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Taxotere, Carboplatin and Herceptin

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Comments

  • lovewins
    lovewins Member Posts: 570
    edited October 2013

    thank you Moonflower...do you happen to know why it is so hard?  Is it because of the steriods?  I think I get some before my treatment but not a lot.  I am sorry to hear you have to have another infusion of magnesium, does that give side effects to?  Must be if you are not looking forward to it.  I hope you have an easy time of it.

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    Been thinking of you all day Moonflower....Hope you are feeling better real soon.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    love, the mag pills give me diarrhea. The infusion usually doesnt, but I am tired before I get it when my mag is low. Not unbearbly but I end up sitting down and closing my eyes before I know it! The part I complain about is I am more than 16 months post final chemo. I shouldnt STILL need a stupid IV to function. But im just a whiner. LOL

  • minustwo
    minustwo Member Posts: 13,359
    edited October 2013


    Moon - whine away. We're here to listen. How often do they check your mag? Do they give you any idea why you continue to run low? I've only had to have one mag infusion PFC.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    yep. The answer is we dont know why some people.... LOL. My kidneys just dont want to hold onto mag. I think its cause I had renal failure during chemo and my kidney didnt like that. I needed it regularly during chemo. Needed potassium too. But just the mag now. We are trying a timed release mag now. So that I dont get the big D from the mag tablets I have take. Oh well its not that bad. As to how often, i see my MO every 3 months. He checks it then. So if i am low he schedules an infusion. Then i come back in a week. Then he ups my mag intake on pills. Then i come back in 6 weeks. Then i see him 6 weeks later. Repeat, repeat. LoL. So I have been in the infusion room every couple of weeks. In fact I have had only one flush on my port because its been less than 2 months in between lol. Much love.

  • ML40
    ML40 Member Posts: 12
    edited October 2013


    Hi everyone, just checking in. Feeling much better today, day 6 after chemo, day 3 was the hardest. I don't remeber any of this but my MO had my husband call the ambulance, my blood pressure was 95/38 and I had a seizure?? I just felt extremely exshausted. I was part of a clinical trial that is working to help with protecting our heart while on Herceptin. They figured out quickly that I wasn't given the placebo and I am no longer taking the study meds. Dr & I don't even know what med I was on since it was a blind study. Doctors did a battery of tests and will do another brain MRI this week to rule out anything else but hoping it was just the trail study meds. I don't want to put my family through that type of stress again. The only thing bother me right now is certain smells and I have D, but taking some imodium and will ask for something stronger if it doesn't clear up by tomorrow.

  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited October 2013


    Oh my goodness, ML - how scary. So glad you are ok. Hope the big D clears up.


    So what happens now re the study? You stop the study meds, and they continue to monitor you? I hope it is SMOOTH SAILING from here on out. That was enough excitement - too much, actually!

  • soriya123
    soriya123 Member Posts: 384
    edited October 2013


    aww...ML40.....im glad you feeling better. yes i kno day 3 to 5 was the hardest fo me. TCH #1 was hard on me too. i faint on breakfast table for a quick second. I guess my body was in shock. Drink a lot of water.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    wow. Thats pretty frightening, ML! Make sure when you go back for tx 2 that they run everything like it was your first time since you dont really know what the problem was. And you must have passed out if your family called an ambulance for you. That is truly scary. You will have a great story t o tell. AND your family will be real nice to you for a while..... LOL I am glad you are doing better now. The big D was always my problem and watch you dont get dehydrated so keep drinking even though when the D starts you dont want to. My D started on day 5 and lasted til day 10. I hope yours is short lived. Remember though drink up! Much love.

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    (((ML40))) Glad you are feeling better now...I agree that would be beyond scary.

  • specialk
    specialk Member Posts: 9,261
    edited October 2013


    ML - if they discontinue you from the study for medical reasons they have an obligation to disclose, at least to your MO, what you were given, so they should be able to find out what caused the problem. So sorry this happened - I guess it is better that you don't remember it but what a scare for your family! I hope you are doing well now.

  • minustwo
    minustwo Member Posts: 13,359
    edited October 2013


    I get my drain out tomorrow at the BS office & hopefully find out something about PT now that she's done ALND - 18 lymph nodes (only one malignant). Unfortunately I already have LE on the left side from the first two surgeries. The MO is presenting my case at tumor boards tomorrow. So I'll see him also to decipher the path report and find out the changes in the treatment plan.


    Officially 8 weeks PFC and hair is growing. Mouth sores from antibiotics during surgery are ugly and my taste buds are gone again. Neuropathy is very discouraging. Sorry to whine but I'm nervous about tomorrow & could use your good thoughts.

  • specialk
    specialk Member Posts: 9,261
    edited October 2013


    minus - sending a hug and some good thoughts!

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    Hugs Minus! Ill be praying things go well for you. Much love.

  • ML40
    ML40 Member Posts: 12
    edited October 2013


    Minus sending u positive thoughts and {{HUGS}}

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    ((((Minus2))))) Not sure what you are doing for mouth sores but I used Listerine blue mouth wash and mine went away in about 24 hours. I pray everything goes well you and you are filled with peace soon.

  • ChickaD
    ChickaD Member Posts: 971
    edited October 2013


    Hi kids.... back from my cruise for my CruiseOne National Conference... it was fabulous as usual....it will take me a few days to catch up ... you girls have been busy busy busy......


    Need your help... our CEO of CruiseOne gave us a challenge to meet before October 31, 2013.... to add at least 100 names to our email database on our personal websites.....so if you have an email.... would you please consider adding it to my website www.TravelByDana.com (right side of page in a green block it will ask for your email and zip code for exclusive offers and discounts)...I would really appreciate any help with this challenge!


    Talk to you all soon after I do about 100 loads of laundry!

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    Welcome back ChickaD...I added my email.

  • Shasha10
    Shasha10 Member Posts: 212
    edited October 2013


    minus my prayers and positive thoughts are with you.


    ChickaD will give u my email as soos as I'm off from here


    My sisters braca test came back negative. She called and asked if it's negative why do we both have bc


    I couldn't answer.

  • ChickaD
    ChickaD Member Posts: 971
    edited October 2013


    Thanks ladies!

  • bren58
    bren58 Member Posts: 688
    edited October 2013


    Interesting item I read on the plane back from Colorado this weekend ~ our taste buds renew themselves every 10-14 days. I guess that explains why we get/got our sense of taste back for a few days before the next round of tx.

  • specialk
    specialk Member Posts: 9,261
    edited October 2013


    shasha - you could both have been dx'ed with BC due to shared environmental exposure or a genetic issue that has yet to be discovered. We can only be tested at this point for the things that are known and have had tests developed - I believe there is still a lot that has yet to be discovered.

  • soriya123
    soriya123 Member Posts: 384
    edited October 2013


    Hi Ladies, I will have TCH #5 this Wed, Im not looking FWD for that at all. Will be so tired n no appetite at least 6 or 7 days. :(

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    Sasha, my Mom and her sisters and I got BC. My geneticist said because I was BRCA 1&2 negative, that it not genetic but "familial". She said it translates as "we know its connected, we just dont know HOW!" LOL.


    Soriya, ug. Hugs. But after that one, JUST ONE MORE . You can do it.


    ChickaD ill get it to you. Welcome back. Im glad you had fun.


    Much love to all.

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    thanks Bren...I have been looking up taste buds on the internet and trying to will them back...LOL. It seems like they die and come back at different times too because my taste buds are always changing.


    I am really not looking forward to treatment 3 next Monday. If I could just skip days 3-5!!!! I am actively trying to make improvements though. Got my pill box and it is a blessing, now using Listerine Blue and it took away my mouth sores. Zantac for heartburn and Claritin for the bone pain for Neulesta shot. Ensure for when I cannot eat anything. Miralax for constipation and immudioum for the big D. I have tried two different nausea meds and the 2nd one was worse that the 1st as it made me cry ALOT! Would it be unusual to ask the DR for something else? He told me last time all medications have side effects...which is really a bummer. I am also addicted to sleeping pills now but I am choosing my battles right now and that is not one of them. My neropathy is the same as it was before chemo. Any suggestions are appreciated for days 3-5. Thank you ladies for all you help and support you have all given me in the past.

  • Shasha10
    Shasha10 Member Posts: 212
    edited October 2013


    Thx Special K & Moonflw. She's concerned for her daughter/and granddaughter. r they still considered high risk?


    Thx again

  • specialk
    specialk Member Posts: 9,261
    edited October 2013


    shasha - their risk is higher because she has been diagnosed and it should be noted in their medical records, it is one of several risk factors. Here is a risk assessment tool that shows the other risks:


    http://www.cancer.gov/bcrisktool/

  • Shasha10
    Shasha10 Member Posts: 212
    edited October 2013


    Thanks again Special K . I told her how wonderful this forum is and wealth of info. But she's not ready. I've been on the ILC forums as well now. We're just waiting for her onco type.now. :0

  • bren58
    bren58 Member Posts: 688
    edited October 2013


    lovewins, it is not unusual at all to ask for a different anti-nausea med. There are so many options out there, you really should not have to suffer with nausea. For me, I found the best one was Phenergan, but I tried several before I found that one worked the best.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    lovewins, hugs. You will make it through. Ask for a different anti nausea pill. I was on compazine it worked for me. I only had that. But there are many others. They had to change my dosage of chemo because I ended up in the hospital. So there are many changes they can make. Keep trying. Much love to all.

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