Can we have a forum for "older" people with bc?

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  • chisandy
    chisandy Member Posts: 11,408
    edited May 2021

    Cindy, when you "roll with it" all covered in coconut oil, try not to roll off the table!

    We finally made it up to 70F today--will grill bacon cheeseburgers & veggies for dinner.

  • illinoislady
    illinoislady Member Posts: 39,668
    edited June 2021

    I worked today. It was a nice enough day -- not too hot. Sun was out which made it nice. I started work late, so of course, got home late. Daughter had the day off so she made spaghetti and garlic bread for dinner. I had freshly thawed hamburger in the fridge and I saw no reason for her to have to go to the store. Anyway, she ran down to the corner from us ( Dollar General ) and did get the garlic bread which we doctored up by adding more garlic and herbs. I truly enjoyed not having to cook. She has off tomorrow as well.

    So, a good day. We watched a couple of movies in the afternoon. It is nice since we got the HULU subscription to be able to watch a movie when we really want too and to not go through all the finagling to use the movie DVD player. Just scroll a list, open the ones that look interesting for a full description and then decide. For the privilege of getting them for free there are a couple of small commercials inserted, but most of the time we don't mind. Just enough time to use the bathroom or get a cool drink and snack.

    Hope you all had a nice time.

  • reader425
    reader425 Member Posts: 953
    edited June 2021

    Illinois, Cindy and Chi sounds like a nice memorial day was had by all. We were invited to a BBQ ( friend is chef-level cook with a smoker and all the things so you can imagine). DH's fave. Unfortunately he had truly terrible allergy symptoms which he gets sometime. So I went and our dear friends sent him back a delicious care package of brisket, half smokes, macaroni and cheese, coleslaw, a ham /pimento southern biscuit and texas sheet cake for dessert (which I ate half of on the way home because our traffic here in the DMV is terrible even on the holiday). As for the dinner I would have rolled out of there if I'd eaten all that but he should get a few lunches out of it. He was feeling better tonight but probably won't go to work tomorrow. The tree pollen count will be high again.

    A busy week is coming up with Dr. Appts, errands and a rare evening meeting. Hope you all have a good week.

  • celiac
    celiac Member Posts: 1,260
    edited June 2021

    Have not fully caught up on posts, but thought I would chime in re: hair. With the pandemic, I just let my hair grow and trimmed my bangs. After becoming fully vaccinated, braved the salon on 4/20/21, for the 1st time since late November 2019. Keeping it longer and loving it!

    image

  • karen1956
    karen1956 Member Posts: 4,620
    edited June 2021

    Celia - very pretty - the length and color looks lovely on you.

  • carolehalston
    carolehalston Member Posts: 8,196
    edited June 2021

    Nice to read about the Memorial Day activities that were enjoyed. I went to the gym and walked 45 minutes on a treadmill. Then drove to a huge nursery and bought blooming plants for the deck. DH's favorite is red geraniums and I usually buy a large blooming pot of geraniums but they were all sold out. I bought a couple of small plants to include in multiple plantings but I will check another nursery. The dahlias were buy one get one free and they were so pretty that I bought six of different colors. I do love blossoms. It feels creative to fill large pots with a variety of flowering plants.

    The day was mainly sunny and in the high 60's. The weekenders were here and there were gatherings for visiting and eating and drinking. As always it's nice for them to be gone with just the full-timers here, going about their routines. DH just left to go to the gym. He is missing his physical therapy sessions for exercising his legs and has done some exercising on his own.

    Celia, your hair is pretty. I like the silvery color.

  • illinoislady
    illinoislady Member Posts: 39,668
    edited June 2021

    If I accept you as you are, I will make you worse;

    however if I treat you as though you are what you are

    capable of becoming, I help you become that.

    Johann Wolfgang Von Goethe
  • illinoislady
    illinoislady Member Posts: 39,668
    edited June 2021

    Celia, count me in too. I like your hair as well. I'm still deciding what to do with mine. I haven't taken the time to look at current styles for short, partial lengh or long, but I do know I nee some sort of bangs. I have a high forehead and have almost never gone w/o bangs save when while waiting for an. appt. at the salon to get a cut or perm.

    Maybe no sun today ( not sure haven't seen the weather report in full yet ) but it will be in the low 70's again. We are having another 'nice' period where if you are not over physical outside you can get a lot done. I don't have much to do outside so we will see how it goes. Likely lots of mail today and it will come late for the postman having an extra non-delivery day yesterday.

    Hope you all have a marvelous Tues.

  • mcbaker
    mcbaker Member Posts: 1,833
    edited June 2021

    I now have working sewing machine and serger, and a postage scale and account. Plenty of cones of thread, and solid satiny fabrics for beltless skirts. Added each thing in the sequence of when need became obvious. I took one package of six skirts to the PO today, expecting one more today and one tomorrow, another is coming after that. I am in business. I took a whole sari in partial payment a few weeks ago, and made a skirt out of that. Since it is partially on the bias, it is hanging for a while before I hem it. Rather eye-catching, isn't it? it was apparently a favorite of the woman who owned it; the other end has some wear that I might be able to cut around.

    Image.jpeg


  • chisandy
    chisandy Member Posts: 11,408
    edited June 2021

    Celia, lookin' great! I did my own blowout on Sat.--it was labor-intensive (especially having to keep turning the dryer's nozzle so it'd face the right direction; then the ionic brush and finally flatiron). It's not as silky-glassy smooth as the one I got last Sun. at Drybar; but as long as I try to move my hair off my neck when I toss & turn, brush gently in the morning (with boar bristle to smooth it) and touch up the wavy ends with a flatiron or ionic brush, it's holding up just fine.

    image

  • petite1
    petite1 Member Posts: 2,292
    edited June 2021

    CeliaC & ChiSandy, Love the hair.

    Memorial Day I went to an antique flea market in Webster. I found some trinkets. Some need rehab and others are ready to sell. The weather is still hot and still no rain. Maybe Weds.

  • betrayal
    betrayal Member Posts: 3,229
    edited June 2021

    Mary: Would love to see the sari but there is no image just "image.jpeg". I'd love to see what you did with it. Sounds like you have a workable plan for your creativity.

    I need to get photos of the parakeets and post them. Mom very seldom left the cat food bowl nest and they are now quite large. Their eyes are open and they are developing pin feathers though still appear almost naked. The larger of the two has some wing pin feathers erupting. The smaller one is probably 12 hours younger than the bigger one but it seems baby birds are like squeaky wheels; make noise and you get fed. Mom is no longer able to completely cover them with her wings but makes a good try. She does leave them for longer periods now but it is still a crapshhot trying to get a gander at them. My DGS was here on Sunday and was so surprised to see them.

    Though I think the hummingbird sitting on the feeder was a bigger thrill. This one actually rests on the edge as he feeds instead of hovering. Look for the photos later.

  • kathindc
    kathindc Member Posts: 1,667
    edited June 2021

    Last weekend my DD here in the city and I went to DD’s house in Loudoun County, VA for a weekend visit. She showed us a nest built in the wreath on her front door and had originally thought a bird was using the dried floral branches to build a nest elsewhere. She got out her phone and there were five Robin eggs in the nest. Sent this today.

    image

  • petite1
    petite1 Member Posts: 2,292
    edited June 2021

    Kathindc, Great picture.

  • mcbaker
    mcbaker Member Posts: 1,833
    edited June 2021

    image

    How is this?

  • beaverntx
    beaverntx Member Posts: 2,962
    edited June 2021

    MC, it is gorgeous!

  • betrayal
    betrayal Member Posts: 3,229
    edited June 2021

    Mary: That sari is beautiful. Love the colors and design.

    The robin hatchlings are so cute.

  • mcbaker
    mcbaker Member Posts: 1,833
    edited June 2021

    It is bolder than I would normally wear. But what the heck, you only live once.

  • illinoislady
    illinoislady Member Posts: 39,668
    edited June 2021

    Just fantastic -- all above entries on skirt and robins. Robins are delightful and I'm with you MC -- live out loud and love every moment.

    Cloudy today and maybe some rain. Sounds like one of our last 'cooler' days since the rest of the week is 80's and most in the mid-range at that. It could be toasty. Glad to have some time today to figure out my check-book and pay bills. Somehow yesterday I made today Thurs. so glad to give myself back my one day off so to speak. We really never have a day off but that is okay.

    Hope you all have a good one and some great weather to go with it.

  • illinoislady
    illinoislady Member Posts: 39,668
    edited June 2021

    Let us learn to accept ourselves--accept the truth that we are capable in some directions and limited in others, that genius is rare, that mediocrity is a portion of almost all of us, but that we can contribute from the storehouse of our skills to the enrichment of our common life. -Joshua Liebman

  • betrayal
    betrayal Member Posts: 3,229
    edited June 2021

    I was finally able to get some pictures of the baby parakeets but only through the bars of the cage so I apologize for the poor quality. It has been ahrd to get mom off the hatchlings and they have really grown in the past 2 weeks.

    imageI'm the proud daddy of last year's baby (july 2020) shown right below and of the two new hatchlings below.

    image

    I'm the July 2020 baby and by this July I should be able to have a "gender".

    image

    Here's the dutiful proud mom and her new brood. Their eyes have just opened this week.

    imageGetting a bit crowded in the "nest" and mom can barely cover them with her wings. They sort of look like bobble heads because they are just getting some head control. Enjoy.

  • illinoislady
    illinoislady Member Posts: 39,668
    edited June 2021

    They are great pictures Betrayal and it seems to me that the little Mother is rather proud of her little ones. I'm so glad we get to be a part of her continuing saga of the joys of motherhood. Been waited with bated breath. How is the third egg doing ??

  • racheldog
    racheldog Member Posts: 209
    edited June 2021

    New to this "older folks" forum. I scrolled through to look at who was diagnosed with HER2+ and what your treatments were. I started Kadcyla (T-DM1) in January of this year. That was supposed to be "easy" or generally well tolerated as I was told. By the end of the 4th infusion I became sick with lung issues. Early chemo induced pneumonitis. I stopped Kadcyla. That was March. It took me 2.5 months to recover and during that time all treatments were on hold. I now will start radiation next week and then possibly Herceptin only after that which I am sort of terrified of re-challenging. Many chemo drugs cause lung issues. I am to be 69 in the fall and I am at the point of thinking that my Decision Tree is not going to be what a 40 or 50 yo would do. I have an MO and a second opinion MO. I run things by both. I am sort of doing things backwards in the sequence of treatment now but I was spooked over those two months of my break and just not ready to be ill or have SE again. I am amazed that many of you made it through the harder Taxane based chemo or Adriamycin at "older" ages. Oncologists seem to treat the diagnosis and not always the patient. Interested in hearing if any of you decided to stop the hard chemo and take life as it may come? Quality is important.

  • petite1
    petite1 Member Posts: 2,292
    edited June 2021

    Love the bright colors and the baby birds.

  • betrayal
    betrayal Member Posts: 3,229
    edited June 2021

    The third egg never hatched so I discarded it. Daily I have been swapping out the cat food bowl for a clean one and of course the bottom paper as well. Anyone who has had a parakeet knows they moult and poop constantly. Plus I do stress the adults when I open the cage; I failed at getting them hand trained. The babies remind me of the bald headed buzzard of cartoon fame whose name escapes me at the moment. Size wise they are about 4 times the size they were when they hatched so the bowl is getting tight with 3 bodies in it. Their bodies are covered with a soft gray down and you can see the feather colors emerging on their very tiny wings. Nice diversion from all the other stressors in my life.

    Have a good day.

  • mcbaker
    mcbaker Member Posts: 1,833
    edited June 2021

    Rachel, I would suggest you go for a mastectomy, given your problems with chemo. I had surgery before chemo because my initial diagnosis was DCIS. But it was apparently moving so fast that they suspected HER2+. By all means, try the chemo again. Brief discomfort is preferable to low quality short lifeline.

    Check out our special place https://community.breastcancer.org/forum/80

  • chisandy
    chisandy Member Posts: 11,408
    edited June 2021

    A lot of the time they don't even test DCIS for HER2 because it's usually assumed to be HER2+. More often Grade 3 and multifocal, too, than is IDC. And DCIS, when ER/PR- (again, more often than is invasive ductal), usually doesn't get chemo. But the combo of Grade 3, hormone-receptor-negative, and especially comedo necrosis or multifocal, and the tendency to be HER+, often requires sentinel node biopsy even if mastectomy is performed. If the nodes are positive, it's treated as if it were invasive (and therefore, with chemo/targeted therapy).

    Mary, that sari print is gorgeous. And Betrayal, keep the chicks-pix coming!

  • illinoislady
    illinoislady Member Posts: 39,668
    edited June 2021

    When indeed shall we learn that we are all related one to the other, that we are all members of one body? Until the spirit of love for our fellow people, regardless of race, color, or creed, shall fill the world, making real in our lives and our deeds the actuality of human brother- and sisterhood, until the great mass of the people shall be filled with the sense of responsibility for each other's welfare, social justice can never be attained. -Helen Keller

  • illinoislady
    illinoislady Member Posts: 39,668
    edited June 2021

    Racheldog -- I won't bore you with my life story other than to say I had quite a struggle with my A/C and Taxotere. Had four rds. of each taking place every three weeks. Roughly just as I began to feel recovered from the round I just had it was time for another one. At one time I almost gave up as I was so tired of it all. But I am stubborn and I really wanted to live. I would tell myself I only had to get through ten minutes and I would be fine because ten minutes was easy to do.

    I would do it again, but not because it was ever easy, but because I know I can. I have in fact recently had two more bouts of cancer and I am fine. Recent tests come up NED. I had more chemo and it turned out to be almost totally un-noticeable that it was even taking place. Hopefully between you and your two MO's a plan can be devised for you. There are se's to everything -- even food, but I understand that the possibility of having more illness caused by treatment for another is not at all desirable and certainly not wanted. I hope in time as you finish recovering and doing your milder txs. that you will find some of your confidence returning and certainly about what you need to do.

    Long day today for me. Went to Mt. Vernon to be cleared for my scope on the 8th. I was going to do it under lt. anesthesia and then Dr. Barrientos talked me out of that. He wanted to avoid having to get clearance each time with Dr. Neely ( PCP ) which is what started the idea of using the lighter anesthesia and then I think he got cold feet. So, I will go under again. Had bad reaction last time and hoping I don't this time coming up. I would presume some adjustments will be made if possible.

  • carolehalston
    carolehalston Member Posts: 8,196
    edited June 2021

    I went to an exercise class Wednesday that was more strenuous than the senior exercises classes at my home gym, YMCA. It was only 45 minutes but we did multiple series of squats and lunges with weights in hand. My thigh muscles are so sore that getting on and off the toilet is a challenge. I'm skipping this morning's class and plan to get some laundry done and also a trip to town with a grocery list. By Monday I hope to be recovered enough to go back to the class.

    We're having a heat wave much too like the weather in Louisiana except that it has not gotten humid yet (the weather forecasters are warning that humidity is on the way) and the temperatures cool off at night. We have slept the past two nights with fans on and the bedroom window open. At home the temperature rarely gets any lower than the 70's at night so the a/c has to stay on.

    Good luck with your upcoming procedure, Jackie, and good luck to everyone undergoing treatment and surgery.