Bottle o Tamoxifen
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weight also $$$$ issue... i want 2 wear clothes a have not buy new. also fat not good 4 fighting cancer, makes estrogen. munchy they are nuts!
179days for what?
happy 4 kari and mary fun
i am aok just stoopid cnt type
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we are told we are vain but is 100% legitimate concern.... look good feel better
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Helena, hope you get good news, keeping my fingers crossed for you, and Munchy, I hear you with the vanity thing!
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Helena: Wishing you good news...and keeping my fingers crossed for you
Rachel: OUCH! Sorry to hear you're hurting...I know how much that smarts! Take care.
Mary: WHOOOOOHOOOOOO !
Lisa: WOW ! You are a busy lady!.... Now, do tell about the free botox???!
Leggy: Too funny!
Day 10 of Tamox and no SE's yet. Well, maybe just a slight headache. I take the pill before going to bed and sleep like a log through the night...go figure!
Terri
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Hi gals.....can someone talk me off the ledge I am on? I got a call from my gyno that my routine pap showed abnormal uterine lining cells. WTF is that? Of course the idiot who called me told me not to worry that it probably isn't a big deal. Yeah, that's what they told me during my biopsy and 2 days later oh shit sorry you have BC. I am going in Wed for a biopsy and hope that the doctor can give me a reason to believe it is nothing. I called my onc to ask if Tamox would have had an effect yet....only on it for 6 weeks now. They told me probably not. So I get biopsy, go on vacation with family....great that should be lovely all the while worrying that I have some other cancer lurking in my body. Am told it could take a week for report to come back. I can't wait a week for this. I want to enjoy my vacation.
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My typing fingers are back!
I didn't mean to complain about the fingers, but I know if i don't post someone will think I have fallen off Earth. OoooOOoooO so nice to be able to type again!!!!Really, Munchy, you make a lousy anorexic. Ten pounds? Can't you come up with something more unreasonable? Where's the drama in 10 pounds? (Apologies to any anorexics reading this, I understand your disease is real, but what I am making fun of is when people mistakenly call someone anorexic.) Still, if insurance pays for a shrink b/c they told you to go, why not go take advantage of the sitation? Go let it all hang out on someone whose job it is to listen? Get your yayas out.
OK still waitin on Helena, gonna put fingers back on ice- ouch
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Good luck Helena, Spring and anyone else this week!!!!! Mom sends her best wishes..............
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Good wishes going your way Helena!
Went back to work today, will be going back on a reduced basis and work some days from home! Am happy about that, part of me wants to quit but I know that I am an asset and with things slow this works for all. Had a great time tonight taking a walk in the woods and picking blackberries! Lots out there we will go again in a few days. Will take some pics next time.
For those of you who have used the sleep aids, Ambien or Lunseta did you find after you used them for 7-10 days and then stopped that you slept better or no? They work great for me but do not want to get dependant. I used them for 5 days and then went on the cortisone pack so stopped cuz it didn't work and did not want to waste them. Just wondering what kind of results some of you had.
One thing for sure we are all "real hot ladeis!" Good evening to all, Lisa YIPEEE, Rachal, feel better soon , Spring hope all is well, sorry if I missed anyone.
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quick post ... my results came back "inconclusive" - I have 5 "Missense Polymorphisms" (4 on the BRCA1 gene and 1 on the BRCA2 gene) which are identified as changes but not known how they relate to breast and ovarian cancer. hmmph. Needless to say I am googling all over the place and have a call in for my Onc. They could mean that I will get breast cancer .. oh no.. oh yeah, no real breasts
Rachel don't even try looking it up with those smashed fingers - how horrible for you - and your typing is atrocious!!! LOL Poor one.
Anyway off for a big long walk (non-running day) to clear the brain - and although I am not a religious person all your beautiful thoughts and wishes have been like prayers to me. I love you guys so much... Ok time to get out of here...
big hugs
Helena
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Diane- was it maybe close to your period? I'd get that all the time if my pap was near my period. Nah, don't think anything could be from only 6 weeks of Tamox. Weird scene, on one hand every good doc is going to look for cancer first from now on even if you stub your toe ... oh? Toe hurts? Check for cancer first... and you want them to do that, but it sucks. Alternately, before you got the one bad BC test, every other test in your life musta come up clean, yes? I think we all think after that one unbelievably shocking cancer result, we think from now on its all going to be bad. In any case, you had pap last year right? it was clear, right? You did chemo fcol, if there was cancer hanging out it had a bath. Did you go into chemopause? Even if you didn't I bet your uterus was pretty well pissed off with all the goings on.
Whatever, until and unless someone says you have cancer you dont have cancer. You dont have cancer. Go on vacation, have fun, why not? If you really want to know first,, ask if you can wait for an opening Tuesday. The sooner you get it the more likely it could be back before you go away.
Hugs
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Rachel, At first they couldn't see me until Thursday....I called back after my quick cry WITH my kids in the car waiting to go into the bagel store which never happened......I asked could I be seen sooner? How about Wed? How about you calling me if anyone cancels tomorrow? I want this shit done! I am doing OK but I don't want to tell anyone about it if it is nothing. UGH. I hope tomorrow is a better day. I hate this shit sometimes. Usually I am upbeat and positive. I have been feeling so good and now this comes up. Of course I have been all over the web even though I really don't have any symptoms of anything. And yes, my pap was clear in May of 2008 and I id go through chemo. The only thing sitting in my mind is I had an enlarged inguinal lymph node in May right before my last chemo. My onc thought it was due to chemo. Hmmmmmm....I can guess this shit too and I don't have a degree.
Helena......interesting result. I didn't realize there were variations to the gene test. I hope your onc is able to answer your questions....BUT no boobs now so....what next?
hugs
Diane
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Helena--I was just about to send you some of my famous "positive energy" when your posting popped up, and I am sending it right now! I wish I could offer some wonderful insight about inconclusive gene testing; I can't, but I will remain hopeful that your contact with your onc will help you to find peace of mind. I hope you bask in the glow of your long walk and come back feeling energized. I know you will keep us posted and that you will remember we are thinking of you!
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wtf Helena, they make you wait months, then make you come all the way in to tell you the don't know what the results mean? Sonovabitch. Girl you know I'm gonna google, I'll even Bing. Well they DIDN'T say you have the genes that they know make trouble. They really do have kangaroos in the labs there
diana, I'll be googling and binging your "inguinal lymph" stuff and be back asap
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Diane--I hate that you are going through this, and I hope your MD will give you some very good reasons that you should not worry. I agree with Rachel: it's great that cancer gets considered and ruled out as quickly as possible for those of us who have had cancer, but for those of us who have had cancer it's really stressful to always (or almost always) have to think about cancer first. YIKES! It gets so old! I have had varying degrees of success in redirecting my energy and attention to other areas of my life while waiting for testing and results. Sometimes I use a lot of positive self talk and logical (or what I consider to be logical) reasoning; other times I meditate for relaxation, stay busy, do something fun, make myself laugh to blow off steam. I know that I have felt less anxious when I know that others are supporting me, so please know that you have a group of wonderful women here who are hopeful for you!
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OK Diane- all i can find so far is that enlarged inguinal lymph is usually something other than cancer, but just in case it would be, they have to do biopsy. No other way to tell, but no reason to believe this is more likely to be cancer than the usual stuff. You said you "had" enlarged inguinal gland - did it go away? Why didn't they biopsy it then?
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Helena- you are also Queen of the Meaningless Test Results... your CA 125, your CYP2D6(?), and now your BRCA. When you flip a coin, does it often stand on the edge? Well for starters there's this bizarre study they did, which purpose was simply to discover how stressed out women get from their BRCA test results. Stunning, shocking results: Women with good results were the least stressed out, women with bad results were the most stressed out and women with inconclusive test results were in between. Wow, what a revelation. Not. Kinda like the government study on cows farting. OK... here's he best blurb from that study relevant to you:
The researchers assessed psychological adjustment in 215 women who were given DNA testing results for BRCA gene mutations associated with hereditary breast cancer... Overall, 37 women tested positive and 31 received a "true negative" result for a BRCA mutation that had previously been detected in their family.
147 women had inconclusive test results. This means that while they tested negative for an abnormal BRCA1 or BRCA2 gene, their family or personal history suggests that they may have another undetected abnormal gene that may raise their risk of breast cancer. These women also had less worry after testing, but their relief wasn't as large as the women with true negative results.
They followed these women for over 4 years, but there wasnt any data on how many of the inconclusives had some recurrence or new cancer- just stress. They dont mention it but geez, more than half the women tested had inconclusive results. I guess explains why they don't like to do BRCA testing. Inconclusive means they don't know. Maybe you're an XWoman, like Wolverine, or Hugh Jackman, even better and Australian. They don't know, dunno, no clue, its like they didn't even do the test, except oh well they have some more data. Maybe someday they'll know what your genes mean, thanks for playing Let's Make a Gene Deal.
Hey- you are not positive for the BRCA 1 or 2. We KNOW that. I say, party.
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Diane - move over on that ledge - it always helps to have company ... yeah it's the gift that keeps on giving - can someone just send us a card for once?????? I really felt I was making headway with my life, even managed to paint a door - you know something more than the usual superficial house cleaning that really isn't achieving anything. aarrggh. Diane biopsys are the pits honey... what Rachel said does make sense though.. but we all know it is crap to not worry about it.... a week for the results that's rubbish ...ggrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr
Sorry Brenda but reading Diane's post just made me reallllly aaannnngggry!!! Vent, vent, vent. I will be calm but not just yet.
Everyone else I am sorry about not responding to all your great posts - so much great stuff you guys. Munchy if I even told my doc about my eating/weight stuff I would be institutionalised!!!!!!
Hey Rach, of course you are googling (smile) ... don't worry I have seen it all ... I found a good one which I printed out which basically says "we found no association between blah blah blah for any of the polymorphisms and risk of breast and/or ovarian cancer in either study (study was on 5,743 women over 39 years).... sounds good enough for me ... well that's bulls*#t but it will be in a day or so. And yes I am not BRCA1&2 positive. You are the best ...hugs.
STTTTTUUUUUUUUUUUUUUUUUUPPPPPPPPPPPPIIIIIIIIIID FBC.
big cranky faced hugs
Helena
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Helena,
Just keep venting and I will listen. I agree you in stupid bc.
So far today at work I have made at least 6 big mistakes and then proceeded to break the copier.
Brain just not in today, but that's the thing before all this I was sharp, bright and focus. Knew I should have just jumped back into back and pulled the covers over my head.
How did you daughter's netball grand final go? I know I got partly through the winter by watching DD play netball as it made me happy and not think about SFBC.
Big Swiss Cheese Brain Hug
Viv
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he he he swiss cheese ...he he
thank you so much Viv ...just what I needed to cool me down ... if the day isn't over yet you may get up to 10 biggies LOL. Hey it's not over is it ...you are here in Oz... weird hey.
Sigh. My daughter (Vivi) of course, won their semi and heading towards the final on Saturday. thanx for remembering ((((hug)))
And Rachel is going to hate me for doing this but sorry everyone for being a downer AGAIN but I don't want anything to happen to you guys - I want us all to talk about stupid hot flashes and Lisa's dates and Mary's car and Rachel's sweaty bear suit. Oh no here I go again. Time for pulling out the big guns... I am going to have a cup of tea and put some day time telly on to numb the brain.
hugs
Helena
Ps. Rachel what is bing... chandler bing?
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ha ha ha leggy mum sending wishes hahahahahhahahaha
Spring --- big hugs while we can (((((((((hug)))))))))))))))))))
Terri - day 10 rocks ...
Ok where is the remote.
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Hello Shannon... I am just browsing through the Bottle 'o Tamoxifen thread as I am trying to decide on taking this or not for myself. I know I'm responding to your reply from 2007! So have you been taking Tamoxifen for about 2 years now? How have you done? What were some of your side effects? I also have had a lumpectomy and am about 1/2 way through radiation. Doctors recommend Tamox for me, but my tissue can't be tested for hormone receptors and I am dreading side effects of this drug, including joint issues as you and a friend of mine (and others!) described.
I hope you are doing well now! I understand cancer-fighting effects of Tamoxifen last 10-15 years AFTER finishing drug. Wow that's potent!
Blessings,
Nancy (regina21)
P.S. Do you know what "radiation recall" is???
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eh, what am i going to hate you for? what? you not a downer! silly girl. Sounds like vivvy works in the lab that does your test results (hugs vivvy)
what is netball? volleyball?
bing.com is microsoft competitor to google.com
btw I tried the little bear suit on my kid and I tried on the big bear suit and some of the rest of the parts I assembled for the halloween gig... was a great laugh.
My costume is SUPER ITCHY though... pray for a cold H'ween please. I gotta wear long pants and sleeves under that thing. Here ithey are, but I ain't wearing that head... gotta work out something else like make up and ears, ordered the hat, got collar and tie for me, ordered a purple bowtie for the kid, got a picanic basket, need to put some Jellystone Park Labels on things... 
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hey.. I'm here ..just pretending to watch Oprah or Day of our Lives or something ... really sad
You told me to stop apologising so sorry I won't apologise any more
I think I'm going loopy in order to save my sanity ... does that make sense ?? what the
Netball is like basketball but more girly. But there was nothing girly about some of the mums last nite - geesh, pull in the claws.
Cute suit and I reckon your little guy is going to be just as cute as you ....
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Helena, out of the bajillion genes they know what like 2 dozen do. What they know is that mostly, yours don't. What they know about your genes means not cancer. And... OncotypeDX 6 baby. That there is really nice. Have a glass of wine, fast forward to the bitch scenes on the soaps (I do) and forget about this shit. Test results are in, you don't have the genes they know do bad shit.
If you come to NYC I will fit you out as the Park Ranger
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Good Morning ladies. Helena, I am so sorry your test were not more "complete" a simple yes or no would be great. ((((HUGS)))))
Spring hope surgery went well((((HUGS)))))
Nancy, welcome aboard. just remember that we sometimes vent and that most of the se's are manageable. Good luck..
Rachel, 179= the number of school days left!!!!!! so now it is 2 down 178 to go. Pa scholls have 180 day school year. Glad your fingers are feeling better. even with both hansd and good fingers I still csan not type.
Diane, I will pray for you,b9,. (((((((HUGS))))))
Have a marvie day all.
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Thanks for all the well wishes........I am going to have myself a good day today. Keeping my mind out of things I have no control over. I will check in later today!
hugs
Diane
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My regular MD just wrote me an email to boost my spirits!
She said that the report I got back on my pap is a very common finding....I hope all in a good way.
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Helena and Diane - I was disappointed to read your posts about the test results, but then after reading the rest of the posts and your later ones, it is definitely more encouraging than what first appeared to be. I think we're going to be getting a lot of "weird" test results for a while, and yes, I agree, every doctor will be looking at every thing going on with us as a possible cancer - while alarming, is probably a good thing. But, I can only imagine the emotional rollercoaster you guys are on right now. Diane, good luck at the docs with the biopsy - just know you will be okay!! Don't you have a trip to France coming up soon?
Spring, how are you doing, sweetie? Hope your surgery goes smoothly - keep us posted.
Day 5 on the tamox train, with the equivalent of two and a half tabs so far - and just really noticing increased flashes (or power surges!). It was about week #2 with Femara that I noticed the odd se's that I'm prone to have, so I'm thinking if I'm going to get anything weird, it should be next week. I was on half tabs then too. Doesn't take much to set off a reaction with me.
I was using Ambien from early in the dx (Feb. 2009 - once I was dx'd, I could not sleep at all, imagine that!) and just only weaned myself off of it - now that I'm not having so much pain in the radiated breast, I can sleep comfortably and did so gradually - using half tabs for about 2 weeks and now nothing. Since menopause in 1997, I've noticed I am not the best sleeper - always have been a light sleeper - and meno really can mess you up - sometimes insomnia is a part of it, and I used to have a lot of those nights when only a benadryl would do it. Now, can't take benadryl at all. I did refill my last Ambien prescription and will keep it as backup for those occasional nights. I was worried I wouldn't be able to sleep without it, but after taking it nightly for 6 months, it didn't interfere with my natural sleep ability. And it is a godsend to get a deep sleep, especiallly the ambien CR, which I had samples of, but opted for the regular ambien, because my insurance plan gives it to me cheaper that way.
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Chelev.....leaving Saturday to the Outer Banks.....it will be fun but having the results before going would be better no matter what they are. I am not telling anyone unless I have to.
Diane
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chelev- lots of wise words there woman
spring- i keep wanting to wish you well on surgery and then i don't because you wanted to forget abotu it but rather you know my support is with you so I will leave it at that and stfu :X :
diane- what a wonderful caring regular MD to do all that- monitor the test results, email correspondence, wish you well- that's just fabulous! And yeah, is very very common result. Hang in there
The only thing you'd regret is wasting fun time worrying. Have fun time, it's ALWAYS a good thing to do! where is outer banks?trying to save fingers, tomorrow is washer dryer guy (I hope) plus no nanny for kid plus drs appt weds or thurs... gonna need hands!
wonder where outer banks are...
hugs all...
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