Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

Bottle o Tamoxifen

11281291311331341022

Comments

  • chelev
    chelev Member Posts: 417
    edited August 2009

    Hi, ladies.  I will be joining you on the tamox train.  I met with my new med. onc today - and I wish I'd seen her at the beginning of this wild ride, but oh well.  Since I didn't tolerate femara at all and am very sensitive to most drugs, we're starting with a super low dose - 1/2 of 10 mg pill daily to see how I do.  I did love this new onc - she specializes in breast cancer and is very kind and warm and really spends time with you, which is a nice change from my old onc.  I am looking forward to having her manage my care and am looking to you, my bc sisters to provide any guidance or suggestions about the tamox.  My new onc is a big believer in supplements as well, and gave me a list - most of which I'm already taking - and I will add the new ones this week.  Luckily, I had a hysterectomy in 1991, so don't need to worry about the cervical cancer risk.  Any advice as I board this train?

  • Mary22
    Mary22 Member Posts: 428
    edited August 2009

    Hello, I am now off until August 31, the first day of school!!!!!!!

    Of course between now and then I have company coming, my aunt and sister form Cali. So I am excited and will not sleep. I got a little extra money and instead of paying doctor bills, I have to get new glasses., So one day while I am off I have to have an eye exam, fun, fun!!!!

    Lisa, I am with you, I do not know how bad I would be if not for Effexor XR. It really has helped w/ hotflashes,and irritabilty.

    Rachel, I wish I had made a list of symptoms pre cancer, pre rads, pre tamoxifen. I do try to remember though. I have knee pain, but I know I have a torn meniscus in my left knee and osteoarthritis in both. I have always had pain in my neck and back(yrs of retail). As for the rest, BC just hit me like a train. VERY FIRST mammogram, but it least it was caught early. Then this year has been h*ll. I went for mamm Oct 08, was dx Dec 08, all during the school year. So again it is hard to tell if fatigue is tamox related or just my body and mind recovering from surgery, rads and stress. Now I stress over my first post cancer mammo. I have to make an appt for Oct/Nov. Scary. Knowing I am BRCA2+, I know I can not postpone all these test until summer vaca comes around again.

    enough ramble, I have to make dinner. FUN FUN FUN! 6 days down and 181 to go!!!!!!!!!!!!!!!!!

  • kfinnigan
    kfinnigan Member Posts: 490
    edited August 2009

    Rachel - forgot to answer you earlier about the trial I was on.  It was Avastin, and when I was unblinded on the study in Dec. I was in the Arm that went on after my regular chemo finished.  Avastin is making great strides in lung and colon cancer...I pray it saves my butt from ever getting SFBC again too!  Just finished the trial Aug. 6th and am still dealing with those se's.  Didn't qualify for the Zometa trial as I was too far out from chemo.  

    About the kid thing and day care.  I can't believe these days what some of you young mom's have to go through.  Thank goodness when mine were young, there was none of that social crap going on at such a young age and having to be on wait lists for pre-school, etc.  That sucks.  keep us posted.  What's up with no water???????  that really sucks.

    Chelev, sounds like you have a really cool onc.  Share what supplements she advised.  I'm very interested. I learn more on these threads than from the doc's office.  Hoping that low dose will be kind to you.

    Lisa, I really like you.  You rock!  so do you have a date tonight?

    Spring, you cutie, hang in there honey, that surgery is going to go smoothe, sounds like you have the Best of the Best at NOLA!

    Mary, enjoy your family and your break.

    Had lunch with a BC sister, she finished chemo/rads in Jan. and has been on Tamox since.  We have different oncs in the same building, so we compare notes.  She was on Prozac thru treatment and up until recently when the FDA put out the warning that Prozac lessens Tamox's effects.  She found this info out before her onc ever told her.  She also asked to have her vit. D level checked this time and turns out it is way below normal.  Her onc asked why she wanted it checked (I had sent her a video someone on BCO recommended about 4 things to reduce recurrence:  low fat diet, exercise, vit d level checked, lower or limit alcohol consumption).  Since being off Prozac she said she now feels like CRAP.  She hurts all over, joint aches, etc., irritability, no MOJO...her onc said do not stop taking Tamox, that he'd rather put her back on Prozac if it means she stays on Tamox.  Anyway, boy did we have a cancer bashing gab fest.

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    ja Mary, that is one thing I hope I can be helpful to everyone with... my luck in DX and my ONC allowing me to wait to start, gives me time to see what ME is like pre-tamox.  And youse guys telling me which stuff is happening to you that makes you wonder, makes me check that as well.  There is no reason why any normal person would make a symptom list before cancer DX.  I had had a excision biopsy before so I knew what that part would be like, it's even the same area.  I wish I had known about the lympedema stuff before the SNB so I could have measured my arm pre-SNB, and I dont measure it now, mostly because I figure I can't be sure I am measuring the same place and i hope to lose weight blah blah... but RADs was going to be a new thing, so I took before pics of my boobs and started that list.

    Like you said before you started Tamox, you thought you might become irritable but your SIL told you you were already a bitch so there was nothing to lose.

    Same here! :D 

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    kari- two quickies... why can't you take zometa off the trial?  I am not on a trial and I am going to take it.  Your friend on Prozac, can she switch to Effexor?  Everyone else I read about here who was on Prozac or similar switched to Effexor and were really happy. (It wouldnt be the first time she had to educate her doc.  And here's another video I got from someone on BC org - renee? from the head of BC at Sloan Kettering, he also talks about the Vitamin D3.  But only take the supplements if your D3 is low... too much D3 is also bad.)

    http://www.mskcc.org/mskcc/html/92358.cfm 

  • cinderella_1950
    cinderella_1950 Member Posts: 9
    edited August 2009

    Question:

    What supplements are you all taking? 

  • Mary22
    Mary22 Member Posts: 428
    edited August 2009

    Ok another new avatar. Since I can't figure out how to post pic here, I had to post one of my 8yr old dd w/ her very first tomato, from her little tiny plant she bought at the PTO plant sale for Mother's Day. The plant did not do too well because of the weather cool nights, cool rainy days. It grew farily tall and produced a few tomatoes.

    The only supplements i take are Vit D 3 and Calcium. The surgeon who did the ooph recommended since I am now post menopausal. Also due to family history of osteoporosis(sp?).

    Habe a great night ladies.

  • Mary22
    Mary22 Member Posts: 428
    edited August 2009

    OOPS!!! I also wanted to announce that September is National Ovarian Cancer Awareness Month and then October is National Breast Cancer Awareness Month. Some communities have a toc=rch hand off event.

  • chelev
    chelev Member Posts: 417
    edited August 2009

    I am taking DIM w/curcumin (the curcumin is what the onc recommended - acts as a natural AI), fish oil caps, probiotics (for IBS), D3, biotin (for the hair), an antioxidant multi (which has the C, E, zinc, selenium and lycopene she wants); and a hair/skin formula that has biotin/collagen in it.  She also recommended cinnamon, resveritrol (an antioxidant),green tea and half a baby aspirin.

  • kfinnigan
    kfinnigan Member Posts: 490
    edited August 2009

    Rachel, thanks for the link to that video of Dr. Norton, just watched it, it made me feel a bit better.  He mentioned the Avastin and also about pos. lymph nodes...good stuff.  I asked my onc about getting a bone density test and she said there was no reason to expect it would be low yet, so hence no zometa for me.  My friend tried Effexor and it made her really sick, so that's when they put her on Prozac.

    I emailed her earlier asking about my MUGA score being lower on a different machine, and about tumor marker test and if I should get one and that I'm drinking like two small glasses of wine or one small cocktail per week...her response:

    Dear Kari,
    The MUGA can vary somewhat from test to test so I would not worry too much about it. It is still in the normal range. There is really nothing you can do to improve it. In terms of tumor markers, they are really not very reliable in breast cancer so I tend not to use them. If you want to get one, we can do that but I have been in the situation where the marker is high and there is no cancer which creates a lot of anxiety. I have also been in the situation where the cancer has spread and the marker is normal. I think it is fine to drink in the amounts you are! Julie

    Chelev, thanks for the info.

    I asked my onc and pcp about supplements and they told me, a multi with no iron, calcium with D and fish oil if I'm not eating fatty fish 2 x's per week.  My vit D level was 41 so my onc said to add another separate D3 pill and we will check it again next visit in Nov. 

  • chelev
    chelev Member Posts: 417
    edited August 2009

    That's what I forgot - calcium!  Maybe because I hate those huge horse pill - Citricals or Caltrate or something like that (but I have to finish the humongus bottle my mom bought me because she thought she was helping out). 

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    kari I am  going to be a pain in the ass again... the Zometa is not for the bones, its for fighting the cancer recurrence.

    This from Blue Cross Blue Shield- which is a good sign that insurance should cover it...

    http://www.bcbs.com/news/wellness/bone-building-drug-zometa-fights-breast-cancer-spread-in-younger-women-may-lead-to-wider-use.html

    Bone-building drug Zometa fights breast cancer spread in younger women, may lead to wider use
    Printer FriendlySend to friendMay 30, 2008By MARILYNN MARCHIONECHICAGO, May 31, 2008 (AP Online delivered by Newstex) -- A drug to prevent bone loss during breast cancer treatment also substantially cut the risk that the cancer would return, results that left doctors excited about a possible new way to fight the disease.It is the first large study to affirm wider anti-cancer hopes for Zometa and other bone-building drugs called bisphosphonates. Zometa, made by Novartis AG (NYSE:NVS) , is used now for cancers that have already spread to the bone.The new study involved 1,800 premenopausal women taking hormone treatments for early-stage breast cancer. Zometa cut by one-third the chances that cancer would recur -- in their bones or anywhere else."This is an important finding. It may well change practice," said Dr. Claudine Isaacs, director of the clinical breast cancer program at Georgetown University's Lombardi Cancer Center.About three-fourths of breast cancers occur in women after menopause. Zometa may help them, too, but it hasn't been tested yet in that age group.The study was led by Dr. Michael Gnant of the Medical University of Vienna and reported Saturday at an American Society of Clinical Oncology conference in Chicago.If a second, ongoing study also finds a benefit, doctors predict that Zometa will quickly be tested against other cancers that tend to spread, or metastasize, to bones, such as prostate and kidney cancer."Hugely important is whether this has to do with the fact that it just makes the bone hostile, somehow, to metastasis or if there is a more global anti-metastasis effect," said the oncology group's president, Dr. Nancy Davidson of Johns Hopkins University."Either of those would be good and would teach us a lot about what to do next."Breast cancer is the most common cancer in women. About 184,450 cases and 40,930 deaths from the disease are expected in the United States this year.Standard treatments are surgery, chemotherapy, radiation and hormone-blocking drugs if the tumors are like those in the study -- helped to grow by estrogen or progesterone.The hormone-blockers often weaken bones, so bisphosphonates like the osteoporosis pill Fosamax have become increasingly popular to treat this side effect. However, using them to treat the cancer itself is a very different approach.Lab studies hinted it would work, and Gnant's is the first to test it in a large group of breast cancer patients.All had surgery to remove their tumors and were taking hormone-blocking drugs -- goserelin plus either tamoxifen or anastrozole -- treatments that made them menopausal. Half also were given infusions of Zometa once every six months.The women were treated for three years and studied for two more. By then, only 6 percent of those given Zometa had suffered a relapse or died, compared to 9 percent of the others. That translated to a 36 percent decline in risk.Sixteen women given Zometa died versus 26 of the others -- a difference that could have occurred by chance alone but an encouraging trend that doctors hope will mean better survival as the groups are followed for a longer time.There were no big differences in serious side effects, though minor ones like fever and bone and joint pain were more common among women given Zometa. Two percent of all study participants developed a rapid heartbeat, but only three were hospitalized -- two on Zometa and one of the others.The study was sponsored by Zometa's maker, Swiss-based Novartis, and British-based AstraZeneca PLC (NYSE:AZN) , which makes Arimidex, the brand name of anastrozole. Gnant consults for the companies and several other breast cancer drugmakers.With doctor fees for the infusion, a Zometa treatment can run more than $1,200. The other large study is testing it in 3,360 pre- and postmenopausal women with cancer that has spread but not extensively.Experts stressed that the results so far are only in women who were made menopausal by hormone-blocking treatments -- not women who develop breast cancer after natural menopause.For now, using Zometa to prevent breast cancer recurrence should be confined to those who develop breast cancer before menopause, said Dr. Eric Winer of Dana-Farber Cancer Center in Boston."This is a treatment that doctors should talk to a patient about" because of these encouraging new results, Winer said.In other news at the conference, women with advanced breast cancers who were given Avastin plus Taxotere were a little less likely to have their cancers progress than women given Taxotere alone. However, side effects including high blood pressure were more common for those taking both drugs. Taxotere treatment is more common in Europe and Asia; in the United States, doctors are more likely to use Taxol.In the study of 736 women, 44 percent of those given just Taxotere had their tumors shrink versus 55 percent of those also given a lower dose of Avastin and 63 percent of those given a higher dose.

    Avastin, marketed by California-based Genentech (NYSE:DNA) and Swiss-based Roche Holding AG, recently won federal approval for breast cancer -- against the recommendations of outside advisers. The approval was based on measurements like those in this study -- cancer progression, rather than overall survival. The new study was too short to show any differences in survival.

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    and here from the NY Times

    http://www.nytimes.com/2009/02/12/health/research/12bone.html 

    February 12, 2009

    Bone Drugs May Help Fight Breast Cancer

    By GINA KOLATA

     

    A drug of a class commonly used to combat bone loss may reduce by a third the chance that some breast cancers will spread or recur, a large study has found.

     

    While it may sound odd to treat cancer with a drug that acts on bone, evidence is accumulating that such drugs may do more than just prevent the loss of bone. Other studies are testing the drugs in patients with prostate or lung cancer.

     

    The new study, published in Thursday’s New England Journal of Medicine, involved 1,803 premenopausal women with tumors that were fueled by estrogen. As part of their treatment, all received drugs that shut down their ovaries, preventing them from making estrogen, along with drugs that stymie cancer cells from using estrogen to grow.

     

    Half also got the bone drug zoledronic acid, or Zometa, as an intravenous infusion twice a year for three years. Those who took the drug had a 36 percent reduction in cancer recurrences and metastases, compared with women who did not get it. After nearly four years, 54 women who received zoledronic acid and 83 who did not had a recurrence of their cancer or had a new cancer in the opposite breast or a metastasis to their bones.

     

    Some cancer researchers said they wanted to see the results from two other large studies of bone drugs and breast cancer before advocating that all women with breast cancer get such drugs. The studies, which include both premenopausal and postmenopausal women, are nearing completion, and their results should be available within the next few years. But the new study has buoyed researchers’ hopes.

     

    “This is really a landmark study,” said Dr. James N. Ingle, head of the breast cancer research program at the Mayo Clinic Cancer Center. “It’s a reason for real enthusiasm.”

     

    But for now, he said, “I think it is the general consensus that we are not ready to make this a standard treatment.”

     

    Others are more persuaded.

     

    Dr. Marc E. Lippman, a breast cancer expert who is chairman of the department of medicine at the University of Miami, said many women taking hormonal therapy for breast cancer already take drugs to protect their bones. The hormonal therapy deprives the body of the bone-building effects of estrogen. So, he said, why not give these women zoledronic acid, the bone drug used in the study?

     

    “This is something of a mitzvah,” Dr. Lippman said. “The very therapy you might want to do to counteract the toxicity” of the hormonal therapy “has an additional advantage.”

     

    “I think you have to give it,” he said.

     

    The idea of using a drug like zoledronic acid arose from research into why some cancers, like breast cancers, have a predilection to spread to bone.

     

    One reason, Dr. Ingle said, is that cancer cells interact with a type of bone cell, osteoclasts, whose role is to break down bone. Breast cancer cells that migrate to the bones stimulate osteoclasts. Osteoclasts then produce substances that stimulate the cancer cells.

     

    “You get this vicious cycle,” he said.

     

    Drugs used to treat osteoporosis, the bone-thinning disease that often occurs in the elderly, home in on osteoclasts and stop them from releasing substances that cause bone loss. As the osteoclasts stop working, they die.

     

    So the idea arose: Perhaps osteoporosis drugs might prevent cancer cells from growing in bones.

     

    Other studies of the osteoporosis drugs, known as bisphosphonates, indicated that they might also have other anticancer effects. In the laboratory, at least, they stopped cancer cells from growing new blood supplies. And bisphosphonates made cancer cells self-destruct in laboratory studies.

     

    In addition, said Dr. Eric P. Winer, a breast cancer specialist at the Dana-Farber Cancer Institute in Boston, still other studies indicated that bisphosphonates affected how well cancer cells stuck to surrounding tissue and whether they were able to invade other tissue and proliferate.

     

    And, said Dr. Michael Gnant of the Medical University of Vienna, the lead author of the new study, recent research indicates that particularly in the early stages of many cancers, there is a population of tumor cells that migrate to the bones and hide in bone marrow. Bisphosphonates, he said, might squelch those cells, affecting the ability of the disease to recur.

     

    “This is a general mechanism for all cancers,” Dr. Gnant said. “Not just cancers that metastasize to bone.”

     

    The idea for the cancer studies began when researchers, like Dr. Trevor J. Powles, a professor of breast oncology at Parkside Oncology in London, started asking whether bisphosphonates could treat cancer that had already spread to bone. They could, it turned out, and zoledronic acid and other bisphosphonates were subsequently approved for that use and shown to prevent further spread of cancer in bones. In fact, Zometa is approved only for bone complications of cancer, like fractures — it is not licensed as an osteoporosis drug.

     

    Those discoveries led Dr. Powles and his colleagues and, independently, two other groups of researchers, to ask whether the drugs, in the high doses used to treat cancer, might prevent breast cancer from spreading in the first place.

     

    The results, published a few years ago, were mixed. Dr. Powles’s study found that when women took a bisphosphonate their cancer was less likely to spread to their bones and they lived longer. Another study also found that the cancer was less likely to spread. But the third study found no effect.

     

    Dr. Gnant, in the meantime, had begun a much larger study with intravenous zoledronic acid at a much lower dose, given twice a year for three years. The concern with the drug is a rare and very serious side effect, osteonecrosis of the jaw. But in this study at least, it did not occur.

     

    And the surprising result of his study, if it holds up, indicates that zoledronic acid could add a benefit to existing breast cancer therapy that is nearly the same magnitude as the benefit conferred by chemotherapy or hormonal therapy alone.

     

    But Dr. Gnant urges caution.

     

    “While everyone is very excited, we still need to be conservative about what we recommend to patients,” he said. “In clinical science we do clinical trials. I am still hesitating to say, ‘Well, this is good for everyone.’ In the history of science we sometimes extrapolated and turned out to be absolutely wrong.”

     

    “The right way to proceed,” Dr. Gnant said, “is to wait for data to come in from other studies.” 

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    and the original article in the New England Journal of medicine here:

    http://content.nejm.org/cgi/reprint/360/7/679.pdf 

    or

     Full Text of this Article

    Here's the abstract: 

    Endocrine Therapy plus Zoledronic Acid in Premenopausal Breast Cancer
    Michael Gnant, M.D., Brigitte Mlineritsch, M.D., Walter Schippinger, M.D., Gero Luschin-Ebengreuth, M.D., Sabine Pöstlberger, M.D., Christian Menzel, M.D., Raimund Jakesz, M.D., Michael Seifert, M.D., Michael Hubalek, M.D., Vesna Bjelic-Radisic, M.D., Hellmut Samonigg, M.D., Christoph Tausch, M.D., Holger Eidtmann, M.D., Günther Steger, M.D., Werner Kwasny, M.D., Peter Dubsky, M.D., Michael Fridrik, M.D., Florian Fitzal, M.D., Michael Stierer, M.D., Ernst Rücklinger, Ph.D., Richard Greil, M.D., for the ABCSG-12 Trial InvestigatorsABSTRACTBackground Ovarian suppression plus tamoxifen is a standard adjuvant treatment in premenopausal women with endocrine-responsive breast cancer. Aromatase inhibitors are superior to tamoxifen in postmenopausal patients, and preclinical data suggest that zoledronic acid has antitumor properties.Methods We examined the effect of adding zoledronic acid to a combination of either goserelin and tamoxifen or goserelin and anastrozole in premenopausal women with endocrine-responsive early breast cancer. We randomly assigned 1803 patients to receive goserelin (3.6 mg given subcutaneously every 28 days) plus tamoxifen (20 mg per day given orally) or anastrozole (1 mg per day given orally) with or without zoledronic acid (4 mg given intravenously every 6 months) for 3 years. The primary end point was disease-free survival; recurrence-free survival and overall survival were secondary end points.Results After a median follow-up of 47.8 months, 137 events had occurred, with disease-free survival rates of 92.8% in the tamoxifen group, 92.0% in the anastrozole group, 90.8% in the group that received endocrine therapy alone, and 94.0% in the group that received endocrine therapy with zoledronic acid. There was no significant difference in disease-free survival between the anastrozole and tamoxifen groups (hazard ratio fordisease progression in the anastrozole group, 1.10; 95% confidence interval [CI], 0.78 to 1.53; P=0.59). The addition of zoledronic acid to endocrine therapy, as compared with endocrine therapy without zoledronic acid, resulted in an absolute reduction of 3.2 percentage points and a relative reduction of 36% in the risk of disease progression (hazard ratio, 0.64; 95% CI, 0.46 to 0.91; P=0.01); the addition of zoledronic acid did not significantly reduce the risk of death (hazard ratio, 0.60; 95% CI, 0.32 to 1.11; P=0.11). Adverse events were consistent with known drug-safety profiles.

    Conclusions The addition of zoledronic acid to adjuvant endocrine therapy improves disease-free survival in premenopausal patients with estrogen-responsive early breast cancer. (ClinicalTrials.gov number, NCT00295646 [ClinicalTrials.gov] .) 

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009
    Sorry for the great big posts guys Embarassed
  • didle20Diane
    didle20Diane Member Posts: 86
    edited August 2009

    I am in that trial and am on Arm 2 taking the once daily Ibandronate.  I had awful side effects (neck and joint pain) the first month and almost went off the drug.  My onc suggested taking a 3 day break 2 times and I have been back on for over a month with no problems.  I also had to have a dexa scan performed which was normal. 

    hugs

    Diane

  • Brendatrue
    Brendatrue Member Posts: 487
    edited August 2009

    Wow! What a tremendous amount of reading just to try to "catch up!" I am going to have to admit, right off, that I am still plagued by major chemobrain and I am having some increased mental fuzziness in the last few days, which may or may not be related to 10 days of Tamox. I am extremely sensitive to meds and I tend to take a lot of time to adjust, and I am only taking 10mg at this point. I am also back at work full-time, so that is a real energy zapper as well. Anyway, back to the point that I am trying to make. I can hardly keep up with all the responses here, and I have decided that I am just going to have to respond to the "big hits" that my brain is able to process and retain. I apologize in advance if I don't comment on someone's wonderful news or questions or whatever is important to them.



    I am hopeful that we all will tolerate a wide range of experiences and perspectives as we share our stories regarding the use of tamox and the impact of cancer/care on our lives. I have learned that it is very important for me to have a med onc that I can trust (I have gone through a few) and with whom I can share my honest assessment of what I am experiencing as well as the decisions that I make about my care; however, I ultimately am the one who makes the decisions that are right for me, being aware that I will have to deal with the consequences (and, yes, to varying degrees, so will the people who care about me). I believe that there can be many different paths to healing and remission, since we are so different, and the world of cancer care, while much improved over the last decades, is still discovering what might or might not work for people with different profiles. I would like to be able to come to this thread and report my honest take on my experience with Tamox, knowing that others may have different experiences or perhaps not care about 'my take' and just move on. So, after saying all that, let me just close by saying how much I have enjoyed the spirited discussion and the support demonstrated on this thread. I will check back another day to 'catch up' again and do the best I can to respond and be supportive. I wish you all--and me, too--the best with Tamox!

  • kfinnigan
    kfinnigan Member Posts: 490
    edited August 2009

    Rachel, you are no pain in the ass my friend!  I am so happy for you being here.  I just emailed my onc asking about the Zometa thing and what she recommends.  I want to understand!!  Will report tomorrow what she says. 

    Diane, glad you are on the trial and doing better!

    Brendatrue, glad you are here too.

    Helena, you really did lay low today!!  Missed ya girl!

    Good night sweet ladies.

  • Mary22
    Mary22 Member Posts: 428
    edited August 2009

    Boy I really am addicted. I have been on three times tonight. Rachel so much info. I never find anything good when surfing the net. You should change your name to surfer girl, or google queen. I also read that taking the Omega3 will also help w/ joint pain and haev other benefits too. Just a reminder any supplemnets even herbals that you take, you should let your dr know.

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    Actually, that article was sent to me 25 days after DX by a male friend who got it from a friend.  Meant a lot to me that he would do that, he's the same guy who picked me up at the hospital... hmmm I will change my avatar to a pic of me and him.  And I had to ask for it too.  Shows to go ya.

     

  • HelenaJ
    HelenaJ Member Posts: 304
    edited August 2009

    What the!!!!!!!!!!!!!!!!!!!!!!!! ... had a power blackout today to fix local power lines so ventured out into the REAL word and had a cuppa with a friend, mopped floors and painted the back door - is that what they did in the old days pre-electricity!!!!!!!!!!!  Anyway came back and everyone looked different ..... sob sob sob....then saw Kari and wonderwoman, phew,  felt really weird ... and these newbies (gidday), all these posts ... kids due home now from school, got to fly ...

    oh ...big hugs

  • Mary22
    Mary22 Member Posts: 428
    edited August 2009

    Hello all, no work today WOOOOHOOOOOO! School starts soon, I have last minute errands and grocery shopping before sis and aunt, get here. I am sooo excited!!!! Aunt helped raise me after mom died. But she and my mom were close and my mom would call her when I was acting like a brat, imagine that me a brat.

    Rachel, it was my own sister who said I was a b#tch. Althouhg my SIL probably thinks it she has never said it. (my sister who is coming to see me)

    My family is complicated. I have one older brother and one sister(from my mom and dad). Then my dad remarried, a woman only years older than me. She was 20 when they met and he was 37. Of course she looked older and worked where he worked, she followed him to the bar after work. When I first moved to FL we could actually convince people she was my mom. She and my dad had three children,2 boys and a girl. They are 21,23 and the oldest would be 25, but he was killed on my birthday 4 yrs ago in a car acciedent.

    Anyhow, my dad got a DUI and my stepmom left him. We did not see much of him for 10yrs,(this is a complicated story in itself, I could write and interesting book) then got a phone call last year that he was found dead( pulm. emb) I am friends w/ 1/2 sister and stepmom on facebook. I refuse to hold a grudge.(that too is a complicated story). Oh well enough useles info. just a little insight.

    Our past eaperiences make us who we are today, we can either wallo in selfpity or do something about it

    For me I speak my mind and then get past it.Okay where did all that come from!!!! 

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    Repairman coming to fix the washer dryer today between 10 and 12 pm- woohoo!

    Oy. 

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    2 minutes to 10... any bets on whether he shows up by noon?

    Oh and Mary, send me by email the pics you want to post, I will put them up where you can link them :) 

  • my3girls
    my3girls Member Posts: 1,291
    edited August 2009

    Mary....I didn't think your info was not useles! I can so relate to many of your feelings!! I love this!!!

    Our past eaperiences make us who we are today, we can either wallo in selfpity or do something about it

    That say's it all..and Like you....I Do something about it!! Self pity is NOT HEALTHY at all!

    Helena...good to see you!! Glad your electricity is back. It is weird to think how anyone survived or what they had to do without our modern conveniences!

    Rachel..love the new avatar. Is your hair short now? I thought I saw pics earlier and it was long. How old is your baby? BTW....I say your repair man shows up at 12:10pm! lol

    Kari..you are so adorable...I love your avatar!

    Well..had a 1st meeting/date..whatever you want to call it last night, with someone from the dating website I am on.  He was very nice...but no chemistry for me.  Hey..you don't know till you try right?  We sat, drank a few beers and talked allot. 

    Out with my g'f/s tonight for one of their b'days.  Then a guy I have gone out with a few times in the spring...asked me out for tomorrow night...so we are going out.  He is really, really nice.

    ok..back to work ladies!

    hugs...

    Lisa

  • my3girls
    my3girls Member Posts: 1,291
    edited August 2009

    I almost forgot....WELCOME CHELEV AND BRENDA!!

    Brenda...don't ever be concerned about not commenting on someones post!! It's very hard to do...and I am 2 yrs out from chemo...and still find that I forget things very easily..but then I have menopause too...lol.

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    in the pic my hair is up, its just past my shoulders... but I miss my really long hair now...

    Last April:

    Weird when I look at pics of myself pre-BC.  I wish I was as carefree now and happy I was then.

    My son is 18 months now :)

    This is us last month with some friends...

    and with the same friends 20 years ago:

    (when I was skinny... and before my hair went back to its uh... natural blonde color... hahaahah... and my pal lost his hair!)

     

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    yeah he'll show at 1210, use the bathroom and go on lunch break

  • my3girls
    my3girls Member Posts: 1,291
    edited August 2009

    Rachel...all pics are blocked here at work that eveyone posts..but I will take a look at them when I am at home. It is amazing when we think back about pre-bc. Things certainly change.  But, honestly...for me, many of those changes have been for the better. Did you have chemo and lose your hair?  Since I can't see the pics...just wondering. 

    Is the repair guy there yet??

  • my3girls
    my3girls Member Posts: 1,291
    edited August 2009

    Meg....why did you change your avatar?  I love seeing your beautiful picture!