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Taxotere, Carboplatin and Herceptin

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Comments

  • minustwo
    minustwo Member Posts: 13,359
    edited October 2013


    Thanks everyone for your thoughts. Like everything about this d#$% disease, good news & bad news. The good news is they got it all ... again. The bad news it because of the 4.5 cm size of the malignant node and the aggressive properties of the bad cells, they want me to do more chemo before rads - AC this time. So my hair re-growth is for naught. Also these tissue samples came back HER negative. They're re-doing a FISH to see what the real status might be. If it's negative, that bumps me to TNBC. Another day another dollar.


    Love - your doc can write an RX for mouthwash if the sores get worse. I've had both Nystatin alone and a magic mouthwash with Nystatin, Lidocane & Benedryl. As for nausea, the steroids (Decadron) for 3 days worked for me but I hear Emend is the best thing going. Very expensive tho.


    Bren - Interesting article about taste buds. Mine went away after tx #3. I'd just gotten them back before the surgery and now they're gone again - probably due to the anesthesia. This is day 14 so I'll stay positive that tomorrow will bring taste again.


    Soriya - good luck with the tx tomorrow. Sending thoughts for minimum SEs.


    Sasha - sorry to hear about your sister. Let us know when her tests are done.

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    thank you ladies...I will ask for emend next time. You are all so awesome thank you for your suggestions. I pray you are all doing well and recovering from your treatments.


    So glad to hear they got it all Minus2 that is very wonderful news! Sorry to hear you have to have more treatments, that would be hard to hear. I have 4 more to go!

  • bren58
    bren58 Member Posts: 688
    edited October 2013


    I am sitting here at the infusion center for my second to last herceptin and they have instituted a new computer system which has them running 2 hours behind :( They have also had a policy change to run all Herceptins at 30 minutes instead of the 90 like they used to. So I nicely asked them to run mine over 90 minutes since that is what I am used to. When they asked why, I told them I knew from the experiences of a lot of BC sisters (you all) that there were more incidences of SE's when it was run in 30 minutes. They had no idea! I guess it will be a learning experience for them. Thankfully they agreed and noted it in my chart. I figure I am almost at the end, why mess with what we know works?

  • ChickaD
    ChickaD Member Posts: 971
    edited October 2013


    Hi my friends...did my Rads mapping today....I should get a medal or at least some mardi-gras beads for as many people touched my boobs today...lol...I officially start Rads next Wed...woohoo and ugh.....


    image



  • bren58
    bren58 Member Posts: 688
    edited October 2013


    chickaD, you know your a breast cancer patient when strangers feel you up more than your own husband!

  • Viji
    Viji Member Posts: 89
    edited October 2013


    Thanks for the laugh ChickaD!!!


    Viji

  • flowergirl1
    flowergirl1 Member Posts: 36
    edited October 2013


    This is my first time posting....starting TCH tomorrow. I am at peace with it... praying that it all goes well. Y'all have been a great help to me. :)

  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited October 2013


    Welcome, Flowergirl - and best of luck and success to you tomorrow. Stay as calm as you can, drink lots of water, and then, WHATEVER SE's you have, come here and ask your questions about them - SOMEBODY will have been there before you and come along to help with words of support and advice.



    This board is truly priceless.


    Sending love and care to you all the way in Mississippi -


    Amy

  • flowergirl1
    flowergirl1 Member Posts: 36
    edited October 2013


    Thank you, Amy!

  • Viji
    Viji Member Posts: 89
    edited October 2013


    Hi flowergirl,


    Good luck for tomorrow-we all walk with you on this journey. Stay strong!


    Viji

  • ChickaD
    ChickaD Member Posts: 971
    edited October 2013


    lol Miss Bren


    Welcome Miss Flower!

  • soriya123
    soriya123 Member Posts: 384
    edited October 2013


    TCH #5 already hit me....nothing taste good. welcome flower girl.

  • bren58
    bren58 Member Posts: 688
    edited October 2013


    Welcome flowergirl! Don't be surprised if tomorrow is just long and boring. It was for most of us. Make sure you take things to keep you occupied. Drink lots of water tomorrow and for several days after. Let us know how you do. We will help you through it.


    Soriya, I am looking for the dislike button! Sorry the SE's have hit already.

  • flowergirl1
    flowergirl1 Member Posts: 36
    edited October 2013


    Thanks y'all! I appreciate all the support. My husband carried me out to eat at my favorite resturant for supper tonight. :)


    Crystal

  • bailey6760
    bailey6760 Member Posts: 380
    edited October 2013


    Flowergirl - my family and I had a "chemo eve" ritual of eating at our favorite restaurant! Good way to take the time to enjoy good company and food and keep busy through those night before jitters. Thinking of you!

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    welcome flower girl. Ditto what they all said. But keep drinking needs to be repeated. Soriya (((((hugs)))))Much love to all.

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    Welcome Flowergirl!!!!

  • flowergirl1
    flowergirl1 Member Posts: 36
    edited October 2013


    Thank y'all!! Lovewins I have been following you closely since your diagnosis is pretty similar to mine. I hope you are doing well. Off to get started in about and hour.


    Crystal

  • ChickaD
    ChickaD Member Posts: 971
    edited October 2013




    Chemo/RadIation Update.....



    So Radiation was long yesterday.... what weird positions they put you in... I have 9 new tattoos..... woohoo.... but nothing exciting... just dots, but they hurt pretty good lol. I go back next week for chemo and the next day I start radiation for 5-7 weeks depending on how my skin holds up... they gave me magic lotion to smear on everyday to help the skin survive.



    Today I had another heart MUGA scan so hopefully my numbers will be at least 50% or that will be bad....



    Also saw neurology for my neuropathy in my hands and feet today.... they are changing my medication and adding some new ones to try and make sure it does not remain a permanent side effect for me.



    Also apparently I now have lymphadema in my legs and arms... I will see a specialist for that soon too... gee like I did not have enough doctor appts already... Can't wait to wear those sexy compression stockings.... I'm a mess....LOL


  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    (((((ChickaD)))))


    Hi Crystal...I am doing well today, I managed to make a nice dinner for my folks and clean up afterwards. My energy has been low but I am feeling better I am day 13 after 2nd chemo. Next one on 10/14/2013. I pray you have an easy time with no SE...let me know if you have any questions.

  • flowergirl1
    flowergirl1 Member Posts: 36
    edited October 2013


    Thanks lovewins! I got home about an hour ago from my first treatment. I feel pretty good...a little tired but not bad at all. No nausea yet. I get the Nuelasta shot tomorrow afternoon.


    Crystal

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    flowergirl, I always took Claratin (not Claritan D) for the Nuelasta shot. Took it the day of and a couple of days after it helps with the bone pain. Hugs ChickaD.


    Much love.

  • flowergirl1
    flowergirl1 Member Posts: 36
    edited October 2013


    Moonflower.... I had read that so I took a Claritin a little while ago and will take it for a few days. I asked my chemo nurse about it today. She knew about it but didn't know if it worked. But she did add it wouldn't hurt to try it. The MO never mentioned it to me but I have seen where it has helped a lot of folks on here so I am definitely trying it.

  • Shasha10
    Shasha10 Member Posts: 212
    edited October 2013


    hi flower girl


    Good luck with your treatments. Thinking of you. Again. Drink lots of water. ;)

  • m1970
    m1970 Member Posts: 261
    edited October 2013


    I just cannot drink water after TCH, everything tastes so gross. And my grocery store discontinued the peach white grape juice which was the only thing that tasted good at that time. I've bought other juices and they taste nasty, but I found that a few weeks later they taste good again.


    My twitchy eyelids are sooo annoying. I hope this side effect goes away soon.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    it worked for me flower. Good luck. Small SEs and Much love.

  • flowergirl1
    flowergirl1 Member Posts: 36
    edited October 2013


    Thanks Sasha and Moonflower! Still doing well this morning. I know next time will be worse though.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    flwr, it might but it might not. Take each one as they are dont borrow trouble. Everyone is different. Much love to all.

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    I agree with Moonflower...flowergirl. my 2nd treatment was a little easier because I felt smarter how to handle it. I also take a zantac every morning because I get heartburn and also use tums. I am hoping my next treatment on Monday will be better because I won't have to deal with all the hair loss. My face is breaking out and I have some little pimples on my scalp. I bought some acne cream and I am deciding if I should use it. I also found a bunch of really cute and soft caps at the dollar store today. I got a huge clear container and my Dad made me some buff's like they had on survivor and my Mom crotched me some caps. That has been kinda fun and keeps me occupied looking for pretty materials. Hope you are still feeling great...M

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    lovewins, I had a lot of hats too. I had some scarves that I had, some I bought and some purchased. I made some as well. They called me the lady with the hats. LOL I also bought some bangs. Just bangs to wear under hats and under scarves. You could velcro them or they were on an elastic band. Its amazing how good that looked. No itching like wigs. They have curly or straight in many colors. About 16$ at TLC, the ACS catalog. you could have different ones. I found that the pre-tied scarves were easiest to wear. Otherwise a scrunchy to ponytail the back of the scarf was easy too.


    Marsha, I had the same problem. Water was gross. I could take a bit of lemon, lime or watered down ice tea. Most juices were really bad tasting.


    ChickaD wow. Too many scenic detours for you. I hope your nueropathy goes away. Far away....and that it takes the LE with it.


    PS, I feel better today, the pain is almost gone from my TEs. Last night was very uncomfortable. I almost got up to get a hydrocodone. Talked myself out of it, but it was close. I still know the TEs are there but much better.


    Much love to all.

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