Im bitchy, I moan, I groan.....anyway.
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Big IOS, I think my pain pump is broke again after two weeks WTF???? I guess I will be in the ER tonight if I start feeling worse, this sucks big time!!!!
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OMGosh! {{{{LuANN}}}} DAngit all! That is just too much! What are they using for the thing? A used pump! Good Lord woman, you've had the realm of problems with that thing! Prayers you don't end up in there, and it starts working again? Are you swelling up again, or is the pain getting worse? Did you CALL them yet? Don't wait till tonight, maybe there is someone there today that can take of it. A surgeon maybe? Geepers.............BIG SUX TIME!
Big that SUX to the rest that need it! Seems the world is falling down around us this week. Hang tight girls, we'll get over this hump together! All for one and one for all! BC SUX!!!!!!!!!!!!!!!!!!!!!
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Holy crap! TOO MANY IOS!! Luann, I sure hope you don't have to go back to the ER and that the pump isn't broken. I'm thinking you need to take a shovel along with you if you have to go--to make sure those morons treat you right!!
I am SO PISSED about what alaskaDeb is going through! I mean, geez...you'd think a frickin BRAIN SURGEON would be more careful!!!!!!!!!! What'd they think...she was making up her symptoms? I need to go buy a HUGH JASS SHOVEL and head north. GRRRRRR
I'm so sorry to hear of yet another lost to this sucky disease. You know, pink used to be my favorite color. It just pisses me off now. I also just want to b-slap some of those pink cheerleader people. Like "Dolly", the complete idiot patient navigator at my cancer center--always shoving pink crap at me and "rah rah rah-ing". She STILL doesn't "get" what stage IV means! She's been in nursing/oncology for 20 years and doesn't understand stage freakin' four bc?!?!?!?! And, WTF? Why do people think a grown woman is going to get all twitterpated when they give her a freakin' stuffed teddy bear? Dolly gave me one the first time I met her and she keeps asking me what I've named it and if it's sitting with me...even gave me a pillow for it's sweet widdle head last time I saw her. Puh-lease! I think I'm going to give it to my BigDog and let him rip its little guts out so I don't have to look at it's pink disgustingness anymore.
Wow, Diane...hostile any? It all sucks, ladies...just a crappy, crappy day today. :-(
(((HUGS)))
Diane0 -
Sucky crappy day here too. I think it must be the end of summer and fall coming.......but sheesh, I used to love the change of seasons. Today I've shed more tears than I have in a long time. I feel so frustrated...........
Hugs to all who are having a crappy day.
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HUGH JASS SHOVEL - ohmigod, was I choking on my Diet Coke on that one!
Diane, I think it must be a requirement for the position that your "navigator" be an addled nincompoop. I finally had to get rude with my "breast care coordinator". Thank goodness it may have prevented her from offering a pillow for 'my' bear - which I did give to my dog.
LuAnn - please keep us updated on your dang pump. Not even healed from the last surgery you dealt with!
Cristine - I hope your brother's bypass goes smoothly. Your poor mom must feel like the hits just keep on coming!
Traci- I'm glad your laptop may have been resurrected. We missed you while it was misbehaving.
Listen to my crap? I just can't think of anything to compare with AlaskaDeb's situation.It boggles the mind.
Lisa
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Gosh, I wanted to post my SOI today...It's only 71 degrees today...but who the hell cares after reading the SOIs (that's the good one, right?) after reading about our dear Deb and LuAnn. And the worse part is that if this stuff is caused by doctors they ought to be ashamed and fix what they did wrong for free! And, that's not even good enough. Deb's got children to keep up with. LuAnn has children as well, and worries about her son in Iraq. All I can say is, hang in there and we'll be praying.
Now I feel guilty posting ANYTHING!
Wish, I'm starting with you. It SUX big time that these road-messer-uppers keep messing around. Let's join Diane and and steal that front loader and drop a big load of dirt of these dirt-bag doctors! Or, we could do this..perform a little surgery of our own (wicked laugh )....
LuAnn, watching our children grow is so exciting. Then, it seems like all of a sudden it hits us! They're grown! We wonder where all those years went. And we know we can't go back. Cry all you want. You have darned good reason. I thought you ONLY had three children too. How'd some of us get so confused. Can we blame it on chemo or the AI some of us are taking? Hang in there. And, hang in there about the pain pump. I hope this can be fixed quickly.
Traci, when I went to my primary three months ago I gained five pounds in six months! And I didn't need to gain 1 ounce. I went to the onc this week and according to their scales I haven't gained anymore. That darned treadmill keeps calling my name as I sit here typing. I need to lose many pounds. I hate the way I look!
Dream, glad you found you're way here. Oh, but it's so good to bitch. Yes, your therapist will be so glad to know you're among us. Hey, to prove it, take some of these bitchy posts to her. She may even get a laugh or two!
Nicki, love that dog AND the flowers. You're up before the sun rises ON A SATURDAY! Why?
Sherri, thanks for telling us about Deb. I was thinking about going to her blog.
Debbie, I'm so sorry about your friend. I think I'm feeling that "hate-the-pink-month." It normally doesn't bother me, but we have too many people we care about getting this darned disease. And then the we worry about symptoms even if they are insignificant. I think I'll take pictures and knock down pink displays (accidentally, of course )
Christine, I'm so sorry to hear your brother has to have a by-pass...no fun. I've known a few people who have had them. Will be praying for all of you.
Felicia, I found you a CYCLE you can ride until you take your safety course. You don't want to mess up the good one.
Diane, you're not being hostile. You're being HUMAN. Give the stupid bear to the dog. Tell Dolly you're dog grabbed it before you had a name to give it.
I hope there's no more SUCKINESS today. Enough's enough!
Shirley
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Sue, Shirley, Nicki--thanks for words of encouragement. I'm sure you're right, it's the expectations. It's over so it ought to be over, dammit! LOL
LuAnn, that really SUCKS about your pain pump...and no word from your ds in Iraq. I'm continuing to pray for him, and will add a fixed pain pump and ER-free weekend for you to it.
Cris--That SUCKS about your brother....and your poor mom missed her retreat, to boot! Will definitely pray for safe/successful bypass on Monday and strength for the family. Is your dh feeling better?
Debbie--I'm so sorry about your friend, Jerri. I know what you mean--sometimes it just seems overwhelming. Had word from one friend last week that her sister, who'd been NED for 4 years, now has mets to bone and lung. Then dh came home Thursday totally distraught and tearful--he has a coworker who has been NED for 3 years that he's gotten very close to since my dx--she found out this week that she has mets to bone, liver, lung. Then add poor Deb's ordeal to the mix and I just get so mad I can't see straight. I'm with you. Forget the F***ing pink ribbons and figure this sh*t out!!
Traci--have to laugh every time I see the bitch slap video.....too bad we can't find one of a BC pt bitch-slapping an MD for Deb!!!
Wishing SOI's to all...
Sherri
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Now here i was getting all set to bitch about something. But then somehow, whatever the f**k it was I thought was so damned important to moan about, well, compared to having A RESERVOIR SHOVED THROUGH MY VENTRICLE or a BROKEN PAIN PUMP... it ain't so bad.
Diane -- Is it wrong to laugh at your description of the twitterpated "Dolly"? And by any chance, does Dolly also run a "Look Good, Feel Like a Transvestite" class over at MSKCC? For all the informed consent forms that WE have to fill out, I"d like to require that our "care providers" fill one out as well, that includes statements to the effect that:
I resolve to pay attention and take seriously a patient's report of double vision or any other complaint lest it mean that I have made a mistake, i.e., put a reservoir through a ventricle in her brain. _____ Initial
I understand that grown-assed women do not regress and become preschoolers upon being diagnosed with breast cancer. I will refrain from talking to grown-assed women in a squeaky voice normally reserved for children's hour at the library and at a pitch that only dogs can hear. I will not give out stickers or teddy bears or cute little certificates to grown-assed women. ___ Initial.
I will not blame grown-assed women for the problems I have getting an IV going. ____ Initial
... you get the idea.
****
The bear as a name. It's a female bear and its name is Dolly.0 -
A big "that sucks!"
Deb - I'm thinking of you and praying that the good docs can take care of what the damn doc did to you. May that one be cursed with a headache that will not quit.
LuAnn - prayers to you, too. You certainly don't need anything more miserable. Hope your son is taking care, too.
I am so sorry to hear of friends dying, unexpected surgeries, and the worries and difficulties out there.
Mom was a bit ticked the other day. Someone she'd been acquainted with for years (we all went to the same parish) died in his sleep. He was cremated, and his family was trying to arrange his funeral. Lifelong Catholic, member of the parish, and the Pastor wouldn't allow the funeral because of the cremation. How in God's name do people get so caught up in their own importance that they deny families what they need.
Mini IOS for me. My #2 pug has gone deaf. Poor guy isn't hearing anything - and we just noticed it. The old guy (#1 pug) is deaf as well, and his vision is going, but we thought the younger one was ok.
Heading off to Washington DC tomorrow for 3 days. One day of sightseeing, one day of work meetings. 3 nights of total remote control control.
hoping the suckiness is kept at bay for a bit.
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Thanks for the support and kind words. My SOI is that my older dd and I are going to San Jose tomorrow to see the Olympic gymnastics team! We've been planning this since the Olympics were on and I'm really looking forward to going with her.
I also can't believe the huge mistake with DebC. How can they mess that up?! Didn't someone in the OR notice it was in the wrong spot?!? Geeeeeeezzzz!!!
LuAnn - So sorry about your pain pump again. I'm hoping it's not broken. That would just SUCK AGAIN!!!
Rock - You kill me with your intelligent zingers. I love it! Just when I needed a laugh....
Wanted to write more, but I have to referree children because dh is better and outside!
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My neighbour and friend died today...........
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I am so tired of reading all this sad news!!
Deb C.,
I'm thinking of you, and praying that your dr. can fix everything, so you can stop having so much trouble! I am SHOCKED that this dr. would still be able to practice medicine, and to mangle up other people's surgeries!!!
I agree with Rock. We need to sign disclaimers, that if they screw up our operation, it's ok... we need THEM to sign a disclaimer that they WON'T mess up!Hugs
Harley
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I warned you that I am new to bitching but I do have a sarcastic viewpoint ....
Tell Dolly with a serious tone of voice and straight face that the teddy bears name is Mother F*cker. Give it to the dog and give Dolly the pillow back saying that MF died a horrible death. You thought it would be appropriate for her to have a pillow to commerate MF's short life.
I have a thread called Jacqueline under Prayers and Spiritual Inspiration (apparently the place to put a thread that no one else will stumble over and actually put a comment).... there have only been a few responses which makes it lonely since I try to post on it daily. I took her an angel and a huge stuffed bunny (not to be mistaken for a teddy bear) that is good for hugging while coughing. I have not asked her to name it.
Thank you to all who have accepted me so readily to the thread. I have friends on both threads and do not think it is wrong. I will not get involved in petty arguements.
Yes I am Saint's friend. She is a wonderful person and I am glad she is my friend. I still participate in chat.... I love chat. It is what brought me here.
Thought this was a good start to a Smart*ss friendship.
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Update on the pain pump, spoke with surgeon and unless I am too uncomfortable I can wait til Monday and he will see me. Probably will be in surgery Monday or Tuesday to fix it. YUCK!
HUGE SOI!!!!!! It may be 2:45 am but my son just called!!!! Finally, sounded terrible but he is ok and worn out. Just hearing his voice made me so happy!
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Way too much suckage, keeping everyone in my thougths, particularly Deb and LuAnn, who are dealing with the worst kind of IOSs, the ones that result when medical professionals don't listen to us!!!
What doesn't suck? Well, um, not that I'm biased or anything, but us, we don't suck! We're actually pretty d#mn funny, particularly given the boatload of crap we all deal with on a daily basis.
Speaking of funny... Rock - bwaah haa haa!
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LuAnn! Fantastic news about dson calling! Whoohooo! On the other hand, BIG THAT SUX about the surgery again Just ridiculous! SO sorry you have go in for that yet AGAIN!
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LuAnn: So happy to hear you heard from your son!!!! Very sorry, though, to hear about the problems with your pain pump. Hoping you can tolerate things until Monday so you don't have to deal with the emergency room, as they are so full of SUCKINESS!
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LuAnn: Good news that you heard from you son. I think we were all beginning to get worried. So what is up with this pain pump breaking. You would think in the day and age, things like this would not happen in health care. I am so sorry this has happened again and sending a big that sux your way.
DebC: Im so upset I could spit fire. Neurosurgeons. They are pompous asses. I hate it when doctors do not listen to us and angry that you had to go through 2 weeks of this. It sucks big time! Sending a hug to you.
Debbie: Sorry to hear about your friend. I want a cure and I want it now. I wish more money was donated to research for a cure! When is the date of your surgery?
Felicia: Thanks for updated us on DebC. Everytime I read that I get so upset. I got a good visual of you riding that bike Shirey got for you. We must have pictures lol.
Traci: Go Cowboys!
Cristine: Sometimes dont ya feel enough is enough already? Im so sorry to read that your brother needs heart surgery. I will say a big prayer for your whole family. Hoping the surgery goes well.
Diane: This is for Dolly and her bears! I truelly believe a breast navigator should be someone who has been through breast cancer. Hope your dog torn the bear apart.
Sharon: Yep, I agree - seems like there is always lots of stuff going down with the change of Seasons. Way too much suckiness going around.
Shirley: Thank you for a good laugh this morning. Thats another thing I like about this thread. We can voice all our suckiness and get a good laugh too. Why am I up early on my day off. Cause Im crazy thats why lol.
Sherri: Yep those darn expectations will bite you in the butt everytime.
Pam: Sorry to hear your pal friends are going deaf. And shame on the church for making things so difficult when someone is going through grief.
Dreamer: Hoping Jaqueline is ok.
Colleen: We dont suck? Oh I got a good laugh from that one. You are right.
OK - Im getting hungry. Must go find something to eat. Then get ready for football.
Nicki
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WOOOOOHOOOOOO LuAnn!!!! So happy you've heard from your son!! I'm going to keep praying for his safety until you tell us he's home, safe and sound. But, I'm sorry you're having to wait until Monday to see the surgeon. THAT SUCKS! Will keep praying about that, too!
Sharon--I'm so sorry about your friend/neighbor. Death SUCKS.
Pam--was surprised to hear about your mom's Pastor taking issue with cremation. At my church (also Catholic) there's no problem with people being cremated. We even have a columbarium in our courtyard (a structure where ashes are interred). Weird, huh?
My SOI for the day is that I actually slept an entire night in bed (I've been spending nights on the couch since last chemo) a whopping 6 hours!! Not straight through, mind you, but I'll take it!
Blessings and SOI Sunday to all!Sherri
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That is exactly where I am. I have been sitting around, waiting to have both tits taken off. Everyone keeps telling me to look at the bright side. Okay, I still feel like screaming. To make it better, my kids live in Atlanta, my boyfriend won't let me set up a space in his house where I can have a chair that is comfortable for me in my post op and I am suppose to be all f' ing jolly! Give me a break. Let's face it, keep you head up is not the line I want to hear.. How about .. what is happening to you really sucks
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Sharon51 - So, so sorry about your friend. No matter how it happens, it is just hard to lose someone we love.
LuAnn - Still sucky about the pump and surgery. Are they gonna get it right this time?! Dang, I hope so! And WOOO HOOO about hearing from your son!!!
Nicki - Absolutely. ENOUGH already!! I hope someone heard me...
Sherri - Let's hear it for sleeping in bed!!!
Off to the shower, it's a 3 hour drive for us today!
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I want to say, sorry for all the stuff I missed while I was in panic mode the past few days. I'll try to read all the posts I missed today inbetween football and snoozing from the drugs. But I hope everyone has a great SOI day today!!!!
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Pinky... Your damned right it SUCKS. People offering the "bright side" are those who want to make a gesture... say something... no matter what it is, it just doesn't seem to cut it. Even if they said it sucks, unless they've been through it, they don't understand. Your BF sounds like an AH for not letting you have a place to sit there. What's up with that? GRRRRRRRRRRRR. Just know that you are not alone, okay?
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Getting ready for football. A big that sucks to everyone who needs one. Back to work tomorrow and that means I will be doing alot of marking my spot lol.
Nicki
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Pinky--WHAT IS HAPPENING TO YOU SUCKS!!!! SCREW THE "MEAN-WELLS"!!!! I know they don't know what to say, and they "mean well" but it doesn't change the fact that what they are saying is the opposite of what you need to hear! You are not alone. Come here and rant and rave and bitch and someone will always tell you "THAT SUCKS!" WITH FEELING!!!!!!
Nicki--me too on the marking your spot. I can't believe how tired I get during the work week--haven't managed to work a full week yet, six weeks out of chemo. I can't tell where the "recovering from chemo" ends and the "fatigued from radiation" starts.....BUT. I have a weekend away planned next week with my oldest son's girlfriend, Melissa. We are going to an artsy tourist town about 50 miles north of her and staying in a bed and breakfast in an old house with a name. I am so looking forward to the time away, even though it means I will be behind all the next week with my housework and such. Oh, well, you can't have everything, right?
LuAnn--SOOOOO glad your son called! Answered prayer!! And the broken pain pump, again, SUCKS!
Pam, I agree, shame on the church. Thought it was supposed to be about ministering to people in pain, not being legalistic and excluding them. That's really sad. I know about the dogs and deafness, too--we have a collie/shepherd mix that is 16--he can't hear, his sight is going, you can tell it hurts him to get up from lying down. It's really rare for a dog that big to live as long as he has, and he's been a great companion.....my prayer is he goes peacefully in his sleep and we don't have to make the decision we all dread. Our pets give us such love, and the pain of losing them is the price we pay, and I say it is WORTH IT--but it's still hard.
Shirley, loved the bike pic. Colleen, you are right, we DON'T suck.
My suckage--too much to do today. Grocery shopping, getting my clothes ready for work, cleaning.
Anybody I missed, THAT SUCKS! and I'm sorry.
Hope everyone has a great rest of the weekend, and Monday is free of IOSs!
Love,
Sue
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So it seems Ieveryone is cool with me being on both site. Goodly. I plan to be me. You may not like me or You dont. Jacqueline is hanging in there. The typing on this is getting extremely weird.
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Nicki, the fish in the bowl and the other in the blender.......too funny! Well not so funny for the blender fish. May you all have a suck free day.
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What the heck happened, this page moves to the right forever!!!!! Who did that????
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HUGE SOI!!!! My son called again WOOHOO!!!! They are being given a week to rest and regroup because they have been working so hard lately and the whole unit is showing signs of PTSD and other disorders. Anyone, he talked for about an hour and said he is within 100 days of coming home!!!!!! He was supposed to orginally stay in Iraq until May 09 but will be back sooner!!!!! OMG you just don't know how happy that makes me!!!!
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Weeehaaaa LuAnn, what great news!!!! As for this thread, I got the wide page a while ago........I'm no computer wiz so just figured I must have pushed a wrong button.
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