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Bottle o Tamoxifen

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Comments

  • Paula66
    Paula66 Posts: 1,572
    edited November 2011

    Oh no you didnt June the first whack is headed your way, lol!!!!!

    See Tink, June shoulda been on that list, lol!  Now she is seeing things.  A big giant pillow coming her way, WHACK WHACK to you June!!! 

  • summergirl1
    summergirl1 Posts: 27
    edited November 2011

    Hi ladies , I am new to this site I was DX with ILC in May 2011 , had MX am currently finishing chemo then 5 weeks of rads and then have to go on Taxoxifen for 5 yrs , as many of you have already started can you please give me some idea of what side effects to expect ,I know one is hot flashes , I have been lucky so far on chemo and havent had any so im hoping I can skip this SE ,Thxs so much !!

  • tinkertude
    tinkertude Posts: 1,998
    edited November 2011

    Paula  hahaha your so right ! lmao!

  • Elizabeth37
    Elizabeth37 Posts: 43
    edited November 2011

    Hi I also have joint pain,Talked to Dr today about it and he said Tamoxifen would not cause that. And I might want to get checked for arthritis.Come on people I am 37 years old I don't have arthritis,I just don't know why they cant say it is a SE But oh well all my blood work came back good today.Still tinder on my right side don't know if it is from surgery or RADS and now go back in 3 months.Hope you all have a great weekend. I am going to sit down get my Pj on and have a glass of wine.

  • MamaV
    MamaV Posts: 373
    edited November 2011

    summer - welcome!  Congrats on finishing chemo!   I hope rads will be a breeze for you! I was lucky to have hot flashes like crazy during chemo so of course, they continued when I started tamox.  Hopefully your luck will continue.  I had a little hip pain when I'd sit still for too long, but now that I'm back to working out every day, the joint pain is gone.  So many possible SE from tamox, but not everyone gets them.  Good luck!

  • Paula66
    Paula66 Posts: 1,572
    edited November 2011

    Hi Elizabeth. I have had a different kind of experience with my onc.  I complained of joint pain and so she sent me to a rheumatologist for it. He told me that its from the Tammo and he has seen it before with women my age.  I am only 45.  He says that older women who take it dont put it together with it because they just chalk it up to arthritis.  He gave me maloxicam to try but it didnt really help.  When it gets really bad I just pop 4 advil and that helps ease it up.  Hang in there!  I noticed my skin is dryer then it used to be so I make for sure that I dont skip lotion after the shower for sure.  Hot flashes are my main issue.  Good Luck with the pain.  It does get better.

  • cfoster
    cfoster Posts: 1
    edited November 2011

    I am a newbie, been on Tamoxifen just over 10 days, can't open medicine bottles, walking like old lady, hands hurt, all joints ache.  Now I see that it is the Tamixofin.  Man, if this is day 10, what next?

  • SAB
    SAB Posts: 1,121
    edited November 2011

    Hi Summer.  I'm only on tamox 1 month.  Worst SE so far has been pain in feet/calves at night a couple of times.  Very manageable.  I will add that I was already having joint pain and hot flashes, so those were zero sum SEs for me.  I hope you do well and have minimal problems. 

  • summergirl1
    summergirl1 Posts: 27
    edited November 2011

    thxs Mamav for your reply, and yes 2 more weeks of chemo then done yeah, I have been lucky not many SEs with chemo except for pain on surgery side it seems to get worse with chemo, I too am hoping rads will be a bit easier and then I will have the lovely Tamox to deal with , I guess I will have to wait and see what SE I get I am trying to go back to the begining of this thread to see what other SEs people are having , hopefully wont get the Ht flashes although it would be a difference as I am always freezing cold, LOL good luck to all .

  • gunner
    gunner Posts: 31
    edited November 2011

    Hi ladies still recovering from my clot in left calf caused by tamoxifen. I had painful muscle crampa

    especially at night pay attention i thought i pulled a muscle horrible experience on coumadin for

    3 months no more tamoxifen for me im feeling good though.

    Tak care all

  • bcisnofun
    bcisnofun Posts: 117
    edited November 2011

    Hi - my SE's are hot flashes, but not too bad.  I try to think of it as a reminder that Tamoxifen is working in my body.  I have had some toe cramps - sounds like no big deal, but ouch!  I had some weird eyes and headaches in the first few weeks but that went away.  Also had heartburn for a few weeks but that went away.  A little joint achiness.  I consider myself lucky!

  • SAB
    SAB Posts: 1,121
    edited November 2011

    Elizabeth, how long were you taking the tamoxifen before trouble started?

  • June2268
    June2268 Posts: 926
    edited November 2011

    Summergirl- I never had to go through Chemo, however I did have rads and started Tammi on the last day and I had one hot flash accompanied by nausea and have not had one since.....it has now been a year and a half.   I do feel like I am getting warm flushed lately but I am turning 46 soon and think this is all related to peri menopause.  Hopefully you will not be affected, I will keep my fingers crossed.!!!

    Cfoster- Hopefully the SE will subside as it gets into your body.  I had so many little weird SE in the beginning and worked my way through them.  Welcome aboard!

    Elizabeth- I hear you about the pain.  I hate when my MO blows me off and says it is not a SE....I have never felt like this in my life and some days I feel so darn old and I know I am not!!!!  Almost every site you go to for SE list joint pain as one, why cant they just admit it.

    Paula you are trouble and always manage to make me LMAO......thank you for that and WHACK!!!!!  but kiss kiss to go with it!

  • Elizabeth37
    Elizabeth37 Posts: 43
    edited November 2011
    SAB I have been on tamoxifen for three months I would say the joint pain started about two months,At first I couldn't sleep but that is better now just have some weired dreams but not all the time I do get hot flashes.And I got very mean,and i didn't want to be around anyone because i would just go off , I felt like I was going crazy.But doc put me on  Celexa and that really helped ,I do feel pretty good now except for the joint pain but I just try to take some Advil.I do think the longer you are on this med the better the SE are
  • jo1955
    jo1955 Posts: 7,545
    edited November 2011

    Haven't been on here much lately.  Been crazy busy at work.  I miss you wonderful ladies.

    Welcome to all the newbies - Hope you all have little or no SEs.  I have been on Tamox for 11 months now and very few hot flashes, no other complaints.  Oh! By the way!  I went through menopause 3 years ago -can't take any of the AIs.

    Hope everyone is doing well.

    Hugs

    Jo 

  • peg119
    peg119 Posts: 190
    edited November 2011

    Joint pain is definitely a SE.  It does seem to come and go though.  Keeping active helps.

    Just wanted to give an update on my brother that had the leg amputated.  He was up yesterday for the first time since September 8.  They were fitting temporary prothetic leg and he was able to walk the length of the parallel bars.  He has done so well and has an amazing attitude.  He is even surprising himself.  I had goose bumps yesterday when my sister in law sent a picture of him standing. 

  • Summer
    Summer Posts: 1
    edited November 2011

    Hi Ladies, you all sound like a wonderful group of women.  I have been on tam. for 2 full yrs., and quit taking it 4 wks. ago, 1 wk before my BMX.  I couldn't cope with the severe and frequent (every 30 min.) H.Flashes any longer.  Also I had thickening of my uterus which thankfully was not cancerous.  Since quitting the tam. the H.F. are mild and less frequent.  I have been researching tam. and I'm not sure if I will go back on it.  I'll be seeing my Onc. next week. I am hoping that he does not recommend that I should go back on it; apparently it stops the smallest cancerous cells that might be lurking anywhere in your body. 

  • Paula66
    Paula66 Posts: 1,572
    edited November 2011

    peg thanks for the update on your brother.  I know that it has to be hard and you are right on the positve attitude. I agree on the SE totally.  It is so strange how one Onc will say on thing and another says different.  My goodness how can so many women have the same issue and they say no its not.  It seems to me that just because we have cancer all of a sudden we dont know anything about our bodies.  My goodness give me a break.  I was an active healthy pain free cycle regular worked 6 days a week 10 hour days until cancer came along.  I may not be a medical professional but there is one thing I know and thats what my body is doing.  

    Jo missed you girl its good to see ya!

  • June2268
    June2268 Posts: 926
    edited November 2011

    Peg that is wonderful news on your brother....good  positive attitude must run in the family.  I always tell my kids that there are so many people in the world who go through so much more and to try and stay positive, and sometimes I find it hard but then I read stories of strength and will and desire to continue to move on and it so so inspiring.......so happy for you Peg!  Miss you!

    Very very chilly day today but warmer weather for the weekend......yay!  Happy Friday ladies!

  • sunangel27
    sunangel27 Posts: 234
    edited November 2011

    good mornin'....

    Well, some of you know....others don't yet. I got the results of the colonoscopy and that other upper test. Those came out good. Then the CT scans from the liver, spleen, adrenel glands and panceras......all normal. Then lungs........ I have an 11mm node anterior to the superior vena cava, then a carina node which is also 11 by 18 mm. and two small prevascular nodes that each measure less than a centimeter......whatever all that means!!!.             The dr has set me up with a surgeon for next Wed.....day before Thanksgiving.....to get the consult for biopsy in a few weeks....          My mind is just a bit numb....I have been in such a fog since yesterday..... just praying I guess that whatever it is....it is benign!!            He said I would be in the hospital for two days atleast, and they have to cut on my chest and put a probe down there to do the biopsy..........yah another scar! Just what I wanted....           sorry........I just know that here is where I can vent!! I am just beside myself!!          I had to get on fb last night and tell my family and friends.......my family is so scattered that it's about the best way to keep them posted! Thank goodness for that way of contact!       I did tell my boys and my mom before posting it tho! They are the main ones I wanted to contact first. 

    Anyway. Hope you all have a great day, or the best you can anyway........... keep up the good whacks.......they make me laugh when I get the chance to get on here and atleast read!!! :)

    Hugs to y'all

    "the other" Paula

  • MamaV
    MamaV Posts: 373
    edited November 2011

    cfoster - hang in there ... should get better as your body adjusts!

  • Sherryc
    Sherryc Posts: 4,503
    edited November 2011

    Paula so sorry that you will be having a lung biospy.  I will be praying that it is B9.  You have been on my mind wondering about you. ((((((((((((((((((HUGS))))))))))))))))))))))))))

  • MamaV
    MamaV Posts: 373
    edited November 2011

    Paula - BC just keeps on giving doesn't it?  Prayers for you!

  • Kay_G
    Kay_G Posts: 1,914
    edited November 2011

    Very sorry about your biopsy Paula. I am sending good thoughts for b9 results. Fingers crossed.

  • Panmars
    Panmars Posts: 166
    edited November 2011

    (((((((((Paula))))))))))  So sorry for what you are going through! Sending good thoughts your way, fingers crossed for B9 results. You're strong, and you will get through this. And we are all here for you anytime you need us.

     Take care,

    Sandi 

  • Paula66
    Paula66 Posts: 1,572
    edited November 2011

    ((((Paula)))))  I pray that this is all B9 and jump abit of a bump in the road. This is one place that ranting is what we are here for, so rant away, you deserve it.  I sometimes think we try to hard to be superwomen and dont want our family to see us scared so I love how we can come hear and do it.  I will keep June at bay during the pillow fighting so as not to jar you around.  Love ya June! 

  • jo1955
    jo1955 Posts: 7,545
    edited November 2011

    (((Paula))))  Sending positive thoughts and prayers for B9 results on your lung biopsy.

  • mpeaches
    mpeaches Posts: 121
    edited November 2011

    Paula - you're in my thoughts & prayers.   And think of the scar as a medal of honour and courage!  Yeah, I know, poopies, huh?  :)  Please keep us posted,

    Healing Purrs,

    Jenn

  • jwilco
    jwilco Posts: 209
    edited November 2011

    Paula - hoping your results are ok.  Sending healing and good thoughts to you.

  • Teklya
    Teklya Posts: 362
    edited November 2011

    Paula, sending you a great big (gentle) hug.  Will pray for you for positive results.