Can we have a forum for "older" people with bc?
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Misty - Montreal is a fantastic city - very old - so much to see - if you go - plan a few days
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Still having our very nice weather. No humidity and low 80's temps. Not much breeze today though. Would be nice to have a little more. Nothing special on for today. I will get a respite for kitty care as the daughter is coming from Colorado for 4 days. Moving my friend ( her mother ) into an assisted living apt. All are hoping it is temporary -- her eyes need to get better before she can do well at home, but she has come a long way and so I do hope she is able to manage being at home soon. Anyway, daughter arrives tomorrow evening. She and her brother will drive straight through. It is about a 13 hour drive -- a long haul but with two drivers not too bad for them. They are young enough to do it easier than we older people.
Hope you all have a good day.
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I'm still busting arse in the back yard by the pool. Today was digging the rest of the trenches, putting in steal lath, back filling, and tamping it down to secure it. We were quite sweaty and covered in dirt.
Earlier today I stopped at a landscaping whole sale store, in our commercial area, to get landscape fabric. They had a sign on the door detailing what they're doing now with covid. Contractors must order online, and pick up at a dock. Homeowners, they apologize to, but not selling to them at this time. No one is let in the building. I'll end up at a big box store, or ordering online.
Hoping to find what I need, get it down, and get an order in for rock. Still unsure of 2 yards marble #2, delivered (dropped) in our driveway, or to get umpteen bags. Either way, labor intensive.
Weather looks great here for the next couple of days. Pool weather! Enjoy the weekend.
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Hello all!
Re: Rides - My family used to regularly visit Cedar Point as my Dad was born in/had relatives in Port Clinton. I was the only one who would partake in anything more adventurous than the kiddie rides, merry-go-round and ferris wheel. I can remember riding the Blue Streak roller coaster, all by myself. I still like coasters of all types, but have not been on one since a friend's company picnic at King's Island more than 10 yrs. ago.
Toronto, Montreal and Quebec City are all on my travel list. I am of French Canadian descent on my Dad's side.
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The problem, often not discovered until late in life, is that when you look for things in life like love, meaning, motivation, it implies they are sitting behind a tree or under a rock. The most successful people in life recognize, that in life they create their own love, they manufacture their own meaning, they generate their own motivation. For me, I am driven by two main philosophies: know more today about the world than I knew yesterday,and lessen the suffering of others. You'd be surprised how far that gets you. -Neil deGrasse Tyson
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Having read so much of the Jesuit Relations, I am also eager to get to Montreal and look at those places. And try out what French I remember. I doubt that I have any French Canadian ancestry, although I have a great great grandfather who was an immigrant from somewhere, and we cannot figure out where. Settled in Green Bay area, and I have no Native ancestry (disappointed). His name was Relly Harris. Odd first name. English surname.
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A bit overcast for now. I hope if it rains at all ( I don't think it is actually in the forecast but around it that is sometimes how it is ) that it will be really late. The Sandoval folks are on the way here from Colorado. Brother and sister so they drive straight through ( about 13 hrs. ) and it is not so bad with two drivers. Dh used to drive about the same distance to South Dakota in a day. Most of the time alone, but he often would pull over in a rest stop and have a cat nap ( why it ALWAYS took at least 12 to 13 hrs. ) so it can be done.
When we were young my parents often drove long stretches during their travels. All the relatives were advised that if you drive with my dad, have a big bladder and don't get tired of sitting in a car because Dad would get you there. Hungry, butt sore, and maybe with a bladder ache, but you would get there, safe and sound with the three above caveats.
On a further note on this: Dad was extremely hard of hearing and that was I think often made worse by a lot of traffic sounds. When he was young he learned early on with his bad hearing to keep looking in the mirrors and being super aware of what traffic was doing around him. I think it was why he logged so many, many miles with no incidents at all. I always felt super safe with Dad.
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Cloudy and overcast as the evil twins develop in the Gulf. Florida looks to be out of the cone, at this time, but my thoughts are with the other Gulf coast states.
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Your mention of SD brings back a family memory. My uncle had a brother who lived in Rapid City with his family. Well, my uncle was known for some "whims" that kept the rest of us in stitches. Unbeknownst to my aunt and while she was away for the day, he puts the kids in the car and drives to Rapid City from PA. She is frantic because she came home and no one was there. She doesn't know where anyone is until he called to say he had arrived. This was long before cell phones, long distance was costly so he didn't even call from the road and of course, typical planning (none) they only had the clothes on their backs. His brother's children were comparable in age so they did have access to clothing but this was typical behavior for this goofball family member. They ended up staying for a few weeks and then he drove home again. My aunt was always afraid to leave the kids with him after that.
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We all have those funny family stories. Thanks for sharing.
MC, how much have you done to look for your great, great? I've been doing genealogy for about 20 years and web sites have gotten amazingly good. Reily could have been a last name but I don't think people did that until recently. It also could have been a name that was "given" him at immigration.
When I started I had my grandparents names - now I can go back generations on both sides and have done some for Ken. Some of the census asked country of origin. My Dutch ancestors were in New Amsterdam very early but went to Canada after the Revolutionary War to claim loyalist land. Came back through Detroit in the 1840's. I don't know about Canadian migration through Green Bay but it makes sense. My Dad always said his people had lived in Kentucky forever - turns out he was right - they came with Daniel Boone for bounty land after the Revolutionary War. In other words, they got there before KY was KY. Ken's maternal side were Catholics who came with Lord Calvert. It's been a fun and addictive retirement hobby. I'm stuck on my great-great who was born in Dublin. She was over 30 when she married my GF in 1857 but I can't figure out if that was her birth name or a first husband's name. She was a Margaret too so I have tried hard to find her parents.
Have a safe weekend, everyone.
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Taco, We got into ancestry a few years ago. It was fun research. We did the DNA as well. Both my husband and I were brought up thinking we were German/Dutch, but he is Russian, German and I am English, German. No Dutch. LOL It seems many German went to Holland as a safe haven, but married other Germans. As I mentioned in an earlier post, his family came over in the late 1800's and early 1900's. They wanted to escape the turmoil in Russia and Germany. My family was not in the First Mayflower, but one that followed several years later. The majority came in 1620. Fun stuff.
If any of you are in the paths of the evil twin storms, please stay safe and take precautions now.
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Goodness has to come from the heart, that's one thing I know for sure. I also know for sure that not everything that comes from my heart is goodness, and that's something I'm working on. Goodness has to be pure in intention, and I know that my good acts aren't always intended solely for the good of the recipients. I'm working on that, too. When I truly do good, there's a very good chance that no one ever will notice it, and I'll never be recognized as someone who has done something good. When I can live with that and be at peace with it, I know that I'll have reached a very high level of living. -tom walsh
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Taco, we are probably distantly related with New Amsterdam Dutch ancestry. Many lineages kept to themselves for many many years. Very few married Natives, despite much interaction with the fur trade. Interesting story there.
My Irish ancestry (Maloney) is also a dead end. That is understandable, given the oppression and suppression and famine. As for the Harris, I have not done anything with genealogy since my sister and I were working on it and in the same time-frame she died in a tragic auto accident. She was a dentist, and despite access and serious need, I have only been back for dentistry recently. It takes time for such things to heal.
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MC - I can understand why you stepped away from genealogy. Funny what triggers our grief. I always want to record the death date right away.
My Dutch lines are DeWitt and Hogoboom (lots of spelling). Both families were here before 1650 and went to Canada in the late 1790's. My grandmother always talked about her Canadian grandmother and I found her - Charlotte DeWitt. Issac Hogoboom, who served in the War of 1812, married as his third wife, Margaret Ward (my Irish dead-end) in 1857 in Illinois. This line was in Canada for a time too. The Cain's come in there too, probably Mayflower through Stephen Hopkins. They were founders of Caintown, Leeds, Ontario. All were Dutch Reformed.
Our BFF is Larry Moloney - spelled the way you did. He father migrated from Ireland to Canada to Detroit. Father was a pilot in WWI, I don't whether with the Canadian or US military. I should remember to ask when they get back from Michigan.
Petite - never did my DNA. My daughter did because she is adopted and wanted ethnic information. She too had a few surprises but also confirmed the ethnic info we had been given when she was adopted. Did it before the tests gave health info and I wonder if she maybe should do it again for that reason. On other hand, I don't want it confirmed that I will have the dementia that got my mother and several maternal cousins.
On another genealogical aside - one of my most famous ancestors is Margaret Plantagent Pole - the oldest woman to be beheaded in the Tower of England. Henry VIII believed she was supporting the Catholics and from I've read, she probably was.
Like I said, an addictive habit.
Stay safe, everyone.
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Condolences about your sister, Mary--may her memory be for a blessing.
I did 23 and Me--it confirmed I'm 99% Ashkenazi Jewish; and don't seem to have or be a carrier of a known genetic mutation for anything other than Familial Mediterranean Fever, which is weird because that's almost unheard-of in non-Sephardi and non-Mizrahi Jews. I'd have developed it long before now anyway.
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Hi all. Sure didn’t expect to have to revisit so soon. Dx 6/20/2020 with triple p. Pt1c no nodes grade 3Had left mastectomy with TE 8/4 /2020. 5/25/2018 Dx triple neg T1b 0 nodes had right lumpectomy with savi rad. No chemo. My question now is do or don’t do chemo? At 69 in fairly good health and wondering if it’s worth going through. Mamma print high risk so wondering what the odds were with recurrence without chemo..
I’ve seen so many friends go through it and still reoccurs What’s everyone thoughts on this? I see MO Tuesday
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Lovemyyorkies, I can only tell you what my decision would be were I in your circumstances. Since both of my parents lived into their late 80s (mother with severe vascular disease ) and 90s (father, basically died of old age) I would have the chemo.
Hugs for you as you make your decision.
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LovemyYorkie - I was diagnosed at 70 plus. My MO's comment when I went in for the first visit was "you're a young 70, we need to finish this. Had 8 Taxol before neuropathy got me. Did my year of Herceptin and 30 months of AI's. I'm gad I did the chemo and not I sorry I stopped the AI's. At that point I felt like an old 80. Herceptin has been a game-changer for TP. And now I feel like a young 74 again. My mother, who had melenoma in 1980 died in2012 at 96. Her mother died at 92.
There is a formula that you can plug your numbers in. Special K or Ingar can give you the link.
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Lovemyyorkies, with a high-risk MammaPrint triple-positive only 2 years after a contralateral triple-neg (you were gambling even back then by not getting chemo) and being a healthy 69, if I were rolling the dice I'd take the chemo. You will have to have it anyway in order to do Herceptin. The SAVI you had after your 2018 lumpectomy was a local, not a systemic, adjuvant therapy. If it were me, I'd do the systemic therapy, as triple-positive is more aggressive than either Luminal A or B, and you want to "mop up" any stray cells that may have been missed by the mastectomy.
I'm also 69 and though I'm a 5-yr Luminal A low-OncotypeDX IDC survivor, I was recently diagnosed with ocular melanoma and just had plaque brachytherapy (internal radiation, like a SAVI for the eye). They usually don't do chemo for that cancer, but if my biopsy shows that I'm on the verge of mets, I would not hesitate to take immunotherapy if my ocular onc advises it.
The only online predictor tools of which I know are lifemath.net, cancermath.uk, breast.predict.nhs.uk. I think that Mass General and M.D. Anderson have their own tools as well.
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Listening is the oldest and perhaps the most powerful tool of healing. It is often through the quality of our listening and not the wisdom of our words that we are able to effect the most profound changes in the people around us. When we listen, we offer with our attention an opportunity for wholeness. Our listening creates sanctuary for the homeless parts within the other person. That which has been denied, unloved, devalued by themselves and others. That which is hidden,,,
In this culture the soul and the heart too often go homeless.
Listening creates a holy silence. When you listen generously to people, they can hear the truth in themselves, often for the first time. And in the silence of listening, you can know yourself in everyone. Eventually you may be able to hear, in everyone and beyond everyone, the unseen singing softly to itself and to you. -RachelNaomi Remen0 -
I am a fairly firm believer in doing as much as you can to be as healthy as you can. I was not going to have to do chemo at first -- maybe a week of rads was the possible plan. Lumpectomy changed all that when a second cancer was found. I didn't hesitate -- although I did have a wonderful nurse Navigator who had basically my same dx. a few yrs. before me. I was able to see what was POSSIBLE if I were willing to go the WHOLE route.
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My Dutch lines are Conover (Van Cobenhoven: name indicates his paternal ancestors were actually Danish-- but what the heck), Vanderveer, Schuyler, Vedder, Marlef, Quackenboss, Schenck, Mandeville, Randle, and Monfoort. Which takes us back to the founders. I don't have records to the founders on Quackenboss Marlaf, or Randle. There is an association for male descendants through the male line; it just about has to be exclusive, since there are so many descendants.
Did my DNA. Apparently no detectable hanky-panky or adoption-- German, Irish, English, and Dutch. By genealogy, G 1/4, I 1/8, D 1/16, and about half English. Very similar to DNA.
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Than you ChiSandy,Beaverntx,taco1946 for your responses. It is encouraging to see your stories in to help me make my decision. I just want the best QOL I can have as I'm sure we all do. Looking at option to always quit the chemo if side effects become too severe has also helped in reaching decision.Will let all know what MO recommends tomorrow.
God is Great all the time
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Hi LoveMyYorkies, Just confirming that you've already had a mastectomy for this diagnosis?
I work for Agendia, who makes the MammaPrint and BluePrint tests. I came to this position from my own dx of breast cancer 8 years ago.
Do you know what your MPI (MammaPrint Index) is for your MammaPrint result? On average, you have a 29% risk of recurrence with a High Risk result, if you have no chemo or hormonal therapy. If you do chemo and take your hormonal therapy, that number drops to 5.4% within 5 years (Distant Metastasis Free Interval or DMFI). Obviously there are many factors that play into this, but since you had triple neg bc 2 years ago, your risk is higher in general.
Hope this helps. Let me know what your MPI is, too, if you have it.
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hi Barcelonagirl. Had mastectomy 8/4/2020 with TE. Mamma print 6.1. High risk. Thanks for info. Trying to gather all I can get before to
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Lovemyyorkies, would that be -0.61 MPI? The score ranges from -1.0 to +1.0.
Thanks!
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Barcalonagirl.sorry. Yes that was -601. Thanks
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Every decision you make—every decision—is not a decision about what to do. It's a decision about Who You Are. When you see this, when you understand it, everything changes. You begin to see life in a new way. All events, occurrences, and situations turn into opportunities to do what you came here to do. -Neale Donald Walsch
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Working on a week of heat. Sad that the Colorado ( no stranger actually to heat ) people had to miss the nice weather ( not too hot and no humidity ) and get the hotter, humid week to deal with. Moving furnishings into assisted living which all hope is for a short time period. I think it is mainly now eye issues although my friend can read and watch t.v. I too hope it is for a short time.
She will have an outing today I think with her daughter. Or maybe tomorrow. Her daughter is going to bring her to her house and let her see her beloved cats ( the ones I have been caring for ) for a while. It has been at least four months since she has seen them. I'm thrilled about this since one cat is fairly old. He is doing well but looks the dickens and I think it would be painful to miss an opportunity to spend at least a little time just in case she can't get back home for a while.
Enjoying the time off for sure. I can do a few things that I wasn't getting to as well as break up what was the 'daily' routine. It will be back fairly quick, but nice to feel I could sleep in even though at my age it rarely happens.
Hope you all have a fantastic day.
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I am watching 3 female ruby throated hummingbirds do battle over the feeder. They look like kamikaze fighters when they dive bomb each other. Two use the Japanese maple approach and have actually landed on branches within it. Seems strange to see them still. The third lands in the azalea. Fascinating to watch them weave and bob. It is a large feeder so there is plenty of nectar for all.
Doe and her fawn visited the birdfeeder so she could have her daily "fiber" snack. Then wandered off into the woods.
Wrenched my left knee last night, ended up in the ER when I could not weight bear and am now sedentary with a too long knee immobilizer. Don't know how they size them but it is actually on the bottom of my foot (yes, I am walking on it) to mid thigh. I think it needs to be readjusted. Did not have a good night trying to find a comfortable position that for the most part was elusive.
Supposed to be in the 90's and muggy so will stay in the parts of the house where we have A/C available. Central A/C installation still not complete because MBR is still a shell. They had said they thought they would be done by Labor Day but not in the cards. They still have drywall to install on walls and ceilings, insulation, siding, install and refinish hardwood floors, etc. Halloween? Thanksgiving? 1 year anniversary of tree strike? Wanted to replace siding with smaller size because the size we have was not in stock. I vetoed that because it then would not match shed and I am not about to put new siding on shed. So a 4 week wait for the correct sized siding. But after all this time ~ 9 months, what's another 4 weeks? Plus siding has nothing to do with finishing the interior. Don't know what is next because they failed the communications course.
Have a good day. I'm going back to the battle of the bickering hummingbirds!
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