Anyone on just Taxotere and Cytoxan?
Comments
-
Laura, it takes time for it to move down I think. My legs and toes were the last to go except my eyebrows. I still have my eyelashes, but no eyebrows, they all fell out the day of my last tx. I have a hard time drawing eyebrows but I manage. I still have no hair on the rest of my body, but a tiny little bit on my legs it is blonde! Loved not having to shave! It can grow back in the winter I dont care I wont shave it anyway lol. I am 3 weeks out of tx. Hair on my body fell out in different stages, it worked its way down. Good luck tomorrow, hope it is uneventful, pain free and a total breeze! I hope all the hair on your legs fall out and never return!
lol about the hobbit thing.
Hugs Deb
0 -
For everyone having treatment today, we will be there with you.Juannelle
0 -
Thanks, Juannelle!
How are you feeling today? I am getting a little anxious about today, but am hopeful it will go as smoothly as the last one.
Have a good one!
Laura
0 -
Good morning all. Thought I'd check in. My tx #3 is on 11/4. #2 was definitely harder than #1. I feel like I just emerged from a fog of SEs a few days ago. My doc told me at blood counts bottom out on day 10, and this time I think I really felt it. Again, for me, it seemed like a a combination of things but the overwhelming problem was pure fatigue. And, body aches, muscle pain, headache. Nausea lasted longer this time but was never disabling. I am not on neulasta so I can't attribute any of the pain to that. After tx #1 I did experience some buzzing sensations in my hands and feet. After tx #2, that "buzzing" turned to more of the pins and needles kind of pain, but it didn't last long, little episodes that lasted literally just minutes.
What disappoints me most is that I really wasn't able to do the kind of walking that I'd been doing. I was getting out for 30 mins or so every day before and this time I just couldn't manage it some days. This makes me worry about the next 4 tx cycles ... I'm in New England and the weather is turning. That'll make it more difficult to get outside and exercise. (Although there are TONS of leaves to rake already!)
As far as hair goes -- I shaved my head shortly after tx #1 and have lots of bald patches interspersed with stubble. I have still hair on my big toes & some pubic hair -- eyebrows and eyelashes are still in tact. I have NO IDEA how to use an eyebrow pencil so I'm hoping, hoping, my eyebrows hang in there ... Like I said, it's getting cold around here so I'm looking for an alternative to my baseball cap. I have a nice wig, but ... HATE IT! At least for me, no matter how nice a wig is, it's still a wig and just doesn't look right on me ...
Sending my best to everyone having treatment this week!
Lottie
0 -
PS - I'm not a religious woman, but this song has given me strength the last 4 months, and, it's beautiful. Maybe some of you will enjoy it as well. You should be able to paste the URL in your browser.
0 -
I just wanted to say good luck this week to everyone with treatments. I'm thinking about you guys.
Lottie- Of course I know everyone is different, however I wanted to tell you that my #2 was a lot worse than #1 also, and I was scared to death of #3. But as it turned out my #3 wasn't as bad as #2 overall. Well, it was bad, but se didn't last as long as #2's did. Anyhow, good luck.
My 4th and LAST treatment is next Tuesday. I just can't wait for it to be over. Tuesday can't come fast enough!!!!
Good Luck everyone! Be Strong!
0 -
I just wanted to say good luck this week to everyone with treatments. I'm thinking about you guys.
Lottie- Of course I know everyone is different, however I wanted to tell you that my #2 was a lot worse than #1 also, and I was scared to death of #3. But as it turned out my #3 wasn't as bad as #2 overall. Well, it was bad, but se didn't last as long as #2's did. Anyhow, good luck.
My 4th and LAST treatment is next Tuesday. I just can't wait for it to be over. Tuesday can't come fast enough!!!!
Good Luck everyone! Be Strong!
0 -
Hi _ I think I wrote here before- a while ago but I like the support of others on the same regimen also. #2 TC on Tues 11/3 - felt awful for 2 weeks post #1- Hope #2 is better = it looks like it was for some! Be well- Valerie
0 -
number 3 was bad due to me becoming immune to the zofran and phenergan and the fact i cut back on the steroids. my onc says we are going to have a 25 day break and will do the emend protocol for nausea (which i originally asked for) it took me basically saying i wanted a cytoxan only final round before she agreed to the emend. (yes im getting taxotere too) i had been calling the nurse for two days before the doc called me and she only knew to call me because she saw my record had been out. Anyone LOVE their oncologist but their nurse has poor bedside manner? one more thank goodness! 1 and 2 were easier so i am hoping for #4 to be more manageable! oh and chemo brain: my doctor says it will pass. any good stories? i put mederma on my toothbrush, also ironed an entire shirt without it being on and went to grocery store with dress inside out.
0 -
my chemotard stories are endless, unfortunately, I can't remember them.
Hair stubble, check
Arm pit hair gone check
leg hair gone check
pubic hair gone check
eyebrows, half gone check
eyelashes, thin check
arm hair fully covered check
toe hair, still there check
nostril hair, gone check
I think my ear hair is gone too.......but I can't be sure.
It's been four weeks since treatment 2 and my hair is coming in strong on top of my head, but the sides are still pretty bald. I'm sure I won't end up with a permanent mohawk, but alas, that's what it looks like now. LOL
Hope you ladies have a great day. Gotta go get showered and dressed for my 2 hour trip to the Onc.
0 -
Pamelajo, maybe it is good that you don't remember. When others repeat them to you, you can pretend that it happened to someone else. Unless they have pictures lol
Go for my blood work today, I think everything is OK, because I feel better today than any other since my chemo.
Everyone have a great day.
Juannelle
0 -
Dang - Middle of week 5 pfc and no hair. Ugh. But there is good news - test results are in for genetic mutations. Negative for P-16 and negative for BRAT. Hooray! Now on to the next hurdle - will it be a BMX or radiation? Tune in tomorrow for the next exciting episode!
Love to you all, Mary
0 -
Hello Ladies
I just to check and wish everyone a good day. Off to tx # 3 in a couple of minutes. Nervous because I had a allergic reation to #2.
Dogsaver- I love your chemo brain stories. The only thing going on with me is I can't remind the word for what somethings are called.
Pamelajo- I can't check along with everyone of your losses.
THINK POSITIVE
Catherine
0 -
Good luck Catherine! I'll be thinking about you.
The worst problem I am having with the Chemobrain thing is not remembering names. I also forget what I was going to say easily, and am having a horrible time staying focused!
I didn't really think about losing the nose hair, but now that it was mentioned I checked and don't see any. No wonder my nose keeps dripping!
Pamelajo- It really stinks that you have to drive 2 hours to see your onc!
Have many of you had genetic testing? My onc wants me to do it, but I've been putting it off. Just one more thing to do! I feel like I'm doing everything I can to prevent it anyway- what makes a difference how my genetic tests come back? Can anyone advise me on this?
Take care-
Jen
0 -
I had genetic testing and I am BRCA2+ ..... it sucks.....now I am worried about my kids
0 -
HRF Did you find that out today? I am really sorry but at least now u can caution them to stay on top of things. Sometimes ignorance is bliss but sometimes knowledge is power. Be well- Valerie0
-
I got my BRCA2+ dx almost 5 years ago. But my son only recently tested and I found out only a few weeks ago. He was hesitant to tell me and only did after I asked, "Whatever happened to ...?" His doctor will monitor him as best as possible but there are so many cancers associated with the BRCA2 that it will always be a worry. I believe knowledge is power in this case.
0 -
Lottie~Please be careful about neuropathy. Mine is getting worse and I am almost a month out of tx. They dropped #5+6 in half of the tax. to avoid it getting worse. Sorry I am not trying to scare you, but I cant walk or stand for more than 30 min. without pain and having to sit. Then apparently it also did nerve damage to my back, so I cant sit for very long either.
As far as an eyebrow pencil, yeah I couldnt use one either, but it is easier than you think. You will get it if they fall out.
HRF~ sorry about the BRCA.
I am too wiped out to post much. So much love to all. Hang in there, you will make it!
0 -
HRF - I'm so sorry to hear your news, but you're right, knowledge is power and is especially important in this case.
cherneski - thanks for the caution about neuropathy. i'll definitely tell the oncologist next week. i already have rheumatoid arthritis and that definitely impacts my feet & that's enough. I love walking for exercise and I'd be devastated if I couldn't do that. My energy level is so low now it's scary.
Best wishes to everyone
Lottie
0 -
Hello Ladies
Back at work this morning at 7am. Tx #3 was yesterday and there finally was no problem. IV went in on the first shot and no allergic reaction. I was there on 31/2 hrs and the time flew by. Just alittle headache today and alittle foggy.
Jen- I had the genectic testing. My dr advise it due to my age (44). I came back neg. and felt very relieved. My maternal aunt died at 62 of BC so there was a small family history. My insurance agreed to pay for it because they cover it if you are 45 or younger. I thought it was important to know for my children, sister and nieces and nephews. Also if it came back positive I would have had a bilateral mx instead of just the right.
HRF- I am sorry to here about your results but knowledge is definitely power.
Hope everyone is feeling good and has a great weekend.
THINK POSITIVE
Catherine
0 -
Hi Ladies,
Been sometime since I checked in here. Looks like I have a lot of reading to catch up on. For everyone starting or in the middle of chemo my thoughts are with you. For me I had a rough time with the drugs. I am now 4 months out from chemo and the hair is growing in slow but its coming back. Hate having to shave the legs again and the arm pits are still not growing. Facial fuzz which I am not liking but not a major concern. Did catch swine flu and pneumonia recently. The doctors told me we have to be as careful as we can since our immune systems are still down from the chemo. Did have a flu and pneumonia shot but of course didn't cover what I had. I won't say these drugs are doable because for me it wasn't a bit fun...but then its not supposed to be. I have asked many times if they know my cancer is totally gone and each doctor told me the same thing which is they don't. I have a lump on my neck which the doctors all freaked out about on the visits with the swine flu and pneumonia. The cancer doc will follow up on that and will be seeing him for the my 4 month visit in November. IF the growth is cancer I am not certain what I will do at this point. Chemo is still to fresh in my mind so we will wait and see what he feels the growth is. The growth is about the size of a quarter and hard and you can move it with your fingers. So wait and see.
My luv and hugs to everyone,
Nadine
0 -
My 3rd tx went well on Thurs. No nausea like 1st one and even day #3 I feel pretty well. The next few days will tell if I have any se's. So glad to be 3/4 done now. Catherine, so happy to hear yours went well too! I even drove myself to MD's office for my Neulasta shot on Fri. and believe me I took the Claritin 1 hour before. It really does help! So far, I have been lucky to only have the 3-4 down days following tx and been able to work the rest of the time.
Hope everyone else is doing okay from tx this week! Stay well - lots of flu (swine?) going around so be safe!
0 -
They are switching me to Emend for my last treatment since number 3 i was pretty much immune to and getting sick from the zofran. I did well with the zofran for numbers 1 and 2. Any Emenders out there? side effects? did it work for you? thanks ladies and have an easy weekend
0 -
Hi Dogsaver, I would get Emend and Zofran during infusion and then have Emend for two days after. It needs another anit-emetic to work. Since I didn't like the headaches Zofran gave me I switched to Compazine. Had no problems with any nausea during the few days post treatment but was always surprised around day 7 or 8 when the nausea would sneak back, then just the Compazine worked fine. I had T/Cx6 and became weaker with each one but now I am 9 weeks out and feeling better every day. Good luck.
0 -
I get Emend in IV along with Aloxi, then 1 Emend tab on days #2 & #3 post tx. I also take Ativan and Zophran every 8 hours for 2 days. I wear a scopolamine patch starting day of chemo for 3 days. Tx 2 & 3 I had no nausea at all unlike my 1st one when I had to back to the onc office for fluids and Kytril because of severe nausea but even that didn't help. I only have 1more tx so hopefully this regimin will hold out until then. Good luck!
0 -
Nadine, so good to hear from you again. Keep us updated regarding your Onc visit, I'll keep my fingers crossed for you that it is a node leftover from your recent illnesses and has NOTHING to do with BC.
0 -
Thank you KMMD. Old pattern, I don't go to the doctor unless I have to and don't tell them s**t. The node has been like this for sometime, before the recent illness. I worried so much with the BC that I am not going to stress (I hope not) unless I have too. So good being back on this forum.
Gentle hugs to everyone,
Nadine
0 -
Hi Ladies,
I had the Emend on my last treatment w/another med IV (didn't get the name of it), the Emend I took once for 3 days. Both meds in combination worked great for me....until on day #5 the nausea returned in the middle of the night extremely severe...it took me 2 days to get back on track. So I would ask about possibly premedicating around the time your meds are expected to wear off....I will do this for TX # 3 - unless they have another plan for me. I'm still finding myself having to take my PRN compazine even now in week 3 at times....anyone else seem to have the never ending spurts of nausea? Its not too bad, but I'm so paranoid if I don't control it w/meds it will return with a vengence.
Thanks to everyone for your support! I so appreciate it.
0 -
Hi All,
4 years ago I only had AC. This time around I am getting TC. I've only had one round, and I am thinking that I can't do 5 more. My worst days were from #4 to #10 from infusion. Diarrhea and aches are what's killing me. It isn't so bad today, day #11, but I am not looking forward to going through this every 21 days 5 more times...
0 -
Hi Brenda I found day 3-9 .the worst and I am definitely asking for vicodin= I thought the muscle pain was really intense - did not have diarrhea but narcotics would certainly help w/ that plus immodium. TC is supposedly a little better statistically and no cardiac involvement. Its alot to ask of someone to think about 6 txs - so one day at a time. Good luck -Valerie ps by day 12 i felt 100% back to my old self! (going back on Tues - ugh)
0
http://www.youtube.com/watch?v=XOxpvKuEruk