
    specialk Member Posts: 9,263
    edited April 2011

    Your royal names are so cute!  I am glad I am not the only crazy one!  My DD and DH left at 5:00 a.m. to drive to So. Carolina to pick up a boat and haul it back tomorrow so I really didn't go to sleep at all.  Here is my husband's hysterical royal name, Lord Casper Puss Ixora.  Ridiculous, no?  My DD's current doggie is named Toby!

  • sewingnut
    sewingnut Member Posts: 475
    edited April 2011

    I joined all of you at the wedding. Wanted to see the dress!  My name would be Lady Adeline Fluffy Markle.

  • dragonfly1
    dragonfly1 Member Posts: 516
    edited April 2011

    I've been up since 5 am watching the royal wedding-love it! My DH is a brit so I couldn't miss it:) He's on a trip to Barbados at the moment (also a British colony so he's sure to be watching as well). Makes me so happy for England!!! According to your formula my royal name would be Lady Annabelle Bon Bon Ann-hilarious! What a happy day...

  • kqteaches
    kqteaches Member Posts: 13
    edited April 2011

    Hi Special K-

    I guess I will know if it was the steroids next time.  I have to take 4 steroid pills the day before, the day of, and the day after.  2 a.m. and 2 p.m.  I was taking nausea pills trying to keep ahead of any nausea because I was so afraid of puking.  Once I stopped taking those pills, and drank lots of water to flush them out of my system, the feelings stopped.  I'm so thankful.

    The past couple of days I've had throbbing lower back pain for about 30 seconds when i sit down.  Seems odd, but believe me, I'm not used to being this immobile.  I want to try doing some yoga and walking now that the weather is finally warming up here in Wisconsin.

    I refuse to turn on the t.v. today.  I peeked at the wedding dress and it was gorgeous!!  Those two will have beautiful babies.  My royal name by the way is: Lady Josephine Chester of Town.

  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited April 2011

    Hello from Lady Hilda Cassandra Parkview. Kiss Hang in there everyone.

  • lilylady
    lilylady Member Posts: 478
    edited April 2011

    Dragonfly I would head to court right now to change my name--Annabelle Bon Bon sounds like 1 cool kitty. Love that we all sound regal enough to get invites. I will be buying People next week to check out the hats and dresses. "E" has the Joan Rivers show on later tonight where they trash all the clothes. Can't stand her but love the show

    Here I thought I was probably the only 1 goofy enough to get up and watch the whole thing.

  • dragonfly1
    dragonfly1 Member Posts: 516
    edited April 2011

    This was the first day I have felt relatively good and could eat normally since TCH #4 on 4/19 and I was so happy to be watching the royal wedding-lots of things to be happy about today. So glad the weather was good for them! My British DH was away but he hung the Union Jack and Flag of St. George in our windows in celebration and called me bright and early after the ceremony from Barbados:) The Brits are so incredibly excited. Wish I could have been in England for it...

    For those who are still feeling rough right now, I hope you feel better really soon.

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