Bottle o Tamoxifen
Comments
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Deb and Murphmort...thanks for the good reports!
Glad for the new job, that old one sounded awful...and the walks are so inspiring...and great news on the follow up...
So this swollen breast and redness is starting to get to me....I finished the steroid pack and it may be a bit better....but I keep wondering what if it is something else....my radiation ended July 2, so it has been three months and now it gets red and swollen? I go back to the rad onc on Monday....
back to work...everyone have a great day
Sharon
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Sharon,
Let us know what happens on Monday. I'll be thinking of you over the weekend.
BTW -- where in VA are you? I'm originially from Alexandria so when I see anything from around there, I just have to ask!
Deb
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I saw my surgeon today for the u/s results. He said that it's just scar tissue.
Thanks everyone for helping me get through this scary waiting. I remember someone posted awhile back about those hamsters in her brain, that won't stop running around when she tried to sleep... that was how I felt...
Hugs to all!!
Harley
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Harley - Good news...I think that is what is going on with me as well.
Deb - I live in Stuarts Draft which is about 30 miles west of Charlottesville. I work in Staunton
DH says the foob looks better tonight...
Sharon
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Harley,
WAHOO! That's great news! Now you can forget about the hamsters.
Sharon,
Glad that things are looking better. Are you anywhere near Dayton? My best friend lives there.
Does anyone get random pains where they had a lumpectomy? Every now and then, I'm so sore that it makes me get the hamster thing going. Any thoughts would be appreciated.
Deb
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Sharon,
Thanks! I was so glad to hear those two words: scar tissue!Deb,
Thanks!
I would guess that those pains you are feeling are from scar tissue. Just a guess. My lump that I felt is painful at times, and it's all in the general area where "IT" was, and that had my hamsters really going!!Harley
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Yes....I get those pains too....I have also read that tamox can cause that....
Everyone have a great day....
Live Well, Love Much, Laugh Often
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glad you are there! i hope that you are all hanging in there as est you can. i had a ct scan and a bone scan last thursday. wet yesterday to the onc they have found three new spots on bones. i will get a pet scan next but she was not vey encouraging. i am having increased lower back and hip pain and that is where two of the spots are the other is on my rib. so up to now there is a spot on my rt lung to watch, microcalcifacation in my rt breast to watch and now this. omg. does anyone know what the spots could be other than mets??
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Harley, I am so happy! I had similar findings and BS U/S'd as well and found to be scar tissue too...but it gives us a scare.
Deb, I have pain too at my lumpectomy and SNB, and the swelling during rads gave unsightly stretch marks...the pain for a while was like sharp intermittent pains, now there is thickening of tissue that is sore...I asked my Breast Care nurse if massage to these areas was OK and she said yes...I did do massage to the lumpy areas and then they softened, but since I have been busy and tired with the new job, the pain and lumpy areas are worsening, reading your post reminded me to take care of my self
Stefie, I will be thinking of you. you are just one year after diagnosis and it is hard to think of possible mets when your nodes were negative, so it is very concerning, I will say a prayer for you now.
Sharon I hope the redness and swelling heal soon. I think I am going to keep the swelling post radiation for quite sometime, I did have some red spots pop up, and BS said not to worry...but I did read on this website that swelling post rads could last up to a year...
had my 3 month med onc appt today...blood drawn and waiting to see if the anemia is better...and hoping that liver function has stayed good. gained 6 pounds...I have had swelling mostly in my legs (boob too), but I told the onc surely there couldn't be 6 pounds of fluid in my legs....so he told me to cut the salt and wear those nasty hot support stockings...which I am sure will aggravate the hot flashes.
Lynn, hope school is going well.
Harley and Deb, still thinking of you gals on the new job ventures.
God Bless all you tamoxi gals!
Amber
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Harley - Yippee!! Very happy you got good news.
Stefie - I am sending you positive thoughts.
We all know it is Breast Cancer Awareness Month, and I watched a TV show this morning on BC and wanted to share something with all of you. Dr Susan Love is starting up a new effort to find out the cause of BC. She said we have spent so much money on treatments, but we need to get to the root cause. Her foundation is trying to get one million women to sign up through this website: armyofwomen.org.
The website's purpose is to track women and ask for their help - read the information below that I copied from the website. Please consider joining and sending the information to your family, friends, neighbors, co-workers, etc. The more women who sign up, the sooner they can find the cause of this disease. Hope is so key to defeating this disease.
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The Dr. Susan Love Research Foundation and the Avon Foundation, a global leader in breast cancer research, joined forces to launch the Love/Avon Army of Women.
Our revolutionary initiative has two key goals:
- To recruit one million healthy women of every age and ethnicity, including breast cancer survivors and women at high-risk for the disease, to partner with breast cancer researchers and directly participate in the research that will eradicate breast cancer once and for all.
- To challenge the scientific community to expand its current focus to include breast cancer prevention research conducted on healthy women.
Join us in this movement that will take us beyond a cure by creating new opportunities to study what causes breast cancer-and how to prevent it.
**************************************************************************************************************
Have a wonderful night, ladies.
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Murph this is wonderful! thanks for sharing this info...I am going to check it out now!
Amber
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Hi, girls--
I've been reading but not posting this week. It's been a strange one...if tomorrow wasn't Friday I'd have to quit. :-) Not in this economy...
Murph, thanks for the link...I joined the army!
Deb, so happy about your new job...hope it's great!
Harley, I'm so happy for you that everything checked out okay. Onward and upward, right? Hope you had a good getaway. Now the perfect job awaits!
Basha, say hello to the Queen for us when you have tea at Buckingham Palace.
Stefi, Sharon, et al--I, too, have pains in my "bad boob" every now and again. My surgeon says it'll never feel/look normal again after surgery and radiation. I'm okay with that, but those shooting pains always get my attention.
My hips have been killing me this week at night and in the morning; on Monday they ached all day. It's been worse over the last couple of weeks; strange, since I'm working on a year on Tamox. If AIs are worse, forget it...I'll stay on tamox the whole five years. I'm still aquajogging, which I like...if I could only get my eating/wine consumption under control, maybe I could fit into my jeans. Big sigh...
Wishing everyone a great weekend. I have Monday off...woohoo!!! Anyone else?
Where's our Virginia? Thinking of you as you deal with the loss of your father...we miss you.
Take care, ladies--
Lynn
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Hi Girlies...sorry I haven't been posting... It's been crazy. Although, now that I don't go to Dad's every night, I do have more free time on my hands. I have become a complete and total couch potato. Between all the new TV shows and the Wii... Guitar Hero has been cast aside, my new obsession are these LEGO games. Very entertaining....in fact, 8 or 9 hours go by like "poof."
Deb- BEER tasting? Oh my...don't know if I could do that...I would be in big trouble. It's bad enough with ice cream here...and I don't even work on that category.
Barbie- LOL RE PETA and B&J. I haven't heard anything about that...I will have to investigate. B&J is still located in Vermont. When my company acquired them, we had to agree to leave their business structure alone for 10 years...I think that time has expired, so maybe things will change.
Murph- thanks for the info on that CYP2D6 test...every time I ask my onc nurse, she blows me off. I see my onc in November, so I'm definitely going to grill her about it... I really want to make sure I am metabolizing this Tamox.
Harley- Cocoa Beach---I ALWAYS think of I Dream of Jeannie too!! (I can't remember who posted that, but I LOVE Jeannie...I have an animation cell of her and a reproduction of her Jeannie bottle)...guess I am dating myself too...
Munchy- hope you are feeling better.
Hugs Lynn---thanks for the shout out... I am feeling sad about Dad...and yesterday was my mother's birthday...so that was sad... I have my moments... This weekend I am going to Atlantic City with friends (Saturday) and then will see my family on Sunday...so that's always good therapy.
Love and hugs to everyone...
Virginia
ps. Been suffering with horrible pain in my feet...not sure what that's all about....but very annoying... Also have my mammo in a couple of weeks...starting to get anxious about that... :O
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Hi ladies,
Hope all of you are doing fine!! I'm very sorry when I hear that you have pains. On February I had a terrible pain on my hand (the side when operation took place) and my hand was swollen too much but I was resting two weeks from work and home and now I'm very careful with activities on the hand and everything seems fine so far (even I'm back full time in work and full time being mother). Sometimes a feel very bad been so handicapped especially when I can not carry my small boy!!
I usually take tamoxifen in the morning before I go to work but it happened 2-3 times that I forgot to take it, not continuously but there were 2-3 days when I didn't take my tamox at all. I have a big problem with my memory!!!!
Did this happened to someone and do you have any information what should be done in such a cases?
Best regards to everyone,
Alba
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Alba,
Glad that you are feeling better and that the swelling in your hand has gone away. As far as forgetting to take the tamox -- every doctor I've heard has said to just start again as soon as you can with the next dose but don't try to catch up. I have my pills in an organizer on the my bedside table, right next to my watch. So when I go to put it on in the morning, I see the pills and take them (I take vitamins and aspirin also) right then. The only time I have ever forgotten was when I thought that I would be back up in the bedroom later. I never was until it was time for bed. Really scared me. I've never done it since and I've been taking it since December. I highly recommend a pill organizer!
Virginia,
Trust me -- tasting beer sounds better than it was. I don't miss it at all. And WHAAAAAT is LEGOS? Do you mean the little blocks? Am I totally out of touch?!?! And I know what you mean about the pain in the feet -- just as I'm typing this, I get the sharp tingly feeling in my foot.
But don't borrow trouble about the mammo. There will be plenty of time to stress over that -- You have my permission to start two days before -- NO SOONER! Are you listening? Probably not but I'd be like you so I really get it. Did I at least get a smile from you?
Today is my last day here. Thankfully! Looking forward to starting the new job. When I run into people that work there, they all say how much they are looking forward to having me work there and it'll be so good to have me there -- really nice to hear.
So have a good weekend!
Deb
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Good morning ladies,
Deb - there's a going away party for you in the caboose car today at 3:00. There will be ice cream AND beer. Yipee to your last day!!
Virginia, I'm confused about the legos too. Is this a Wii game?
I've had really bad foot cramping lately.
Lynn - it is finally Friday, and you can join us for Deb's party to get out of work! (Actually, as I write this you are probably already at happy hour).
Stefie, my prayers are with you - and we're here for you.
Harley and Amber - so glad to hear both of your issues were just scar tissue - and that the squirrels have left the brain - at least for a few days!
gotta run - I have to pick up Deb's cake ;-)
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LOL- Legos...Yes, they are new Wii games that I bought. It all started with Lego Indiana Jones... One Friday after work I got home and started playing it at 5:00 pm and didn't shut it off until 3:30 AM!!!!! Then I bought Lego Star Wars (the complete saga), and they just released Lego Batman. I am such a couch potato.
My foot pain is annoying. And TODAY, I woke up with a sore boob and sore underarm (where the incisions were made almost TWO years ago...) OYE!
Alba- I used to forget my Tamox all the time...or I couldn't remember if I even took it at all. Now I have a little pill case (it's round) that holds 7 days worth of meds. I leave it out on my counter so when I get up in the morning I take the pill right away before getting in the shower...it's also a good way to know if you forgot...
Hugs girlies... Love you all...
Virginia
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Stefie
I'm praying for you!! I don't know what those spots could be, but there is always so many different things that they could be, so try not to worry too much! I know, easier said than done!
Amber, Murph, Lynn, Barbie, Virginia, Alba and Deb,
Thanks for all the congrats on the scar tissue! It was ONE year since my LAST chemo yesterday!! I guess I think about it more on those anniversaries...I LOVE wwii games!! We are always at our neighbors house playing them, since we haven't bought one.... yet. Virginia, so sorry you are having foot pain. My neck pain seems to be feeling better, but I really think it's the Tamoxifen causing it, since it started about a month after I started taking Tamoxifen again, after my short little two week vacation from it, in July.
I'm going to try to start making beaded jewelry, and maybe that will be my little side job, until something surfaces... the temp agency hasn't had anything yet, and I'm a little concerned. Do I need to call them EVERY DAY, for assignments??
Hugs to all
Harley
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only 5 more days to go to finish up my 5 years of tamox!!!!!
Anne
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Anne
Congratulations on being ALMOST finished your FIVE years on Tamoxifen!!!
Harley0 -
Anne,
Counting down the days with you!!
wooooohooooo!
FIVE.........
Trish
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Happy long weekend...woohoo!
Alba, I, too, take my meds in the morning, and had a problem with forgetting sometime--even with my weekly pillbox sitting on the counter. I ended up putting a few of my prescription meds--including tamoxifen--in my little pill case that I keep in my purse (it has ibuprofen and such in it). That way I can take it when I get to work if I need to. Just a suggestion...
Virginia, I figured your new Lego hobby was Wii-related...had a hard time picturing you sitting on the floor playing w/ actual lego blocks. :-) Sounds like fun!
Harley, making jewelry sounds like a good option while you wait on the temp agency. I'd still call them pretty regularly to keep your name in the forefront when something comes up. Good luck! There was a woman on the Today show the other day saying that there was still a lot of hiring going on for hourly positions where the co. doesn't have to worry about paying benefits. Something will break for you soon...I'm sure of it.
Barbie and Deb, thanks for the invite to the caboose celebration!
I'm so excited...I just called my sister in NY for our weekly chat, and my niece answered the phone (she and her husband are living w/ my sis and BIL until they close on their house at the end of the month). She's pregnant!! We're all so excited! She's due at the end of April. When I go home next summer, not only do I get to see their new home (I was all excited just about that)--there'll be a little one in it!
Anne--WOOHOO! We'll have a huge celebration for you on the train when you pick a station and get off next week. I'm so happy for you!
I think I'm going to break down and call the acupuncturist re: my hip aches. I haven't seen him since I got back in August. Hopefully he can help.
Enjoy your weekend, ladies...big Gator game Sat. night with LSU, and then I get to stay home and watch pro football on Mon. morning here! Life is good. Take care, all--
Lynn
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Good morning ladies!
Hey Anne,
FOUR...........................
Trish
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Good morning!
Anne,
THREE..........................................
Trish
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Good Monday Morning!
Anne,
TWO................................
Gentle Hugs,
Trish
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Anne .... 3 !!!! Trish - I love your comment about failure. That's cool.
Virginia - I would have loved the beer tasting ... I would also love the ice cream tasting, When we owned the Duncan Hines brand we were always taste testing. The office would smell so nice with the cakes & brownies cooking in the kitchen.
My oncologist wasn't too receptive about the testing for metabolizing the Tamaxofin. I didn't push it last time cuz there was still alot on my plate that I needed to get through. But I have an appt on Thursday and will bring the information with me and ask again. Her initial response was the maximize she would put a patient on is 20 mg/day, so it would not impact how she dispenses the medication. Funny, but I don't feel the anxiety when I an appt with her... only the rad onc and the surgeon???!!! Go figure!
Had a nice weekend - my daughter came home from college. My son's high school football team FINALLY won a game on Friday night. They were so close in their games, but just couldn't get the victory.
I have to get cooking ... I'm on vacation today and I'm making some meals for my daughter to bring back to school. They have an apartment on campus and cook for themselves, but there is nothing like having a few meals from home!!!
Have a wonderful day, ladies. Keep your positive thoughts.
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Hello ladies,
Thanks for your advices!! It is a relief that I'm not the only one who forgets ha ha ha
I go back to work just wanted to say hello and good luck to all.
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Thank you Harley, I am still waiting to be scheduled for pet scan... Patience really must be a virture. Rock on ladies.
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Well tamoxi friends, I am leaving the train...no more tamox for me. I had already thought it thru that if my liver enzymes started to elevate that I would stop taking it...my liver functions started rising after about 3 months of tamoxifen....the onc. wanted me to stay on it for another 4 weeks then recheck the liver....but yesterday I had unusually brown drainage...2 weeks after my period....and I feel like dear Harley regarding the uterine issue...I hope that 3 months of tamoxifen wouldn't have started a cancer in my uterus or ovaries or liver...but I have broken down and cried with fear..I will keep Faith and pray....I have prayed too that the Lord would show me if I should go off tamoxifen...and I believe this is His answer.
You all have been a constant help to me. I will check back and see how you all are doing...and keep in touch too!
Love in Jesus,
Amber
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Good Morning ladies,
Amber, so sorry to hear of your troubles. Please keep in touch. God will be with you.
Anne,
TWO..................................
Hugs to all,
Trish
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