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Taxotere, Carboplatin and Herceptin

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Comments

  • ChickaD
    ChickaD Member Posts: 971
    edited October 2013

    Oh no...I will delete it then..dont want to be spreading false info.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    Thats ok ChickaD! We all get fooled sometimes. Its great we have everybody on here to cover our backs. So thx grandmaV!


    ok so. Another infusion of Mag. Ugh. I was so hoping to have it high enough so MO wont put me back on the mag oxcide next week. So PA said up to 4 slo mag a day. Thats the same number of tablets I was taking before I tried cutting them. So I take the same number of pills BUT I dont have the D issues. Was it worth it??? YES!!!!!! Ill take down the MO if he tries to change me back. LOL


    Flowrgirl, I SOOO know about the D. Please continue to stay hydrated. I asked for a large bag of saline every time after we figured it out. I made sure the bag emptied every time. It helps. I also ended up in the hospital because of dehydration so it is important. Take the lomotil. Dont try to tough it out on immodium it isnt strong enough. And you CANNOT drink enough to make it up. And you pribably csnt stsnd drinking more whdn you have D. It seems to work that way.


    Much love to all.

  • flowergirl1
    flowergirl1 Member Posts: 36
    edited October 2013

    Thanks Moonflower.  It made such a difference I think I will ask for it every time if this continues.  I sure don't want to end up in the hospital.  :(

  • minustwo
    minustwo Member Posts: 13,357
    edited October 2013


    FlowerGirl - I agree with Moon. I have them give me 2 (two) liters of fluid every session - one before & one after the chemo drugs. They were resistant at first, but it's my time sitting there and it really helped the dehydration. I also went back every week between sessions for another liter of fluid.

  • bounce
    bounce Member Posts: 215
    edited October 2013


    Hi ChikaD and GrandmaV


    I would like to say you ladies are both great to have on the discussion board.


    One of the greatest things about this site is how in the main people support each other and don't criticize each other.


    There is building up here, no tearing down. I didn't know how to broach the subject without unintentionally starting a war. And I am a peace loving person.


    I love the way you ladies shared information and took care of a potential problem. What an amazing example you have both set for the rest of us.


    Thank you.


    Keep on sharing - keep on caring.

  • specialk
    specialk Member Posts: 9,261
    edited October 2013


    chickad - don't feel bad about the Johns Hopkins email - my FIL sent it to me too - and he is a physician!!!

  • bailey6760
    bailey6760 Member Posts: 380
    edited October 2013

    I just wanted to share that I took a liter before and after each tx and then another liter when I was there the next day for Neulasta. The chemo nurses always said I could come back anytime for another liter if I felt like I needed it. I was very sick after 5 and went in and it helped!

  • GrandmaV
    GrandmaV Member Posts: 1,045
    edited October 2013


    Bounce - thank you

  • ChickaD
    ChickaD Member Posts: 971
    edited October 2013

    Miss Bounce...thanks for the kind words!

  • naiviv
    naiviv Member Posts: 308
    edited October 2013


    Hello,

    I found out today . I start 10/25 on TCH. It will be on TCH week 1, H only week 2 and 3 and then TCH again until I complete 6 cycles and then continue H weekly until a year is complete. Neulasta after TCH. I also realized this isn't a weekly one time thing, but day prior, day of drugs and day after.


    Had my class today, learned everything you guys already taught me. (except for how it's done at this location) Was given a book about eating through different symptoms and SE's and 2 prescriptions for Nausea. Only supplement allowed and actually ordered is Vit D. Nothing else. I was told tylenol for pain (especially if platelets low). But for bone pain/joints she said tyl wouldn't work and advil would be ok.


    She told me the RN's would tell me about claritin and dose for advil...etc on day 1.
  • specialk
    specialk Member Posts: 9,261
    edited October 2013


    naiviv - I posted to you on the Oct. chemo thread about your above post.

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    treatment 3 day 6. this one snuck up on me. still house ridden. the big C has caused big H. nurse said milk of magnesia which has got to be one of the worse things created. hard to keep down, miralax is doing nothing but I continue to take it. drinking ensure my saving grace....took 2 senekot a couple of hours ago...my last hope. nothing tastes good and I really hate that part. makes it worse. ok thanks for listening to me complain. only you girls would understand how sick I am of feeling sick!

  • naiviv
    naiviv Member Posts: 308
    edited October 2013


    Lovewins,


    Sorry to hear, that is a major pain in the @$$......


    Try Activia yogurt. First thing every morning followed by glass of water. Have this before anything else. I had C because of Iron pills and I took colace, but still had issues...I started Activia 2 weeks ago with 2 in the am for 3 days then 1 in morning and sometimes one later. I have had no problems at all. I asked my MO about activia and chemo and was told it was great to have.


    As for the H... Get some epsom salts about 2 teaspoons in a cup, put enough hot water to dissolve. Once it cools soak a gauze pad and apply to the H at bedtime and by morning should be better, If you have to get up then reapply. I learned this last childbirth. They used magnesium sulfate same as epsom salts, very fast results.


    I wish you a speedy recovery


    Vivian

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    thank you Vivian....I will try both things but I don't have Epson salt right now. I don't like yogurt but am willing to try anything! had a little luck and starting to feel better. Praise God!

  • minustwo
    minustwo Member Posts: 13,357
    edited October 2013


    Love - there's a great thread here called: CONSTIPATION - the problem w/so many of our drugs. Lots of good advice there.

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    thanks minus2 I will go check it out.

  • bren58
    bren58 Member Posts: 688
    edited October 2013


    Lovewins, I had major constipation after tx 1. I tried everything (Miralax, prunes, Smooth Move laxative tea) and think I finally resorted to a couple doses of some kind of exlax type of laxative just to clear the jam. After that I started taking Benefiber 2 days before each tx and continued with it until I was finished taking the nausea meds, which were constipating for me. It didn't totally stop the constipation but made it much easier to deal with and it only lasted for a day or so. For the hemorrhoids I had to get a prescription suppository because none of the OTC things worked at all. It really is a matter of trial and error to find what works best for you.

  • Viji
    Viji Member Posts: 89
    edited October 2013


    Thinking of you Lovewins.... hope all is resolved soon...


    Viji

  • ChickaD
    ChickaD Member Posts: 971
    edited October 2013

    Miss Love  ((((((( hugs))))))))

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    So happy to report things moving along! Senekot with stool softener did it for me....stupid me for not wanting to pay 20.00 for it! That was a very hard 6 days...no pun intended..LOL. So glad it is behind me. Thanks for thinking of me ladies. Think I will get out and play bingo today to celebrate!


    Hope you all have a wonderful day!

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    lovewins. Glad everything came out all right.... :)

  • Viji
    Viji Member Posts: 89
    edited October 2013


    Really love the play on words-intended or not! So happy for you lovewins. My onc told me to take senekot as a precaution for two days after treatment. That really helps but i still bleed when i go...


    Heartburn as well...


    This week should be a better week.


    Viji

  • ChickaD
    ChickaD Member Posts: 971
    edited October 2013

    image

  • TonLee
    TonLee Member Posts: 1,589
    edited October 2013


    Hey guys! Just popping in to say hello! All is well so far! EF hasn't come up, but oh well.


    Bren, and all, I'm on facebook if you'd like to connect there. Just shoot me a PM with your name and some other details since there are likely several similar names...lol Maybe describe your pic?


    Hope everyone is doing well and rocking!

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    So thankful I am feeling better! Thanks for all your support ladies. Next time I am really hoping I do better!

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    ok. Sigh. ANOTHER MAGNESIUM infusion. Ugh. Went to MO for my 3 month visit. Everything ok exvept mag level. Seems the new Slo mag isnt keeping up. But my gastric symptoms are just so much better. Only 3 days of D in 3 werks instead of 18. I was afraid he'd put me back on the oxcide but he said come back in 2 weeks to check level. So yay. Lets hope I catch up. Cause I am enjoying leavng the house without too much worry.


    Tonlee, has it budged at all? Not even a couple of points? And are you coping ok?


    Oh, and viji? Yep play on words is my thing.... LOL

  • ChickaD
    ChickaD Member Posts: 971
    edited October 2013

    Hugs Miss Moon!

  • soriya123
    soriya123 Member Posts: 384
    edited October 2013

    Moon , so sorry about about Mag infusion.  (hugs)!!!!

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited October 2013


    thanks Chickie! I needed that. You take care too.

  • lovewins
    lovewins Member Posts: 570
    edited October 2013


    (((((Moonflower))))) I hope things get better and easier for you you so deserve it. Much love to you.

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