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Anyone on just Taxotere and Cytoxan?

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Comments

  • sharons
    sharons Member Posts: 177
    edited April 2008

    bd - glad to hear the rads went ok...

    Steve - I can't believe they kicked you out....glad it all went well and that you are checking into the steroid.  In no way am I a professional athlete...but I am with bd...what happened to "my body" 

    Exercise is the best medicine I know....

    chj - great job...hope you are se are minimal...I too will have to say #3 was the best for me

    time for the pre dinner nap...

  • debap
    debap Member Posts: 51
    edited April 2008


    SharonS:  You rock! I don't think I can manage running 3 miles with this expander.  You are my inspiration though and I am going to get my butt out there and get moving (power walking).  I feel so out of shape and unattractive.  Can't imagine why!

    How did everyone do today?  I finished tx#3 today with no reactions, thank god.  Maybe minimal se's also! 

    Debbie

  • lotodgs
    lotodgs Member Posts: 54
    edited April 2008

    dehap, i finished my treatment #3 on Monday, after the shot on tues, I am feeling puny from the Neutsla,keep taking the Alieve every 12 hours, I am still working 8 hours a day but will probably cut it short on Thur and Fri. My energy should be back up by sat. you take care as well.!!!!!

  • sharons
    sharons Member Posts: 177
    edited April 2008

    Debap - Any activity is great...I do have to say the days I run kick my butt...not as tired the days I do the exercise bike, even though I get a good sweat.

    I will be gone til Sunday...our athletic conference has a sports festival in burlington, nc.....perks of the job...get to watch softball and tennis all weekend.

    Everyone has a se free weekend...spring is here....

    And remember

    9-11, war zones, VT and breast cancer...we never know what the day will bring...live, love an laugh NOW

    I am so grateful for this forum and each of you

  • guitarGrl
    guitarGrl Member Posts: 150
    edited April 2008

    Wow - I was gone for less than a week & it seems like a million messages since then. My 4th & last TC treatment was Friday - this one really knocked me out. Today is the first day since then that I can really sit up and use the computer. I'm used to food having no taste by now, but not the fatigue that wouldn't let me do anything at all.



    I got a wonderful care package from work today that helped cheer me up & reminded me that there was a whole world out there. If this wasn't the "last" tx, it would be the last one - I don't understand how anyone can go through this process more than once.



    So next up is getting an appointment with the radiologist if I can ever remember to call. Guess I also have to recharge all the phones in my house so if I do remember, I can call. To those of you who also finished during this time - is it a great feeling knowing it's over or what!



    My favorite line of the week was from the onc when I asked how we'd know if all this was working. She said we don't and "if you die of something else in 20 years, then we've cured you." So here's to hanging around till the next 20 (at least) ...



    susan

  • beegirl
    beegirl Member Posts: 53
    edited April 2008

    I second Jisman on the LGFB class. At the one I attended, there was only one other client, who hadn't yet gotten a wig so we did spend time on that. I took mine off and was the model for the scarves--learned some things about ways to tie them. Then the cosmetologist instructed us in applying the make-up. I've had the same routine for so long, that it was good to get some professional direction and some quality products, too. As I think I said before, I threw away the concealer I've had for many years and am trying different effects in the morning (since I don't need much time for my hair!). Sorry to hear yours was disappointing, Aurora and Goldilocks.

  • gramadeb
    gramadeb Member Posts: 66
    edited April 2008

    My round #2 took a strange twist. Felt great after, about 12 hours later - 1:30 a.m. I woke up and new something was wrong. Got up to go the BR and started with the chills and had a tremendous headache. Went back to bed and could not stop shaking. My dh woke up and told me how warm I felt. Checked my temp - 100.4. Called on call doc and ended up in the emergency room - concerned about meningitis- still with chills and worst headache.

    Gave me lots of Morphine for headache, CT scan (negative) and admitted to hospital. Developed a rash. 12 hours later in hospital, same thing happened- chills, headache, fever and now vomiting. More morphine, some ativan, more steriods.

    My onc was off on Tues and Wed - one of her partners saw me on Tuesday while I was in my Morphine world and he told me that he thought it was a reaction to chemo. The on call doc from Tues a.m. saw me today and he said it was not from chemo but he thinks I had a viral infection.

    I am home now.  I am not sure what round 3 is going to hold for me. Just glad I am feeling better - was pretty scarry!

    There have been so many posts since I was away - I will have to read up tomorrow.

    Hope everyone is doing well.

    Deb

  • jt1945
    jt1945 Member Posts: 23
    edited April 2008

    Hi all,

    Had tx #3 today.  It was a little exciting.  After I was taxotere about 10 or 15 minutes my heart rate went up to 156.  They stopped it and called in the doc.  He thought it might be the steroids (decadron 1 day before, day of and day after chemo).  My heart rate went down slowly and they started the drip again when it was at 120.   Heart rate went up again.  Stopped again for awhile and then started again and kept it very slow.  HR stayed around 108.  When the taxotere was done (it took 4 hours!) we did the cytoxan and my HR was 88.  So that taxotere must have been the issue.  Even so, the doc told me to only take 1/2 the dose of steroids.  Don't know how that will affect the swelling issue;  I haven't have too much with the first 2 tx's.  But maybe sleeping will be better.  This whole thing really bums me out because tx 1 and 2 went so well. 

    How did the rest of you do with your tx's today?

    The LGFB program I went to was fabulous.  We all had mirrors and did our faces.  There was one cosmetologist for every 2 us so we got lots of help.  I like learning how how to draw on eyebrows should we need to.  Hints on eye makeup if and when your lashes fall out.  No sales pitches or business cards.  The man who coordinates the progam lost his mother to cancer when he was a teenager and has been involved with cancer support since then.   He owns a wig and styling salon but he never even mentioned the name of it.  I did get my wig there before I even signed up for LGFB program.  I was a very positive experience.  By the end of the program everyone had their heads bare and were trying on wigs and hats. 

    Hope everyone has mininal s/e's.

  • Tigwin
    Tigwin Member Posts: 115
    edited April 2008

    Steve...the decadron revs me up like a crazy women.  My parents actually took me to my chemo and they were actually laughing out loud since I was talking so much.  It was so silly.  At least we got a laugh out of it.  I take two tablets am and pm the day before, during and after then in cuts in half for three days.  I am still able to sleep with ativan or benedryl.  It  must do something because I had barely any SE"s.

    Sharon...you are my hero !!  You ran Go Girl Go...I am trying so hard to get well so I can exercise.  Counts really went low and got a terrible cold on my second round of antibiotics for bronchitis.

    Atlanta...I thought of a great solution for you today.  Ask the tech when someone with a better time will be done with their treatment and could you take their time slot.  I know you may have thought this out but I am not working so figuring out how to solve a problem is very important to me with all this time on my hands...LOL 

    So today I decided I actually love my hair and my breasts.  Now i must tell you all I have never totally loved either.  My hair is very very baby fine, thin, flat head of hair.  My breasts are just your average 48 year old breasts.  A little droopy not too big.  But now that I know I am losing both I totally love them and want to keep them.  I had to laugh out loud when I found myself feeling this way.  Funny how we always want what we cannot have.  Just made me laugh. 

    Night all

    Shar

  • Tigwin
    Tigwin Member Posts: 115
    edited April 2008

    Grama and JT.... I am so sorry both of you had such a tough time.  Both of you rest and get lots of TLC. 

  • loopyloulee
    loopyloulee Member Posts: 34
    edited April 2008

    Hi all!  Just thought I'd check in to let you know there is a light at the end of the tunnel!  I have hair!!  Yahoo!  It is very short, and hugs my head, and looks like it will be salt and pepper.  My hubby says who cares, when it's long enough it will  be any color you like!  He is a sweetheart!  I guess, if grey hair is all I can complain about, I'm doing good!  I am sorry some of you are having such a difficult time.  I don't think I could have gotten through this with out this website.  The doctors just don't know what we go through.  It was so nice to read that other peole had the same bizarre things happening to them.  I still read all your posts, and will check in from time to time.

    Welcome to all the newbies, and good luck to all!

    Lou

  • KathyL
    KathyL Member Posts: 109
    edited April 2008

    Hello everyone!  I missed yesterday... had a very busy day.  I went in to tell my office that I wasn't coming back to work (I've decided to accept a much slower paced, less demanding job).  It's a long story, but they basically didn't accept it and want me to consider other options.  I can't even quit right these days!  So now I have more things to ponder.  I know it's great to have choices and have the ball in my court, but can't something be easy???  Anyway, today I see my PS to find out when the rest of my reconstruction can take place.  Yippee!

    Debap:  I've gained that 10 lbs you talked about.  And it all really does seem to be fluid retention (I was tols this IS b/c of the taxotere-I HATE that drug!).  My eyes and ankles are puffy and my fingertips constantly look like I just got out of the tub.  I'm hoping increased activity/exercise will help it go away.  If not, I may ask for some diuretic to help out.  I had not heard about the capillary leakage-makes total sense!  But I'm still not at all happy about the bloated look I now sport!

    Beegirl:  I faithfully used the TTO on my nails and I must say, my nails look great now that I'm done with chemo!  None fell off, or show any signs of it.  I have a few faint dark horizontal lines that I noticed as my nails grew out more.  I had the nailbed sensitivity off and on during chemo, but that has seemed to resolve already (I'm one month out now).  My nails are growing pretty fast (faster than my hair), but despite the fact that they are hard, they seem to break an awful lot and always right down at the bottom!  I'm still using the TTO here and there just to finish out the bottle-it was so d@*& expensive!  I'd say, overall, the TTO was smelly, but so worth the use!

    Jisman:  Liked reading about your support groups.  I'm going to take part in a study being done at my cancer center about support groups for BC patients and their significant others (basically, what effect does it have on the pair).  I'm pretty excited about it.

    Otter:  I remember that point when my hair came out.  I was almost obsessive for a bit and would pull it out all the time, until it really started coming out in handfuls, then I just buzzed it off.

    Swimmer:  I got the Aloxi IV with each chemo round.  It was great!  I had an RX at home for Zofran, and never had to use it!  Every once in a while I'd feel queasy (but it really was rare), and I just wore Sea Bands for the day, then it was gone.

    Algw:  I have hope that not only will our hair come back better, but we each will be "new and improved" at the end of this long journey!

    Goldilocks:  Sorry your LGFB class was boring-it really did sound blah from your description.  My had some more interaction and no sales picth, but you're right... a lot of it was makeup application, which I think most women know already.  I would have liked some more discussion on "feeling better".  And maybe even some tips for picking out wigs, etc.  But getting the bag of free makeup was great.

    Revkat:  Hooray for your awesome, strong girls!!  Your dh may be having a hard time b/c the baldness is such an obvious sign of what we're going through.  Give him time to come around.  My dh actually says I look good bald (he must be crazy, but I appreciate the sentiment).  He did admit though that he had a hard time seeing me "sick" and feeling so bad in the days after each round; he felt helpless b/c there wasn't much he could do to make me feel better then.  I usually go bald at home unless I'm cold.  Both my kids seem OK with it (they're 2 and 5).  My 2 year old loves rubbing my head now that hair's starting to grow back.

    Ladybug:  I haven't had the skin issues.  Enjoy the chocolate!

    Steve:  ASK ABOUT GETTING STEROIDS!!!  I got them the day before/of/after each chemo round (Decadron is the name of it; I took 8mg twice a day for those 3 days).  They are to help with the taxotere reaction.  In addition, steroids will help with fluid retention, and nausea (acts synergistically with the anti-emetic).   I STILL had the reaction twice despite this regimen-they just gave me more steroids IV with the reaction and added benadryl; I was fine with my last chemo round.  They will be on top of her with the next round and may give her steroids as a pre-med, but I'd absolutely clarify the use of steroid with her now.  Oh, the flushed face can be from the taxotere (not a reaction, just a side effect), or the steroids, or both.

    BD:  Glad rads went well.  And kudos on your presentation!

    Guitargrl:  Congrats on your finish!  I've been done a month now, and it is an awesome feeling.  I'm just wishing all the SEs would go away NOW.  That part is hard for me...

    I just keep telling myself, each day is better even if it's only a ¼ step forward.

    Gramadeb:  Sorry to hear about your hospitalization.  I ended up in the hospital after my first round (though not for the same reason as you).  Hope you feel better soon.  Is your onc going to change your chemo now?

    JT:  Sound to me like you had taxotere reaction.  My HR and BP went up with each of mine (I had the reaction twice).  I'd make sure they give your next infusion real slow and stay by your side, especially if they aren't loading you up with steroids beforehand.  Could always discuss the steroid use with your onc, too.

    Sharon:  You're an inspiration!  Wanna be my personal trainer??? Hee hee hee.

    Lou:  Good to hear from you again.  Can't wait to have hair...

    OK, I think I'm all caught up.  See y'all later!

  • algw
    algw Member Posts: 37
    edited April 2008

    Deb & jt  - sorry to hear you had such scary results/reactions. Let's hope it was a one-time deal. Feel better.

    Just shows how strong these meds are! I know the T/C kills the cancer, but jeez, it sure does take a toll on everything else too! I guess I still want to believe that strength of attitude will serve me well. Control thing, I guess. My first round went smoothly, but after hearing all these stories I will be that much more vigilant about any reactions I may feel.

    Can I also say that that those of you who are continuing to work through all of this are an inspiration! I can't imagine working  through the exhaustion and bone pain and being able to focus on anything! I was just about to re-enter the work force when I was diagnosed after being home with my kids for years, moving twice, and renovating the old houses we moved into. I have been painting & plastering for 10 yrs, it seems! Anyway, I guess work will wait a bit longer until all of this is done.

  • goldilocks
    goldilocks Member Posts: 106
    edited April 2008

    Morning sisters and brother,

    I did call the onc dr yesterday to let them know about the "tumble". Everyone thinks that I blackout for a moment. I didn't trip or stumble so everyone's flags were flying and wanted me to let the dr know.  I did. The nurse spoke with the dr and he comment was, "Cynthia you have always had unique side effects, be careful and if it happens again, call immediately." They also said to come in today for blood work.  I guess it is a bit concerning, I was only out long enough to fall, fortunately not knock myself out-that was a close one to a door and a step.  Dh really didn't understand what happened until last night. I feel fine, just sore from the fall.  It has not happened again.

     Bd: Congrats on a stand tall presentation.  Whatever it is you do, I hope you get the contract or client.  Marines would say: Semper Fi!

    Happy Thursday all.Cool

  • chj127
    chj127 Member Posts: 146
    edited April 2008

    Yikes, grandma & jt - sorry your tx's didn't go so well!  Hope you have gotten back to "normal", whatever that might be.  I did OK from yesterday.  Super sleepy from the Benedryl, but still couldn't get to sleep because of the steroids so I popped a Tylenol PM and that worked.  I'm on my schedule for the Senokot, and that seems to be working OK also.  I'm starting to feel a bit worse (downhill from here to Sunday morning if things go according to schedule) and am headed out for my Neulasta shot.  Can it be any more fun than this, I ask you??

    lotodgs - here's hoping you're getting by without too many se's by now.

    goldilocks - watch out for those "tumbles".  I had a passing-out experience that they chalked up to dehydration. So here is your daily reminder to drink a lot.

    For those of you still working and exercising - good for you!!!  Anything you can do to keep a routine going and have physical and social stimulation has to be good for you.  I have been working my 3 days per week, and have gotten some light exercise, and it really does help. 

    Off to get my shot!  Have a great day, everyone.

    CHJ 

  • beegirl
    beegirl Member Posts: 53
    edited April 2008

    chj127 - Thanks so much for the cap! It's a little small for me to wear with my "halo" of hair, but I can pull it down over my ears without the halo. I'll be sure to pass it on some day!

    You're really sweet!

  • beegirl
    beegirl Member Posts: 53
    edited April 2008

    chj127 - hope the shot was bearable and you have no further se's (wouldn't that be great!).

  • guitarGrl
    guitarGrl Member Posts: 150
    edited April 2008

    Kathy - which side effects do you still have. At this point, I wouldn't care if my hair never came back except for the fact that it's so cold, but can you taste food???? That's what I want the most. It's awful knowing you are hungry but not being able to eat because everything is tasteless.



    tigwin - I know what you mean about things you are about to lose. I didn't have to lose my breasts, but I look at them now (oversized, saggy, lumpy 60 year old breasts) and grin because they are mine. I'm in awe at how many people here went for the full mast over a lumpectomy. I wasn't ready then, and might not be ready if this hateful thing comes back.



    Is it just me or have others of you had your skin clear up? The skin on my face was not in the best shape, but now I have smaller pores, and clogged pores have gone away or gotten a lot smaller. Something good came out of all this suffering.

  • otter
    otter Member Posts: 757
    edited April 2008

    More about skin changes... 

    My skin has undergone some good and some bad changes.  The oily part of my face (nose, chin, etc.) is clearer than usual.  OTOH, I have some red bumps, like zits, along my hair line that weren't there a week ago.

    One thing I haven't figured out is the sudden appearance of some flat, red, scaly, itchy spots on the back of my hands.  It's not really a rash--these are distinct spots, maybe 1/4 inch in diameter.  They aren't hives, either, because they're flat and the skin is peeling over them.  It looks kind of like eczema, which I've never had before. It doesn't look like an infection, because the spots are dry.  Today I put some hydrocortisone cream on them, and they seem to be better.

    Anybody notice anything similar?  Do you think it's the Taxotere?   Oh, and I lost about half my hair today.  It came out in clumps.  There was enough to make a medium-sized cat in the shower drain.  I've been holding off shaving it until the last minute, but that might be tomorrow.

    Goldilocks, I was thinking neuropathy when you mentioned your fall.  I forgot all about the possibility that you just passed out.  About day 7 of my tx cycle, my BP got really low a time or two.  I had to cut back on my BP meds temporarily. 

    I hope all you Wednesday troopers are doing OK.

    otter 

  • Tigwin
    Tigwin Member Posts: 115
    edited April 2008

    gutargirl...I really did not have a choice I am a past cancer survivor and so they want me to do the masectomy to be safe.  I totally agree two times is enough for me. 

    With regard to skin...my oily skin is no longer oily but I have broken out like a teenager..it is terrible. 

    Okay hair on head coming out slowly...realized somehow with out me realizing it I have no hair on my arms !!! Like..where did that go?  I feel naked.

    It is amazing to me how we all have such similar SE's and then everyone has their own special SE.  Strange how a drug can do so many different SE's. 

    Okay ...off to bed....good night all

    For those who had or have treatment this week...thinking of you all and wishing you the best.

  • guitarGrl
    guitarGrl Member Posts: 150
    edited April 2008

    otter: I've also had the red scaley blotches on the back of my hand & on my back too. I'd have to check with my dermatologist, but it feels like the chemo is also going after sun-damaged parts on my body. Those "pre-cancerous" things they always freeze off. Mine aren't totally gone, but there are fewer.



    tigwin- I'm sorry about your lack of choice - that's awful. Maybe the zits are the beginning of your skin getting better. Back in the days when they used to be really good with prescribing retin-A, the skin always got worse before it got better.



    hey one good benefit to this thing instead of none - I'll take it. But how do we get to keep the benefits when things go back to "normal" (whatever that is)



    susan

  • chj127
    chj127 Member Posts: 146
    edited April 2008

    Good morning everyone,

    Yesterday I was more tired than usual for the day-after-chemo, but it's not terrible.  My appetite is all but gone.  I'm drinking but don't want to.  All the usual stuff.  This was my 4th Neulasta shot (didn't get one the first round, but proved that I needed it), and so far I am among the lucky ones - I don't get the pain that so many seem to get, and for that I am grateful!

    My skin has also been clearer than usual.  People have commented on how good my skin looks.  I've had the head bumps, but they seem to come and go throughout my chemo cycle.  Other than chapped lips, I haven't had any of the skin problems.  Grateful for that also.

    (Edited: I also have the twitching eyes.  Wow, that drives me crazy sometimes!)

    beegirl, enjoy the hat - I just thought the style lookes weird on me, and I prefer the bucket-style hats.  I have several of them in different colors.  After my hair grew back from my first chemo experience in 1995, I gave away some of my hats, but for some reason held onto a couple of favorites. I'm glad now that I did!

    Guitargrl & Tigwin - the lumpectomy/mastectomy decision is a tough one.  I had a mast back in 1994 (no choice, started with a lumpectomy, but no clean margins).  I had reconstruction at the same time as the mast (TRAM) and was never sorry for it.  This time, my cancer on the other side seemed to be small and well-contained, and I spoke with 2 breast surgeons who said I should be fine with the lumpectomy.  I couldn't think about the whole reconstruction experience, so I went ahead and had the lumpectomy.  Yes, part of me said, take the d*mn thing off and I won't ever need another mammogram.  But I didn't.  I hope I don't ever regret that decision.  You make the decisions with the info you have, and you can't keep second-guessing yourself or you'll drive yourself crazy!! 

    Hope the rest of you who had treatments this week are doing OK.  Take care of yourselves this weekend!

    CHJ 

  • KathyL
    KathyL Member Posts: 109
    edited April 2008

    Guitargrl:  My lingering SEs include--- swelling/weight gain/fluid retention, and the eye twitches.  I still don't have a great energy level, but it's improving.  Taste came back about 2 weeks after the last tx, and is totally normal now.  As for everyone's comments about skin-mine's gotten worse.  I rarely had acne as a teen-- had it worse during pregnancy actually-but chemo acne is by far the worst and that is still a lingering SEs also it seems.  I'll get like 1-2 big zits that won't go away with my usually remedies and some are scarring now.  I'm so not happy about it.  Next week I see my dermatologist for my routine skin cancer check (I'm a pale, pasty, white girl) and intend to ask him WTF and get something else to use!

    Tigwin:  Me too on the skin!  See above...  So strange how we're all different--- I never lost the arm hair at all.

    Two weeks left before I go back to work.  Yesterday my ps gave me the good news I can move on to the next reconstruction step-my nipple!  She's got me scheduled for Wednesday already!!!  The final step-tattooing-will be a month after that.  Have a good day and weekend all if I don't get a chance to check back soon.

  • lotodgs
    lotodgs Member Posts: 54
    edited April 2008

    Good morning, sisters and brother, hope all will have a nice sunny weekend, the weather here in Va is beautiful, with low humidity and the warmth feels so good on these achy muscles. Today is the 1st day I haven't been to work, just wanted to stay home and rest. It is my 5th day after chemo (Ts#3) and by Sat, my energy level should be back. I am going to a women's Christian conference tonight and on Sat morning. Take care. Thinking of everyone.

  • goldilocks
    goldilocks Member Posts: 106
    edited April 2008

    Morning all,

    Had some serious storms here last night.  It didn't help with the bone pain.  My constant se has been the bone pain.  Since tx#3 I have pain constantly.  Some days are better than others. #3 hit me hard and still hasn't left.  Maybe in a couple of days, just before the Last one I'll feel better.  It usually happens that way.

    Wishing all a se free and sunny weekend.Cool

  • wrsmith2x
    wrsmith2x Member Posts: 127
    edited April 2008

    Hello all.  I'm back!  Haven't been around in a long while but feel the need to write to you guys.  In fact I've been away so long that I am unfamiliar with alot of you.  However, I hope that each of you gets through this in quick fashion and can move on to LIFE!

    I am 13 rads into 35 and all done with chemo.  I have to tell you that I am so happy and feel so good - its incredible!  When that chemo (poison) gets out of your system you WILL begin to feel so much better that it will astound you!  My hair is growing back and I'm beginning to look more normal.

    I am here to say that there is LIFE after BC but you have to embrace it.  I have begun to believe that this suffering that I had to do was part of a bigger plan and has made me look at life in a totally different and wonderful way.  In this moment life is wonderful!  I will just take each moment as they come.

    So there's my pep talk, as it were, and I pray that you will come out the other side feeling closer to LIFE - how precious it is!

    I have done myself a huge favor and started reading "A New Earth" and listening to Oprah's webcast on Monday nights and I have to say that I am enthralled with it.  I have been in a better mood, a better wife, a better mother and overall a better person for having started that process of BEING.  I hope that, if you are ready, that it can help you too.

    I love you gals - you kept me going when I thought that HOPE was LOST.  Its not - sometimes we just misplace it.  But its truly there.

    Here's to better days ahead!

    Cheers!

    Wendy

  • chj127
    chj127 Member Posts: 146
    edited April 2008

    Hi Wendy,

    Nice to "see" you again.  I thought you had left us for good.  Cry  Is your hair coming back in yet?  I'm glad to hear you are feeling good.  I'm trying to imagine right now what that might feel like.  But my last chemo will be May 7, so there is light at the end of the tunnel.  It still feels like forever, though.

    Yes, to all my buddies anywhere near the northeast, what a day it is!  This morning I went from the bed to the sofa back to the bed (with a quick stop at the computer a couple of times) and a friend called to say she was bringing food.  I looked outside and saw that it was in the 70's already.  So the windows are all open now.  Oh, it would be so nice to feel well enough to go out & enjoy it!  But the air is moving through, and that helps my mood.

    Take care, everyone. 

    CHJ 

  • otter
    otter Member Posts: 757
    edited April 2008

    Hi, all-- 

    goldilocks, your storms are headed my way--they're supposed to be here tonight (AL).  Sorry about the bone pain.  Mine was bad from day 4 through day 6 after tx #1.  It just felt so strange, to hurt like that (stabbing pains) in so many places.  I kept thinking it must be some sort of torture device, poking here, then there, then there and there at the same time. But, suddenly on day 7 it was gone.  I hope I made lots of neutrophils.  That would make it worth the pain.

    Susan/guitarGrl, I admit that I was wondering if the red blotches were sunspots (actinic keratosis?).  I, too, have fair skin, and I had 3 of the things shaved off a few years ago. When I saw the spots getting red and scaly, I did get a bit worried...like, what NOW?  I don't need another cancer scare at the moment.  Now that you've mentioned it, though, they are on the backs of my hands--a high risk place.  And, darn it, I just Googled actinic keratosis, and guess what?  They can appear in immunosuppressed people, like those undergoing chemotherapy!:  http://www.mayoclinic.com/health/actinic-keratosis/DS00568/DSECTION=3

    Guess I need to ask my onco next week whether I should see a dermatologist.  We have 2 derm docs here in town; one is a quack and the other (naturally) has a 3-month waiting list for appts. 

    Wendy, you are just too perky today!  Life after BC, huh?  I sure hope so.  I felt pretty upbeat once I was through the worst of the SE's last week.  It was almost as if I'd never had BC.

    Then my hair fell out yesterday.  Pretty much a third of it ended up in the shower drain, and I tugged some more out in fascination (and for archiving).  In the meantime, I have fabric to hem for scarves, and I'm waffling between 2 different wigs I might order (maybe I should get them both).

    So many decisions....

    otter 

  • Believer0711
    Believer0711 Member Posts: 64
    edited April 2008

    Hi all! Hi Wendy!

    As far as skin, I did notice some improvement on my face. Zits dry up quicker. But I have the skin peeling on my hands, esp after shower. My scars (accumulated from childhood to present) have flattened out! I had about an inch keloid on my left arm from a vaccine when I was 7 yrs old, and is flat now.

    Today, I saw a couple fuzz on my head -- yey, it's growing back!!!

    Susan, I was very sad to see my left boobie go bye-bye. But had no choice. I had a multi-centric DCIS, so lumpectomy was not an option. I'm ok with it though, because I wanted those buggers out. The immediate recon made me feel whole again :->

    Goldie, you be careful out there, girl. Do you feel numbness on your feet and hands?

    Lotdgs, oh I would love to go that conference too!!! Enjoy and be encouraged!!!

    KathyL, congrats on your next step!!! I will have my exchange and nipple recon on May 14!!! My headlights are not even, and I can't wait to get mine done too!!!

    40Some, how are you? Your se's pretty much gone now?

    Artsee, how's your tc today? Btw, contest brochure in the mail so you get it soon. Hope you can join and WIN!!!!

    Take care everyone and hope you're having a pain-free, stress-free Friday!!!

    Love,

    Aurora

  • robink
    robink Member Posts: 60
    edited April 2008

    Hello T/C recipients,

    It looks as if I'll be officially joining your "club" the first week of May.  Next week is chemo teaching and baseline labs, the next week a final meeting with the onc to make sure we are all on the same page and that my hubby and I understand what's ahead.  Today I am glad for the removal of my drain yesterday, I am glad for the melting Colorado snow and the birds chirping in the forest, I am glad for two weeks to feel semi normal and to continue to heal before the next phase begins, I am glad that each worry I have allowed to pass through my mind God takes care of and shows me He was in control from the start, and I am glad for each of you to share things with that so many others would not understand.