Taxotere, Carboplatin and Herceptin
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Not at all Miss Amy....I love all the input....helps me speak up for myself!
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OK my friends..... I'll be gone for the next week sailing on Norwegian Breakaway out of NY.... I will try and post pics if I get decent internet connection!
Talk to you when I get home xoxoxoxo
EVERYONE please stay well!
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chickad - have the best time ever!
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ChickaD....have fun!!!!!
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ChickaD - have a great time. I am looking forward to sailing on either the Breakaway or Getaway. At this point I think it will be the Getaway!
I was lucky to attend the Disney Earmarked Conference last week before jumping on this crazy chemo train on the 9th.
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ChickaD: FYI - I only had SE's from the first Herceptin only treatment - significant muscle pain and headache for 24hrs but both were easily controlled with pain meds. I've had 4 or 5 (I'm not counting anymore just waiting for February) more Herceptins since and have had no significant side effects. I say "significant" because I do feel a little tired the next day but NOTHING compared to chemo and nothing I really notice much. I do it over 30 minutes because, quite frankly, I'm over it and I don't want to sit there all afternoon anymore. Do whatever is right for you. Insist on it if you have to. I do think your body adjusts to the Herceptin only and the SE's go away after a few treatments so if you go to 45 or 90 minutes you can probably shorten it after a few more treatments.
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Thank you Special K. I wonder why I was never given that option before. I'm petite and thin, had trouble with the neulasta injection. Ended in the hospital after the first time. And they had to cut it in half. I so want the Hercpetin, so I hope that maybe the 90 minutes make it easier on my heart. Thx again for giving me the info.
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shasha - good luck - and be firm with them!
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Thx Special K: It's 4am & I can't sleep. So here I am. I will be firm. It makes sense to me, but I'm not a dr. I was so excited to be re starting, but I guess I'm nervous now. I couldn't find any info about slowing the infusion time. Anyway, Thx again
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have fun HickaD!
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Hi Ladies, spent the weekend with my kids and allowed my mother in law to take over and nurse my husband's health while he recovers from pnumonia. They came home from college, both of them attend separete college on the island. They are young adults in college and asked me to be honest with them so I have given them the facts. My nurse navigator is great at writing down notes at every single appointment and I share it with them. I want to protect them and shield them from all of this but both of them are strong-headed like their mom and want to learn about the BC, daughter has pick my particular BC to do a speech in her communication class. Tonight, before they left they broke down and cried because they both don't want to see me go throug any hard SE. I've tried to reassure them that it's normal to be angry and sad, but if I suffer from any SE it for a short time so I can increase my % that I will not have a reaccurance to help me live another 20-40 years:) They are smart kids and understand all of this but the emotional pain in their eyes tonight was harder then when I first told them of my diagonis cause they are no longer in shock. My family has taken of the motto "Search & Destroy Mission" so greatful I learned this from this site cause my military family was able to relate to this. We ended the night with smiles & long hugs with "I love you, over & over again" b4 they left.
This has been a rough year. Since my husband came home from the hospital this week, I have continued my 2.5 mile walks, started this before my chemo because in March2013 before we transferred from Washington DC I had to have a total hip replacement due to a car accident and then in July had my diagnosis. Now asking what else, because I don't want it unless it's positive.
Sunday was a emotional roller coster- woke up complete angry and scared, didn't have to put a brave face so I put on my walking shoes, left crying and singing songs to give me hope and encouragement. Walking has been my best therapy cause I've been able to get out all my emotions. I also went to Sunday service for more emotional strength. Later I felt like if I was ready to conquer the world. I started taking Dexamethasone Sunday morning, suppose to help me with nausua. I went to the nail shop and took off my shelac nail polish, had them cut it down really short and just used Hard as Nails polish. Im went back and forth about fasting but decided to not do it this time and if I get any bad SE I will fast my next cylce. I don't know if anyone can really be prepared for chemo but I've been proactive buying things suggested on the Chemo bag list, don't really know if I'm ready for whatever comes and but hoping for the best. Still nervous and anxious, but calm too. Very weird feeling.
Sorry to ramble on..and...on but cant sleep, it's 1:40 am and wide awake. I should have asked my MO if I could take my meds for anexity that helped me sleep when I was first diagonised but didn't and afriad of mixing it with the Dexamethasone. So here I am wide awake posting.
Wishing everyone a positive week and will post when I can..THANK YOU for all your support0 -
ML40 best of luck with the chemo. We have all gone through the roller coaster. You have a very brave family at your side. Thinking positive thoughts for you.
SpecialK The nurses said YES to the 90 infusion. I'm at the infusion center now waiting . They're running late. She was very nice when I explained what I had learned from you about se and she said absolutely. Anything to make it work and easier. Just waiting now. Very anxious.0 -
shasha - excellent!
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Shasha- happy that u advocated, thank you Special K for all you posts it is very helpful and supportive
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sasha, glad they were willing to slow it down. I hope that it helps for you. My center often runs late, so I am usually there for 3 hours for a 90 min H drip.
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Just started Herceptin. The fight begins...
Thank you all for your support.
Chickad. Have a super time.0 -
Shasha yay for getting H slowly. Hope it helps gor you!
ML40, goodness those steroids really do mess you up a bit. But usually your house gets pretty clean. LOL. Its normal to be worried. I hope all goes well for you with your first chemo. Remember to drink lots and lots of fluids. Much love0 -
Thx moonflw. How r u doing?
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Fingers crossed still have my TE. Feeling good. Still tired but two operations in two months and abx will do that! LOL Much love to all.
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Moon. Wow I can see that. Hope all heals well and you recover quickly
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Me too. LOL
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i have a question maybe someone can answer...if i had a lumpectomy do i have markers? how do they know if yhe chemo choice they are giving me is working?
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Lovewins- that is a good question. I was told the chemo was for 'insurance' and that i was considered 'cured' and cancer free after surgery. They said that since they had good margins after surgery, and no nodes affected, that the chemo was to catch any 'stray cells' and the radiation as well. So from my understanding, there is no definitive way to know. But on the other hand, i am almost 5 years cancer free now, so I guess it did work!
Curious to see what other responses you get. I am always learning something new on this thread!
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Love - my BMX in 2011 was for DCIS. I did not have chemo or rads since all my margins were clear - including SNB. Now I have IDC and am having chemo & rads, plus more surgery. Lucky me with one of those 'stray cells'. Maybe the docs will do an MRI or PET/CT on you down the road? Will you have Herceptin for HER2+?
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Lovewins,
The thing to remember is that there is no cure as such. We just have to live one day at a time, be positive, exercise and eat sensibly. The future is no guarantee, bc or no bc. Keep calm and go with your gut feeling. Trust yourself, trust your doctors and trust that the meds and treatment will do what they are supposed to. I had a recurrance a year after lumpectomy and radiation, no chemo. So maybe i should have had chemo the first time around? Who knows? But the point is we are alive now and a long way from death. Enjoy!
ML40, I feel your pain, had my first chemo last week-followed all the tips and I consider I did well. Hopefully it will be the same for the next round. Just keep calm and trust that you are doing the right thing for your body and will your good cells to regenerate. I find meditation, walks, yoga and listening to music helps.
All the best,
Viji
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thank you ladies for your comments. i am doing herceptin now and will be foe a year. I was lucky to have clear margins and clear nodes. i have always thought that since the lumpectomy that i am cancer free now...i realize i could have reoccurance. my mo said i have 80+ chance of cure. those were his exact words. when i plugged my stats they were much higher though. i am overweight though. i am also wondering why i am not losing weight with all this D & V and I am eating so much less. i quit smoking 6 weeks ago and i wonder if that would effect it? thanks again!
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Ok. Another infusion of magnesium. Yay. Not.
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Moon - sorry to hear you're up for another mag. I ended up with extra mag for two sessions. Neither delayed my infusions, but the extra potassium I needed one time did.
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Well its not too bad except for my being 18 months PFC! LOL. Its my 4th infusion this year. Almost every other month. MO finally changed my mag to SloMag. Maybe it wont be so rough on me as the 4 tablets of Mg I was taking daily.
Lovewins, the chemo makes it very hard to lose weight even with V&D. Sigh.
Viji, how are you doing? You are probably in the worst part right now. Remember, drink, drink, drink!
Much love to all.0 -
I am fine so far thank you, Moonflwr. You take it easy and rest...
Viji
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