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Anyone on just Taxotere and Cytoxan?

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  • otter
    otter Member Posts: 757
    edited May 2008

    It is so great to hear from everybody, especially those of you who have "graduated" from chemo camp.

    craftygal, we are all giving you advice based on what worked for us ... and it will be different for each of us.

    I heard all about Biotene products, and found them in every pharmacy I checked.  But, so far I didn't buy any.  Instead, I use the soda/salt water rinse my onco recommended. The recipe isn't very formal--it's something like 1/4 tsp baking soda + 1/2 tsp salt in a tall glass of lukewarm water.  Make this up and swish your mouth with it several times a day.  For me, the most important period is between day 3 and maybe day 8 of each TC treatment cycle (I'm midway through round #2).  That's when my mouth and tongue are feeling very tender and swollen.  I'm sure Biotene helps with that, too, but soda/salt water is a lot cheaper and it works for some of us.  By day 9 or 10, my mouth is no longer tender, but it still helps to keep rinsing so things stay moist and clean in there.

    Do not use any mouthwash that contains alcohol.  Most of the common ones do (Listerine for example).  Even many of the fluoride rinses (Listerine, Act) contain more than 10% alcohol.  It will sting, and hurt your mouth.  I found a version of the "Act" fluoride rinse that has no alcohol at all, and that's what I use at night during the times my mouth is not sore.  My dentist wanted me to use a fluoride rinse before this BC thing began, because we have a private well. 

    Brush your teeth frequently--after every meal at least.  I bought several "extra-soft" toothbrushes, which my dentist recommends anyway.  If you run hot water over the toothbrush before putting toothpaste on, it will soften the bristles even more.  Then brush very gently, but be sure to do it often. I am still using my regular toothpaste, which happens to be Colgate "Total" (I think).  It's a mild toothpaste that has no abrasives that I know of.  It doesn't sting at all.  OTOH, lots of women here use Biotene toothpaste.

    Unlike most people, I get my Neulasta shot on the day of my chemo tx. That is not standard protocol, but it's something my cancer center has studied.  I had pretty bad bone pain during my 1st tx cycle. This time it was not bad at all.  I am not taking Claritin, but I do use Advil for the pain, as per my onco's advice.  She said she would rather have me use Advil than Aleve, because Aleve is more likely to cause stomach irritation (which we don't need when we're battling indigestion). She also didn't want me using any NSAIDS or even Tylenol during the 2nd week of the cycle, when a fever might be the only indication that I have a dangerously low white cell count.

    I can't offer advice on the hair thing.  I still have some, although I look like a Chernobyl victim.  I'm beginning to think the commando (G.I. Jane?) look would be better.

    otter 

  • goldilocks
    goldilocks Member Posts: 106
    edited May 2008

    Welcome new sisters, and good to hear from you brother.

    I have used Biotene since day 2 from when I started. Unfortunately, I am one of those that have several side effects that others don't get. Due to me being allergic to many meds, I have benadryl as my constant friend. I have had mouth sores since tx #3, but this last one they became much more uncomfortable. I only have them on the inside of my lips. The lower sores make it difficult to eat without biting myself. So I need to eat slow. Fortunately, I finished with #4 and am just having to get past the se.  This is day 7 and am in full swing of side effects. I am having to take neupogen shots daily and last evening they kicked in with a roar.  I can barely walk with out pain. CryI am taking all the meds that I possibly can take to help.  2 more days of shots, let the healing begin. I am so looking forward to getting past this.  For those of you that are just starting on this journey, remember to slow down and take a deep breath.  I finally realized just this week that being the cheerleader for other people is a good thing, but when you are around people that look at you and think you are fine they expect you to be there for them, and give them all your energy. I am one of those people that when at work I give all that I have to getting the job done, but being strong is actually a weakness.  I don't look sick other than the fact that I have no hair(wear hats), so people expect you to perform as normal. With the pain that has come on due to the tax and shots, I stayed home today and possibly tomorrow. Only one person from work has called to check on me.  Self-pity today, guess so.  Everyone wants you to listen to their sob stories and console them, but when it comes to asking how things are going for me...their comments are crazy. Just yesterday I had an acquaintance say "it could be worse". Then you have those that want to compare what you are dealing with, with some family member that had cancer 20 years ago and tell you how bad it was for them. Asking for help is not my personality, but having to listen to some people just makes me want to scream. Yell

    Thanks for listening.

    Have a good day. Cool

  • beachmom13
    beachmom13 Member Posts: 85
    edited May 2008

    Hello craftygal - I bought and used the biotene toothpaste and mouthwash everything I went to the bathroom (just needed a connection) for the first 3-4  days after treatment. I didn't have any sores, but my mouth felt fuzzy and I never felt like my teeth were clean.  Switched back to my regular toothpaste (colgate) and the only change I see is that my teeth feel clean now.  I did switch to a soft toothbrush since I have a tendency to brush my teeth really hard.

    I am also having 4 tx of TC and am on day 9 of the first.  So far, I haven't had any major se.  I was very tired days 4-7 and slept a lot.  My onoc. doesn't routinely give neulasta.  He checks your blood a week after the infusion and makes a decision then.  I did receive it yesterday and will continue it the day after each tx.  I took claritin, as several people suggested, just before, and aleve or tylenol every 6 hours since.  As of now,(and I know it might still be early), I have had almost no pain.

    As I'm sure you've read, it helps to eat something small often - like every 2 hrs. and drink - lots of whatever you feel like.  My nurse told me to be sure to not drink only water, it will dilute the minerals in your body too much.  Someone, I think Kathy's hubby, suggested a lime cordial helped with the taste thing.  I'm going to try that next time.  I love limeades and a old timey drive in nearby makes killer ones.

    I'm hoping the best for everyone today 

  • Tbirdkim
    Tbirdkim Member Posts: 4
    edited May 2008

    HIHO All,

    Woke up today in better spirits than I have been since this all started, Thank You.

    ladybugcyndi- Did you have a mastectomy? You mentioned rads, which since I had a simple Mastectomy(2wks today) there is nothing to radiate. Yes your Dx is like mine.

    At this point I'm really leaning to forgo chemo. I feel fortunate that I do have some time to weigh the pro and cons(being a Libra that's who I am) I have a call into the State (I'm being treated through  a State funded program WBCCHP) to see if genetics are covered. It's unfortunate that being self employeed and uninsured plays into your decision making process.

    I meet again w/ my Ocn on 5/13 to talk etc. as you know they throw alot of info you way, I am blessed to have a good man by my side. I'll probally start a coversation soon looking for those who have opted out of chemo to get their take. I do believe there is no right or wrong, but just to be confident in the choices we make.

    I realize chemo has changed since the 70's when my Mother was diagnosed and I watched it eat her alive,but lets not go ther right now. I have a choice and i plan on making an informed one, and thanks to this site I have the tools to do so.

    FYI back in Dec. prior to this I went on Effexor XR 37.5 for night sweats and it has worked wonders. I'm peripausal already and get bonus periods, 3 in Feb.

    It is now time to eat something and take a pill.

    Healing Thoughts and Blessings to all,

    Tbirdkim

  • gramadeb
    gramadeb Member Posts: 66
    edited May 2008

    goldilocks - I hear you on the work thing! I elected to continue working through chemo - could have taken months of medical leave but felt dedicated to do my job - as well as not wanting to sit home and feel isolated! But there are days when I want to say "screw it" I don't want to be at work. I do work for very caring people and they have really helped me through the last few months - but sometimes they say the dumbest things. I have a medical director - saw him first day back after round 2 - so still feeling foggy and not the best. He was asking how I was - asking how long I had before I finished chemo. Told him 5 weeks until the last one - his comment "well, better than 5 years!" Wow that was reassuring! I know he didn't mean anything bad by it - just a weird statement.

    Regarding nausea issues - nutritionist suggested to not mix eating and fluids - eat a small amount without liquids - let that settle for about an hour - then start drinking again. I have a hard time not having fluids with food - but last round it did seem to work - I would just take a sip of liquid to wash down the food.

    Deb

  • Tigwin
    Tigwin Member Posts: 115
    edited May 2008

    Hi Ladies, Have a question.  I am not sure but I believe I am having hot flashes for the first time.  I am just sitting at the computer reading and then I get a very small flush of heat to the top of my head which kind of takes over for a few minutes.  If the cat is in my lap it is overwhelming heat, which it has never been before.  The heat just kind of comes and goes. Pretty much one every few hours.  Here is what I do not understand...what is chemopause and menopause.  My onc told me I would go into menopause with TAC.  If these are hot flashes what is your experience ...I am in round two do they just stay here or get worse with every round.  Thanks for the help.

  • otter
    otter Member Posts: 757
    edited May 2008

    Tigwin, that sure sounds like a hot flash.  Mine were the natural kind, triggered when I went through menopause a few years ago.

    Chemopause vs. menopause?  I think "chemopause" is just a euphemism for the un-natural menopause caused by what the drugs do to us.  Someone else will have to jump in to tell you whether it gets worse.  Since I seem to have reached my hot-flash quota already, I haven't had any from my chemo.  That may change when I go on an aromatase inhibitor this summer and every last picogram of estrogen is eliminated.  The fun continues!

    otter 

  • chj127
    chj127 Member Posts: 146
    edited May 2008

    When I had AC back in 1995 (I was 40), I lost my periods for about 6 months and had the kind of hot flashes where I took a towel to bed with me!  Those went away after a short time, and after 6 months I got my period back which lasted until 2004. I also took Tamoxifin for 5 years, but that didn't seem to cause any real se's for me.

    But (say it with me) everybody is different...

    CHJ 

  • JaniceWA
    JaniceWA Member Posts: 3
    edited May 2008

    Chemopause! Lol, I had never heard that phrase, but I had my 3rd tx on the 17th of April and thats when the hot flashes began, my next cycle is on the 8th of May then NO MO CHEMO!!  I'm receiving Taxotere and Cytoxan for 4 cycles too, followed with 6 weeks of radiation then 5 years of Tamoxafen.  The first cycle I did have a reaction but have been handling it okay ever since. I also get the Neulasta shot the day after which I also had severe bone pain too but it's only for a couple of days and I thank God for Vicodin! 

  • beachmom13
    beachmom13 Member Posts: 85
    edited May 2008

    Tigwin - sure sounds like hot flashes.  As with Otter, mine were the natural kind and worse at night.  It got to the point where they were happening every hour, or a little less and all covers and clothing were too much.  Cutting on the fan and opening the window, even in winter were the only solution.  Now I find keeping an insulated water bottle full of ice and water helps.  It's my dh's job to fillit anytime he get up during the night.

  • Tigwin
    Tigwin Member Posts: 115
    edited May 2008

    Thanks friends,

    I just decided that the straglers of hair had to go. Cut the remainder off.  Like Otter stated..kind of looked like a fall out victim!  Now for some reason I feel strong and healthy. Imagine that bald and feel like I look healthy. The hair was just so stringy and dry I had to let it go. Took a shower and had to laugh that I actually tried to rinse out my hair as if I had some back there. LOL

    As for the hot, hot, hot flashes...thanks for sharing...I guess I will just have to try and stay cool.

    beachmom..like the fan and waterbottle idea...I may just try that tonight. It does seem worse at night. I seem to go from hot to cold to hot to cold. Waking up every hour or so.  UGG...just keep telling ourselves...this too shall pass!!!!

  • gramadeb
    gramadeb Member Posts: 66
    edited May 2008

    I am post-menopausal but after chemo started so did the night sweats and hot flashes. It got to the point that they were almost constant at night - I would get hot, finally cool down after several minutes - then start all over again - I was awake all night. I was started on Effexor 37.5 mg and it has worked wonders. It is an anti-depressant that has found to be effective for hot flashes. Usual dose is 75 mg as an antidepressant but 37.5mg works for hot flashes.

    Deb

  • beachmom13
    beachmom13 Member Posts: 85
    edited May 2008

    Deb, I'll have to ask about effexor.  I've been on wellbutrin, but if I can get 2 for the price of 1, that would be even better.  The hot flashes and especially the night sweats began years ago, but they have gotten worse since the  chemo

  • lotodgs
    lotodgs Member Posts: 54
    edited May 2008

    WHEN I had bc 13 years ago at 35, I immediatley went into menapause due to the chemo I was taking at the time, I have had hot flashes for the past 13 years and still do, now with the T/C combo, I still am flashing, I take Effexor and does seem to help the flashes at night. Hang in there ladies, I take a cool bottle of ice/water and place it around my neck, that is my only relief.\\

    Hope everyone is feeling better today with the s/e and all of our aging parents and their issues,etc. My parents are deceased and I understand what you all are feeling and going thru. I was a caregiver for my mom in a nursing home for 7 years. Hang in there. 

  • chj127
    chj127 Member Posts: 146
    edited May 2008

    lotodgs - what chemo drugs did you get back then?

  • robink
    robink Member Posts: 60
    edited May 2008

    Hi Friends!

    One down, 3 to go!  We arrived at the infusion center at 9am, a snowy day here in Colorado Springs.  Labs were drawn and when they came back within normal limits I recieved Taxotere then Zofran then Cytoxin.  My dh was there with me and actually be we both a little bored.  Good thing he brought his laptop computer.  I made it though a chapter in a book I've been working on forever.  Funny, I kept waiting for "something to happen" but it didn't and I am so glad!  Looks like Zofran will be my friend the next few days and then see when the fatugue hits, hopefully not to bad and not to long.

    I've added baking soda and biotene to my shopping list.  L-Carnitine was recommended: take for 7 days starting the day of chemo, 500 mg twice a day to minimize risk of neuropathy and lessen muscle/joint pains due to Taxotere.  I haven't heard any of you mention this but figure I will do what I can to lessen side effects.

    Right now I'm a little tired from the day so I'll be checking back in tomorrow and trying to send individual responses.  Thanks for your prayers and good wishes!

  • sharons
    sharons Member Posts: 177
    edited May 2008

    CHJ - Glad the other siblings are helping out with your parents...my thoughts are with you

    Jisman - Congrats to you.  I have felt pretty good today.  Went to work, and even taught tennis class for two hours...however my feet are swollen now.  When I went to get the shot they said to take a lasix and put my feet up..they look a bit better...kind of itchy and tired now...

    For all last time and this I took two ativan for the four days after chemo 3 and really didn't have a bad day...don't know if it was that...but I am doing it again this time.

    RobinK - I hope you have very few SE...hang in there. 

    I also used biotene toothpaste, and ACT rinse at home and biotene at work...no mouth sores ever...just the nasty tastes

    When they tested me before treatment I was pre meno...I had a hysterectomy in 95 and have had night sweats for awhile.  But I can say the hot flashes have started since #3 tx, and I have many in the day and at night.  Onc said that we will redo the hormone test in about 6 weeks.  Oh yea before I forget if you have running shirts the ones that wick wear those to bed...then at least only the bed gets wet..you can through a towel on it, and you don't get the chills from having a wet top on....I have been meaning to tell you guys that

    off to bed for me

    Sharon

  • debap
    debap Member Posts: 51
    edited May 2008

    SharonS:  Is ativan for nausea?  I would love to try something to get me out of that "funk" on Day 4 and 5.  I'm not exactly nauseous, just feel "yucky".  My last tx is on Wed. and it would be nice to have less se's.  May I ask how much the hysterectomy has affected your life?  I am seriously considering having my ovaries removed and my onco said if I do I might want to think about taking the whole thing.  I am 42 and finished having children, but I don't know if it would be something traumatic or not really a big deal.  I have to go on tamoxifen anyway...  So, this will be your last "bad" weekend!  You will have to let us know how soon your hair grows in.

    Debbie

  • otter
    otter Member Posts: 757
    edited May 2008

    dbab/Debbie, my onco prescribed Ativan to counteract the insomnia caused by the dexamethasone (Decadron), and to provide some anti-nausea relief, but also to reduce anxiety.  Who, me?  Anxious?  Why, for pete's sake???  My onco looked at my dh and said the Ativan would help with irritability (which the Decadron can cause).  Why would she look at HIM when saying that?  :)

    robink, two things:  watch out for constipation, and watch out for indigestion.  Those can dominate your life during the first week after a TC treatment, if you don't get on top of them right away.  I don't think nausea is such a big problem with TC like it is with AC (Adriamycin/Cytoxan) and some of the other regimens.  The anti-nausea meds are notorious for causing constipation.

    I would like to report that I am doing well today, day 9 of round #2.  That would be true if it were not for one nagging little problem that has appeared on the top of my head.  I have a rash all over my scalp.  Red, itchy bumps, but only where my hair was/is.  This is despite a conscientious program of scalp hygiene that has not changed since chemo began (i.e., no new chemicals or conditions except the chemo).

    Most of the bumps are just that--no scabs or anything.  A very tiny fraction of them have small pustules, like folliculitis might have.  I have never worn a wig, and I only wore a soft cotton cap about 5 hours yesterday--otherwise I'm bare-headed.

    OK, after a few literature/Google searches ...:  Taxotere is among the chemo drugs that can cause folliculitis and/or pustulopapular (papulopustular?) dermatosis.  It's not usually bacterial (the pustules are sterile), but the bumps can become infected if scratched or kept under cover.

    So, tomorrow I need to call the onco's office again, I guess.  Tell me again what y'all know about scalp rashes, please?

    otter (scritch scritch scritch) 

  • Tigwin
    Tigwin Member Posts: 115
    edited May 2008

    Hi All Thanks for all the hot advice LOL !!!

    SharonS...great idea on the wick shirt....I be I could use my road biking cap which is wick material as well to keep my head cool under the wig and scarfs.Thanks

    otter...the lady at the shop where I got my wig told me to use Sea Breaze on my scalp if I got the red bumps.  I only have like two bumps on my scalp so I used toner today and that really helped. I still shampoo and condition my scalp every day when I shower.  Hope yours gets well soon.

  • Skarem
    Skarem Member Posts: 4
    edited May 2008

    Skarem in! Just had my first TC round. The IV went in much smoother that I thought (compared to the last two nurses that just should not be doing iv's) so that started me out more relaxed. THe we set up the DVD player and turned on 27 dresses. It was cute...although a bit low. Anyhoo....got interrupted as I had an allergic reaction when the Taxotere was going in. My chest started tightening then my toes to my shoulders started severly crampin and shooting pain. They shut me down real quick and gave me more benadryl and some meds to "calm" me down bec my bp shot up. I was freaking out!!!! After all that went in, they started and thing went smoothly the rest of the time. Get my first Neulasta shot tomorrow and am going to pop some meds before I even get it and am going to getmy hubby to bring home some vikaden from his office if I get really bad. Will try to make it with Advil. Iam "waiting for the proverbial shoe to drop" bec. other that being a little groggy and not feeling like my fingers want to do what my brain is telling them...I feel fine.

    Got four wigs yesterday. My 25 and 29 year old step daughters came with me to consult and I ended up getting two that are totally my dream hair if I could have it, a short one and one built into a hat to use when we are golfing. Sported for my son and he thourgh they were cute. mY babysitter wants to steal one and go visit all her friends in it. Could be fun.

    Well ya'll   hoep all it well with you. Blessings, Because He Lives, Sarah

  • Skarem
    Skarem Member Posts: 4
    edited May 2008

    I totally get what you are saying about others horror stories. I dear friend whom I wish I were more like taught me that she would simply say with a smile  "Thank you so much for caring enough to share the hurts and wounds from your personal past. That means a lot to me" when they made those comments. Then she would just take things that she could use and dump the rest. I stuck my foot in my mouth the other day with a friend who had a suprise pregnancy at 42 and she was freaked out/ kinda of depressed the whole pregnancy. Well...when I told her I had breast cancer I made a comment that having a suprise kid seems like nothing now. I felt so bad that I could not wait to talk with her again and told her that it was rude of me to say that because her hurts and her feelings were hers and to even try to compare them to mine was selfish and un Christlike. My counseling history taught me that everybody own's their own hurts and somehow in sharing those hurts with us they 1)really feel like they are helping 2) they are still going through the grieving process in their life and in sharing with us..it is  bit cathartic for them. Anyhoo...gleen from those conversations what you can....and if nothing else...be thankful we did not get it 20 years ago right. Hope you have a great day dear. Blessings. PS. I just started this process. Had first TC today. Had allergic reaction and had to get more benadryl..then I was fine. Was pretty freaky though. Get Neulasta shot tomorrow. Not looking forward to the SE's. Got some good info from you girls. DId exercise help anyone through those tough days?

  • robink
    robink Member Posts: 60
    edited May 2008

    Hello to any night owls.

    It's 1:54 am here in colorado.  After returning home I didn't have any problems other than feeling restless and a bit tired.  Was able to eat, several small attempts but nothing tasted good, salad, a piece of pizza, my beloved chocolate.

    Took my zofran at 8, ativan at 10 then tried to sleep but can't.  I'm continuously clammy, flushed, sweaty and itchy.  Not seeing a rash.  Trying to drink lots of fluids as suggested to flush the cytoxin from me byt that's getting old aready.  Oh well - will aim of a few hours sleep and more water.

    Otter: I took my first doses of senokot and pepcid ac as prememptive strikes against constipation and indigestion.  Thanks for the suggestion, was already prepared.

    Skarem:  you got your 1st treatment May 1?  will you be on a 3 weeks infusion schedule?  Sorry about your reaction, imagine that was a bit nerve wracking.

    Tbirdkim:  you are right.  The decision you make has to be the right one for you.  Just be sure you have all the possible options then take time to think about it, certainly pray about it, talk about it with health personnel or freinds whose opinions you respect.  I'll pray for wisdom for you in the decision making process.

    Good night ladies.

    Gotta try to sleep...spending to much time correcting typos

  • chj127
    chj127 Member Posts: 146
    edited May 2008

    Hey - I only have a few minutes, gotta get showered & dressed & off to consult with the radiation oncologist.

    otter - lots of us have had the red bumps on the head.  I had them a LOT early on, but they have gone away in the past month.  Once I realized they were just another thing that happens, I didn't worry about them.  I always covered up with hats or my wig anyway.

    Robink & Skarem - congrats on getting through round one!!  Skarem, sorry you had the reaction.  I never had to deal with that, but a number of others have.  It seems that the onc nurses are always ready to spring into action.  They will probably slow your drip in the future. 

    Robink - see?  Nothing to it, right?  Laughing

    Have a great day, everyone!

    CHJ 

  • sharons
    sharons Member Posts: 177
    edited May 2008

    Good Morning All - Hard to believe it is May, and this journey for me began in Dec with a routine mammogram....

    Glad to be past the chemo - tigwin another tip I found last night was turning my silk pillowcase over when I got a hot flash to cool my head off

    Debbie - My onc told me to take 2 ativan for sleep, but I think they are preventing the yucky morning feeling...

    Skarem and Robin K...glad you have 1 down...I felt good the day I got my first shot after chemo 1 and went for a run...bad idea...that is the only treatment I had the horrible bone pain...now I just walk a little...if I feel like it til about day 6 or 7 and then would start some real exercise - cycling, walking, running for at least 30 min everyday til the next chemo...and always the morning before chemo...I really think it helps!  But everyone is different

    Main side effect this morning, just feeling flushed and hot flashing - staying home for awhile and working on a couple of projects where I really need to focus...at work I get too distracted...will go in at lunch

    CHJ - Good luck and congrats to you - onto rads.....a friend here told me to buy camisoles to wear as she didn't feel like wearing a bra during that time

    Sharon

    Have a great day

  • goldilocks
    goldilocks Member Posts: 106
    edited May 2008

    Morning all,

    Skarem: I understand what you are saying. Sometimes I feel like people are making what we are going through as so sort of competition.  Mine against yours kinda thing.  I smile and be as polite as possible. Thing is, sometimes people just go stupid. They mean well, and yes I am happy to not have gone through this 20 years ago. Did however go through this 5 years ago. Same people that told me the stories then are telling them to me again. Guess that means chemobrain affects others also.Laughing

    Congradulations to everyone that has graduated from Taxotere/Cytoxan.  Getting it behind us and moving forward to new and wonderful adventures.

    For my those of you entering into the rads stages, God Bless. I won't be going down that road, nothing left to zap. I did do the rads last time. The thing that I remember most is getting tired after going every single day. Can't really say if it was the rads or just having to get there. The dressing and undressing was most tedious. I did get to choose what time I would go in every day. I set it up to go first thing in the morning, and went to work after that. Going in without a bra, a zip up type shirt so that when the rads were done I would get ready for work there. I carried my work blouse, bra and any jewelry to wear that day. Less undressing, to hassle with. I always had to put on a gown, so that made it quick. My onc dr also made sure that I had salve to put on the radiated area after each and every treatment. Aquaphor was what I used. You can buy it pretty much anywhere. It helped keep the skin moist and the burn less painful as time goes on.

    I'm a week out from #4. For me, the se have kicked in with the winds/storms we are having. My legs feel like they have 100lb weights and an elephant is sitting on me. Went for my neupogen shot yesterday and was told I'll need to do blood work today instead of a shot.  The nurse feels that the neupogen has stirred up my insides enough. I'm feeling a bit dizzy this morning. Don't know why, but will bring that up when I go in.

    Happy Friday, all.Cool

  • otter
    otter Member Posts: 757
    edited May 2008

    Robink, did they not give you any steroids to take?  Most of us were prescribed Decadron (dexamethasone) to take during the days surrounding and following our TC treatments.  My schedule is a bit different--I take Decadron for 48 hours after each TC treatment day, but they also give me some in my i.v. before the TC infusion.  Decadron helps with the itchiness, but it also helps to reduce fluid retention that's caused by Taxotere, and it supposedly helps with nausea too.

    The reason I'm concerned is because of your flushing and itchiness this early after the chemo tx. It sounds like an "allergic" reaction to the Taxotere.  Will you please ease our minds and call your onco's office about it today?  Or, did they give you some kind of long-acting steroid in your i.v. yesterday?  (Decadron is long-acting, but not long enough.)

    Skarem, you sure did scare 'em. (Sorry, couldn't help it.)  Concern about that kind of acute reaction was what really stressed me prior to my first 2 tx's. I was one of the lucky ones (the majority, fortunately) who did not react to the infusion (so far at least). Looks like all my reactions come afterward!

    Tigwin and CHJ, whew!  Thanks so much for the note about the scalp bumps.  I thought I had read here that they were fairly common, but I couldn't find anything when I did a search.  For some really bizarre reason, it feels great to be "normal" even when that means having yet another annoying SE.

    Everybody stay safe today (lots of storms moving across the U.S.), and take it easy.  That's my plan, anyway.

    otter 

  • robink
    robink Member Posts: 60
    edited May 2008

    Good Morning!

    The sun is shining, melting off the snow.  Hurray!  High winds and maybe more snow later today.  Oh well, spring time in the Rockies!

    Otter:  This is my 3rd attempt to respond to your question.  Perhaps this time the site will take it.  I am taking Decadron orally am and pm the day before, day of and day after infusion.  On my chart there is an order for IV Decadron but that is only given if the am oral dost has not been taken.  A little while ago I spoke with the nurse at my onc's office, explained what was happening and she suggested any antihistamine (Claritin, Zyrtec, Benadryl).  Maybe they can give IV Benadryl next infusion day.

    Well, I'd better get cleaned up, may help me wake up and feel better - make my shopping list and head out.

    TTFN

  • beachmom13
    beachmom13 Member Posts: 85
    edited May 2008

    Good morning all - I had the neulasta shot Wednesday morning.  Wednesday was good, went to the LT on Thursday and felt good. Came home and did a little house work.  Then last night around 7 it hit.  There wasn't a part of me that didn't hurt.  Went to bed at 9, feeling awful, took my temp. and it has spiked to 100.3.  Continued with the tylenol.  This morning feeling good again.  I've gotten the porch cleaned off.  It's beautiful here and that's where I prefer to be when it's like this.  I understand the aches, but was the temp spike normal? My blood count was .08 and I was started on antibiotics.  Could an infection have been trying to start and then they kicked in?  Right now, the important thing to me is that it's in the past.

    I'm hoping this beautiful weather (80+, sun) for all today.  And that they feel as great as the weather.

  • Tigwin
    Tigwin Member Posts: 115
    edited May 2008
    Let us not look back in anger or forward in fear, but around in awareness.  

    - James Thurber

    I subscribe to a email that sends me a daily quote...I found this one worth sharing today.  Everyone have a wonderful day.