Bottle o Tamoxifen
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sorry for your sister Mary...cars...are sooooooo fustrating sometimes! Your sister probably drove right by me in OHIO!
Genia...walk...exercise!! I excercise almost daily...and I really think it helps allot!
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Man i am sorry for the car troubles
Glad to hear the SEs subsided with time
Glad to hear walking helps, that's the one exercise I do
So, I call the dryer repair people like the repairman said I should yesterday, when he said he was ordering parts and putting a "rush" on it. Mean twit who answer the phone doesn't even want ot look up my record. Finally she does, he only ordered the part today, it wont be here before Monday. OK then can I make appointment for Monday, since I had to wait 2 days for him to show up to push two buttons and confirm that what I said was right on my 8 month old washer dryer? No, I have to wait until the part comes in, then they call me, then I can book an appointment for them to come and do the repair.
Sounds like trying to get BC test results, don't it?
So I am so furious, I ask for Manager, at 2pm Manager is no longer available, I have to call tomorrow at 9am, maybe then I can speak to a manager. I call LG, the mfr, and meanwhile check the reviews for this service. Poor ratings, these people stink. I ask LG if they have a better service in NYC- this is NYC for crying out loud! No actually turns out they dont have any service in NYC, they have to g et service from outside the city, and the only place that answers the phone is this crappy place. So they have a monopoly and it shows. Hard to believe we are in a recession and people are hurting for jobs.
I am pissed off big time.
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Rachel, fix the dryer yourself. I just fixed the latch on my dishwasher. Ordered the part on line. When I got the part, it was a simple fix: I had dh turn off the breaker for the dishwasher, took off the front panel, installed the part (two screws and 4 wires) then put everything back together. Dh flipped the breaker and we had clean dishes an hour later!
The reason I fixed it myself is none of the repair business would even return calls. I figured I saved myself about $170.
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Hi ladies--whew!! I took me a few days of reading to catch up here!
Lisa, I cringe a little when hearing your experience with ovarian cysts and uterine issues as I recently found out I have an ovarian cyst. Probably won't have uterine issues as am pre-meno but they'll be watching for that also. I have to go back in for a look in 4 months.
I am trying a little experiment on myself by not taking the ground flaxseed which I had been taking every day in my cereal. I was off it a week (while on vacation) and noticed by accident that my ovaries were less 'sensitive' so I thought I would try it for a month and see if I noticed a difference. It shouldn't as flaxseeds are high in natural (plant) phytoestrogens that are actually weak but I want to see what happens...
I really want to stay on the tamox but don't want to have a hysterectomy. They hasn't been bleeding or anything yet so maybe it will be ok...
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lisa-e ... I totally would DIY but this requires taking apart the whole washer dryer (which I can't even move by myself) and fiddling about inside, its only 8 months old and I don't want to screw up the warranty - but usually you'd be SO right.
Oh and BRAVA for you fixing your DW yourself!!! I will be careful to watch how they do this, see if I can DIY next time. No, that wont work, I'd still have to pay for the part, and the parts are covered under the warranty (plus the two extended warranties I ended up buying... don't ask). I think what I will do is 6 months from now - while the dryer is still working- I will call and say its not working. Then they can do this stupid dance over two weeks and I'll be wearing clean clothes. Preventative maintence, as I knew when I bought it that this was going to need maintaining.
I took time to properly wash and dry my hair- being grateful every second that I even have hair- and feel better. Anyone who is waiting for your hair to grow back in, please feel free to whine and complain because you totally deserve it. Not having your hair sucks dog doo. Being able to fix my hair totally changes my attitude and outlook.
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Mary- your sister was DRIVING from Cali to visit you? Now she has to turn back from Michigan?
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No she was driving from Cali to drop son off at MSU, I am just a side trip, since they were sooooo close. I would have drove to Michigan, it is not that bad, but she said they wnated to come. She is coming for a couple of days and then back to MSU for parent orientation. Then back home. I will ask dh to pull her tire and look at the calipers. I am not a machanic, but it really sounds like the calipers are locking up.
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Rachel, I went back and read my post, what i meant to say when she finally gets back to Cali, she will give dealer a piece of her mind.. Sorry I was not clear. The kids have been waiting all day, they should be here shrotly, about 9pm.
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Rachel, if your washer is under warranty, I totally understand why you wouldn't even attempt to DIY. I just hate being at the mercy of repair people . . . If you want to hear about a debacle, ask me about the time our main water line developed a leak. Two days and more than $1,000 later, we had water again. Even a cold shower sounded nice by then.
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Maybe mercury is retrograde?
But Mary, brakes are really really serious!!!! I may have stiff clothes and the kid looks like a promo for Feed the Children but brakes... brakes!!!! Ya need brakes!lisa-e we are a pair.
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Maybe mercury is retrograde?
But Mary, brakes are really really serious!!!! I may have stiff clothes and the kid looks like a promo for Feed the Children but brakes... brakes!!!! Ya need brakes!lisa-e we are a pair.
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I dropped daughter off in Boston yesterday, and was so caught up by the moving in experience and just gaga over the beautiful brand new dorm bldg. that she moved into, with central air, beautiful orange and yellow color scheme, flat screen tv, computer terminals, comfy couches, and artwork in the lobby, and million dollar views. My DD's dorm is on the 19th floor, which overlooks the school soccer stadium (ironic since she played soccer all through middle and high school) and I rode the elevator up to the 26th floor, which is a penthouse type room with wraparound views of the Charles River and the entire city of Boston. I can't believe students are getting to live like this! What a step up from last year when she lived in an old walk up brownstone bldg. I just love being in Boston, and Kari, the Cambridge area where Harvard is located is wonderful! Have you ever been there?
Anyway, I got my mind out of the BC, tamoxifen mode and realized that there really is more to life than thinking about these things. Now I want to plan my next trip to Boston and maybe visit some surrounding areas like Salem, the place where all the witch trials were held. Maybe I'll go during October when all the Halloween events are going on. Rachel I think you made some kind of analogy about that for me. Although I'm pretty sure you were only kidding!
Lisa, your experience with the AIs is similar to a new friend of mine at work. She's on arimidex and says the only thing that helps with the pain is lots of exercise. She does triathlons, and on our lunch hour, she's got me climbing stairs with her now. We go up about 20 floors. She also says she'd never quit it because she was a Stage 2b with lymph node involvement and is convinced that this is what is keeping her alive, even though it makes her miserable often and she's been on it for 7 years. Mary, I hope you do OK on it. And Genia, I advocate exercise, I think my aches would be a lot worse if I didn't . I used to get bad neck and lower back problems all the time, but in the year and a half, I've been working out, no more of that. Just a little knee pain now and sometimes, an annoying neck ache. I also take curcumin, which has antiflammatory properties to it.
Kari, I hope you get your Mojo back, i still have mine! And Lisa, you too, a new romance needs good Mojo!
And Helene, thanks for being such a ray of sunshine from down under!
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They made it and tomorrow we take th ecar to the dodge dealer. My MIL does home health care and we took care of the owner.
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Mary have a great visit with your family!
Rose, wow can I go back to college? I could totally study in that environment! Do they have daycare for 3 kids under 4, I wonder?
Rachel I used to own a Lancia Zagato! It was a bit of a money pit but I loved tooling around in it and especially loved the air horn! I doubt I would be invited into any car club with my Toyota Sienna Mini Van LOL!
Helena hope you are having a wonderful Friday
All...anyone wanting to visit the DC area let me know! I am 15 minutes from Dulles Airport and have plenty of room!
hugs
Diane
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Hi ladies. I can't figure out if I'm following too many topics or if I still have some chemo brain going on. I can't seem to follow everyone.
Anyway.....blood counts look good at my 6 month with the onco and he prescribed something for my hot flashes. I can't remember what it was, I pick it up tomorrow. I already take effexor and that doesn't seem to help. Last time I met with clients I put a Maxi pad in the back of my sports bra to soak up the sweat. I might as well make use of them since I don't need them anymore. I really need more support than that but the sports bras are more absorbent. I still don't sweat under my radiated boob.
I'll just die if they fall out of my bra durring a meeting.
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Hi all - just finished work and off to netball training for big DD. Just spent $89 on a sports bra today - never even spent that much on a sexy one b4... had a blow out a few weeks back after my exchange surgery from running so thought I would splurge and get something decent, went through the whole reconstruction thing with the salesperson. Aarrgghhh - anyway it kept her out of the changeroom!!!!!!!!
Diane - it breaks my heart to hear the invitations .... so close and yet so far ....
Rose - I used to walk up and down the stairs on raining days when I couldn't run when I worked in Sydney - boy that sure makes you puffed. And you guys with grown up kids and looking so damn gorgeous ... is is just this thread but is there too many good look'n women!!!
Renee - you just have to walk in and out of the room and there are soooo many posts here - great news on your blood count
Mary - enjoy the visit from your family - when they finally arrive!!!
Lisa-e - my DH can fix anything but is getting really stumped these days as a lot of the stuff have microchips and electronics which just can't be repaired by the layman.
whoops got to go
xx
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yeah so I'm back and all you elves have gone into hiding again ...good thing I'm not paranoid ... or am I?? LOL
Rachel - don't get me started on tradesmen - we were going to renovate our bathroom and then I got diagnosed and we spent all the money on the Oncotype DX test ($5,800 with no rebates - lucky my score was a 6!!) so we have all the tiles, taps etc in our garage and we have to start all over again getting tradesmen - some showed up then didn't even bother to quote, some just didn't even show up and some charged so much that we are thinking we can do the bl*#dy thing ourselves... sigh ... another 1 year project ..I know your hair must look gorgeous - big big hugs my beautiful friend ((hug))
Kari - my DH and I always talk about sex (as in don't you think we should) but never really get around to it - that's just sitting in the top of my denial box but I am definitely going to unpack it soon. hugs.
So I am having a glass of wine, making dinner, checking in here to see if anyone has insomnia then football (rugby league) with my DH. TGIF
big hugs
Helena
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Hi Helena....no insomnia here just a little girl who can't sleep through the night for her poor mommy
I have been up since 3:30AM (45 minutes now) and contemplate staying up for the rest of the night or go back to sleep for 3 hours if I can even fall back asleep. I hate being up because my mind starts racing. Should I work, go through the kids clothes, watch TV, make my to do list for the weekend? WTH, go back to bed if you can right? I should try........enjoy your dinner and have a good evening.....baby crying again UGH. She loves her hugs.hugs
Diane
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You know Diane - I woke up after my bilat mast surgery and just wanted my mum to pat my forehead and say everything is going to be alright (she died when I was 10) - the power of a mothers love and also the power of the "inner child". It is so hard with sleep deprivation but wow what a great job we do being mums. Hope you get some sleep either what is left before everyone gets up or at least a couple of hours during the day. And we all love our hugs.
back at you
Helena
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Good Morning Ladies. Diane, I remember those days, my 4 yr old is still that way.
Helena, I know what it is like to lose your mom at a very young age. I remember crying at my graduation, b/c my mom was not there.
Sister and aunt finally made it at 9:30 pm. My sister and I stayed up until 3:30am talking. I am back up now for a dr appt., just PCP, not cancer related.
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Hey Mary - chatting till 3.30am - must have been wonderful. And I never want my girls to ever feel the sadness of losing their mum, not for a very long time anyway!!
Have a great day everyone - I am off to bed ready for another beautiful day.
big hugs
Helena
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Tears...... Mary and Helena.......I couldn't imagine losing my mother at such a young age. you are both so strong! I am grateful to have my mother still with me and like Helena plan on being here until I am 110 to give my 3 hugs. I don't care how old they are they will still be my babies.
big big hugs to you both
Diane
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Mary- Wow thank heavens your Sis arrived safely
And cool about your connection to the owner of the dealership... niiiiiice one.Diane- sounds like we'd have one helluva road trip with all these gals in their cars! I'd organize it. I have a little dream of putting my kid in the car and driving cross country visiting friends and doing mini drives. That was going to be to car club friends but hey, I'd love to give the finger to BC by making a joyous visiting trip by adding my BC pals to the route and the fun. Come to think of it, one of my car club pals was also on another list I keep for personal news, he heard about my BC and shared about his testicular cancer- with a pic of his new baby he wrote "Thank G-d for redundancy!" Wow that Zagato is one exotic car! Italian... wow! Your mini van is equally welcome
Renee- would a chamois help? I just got a set from ShammySolutions.com and you can pick colors. It's a car thing, I know how much water those suckers can absorb, and they go in the washer. And this time it's not chemo brain, this thread really does have a lot going on- 'cause so do we! Yeah baby. HURRAH on the good blood counts!!!!
Helena- a "blow out"? Like hair blow out at a salon? Blow out party? Blow out in the boob? Blow out in the bra? I am stoopid... what? Good on you for treating yourself nice in the bra dept. In a really good bra store the salesperson can be a big help! Augh, I feel your pain with the contractors... and in NYC there's a whole other dimension thanks to insane condominium boards. Getting the machine here in my rental took me 3 months of negotiations with the landlord, and doing the construction on my condo- was 5 years of work that was just about to be finished when the fire happened!!!!!! Six years later I am still out of my home, in court suing the building... how do you think I got the stress-related reflux disease and gained 30 pounds? And my hair... they stopped making the product I rely on last month so now with the humidity I look like I put my finger in a socket. I could date bozo the clown, i look like his sister.
rant on/...I have been in the sauce the last couple days, really upset and not sure why. Is it the impending start date for Tamoxifen (and the fact that i did not accomplish the weight loss I intended before the start) or not getting the house I want to rent or PMS or the washer dryer fiasco or the 3 newly DXd gals I am trying to help:
one with LCIS says things like "I'll wait for a recurrence and then consider an MX"- this from a gal whose Mom beat uterine cancer and is currently DXd with Stage IV BC ILC, the other, a surgeon who is African American, is starting RADS and I tried to tell her to press for the recurrence percentage of her LCIS/DCIS combo first and tried to tell her about Munchy and how if she has RADS now then if later she needs more surgery she would probably lose muscle control - and her surgical career- if she had to have MX later after RADs and wanted reconstruction, she ignored me and now wont speak to me, and the third, young gal in her 30s with 22 month old twins just DXd at Stage II, hasn't written back yet, or my RADs pal who is having chemo a couple blocks from me but wont say when because she doesn't want to impose on me...
or is it trying to organize this year's shipment to the troops with the Cookies for Kids Cancer mommy for the first time but she's a little busy taking her 5 year old to Chemo and RADS this week- but i can NOT let the troops and firefighters down for Christmas or is it the psycho Ex coming to town with his wife he doesnt love that he left me for and his 3 kids, two of which know he's sleeping around and the third who is left out, and they are all gorgeous and thin and healthy... or is it because I am holed up in my home because I HATE the hot weather and I am scared that I will feel like this heat all the time on Tamoxifen and I don't know how I will deal, already people comment when I am sweating profusely... which I do all the time and have all my life in the heat, and right after I start Tamoxifen I go for the hubba hubba nursery school interview... while i am sure they will be kind to me about the BC, its very hard to look like a sane person you'd want in your toddler's close knit school community when I'm schvitzing like something out of a B movie- will my son not get into this nursery school because of my damn BC?
and then beating myself up because I know that EVERYONE here is dealing with the same crap or worse so who am I to complain about anything????
But after all, its the washer dryer. The thing that gets me most is being taken advantage of when there is a CHOICE to do otherwise. This comes to play when we're booking appointments for cancer care, when doctors blithely overlook our complaints- especially those of us who came to the docs with a lump and were sent away. Bad enough there is cancer in the world, something that we can do so little about, but when there is a man made problem that doesn't have to be, that drives me around the bend.
I know it's the washer dryer because I finally reached a manager this morning (managers only work from 9-10am) and managed to schedule an appointment for the actual repair on Wednesday- a week and a half after I originally called for repair. They are the only factory service technicians for ALL of NYC, they only come into Manhattan 1 day a week, Wednesday, they sat on the parts order for a day and then put a "rush" on it meaning 2 day service instead of three, but its over a weekend and they dont come until Wednesday anyway, I never had a chance of getting the repair any sooner. So we have to make do for clean clothes for another week. At least. But having the actual appointment for Wednesday (they still wont tell me what TIME on Wednesday, so I rescheduled the kid's pediatrician appointment for that day) at least puts the end in sight. I feel better, so I know its abotu the washer dryer.
I'll use the coin machines if I have to, I'll put the kid on my back and go to the laundromat if I don't have a nanny that day, I'll reschedule appointments, I'll do what I have to do to keep life moving forward, and I will do the same with the Tamoxifen. If I sweat like a pig during the nursery school interview, I will smile sweetly and tell them its a side effect from cancer medications and stay focused and try to bring some humor in. I'll chew Xanax like gum to keep my spirits up. If we dont get into the school, I'll do like I am with the laundry, I'll make up the difference at home. The mommies are all powerful, they will get the cookies to the troops on time. I'll walk, I'll fasten myself in for the diet, I will lose the weight. I'll do what I have to do- just like you ladies do. Your example gives me courage. Yeah baby, I am going to be positive
rant off/
Thanks for being here ladies.
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Whoops, bunch of postds while I was ranting...
Diane- you got a baby too? LOVE your profile
My son never ever ever gets up in the middle of the night but last night he did at midnight. It was pretty funny actually. Slap me, go ahead, it's perfectly fair. I had only like 2 nights of that waking up when he was a tiny baby and I think my kid sleeps through the night out of self preservation. Oy oy oy. Definitely go back to bed if you can! 120 Diane, at least 120.Helena - I am so sorry about your mum, and you losing her at 10, oh man. Yes, many times I wanted to run to my mommy during this breast cancer crap. I make my mammo appointments on her birthday (also the day she died, but only in 2003 after a very, very, very long battle with MS) partially in the hopes that she is watching over me on that day. I was DXd on that day, I like to think she pointed to the cancer for the radiologist. YEAH I love what you say about your kids having you for a long time- mine too!!!!
Mary- so wonderful your sister and you can be together
Was your PCP appt much different post-BC? Hugs all...
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I been thinking about changing this song, Casey Jones Grateful Dead for the Tamoxifen train...
Riding that train, tamoxifen,
Casey jones i'm ready, watch me steam.
I want no Trouble ahead, I'll keep my troubles behind,
And you know that notion just crossed my mind.
This old engine makes it on time,
Take it in the morning bout a quarter to nine,
Helena says in Oz it's seventeen to,
At a quarter to ten you know its workin again.
Trouble ahead, get out of bed,
My ONCs advice and from all that I've readSwitchmans sleeping, train hundred and two is
On the right track and headed for you.
Tamoxifen train, high with my friends,
Casey jones is ready, watch your speed.
Trouble ahead, trouble behind,
And you know that notion just crossed my mind.
Trouble with you is the trouble with me,
Got 5 more years and then we'll see.
Come post on the thread, until this crap ends,We'll party and scream and sweat up streams...
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Rachel....my kids are 4 (girl) 3 (boy) and 21 months (girl). My youngest is a doll....super sweet, loves her mommy. My other 2 were a bit more independent so I take what I can from the baby
hugs
Diane
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Can't imagine going thru this with young children!! I still have my Mom and she has been a great help in this it has been hard on her she and my sister came out to see me yesterday it was great! I too plan on staying around for mine even thought they are grown and live in Vegas and Albuquerque. Look at it this way the tamox will help us reach our goals! Hope they contiue to make cotton, fans and AC to help out!!! BTW my youngest is 24 and the youngest because he did not sleep thru the night for 2 1/2 years!!!!! He is my wild child today and lives in Vegas go figure!!!
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It's amazing how fast this thread is going lately. Checking in once a week is not enough to keep up! Thank you for all your concern about my latest lump. At this point, I am thinking positive and trying not to think about the upcoming surgery. The worst part is just when you think you can put all the cancer crap behind you, it pops it's ugly head up again.
Rachel - I'm always so impressed by your knowledge! I think you did the right thing, warning your friend about the rads and later reconstruction. You did your best. Some people just shut down when they are emotional I guess. It's too bad. The PS I talked to does some great reconstruction work with your own tissue that would be OK for me, I just don't want to give up my ability to play tennis, climb rock walls, go rowing, etc.
Helena - My daughter had her tonsils out just before she turned five (and tubes put in her ears). Before that, she was always on antibiotics for ear infections or tonsilitis, she also had apnea because her tonsils were always swollen. Having those things taken out was one of the best things we ever did.
Carollyn - You must have very fair skin. It seems that everyone I talk to who had bad skin burns from rads was either a redhead or otherwise very fair-skinned. I wish I had some advice to give, but for me (olive skin) it was fairly easy. It'll be over soon
Rose - so it sounds like your hot flashes got better while you were off Tamox. Mine did not get better in the least. I do feel that my weight issues were slightly better, seeing that I didn't gain any weight during my cruise! I had my thyroid checked last week, thinking that maybe that's my problem, but no. Thyroid checked out slightly low, but within range.
Spring - Good luck on your upcoming surgery. I am right here holding your hand. I can't wait to hear how everything went. I am so happy to hear that this place in NOLA exists and surgery in which the rest of your body is not sacrificed in order to build new boobs exists! Yay! I can't wait to look them up and see what they can do.
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It is hard to keep up with the posts on this thread. As I am reading the posts, the thought that crosses my mind is that our lives are so complicated and bc and tamoxifen are just more things thrown into the stew. Well seasoned. . .
I woke up last night with calf cramps. Every time I tried to straighten my leg, it would cramp again. So painful. . .
Rachel, I like your lyrics.
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Lisa-e, i turned over in bed last night and my calf cramped up! What's up with that?
Rose, sounds like you had a good time at the dorms, heehee! I've never been to the northeast, its on my list...come on Helena, we can travel there together!! LOL!
Helena, you always make me smile!!!!!!!!!! And when we're not posting, we're sleeping over here or trying to sleep, with all the hot flashes and cramping body parts. AARRGGHH!! funny about the elves in hiding. I love the idea of your denial box too, hits home for me. Although made DH very happy this a.m....got lucky!
lots of Astroglide for me, whatever it takes...sorry TMI! 
Breaks my heart when you can't have your mom there to give you a hug. My mom died 4 yrs ago, and I miss her terribly.Rachel, geez what's up with repairmen in NYC??????? one of the most advanced cities in the world, you think you could get a friggin dryer repaired sooner. Sorry your mom died of MS after her long battle, my sis has MS and its hard watching what it does to her. Funny...chewing xanax like gum!LOL!
Diane, your younger DD reminds me of my younger DD at that age. I could not get enough hugs and love from that kid. My older DD was always more independent.
Carollynn, Vegas baby!!!!!! haha Bet you miss them, huh?
Hugs to all!!
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