I WANT MY MOJO BACK!

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Comments

  • trvler
    trvler Member Posts: 931
    edited May 2017

    A cocktail or 6 might also help the first few times. It helps to be relaxed. I am going to my first OB visit since all this nonsense on Tuesday to get an Est-ring or whatever it's called. I will report back. I have not had a lot of issues with dried up vagina but it doesn't FEEL as good. I can still O so I am very thankful for that.

  • karen1956
    karen1956 Member Posts: 4,642
    edited May 2017

    I've been using Gyntrof for the past several weeks with great success. My husband buys it when he goes to Canada on business trips. It is well worth trying. Kar

  • castigame
    castigame Member Posts: 336
    edited May 2017

    well, we tried last night hubby was tired and i was bleeping dry. Learned a simple lesson which was the importance of daily moisturization. Ordered vitamin D suppositories from Amazon. Still damned port is an inconvenience.

  • Suz-Q
    Suz-Q Member Posts: 110
    edited June 2017


    I had my second Thermiva treatment a week ago and vaginal dryness is improving. We use a lubricant, but made it through without reapplying which was a miracle. I have one more treatment to go in a month. I'm determined not to let the AI side effects rob me of my sex life. My gyno started using this in his practice and I was lucky enough to catch a sale price of $1,000 for three treatments. I'm hoping to avoid estrogen therapy, but I'm not opposed to estrogen replacement now that the The American College of Obstetricians and Gynecologists approve it for estrogen dependent BC. I use the Gynatrof too and I like it

    http://www.acog.org/Resources-And-Publications/Committee-Opinions/Committee-on-Gynecologic-Practice/The-Use-of-Vaginal-Estrogen-in-Women-With-a-History-of-Estrogen-Dependent-Breast-Cancer

  • Luckynumber47
    Luckynumber47 Member Posts: 53
    edited June 2017

    I just watched the funniest show - Grace and Frankie on Netflix, Season 3 episode 3. It was all about vibrators. Such a hoot

  • Mominator
    Mominator Member Posts: 1,173
    edited June 2017

    Luckynumber: all three seasons of Grace and Frankie are funny. Part of the first season is Frankie trying to market her lube.

  • Luckynumber47
    Luckynumber47 Member Posts: 53
    edited June 2017

    Yam lube! That doesn't seem so far fetched since we all talk about coconut oil Happy

  • tarheelmichelle
    tarheelmichelle Member Posts: 248
    edited June 2017

    hey everybody, I'm responding a couple of months late to people who asked me about Ritalin. (I hadn't marked this discussion for notifications and had forgotten I posted.) It might still be of interest.

    My doctor prescribed Ritalin to help with my fatigue issues brought on by Femara, and an unexpected side effect was more lubrication (that I produced) and just better sex all around. Oncologists know that fatigue is crushing so many of us. I wasn't new to ADD medicines. After my son was born, my doctor prescribed it to help me focus at work. It's definitely something to consider.

    I'm on Wellbutrin now, and off Ritalin, hoping that will help my sex life too. I considered myself pretty damned sexy but went down to 0 sexy thoughts on these damned AIs. I've used it before. It's helping.

    Thanks everyone, for sharing. I hope everyone has a better day today than yesterday.

  • zinny
    zinny Member Posts: 169
    edited June 2017

    TarheelMichelle - OOOh. I have been trying to get the courage to ask my doc about Ritalin! I feel like I just barely held it together with undiagnosed ADHD, but post chemo, I am not holding it together. Yet another benefit?


  • trvler
    trvler Member Posts: 931
    edited June 2017

    My daughter takes Ritalin for her ADD. Maybe I will give one a try. I tried a few things different drugs back in the day but for some reason, stimulants kind of scare me. Maybe I can get my house cleaned all the way, too. :)


  • tarheelmichelle
    tarheelmichelle Member Posts: 248
    edited June 2017

    As my doctor points out, stimulants work for just about anyone, ADHD or no ADHD. You are more alert, productive, etc. The big issue is, at what cost? I can't take stimulants for a long time. They make me moody. Had I stayed on them, I probably would have tried to take them when needed, not every day. But it's hard to not want to be that alert and productive EVERY day. I miss the old me

  • trvler
    trvler Member Posts: 931
    edited June 2017

    I am wondering can anyone who is doing topical estrogen tell me what your dosage is? My doctor put me on .5 mg and it doesn't even register on the tube. I am not sure it is enough to do anything. I just started and haven't had sex yet since I had surgery in early May.

  • Pamela23
    Pamela23 Member Posts: 394
    edited June 2017

    Trvler--my dr.'s written orders on my box read ".pea sized amount twice a week". According to the Estrace instructions: 2-4g every day for 1-2 weeks then gradually reduce to half the initial dose for a similar period. Then maintenance dosage of 1g 1-3x/week. after restoration of the mucosa has been achieved. I read the article from ACOG who approved this cream for women w/ BC and it stated the same directions. I'm thinking a pea sized amount twice a week will take MONTHS to get the mucosa I desire (LOL--never thought I'd say that phrase!) so I took it upon myself to use 1g every other night for the last 3 weeks and I'm seeing improved results!! I will do this 1 more week and then go to the pea sized amount twice a week to maintain. This is TOTALLY my opinion though. Please ask your doctor, if you have questions.

  • runor
    runor Member Posts: 1,615
    edited June 2017

    I had a vaginal issue (prior to knowing I had breast cancer which at that time I most certainly had it, and didn't know it). I was told to use .5 of Premarin until symptoms resolved. I used it three times over the course of two weeks and a problem that had plagued me for months was gone. That stuff is like magic! So I think yes it is very possible for those tiny amounts to be very effective.

  • Pamela23
    Pamela23 Member Posts: 394
    edited June 2017

    Runor-- I have definitely seen, felt improvement. Intercourse has gone from painful to just uncomfortable. I will switch to a pea size amount twice a eek this week ad hope things continue to improve. I still feel like the lack of sensitivity in that area is problematic when it comes to physical arousal. Will that ever come back?

  • MamaOz
    MamaOz Member Posts: 239
    edited June 2017

    I used to use etrace and it worked wonders for vaginal area and kept me from getting the horrendous bladder infections however once diagnosed with estrogen pos cancer I was told to stop back in dec

    And of course symptoms have returned

    I am seeing my ob/ gyn , who both he and my onc suggest ,about mona lisa touch

    Its a vaginal laser treatment.

  • trvler
    trvler Member Posts: 931
    edited June 2017

    Yes, we have talked about Mona Lisa a lot in here. Reviews over all have been pretty good. Can you tell me your Estrace dose?

  • margochanning
    margochanning Member Posts: 70
    edited June 2017

    hi MamaOz,

    There is an ASCO statement on the use of estrogen for ER+ breast cancer patients that basically approves use of vaginal estrogen after other non-hormonal methods have failed: https://www.acog.org/Resources-And-Publications/Co...

    You may want to show to your MO; mine approved use of vaginal estrogen and I'm so relieved because I was prone to UTI's after menopause so this was a big issue for me in terms of life quality. I can't imagine working the hours I do and dealing with chronic pain from infections, in addition to the other side effects I'm dealing with.

    Best to you and everyone.

  • trvler
    trvler Member Posts: 931
    edited June 2017

    Does it mean the dosage it is saying on there is 'low' or is that the normal dosage? My doctor has me on .5 twice a week and it seems like it's too low. Or maybe not?

  • Pamela23
    Pamela23 Member Posts: 394
    edited June 2017

    Trvler--mine said the same thing but the study didn't manipulate from the instructions which are :2-4g daily for 1-2 weeks then gradually reduce to half the initial dose for a similar period. Maintenance dose of 1g 1-3x/week. I took it upon myself to do 1g every other day for 4 weeks and this week I'm doing .5 g twice a week. It seems per directions you need to build up then maintain. i just can't see that happening on .5g twice a week. So doing 1/2-1/4 prescribed dose for half the time suggested was a comfortable decision I made for myself. It really improved, but I wonder how great it would have been to even do it every day? Better safe than sorry!


  • karen1956
    karen1956 Member Posts: 4,642
    edited June 2017

    I saw my pcp about 10 days go for my annual check up. We talked about the e-string or vaginal cream. Decided to go with the e-string. 3 or 4 days after inserting it I had developed a yeast infection that did not respond to monistat, so I went in to see her and confirmed it was pretty bad and Rx an oral drug to take for 5 days. She is culturing it to be sure its not any else but it sure looked like yeast!!! Coincidence between the e-string and yeast infection, can't know for sure! PCP gave me an Rx for Estrace cream to use 3x/week. Hope it is better.

  • Ken1212
    Ken1212 Member Posts: 1
    edited June 2017
    • Thank you for opening your love for each other so honestly...it does not get any more wonderful than that. It certainly shows that cancer has no hope against that spirit of real love.X
  • Suz-Q
    Suz-Q Member Posts: 110
    edited July 2017

    I had my last Thermiva treatment over a month ago. I'd like to report back that the results are nothing less than amazing! Sex is better than the pre-cancer levels. Very satisfied with the moisture, the sensitivity, and my husband says I'm not so tight and short, in other words the vaginal vault is able to stretch again. We are very happy! I was really getting depressed about the loss o sensitivity and the amount of time and work it was taking to reach a climax. I hope this review might help some of you.

  • Falconer
    Falconer Member Posts: 801
    edited July 2017
    Ok, SuzQ, here's the big question: did insurance pay for it?
    Glad to know you're satisfied regardless of how the dr was paid.
  • Suz-Q
    Suz-Q Member Posts: 110
    edited July 2017

    Hi Falconer,

    Of course my insurance did NOT pay for it. We are females remember!

    I was happy that my gynecologist had a "special" on it so instead of $1500 for three treatments I paid $1000. Thank goodness I keep a savings account. He happens to be the least expensive of the doctors I've read about on Realself (plastic surgery community

  • trvler
    trvler Member Posts: 931
    edited July 2017

    Is Thermiva similar to Mona Lisa?

  • Falconer
    Falconer Member Posts: 801
    edited July 2017
    Suz-q, ugh. Viagra certainly is covered. Well glad something exists to help!
  • Suz-Q
    Suz-Q Member Posts: 110
    edited August 2017

    Thermiva is different than Mona Lisa touch. ThermiVa® applications use radiofrequency energy to gently heat vaginal tissues. Mona Lisa touch uses laser energy to treat the vavinal atrophy.

  • Kali44
    Kali44 Member Posts: 30
    edited August 2017

    Suz-Q.... I just searched and found somewhere nearby I can have this procedure done. Oh my gosh! If this is really so good I am quite excited by this possibility. How wonderful if we can all have this same experience. I am willing to try it....anyone else has tried this and had similar results????

    Going to research this to see what others have said about their experiences as well. Thank you for sharing this possibility!!!!!

  • tarheelmichelle
    tarheelmichelle Member Posts: 248
    edited August 2017

    kali44, there are posts elsewhere on the forum about this procedure. Not every woman was happy with the results. Some women say the results are short-lived. I wouldn't expect laser surgery to restore moisture and plumpness to hormone depleted tissues. Other women are happy with results. Just like cancer treatments, everyone's experience is different.