Bottle o Tamoxifen
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Tink I'll be with you.
Hey tammi babies three months ago my MO wanted me to start taking Fosomax. I got the script but never took it. about a month ago my pain dr suggested that I needed to take it as well. I am 49 and pre-menopausal so I was a bit confused as to why they thought I needed to take it. So yesterday I talked to my MO about it and he said there is a study out there that shows that women on bisphosphonates have a lower recurrence of bc. I had not heard that discussed on any of these boards and wondered if anyone else has heard of it. I googled and found an article here on BCO http://www.breastcancer.org/risk/new_research/20091210.jsp
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Paula - I definitely bruise much more easily than ever before - I went to the dr. last week for strange bruising and was pretty much very embarrassed that I even worried about it.
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I feel better already knowing you wonderful ladies will be there with me. I really didnt think i was anxious about it at all but I guess maybe a ittle
... thanks ladies you all are the best!!! hugs!0 -
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Got the rest of my blood work back from my MO visit on Tues. My Vit D is up to 57.6 Dr wants it to be at least 60 so I am closs and my tumor markers are down, which I am very happy about. Last visit one of them had tripled and had me a bit worried, but now it is way down so good news. But I just love when I ask the nurse about these and she tells me my vitamin D level and then tells me my tumor markers are in normal range. I had to ask her what the numbers were. Guess she has not figured me out yet that I am a detailed person. If I wasn't I would not be following up on my blood work.
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Thanks Patti. I thought that it had to be a connection with them both. I was very low on all kinds of stuff while I did chemo and didnt bruise. I did a search and it took me here and some other gals had the same issue. They posted it does get better. I hope so because they look hidious and not only am I still bald I have these ugly bruises on my arms.
Welcome PLJ. The gals here are a great group. Good luck with the SE.
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welcpme PLJ so sorry we had to mee t under these circumstances but you have come to the right place there are a wonderful supportive group of ladies here they are there to smile with you and cry with you! we are here for whatever you need! hugs!.. I looked at my pill bottle for days when i first started its normal, one day at a time is what we try!
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PLJ - Welcome aboard the tammi train. This is a great bunch of gals - real supportive when we need to be and wild and crazy at other times.
I have been on Tammi 6 months now and no SEs to complain about. When I picked up my script I said to myself - "What the hell" might as well take the plunge and go for it - which I did and have not looked back. Yes, there were some bumps at first and I hav always looked at this as an added insurance policy. Only have 4 1/2 years to go.
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Hi all,
Well last week I reported that I was going for an MRI on my knee and was worried that my severe pain could be a metastasis. Well I am ecstatic to report that there is no evidence of that (YEAH!) however I am pretty upset about what it does show. I have a badly badly torn meniscus, which I don't remember doing, but even worse, I have Grade IV (i.e. end-stage) arthritis. This is as worse as it gets: bone on bone.
The doctor asked me, haven't you been in a lot of pain? And I said you know 3 weeks ago I could run 5 miles no problem and now I can't even walk across the parking lot. It looks to me that I have developed severe arthritis at an alarmingly fast rate and I am convinced it is due to tamoxifen. I am not saying everyone will get this but it looks like for a small minority this is a possibility and I have found some articles which lean in that direction, here is one:
http://rheumatology.oxfordjournals.org/content/33/6/583.abstract
When I say that this has come on all of a sudden, I am not exaggerating! I will be contacting my oncologist tomorrow and seeing about getting off this stuff, though it might be too late, you cannot reverse arthritis. But I am just putting this out there so that people are aware of the risks!
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Hi, guys. Been a while, as I flew here on July 1. Am here with my 14 yo daughter visiting family, in Pa and NJ. Nice to be with family but hardly a moments down time. I missed checking in. You've become my mini-virtual support group. As wonderful as it is to be with family, I don't want to burden them with my worries or complaints. We do speak openly, and it doesn't come up that much, but I see that any BC talk tends to make fam uneasy. I understand, which is why I'm here for a fix! This is my first visit back since dx, first time seeing many of these people and everyone just wants to see me healthy and back to normal. They love me, and this is sweet of them, but at times I don't feel totally normal. Am way more tired than I used to be and think it's a combo of jet lag, tamoxifen and Lupron shots causing horrid hot flashes all night. Also more emotional and weepy. Oh, well, trying to go with the flow.
Paula, I had horrible bruising at the beginning and now that's all gone away
Sherry, glad your bloodwork is good. Sorry about the pain, still. You taking omega 3 tabs.Ithink they've helped me with my hip pain. Still there but less.
Jo, nice anniversary story, thanks. Made me smile.
Surfette, good luck with your knee!
PLJ, welcome.
Sorry if I forgot anyone, have a great weekend!
Shari
Surfette0 -
Welcome Back Sari! Its always nice to come back here after a vaca. I know what you mean about this place and family. Even though my sister went through this also I cant talk to her. She has went into her own little world and dosent have the time, so I come here to be with you gals now. Its good to read the bruising is just a temporary SE. I just cant imagine going 5 years looking like I got into scuffle. Have a good time on the rest of your vacation and enjoy.
Tink, Sherry, Jo, PLJ, Patti, and Surfette have a great Friday also.
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Hi Shari welcome back.. i agree with Paula this is a great place to come back to, total and true acceptance and understanding, never feel when i come here that anyone doesnt want to hear it good bad or ugly lol...
Jo where are you today my friend???? miss you too!
cloudy here today, but we could use some rain, so not complaining if it does decide to get alittl wet around here..
will be a week tomorrow i am off tamoxifen for surgery and really dont feel any different, but i think i have been very emotional this week with yesterday being yr since my big surgery and another one comig next week and through in a little pms and what a mixture that makes huh? lol...
have a great day tammyladies... hugs to you all!
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Hi girls ~
Happy Friday, Cloudy depressing day here as well. I am getting sick of so many kids over. (isn't that awful) I only have 2 kids, but I guess they are popular so they each have 3-4 friends here. All I do is prepare meals and snacks. I swear they think I am Betty Crocker. I am feeling jealous of hubby going to work and having breakfast and lunch in peace.
Surfette ~sorry to hear of your arthritis. BUT I am glad it isn't the dreaded c word. I see my onco in August and will be asking about this bone pain.... scan was all clear. I feel like I am 100.
I think we could all use some of this today !!!
Hugs my friends !
Alicia
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Alicia..what a great idea and yes we could use some of tha looks great!!!!!!
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LOL Alicia, I remember those days. Ugh, that seems like all I did was cook. Now that they are to cool for me I miss it. Enjoy it while you can lucky girl, lol. Thanks for the yummy treats, Betty Crocker, lol.
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Surfette-I have been having severe pain in my left hip which my pain Dr says is arthritis and he believes it is from my radiation. I saw my MO on tuesday and he said that 6% of people on Tamox will get arthritis. He is not sure if mine is cause from rads or tamox, but he believes that is what I have as well. My hip xray showed clear but my pain dr said he is going over to the hospital and look at it himself. He said he does not always agree with the radiologist and will give me a call.
Shari glad to have you back we have missed you.
tink, alicia and paula hope you all have a wonderful weekend
Where is Jo and June. I have been thinking about June so much and she has not been on here.
I went to the Pain Dr this morning at least now I get to see him every 3 months so now all my Dr's are on a every three month schedule so I can have a break in between. The only thing I have to have an MRI of my neck from my old broken neck injury from 1995. I have always had nerve damage to three of my fingers on my left hand. In the last month the other two fingers have gone numb and I have had more tingling in the hand when doing yoga. The tingling just started this week. My rads was on my left and I suspect and he agrees that he thinks the nerve was in my rads field and his causing me problems which I am pissed about. It does not hurt it just scared me when my hand starting tingling. So he is sending me for an MRI so he can see what is going on with my nerves. He said he does not think I will have to have surgery since I am in no pain and I have not loss any strength in my hand, but if it does get worse I may have to go back to the neurosurgeon. Please pray that it just stays the way it is. It has been stable for 15 years and I just never thought I would have to deal with any of this again.
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Tink - I;m here girlfriend. Been busy this afternoon, It is really hot here so trying to stay inside as much as possible. Had to go track down some repo homes for the boss who will be down here next week. Doing the leg work so all he has to do is go to the ones I think he would be interested in.
Alicia - The ice cream treats look marvelous. DH and I stopped at Dairy Queen this afternoon for some of that stuff. That is one thing I do like about summer - ice cream!
Sherry - Bummer about the nerve damage and pains. I know what you are going through. Will keep fingers crossed that you don't have to do any more surgery and you can get some relief. Good to hear that you don't have to see any doctors for awhile. I am still trying to get used to it myself. I keep thinking - "WTH am I going to do with all the free time?" Kitchen make over for one thing.
Speaking of the kitchen makeover. It is just about done. All that is left is the new doors have to be installed in the morning. We are just waiting for the polyurethane to set really well.
(((HUGS))) to those who are not feeling well. Just remember, tomorrow will be a better day.
Hope everyone has a fantastic weekend.
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Ladies I know I have been MIA, just couldn't bring myself to pop on here, not sure why. I think I really just needed to process my emotions on my own. Been having my stomach issues back again, I am sure the Ulcers popped back up again, but I am all over it and popping those prilosec religiously......I miss you all and have so much say, and I hope I remember everything I read.....
SandeeI am so thinking of you and know you will make the right decision....I got your PM and thank you for thinking of me......hugs my friend!
Jo congrats on was it 38 years, damn girl and you look so marvelous and so much in love today.....I miss our chats but I do get your emails regularly....
TinkI know you had a fantastic trip but wanted to say Hi sweetie......I will also be on board during your nips and tucks and I will make sure this is your last appointment.....
Alicia, miss you and glad you are now on board with Jo and Chabba by feeding us ladies.....yum yum.....thinking of you and hoping you and your family are doing well.....
Sherry my friend, how are you doing? You have so much going on in your life, not sure how you do it.....thank you for thinking about me, it has been really rough and I miss him like crazy but I do know with time it will get easier......I hate the going through his house and getting it ready to sell......we need my Mom's signature and she is in a Nursing Home, not sure how we are going to do that.....Mom was really suicidal the first 2 weeks and she seems to be doing so much better, I hope she stays that way.....love you and thank you for being you!!!
Welcome to all you newbies looking forward to getting to know you all better, these ladies are the best support anyone could ask for!!!
I know I am forgetting some and I am so sorry......love to you all and where are all the men hiding????? Tink has them doesn't she????
Love all you ladies and thank you for being there for me during this most difficult time......HUGS!!
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JUNE..I do i do hahahaha
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June I am so glad you popped on here. I have missed you my friend.
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Sherry I edited my note above as the brain is just not working these days.....I miss you too, LOTS!!!
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June - Oh Sweetie - how I have missed you. Come here and let us help you sort it out. Sometimes it helps to use others as a sounding board. I do also understand the need to go it alone. Hope you can find a time when you are able to get back on here and we can start up the Friday night pillow fights.
Love & Hugs to you my dear friend!!
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June I hate that things are so hard for you right now. It is so difficult when our parents are having a rough time. I am glad your mother is better. I know the house thing is difficult with all the memories that you have there. (((((((((((((HUGS))))))))))))))
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Oh Jo I am ready and I just whacked the S@#@ out of you.....sorry Hun......ha ha I could really use some of your fattening drinks in the caboose chickie.....
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June - You asked for it - you got it sweetie!
Before you pick up your drink - here's to you - WHACK WHACK!
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ok if there is going to be whacking going on im in.... so whaaaaaack!
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Tink - What those wings of yours - wouldn't want to damage them - WHACK!! WHACK!!
Let the games begin!
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Wack, wack to you ladies, heading for bed got to get up early so I can go play with my girlfriends tomorrow. Going to wimberly which is 1 1/2 hours from here. gonna shop and have lunch. I'll check in tomorrow night.
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Sherry - have loads of fun - you will have to share your day with us later.
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oh reeaaallllyyy.. my wings are on tight tonight! so whack whack whack!!1 hahaha
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