Can we have a forum for "older" people with bc?
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Hi Ladies,
Things here have settled down a good bit, expecially since the bad-boy son-in-law moved back home to somewhere near Charlotte. Not that he doesn't still annoy DD about "his DD" but it's on the phone and she can ignore him. Except that she's something of a snoop and finds out all kinds of things (about him) on FB. she found posted pics of him with his new 'unsuspecting innocent' girlfriend and one was upsetting, showed him playing with the new gals nephew thats about the same age as my GD (20 months) and I told her if she didn't want to see pics like that to quit snooping about him online. Seriously, he has a job, DD reported it to the child support office weeks ago and he's over $700 behind already in support payments. We have been providing about 80% of their upkeep.
And my DS has legal issues in Colorado related to a break in at his home that produced gunfire. The intruders fired first and ran when the residents returned fire and I'll always support our right to bear arms. Without it, my son may have been killed.
Oldest DD is facing two court dates next week, both with DUIs, only in one she wasn't drinking but that one resulted in an accident that totaled her car. She's been working double shifts to save up the money to pay the fines but has never mentioned paying me back for her bail.
I was doing better til I returned from a family trip to Tucson, AZ where it's crazy different than it is here in the deep humid south. My sister and I stayed 4 nights and returned home. I've been fighting a mean sinus infection ever since. Went back to the Doc yesterday and am back on another 1/2 round of antibiotics.
Man, I would give an eye-tooth to be able to meet up with ya'll on the OBX. Have always wanted to go there, And would really love to be with all who go. SUPER girls week!! I would have to drive and the van needs tires and don't really have the money this year. Would love to see this become an annual thing, maybe backed up into October when it's not so chilly or so close to Christmas. If I save $5/week for next year I'll have enough to get there. Or where ever the 2nd gathering is planned. Sounds AWESOME. Think I'm gonna be jealous. lol.
GD - What a nightmare to be trying to decide what to do and getting so many options. I did the radiation treatments x33 and it was hard for me but I did it. It's definately do-able and not nearly as ominous as it sounds. I just felt the choice to do it or not was not that hard. To help me feel like I did do the final treatment that would destroy any lurking, yet unseen, cancer cells. I didn't really like doing it every day, so I took a day when I felt deserving of a day off and took it. I also planned an activity I really enjoyed for right after treatment time, swimming. So I had something to look forward to for doing the Zap. Didn't get tatts either, they used the paint pen and ruined a bra. Big deal. I've quit wearing underwires now, likely forever.We did a lot of considering on the 'after C drugs" and probably because mine was a DCIS and very tiny, and clear margins, we opted to not do the 5-6 years of drugs. And I'm really glad we did it tht way. That's where I felt my quality of life would be affected the most due to the cost and the side effects. Mom did it and hated it for six years. I'm younger than most here, so it's likely that I could have tolerated it, but the surgery and the radiation will be my choices made with very little real information. It takes a lot of trust in your onc. I didn't feel that either. Also, I agree with Pam in that the threads that focus on the same issues that you are dealing with are probably the best source of support and help in making the right choices for you. Good Luck! Whatever you choose, we'll be here.
SV - I'm SO GLAD you got to the Okracoke festival this year. I remember last year when you were too sick to get out of bed. Good to hear that you got to go, and with Dave, what a good buddy. I thought you said your sick friend was out west? I must have mixed that up.
Isabella - I know you hate going to surgery, but I sure do hope it helps. Hope the grands help out as they offered to. So sorry for your suffering. But I sure am glad you changed the door locks. He sounded like he had no intention of either stopping comng over OR stop knocking before entering.
Alyson - Good luck in your surgery, as well.
Thanks for all the pics too,
Love to all,
Connie
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WOW Connie! That is a lot of stuff that has happened in such a short amount of time!! We will miss you at the OBX but I will post a ton of pix and put a link to them for everyone.
Wishing all my good 'old' pals a pain free, se-free and relaxing weekend.
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ive had SOME success tonight..saying a little prayer
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hey Barbara, Chrissy B got it thru my thick skull. now, to figure out to size it eh?!!0
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3jays, if they are your own photos, it's easy to resize, but sometimes you can't resize the ones from the net.
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i want to get 3 jays on, but tommorrow. im pooped
flitter seems to be a problem..yup 0 -
we'll see if we get all of uss..nope. gnite ladies see what i can do 2morrow
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Night 3jays....sleep well.
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chrissy, how can i get my pictures in my own computer to work..suggestions? im drunk w/ power right now. gonna rest try, later.. or, how do i get my pics to photobucket?? thank you so much. so much easier your way!!0
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In photobucket there is a box that says upload to album. Just click this bar and it will open your own photoalbums from your personal program. Choose a photograph, hilight and click open. The window will automatically go back to photobucket and upload your photo. Just wait, and it can take a couple of mins, until your photo appears. Go to the bottom of the page and click save and it will take you back to the home page with your photo on display. If you want to resize, left click on your photo and it will open it up with editing tools. Just following the prompts. Hope this works for you.
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didnt make bed yet. think i got photobucket. this is all family, can you find 3 jays?me? Murray? fischer? finley?
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hope you can scroll it for now. am pooped. will do better tommorrow. thank all of you who finally get it thru to me, and chrissy for staying on, and talking me thru this. instructions are taped to my screen.. the "extra" big bald guy on right is my nephew...0
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Love the pic 3jays, you look great. Love the littly on your lap, looks oh so cute!
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Hi,
Q re DIEP double proceedure. I am 64. Thnking of having reconstructive surgery once I am finished with Herceptin. Recovery , side effects, good and bad information. Please and thank you
.Thank you for your time
Love
icare3
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OMG-jay3-YA' got pix posted and with flying hummingbirds????! Holy Cow-way to go and i too love the pix though I'd love to be able to blow it up (make it larger) so I can get a good look at you!! And is that an itty in your lap??? And icare3, I so wish I had some wisdom to share but think i am about the dumbest lump on the log in our wise group of PODS. Good Grief, are you new to the site or have you posted here before-if new, I wanted to welcome you!! If not, blame it on chemo brain.. XXOOOO, SV
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here goes SV
sorry, havent gotten sizing down yet. will try in an email..c 0 -
We just put up a hummingbird feeder, but I did not take this one in our yard
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hope this is better, SV there's Finley, on our lap, Fischer is in my nephews arms, and 3jays are in the background. DH Murray, beside myself... 0
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last try SV
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SV - poor "Bruce" re his ashes floating back up! That reminds me of "The Big Lebowski". Did you see that? They decide to scatter their friends ashes into the Pacific Ocean and the wind blows them all over the Dude.
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Hi icare3! This is the website I was telling you about in a PM.
DIEP flap in more detail - Breast Cancer Blog
I know some of the other gals on this thread will have more information for you.
And see if you can find the right thread on this forum, by looking up at the top of this page, where it says "Jump to a forum"....But stay on this one, because we'll all try & help you....Just most of all, don't worry, & don't be afraid.......We gotcha covered!
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Okay icare3....This thread is on this forum....so read what the gals have talked about....I'm sure you can find what you are looking for! xoxoxoxoxo Jeannette
Click this, Forum: Breast Reconstruction.... Then go down to "Diep 2010"....Hope this helps!
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Apparently, you can have side effects from chemo up to a year later! My knees have been killing me for the last 2 weeks and I ran into 2 ladies who have or had the same thing after chemo. I finally had to call my medical onc and ask for pain pills because nothing else was working! It seems like this will never end. I've finished my 9th rad, and still have 24 to go. My RO won't let me use any creams or anything yet so I'm hoping he'll tell me when - I really don't want to get burned!
Well, as my grandmother used to say, "This too shall pass."
I'm finally going next week to the "Look Good, Feel Good" thing. Everybody seems to love it - I'm so looking forward to it. I've never had makeup lessons before and then there's the marvelous goody bag I've heard about. Not to mention I finally gave up and decided to buy a wig - the ladies there said they will help my style it and trim it. I'm so tired of the scarf/cap thing!
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Hi icare3...sorry, but I don't have any experience of diep. I decided to stay flat ! I think it is a biggy of an op. I did consider it right at the start, thought it would be a good idea to wake up looking normal, but my surgeon talked me out of it on account of my high blood pressure, he said the op. would be too long to be safe for me.( I really took no talking out of because I was a scaredy cat about the whole thing anyway !!)
I have been MIA this last 2/3 days because I have encountered a disease problem in my calves, and have lost 2 already. Have a pneumonia 'storm', as we nickname it, its really a form of viral pneumonia, and pretty serious. It usually happens when there is a dramatic change in the weather, and boy have we had the dramatics this week. It was AOK at the beginning of the week, then suddenly we had terrific storms. Lots of lashing rain, high winds and cold. The rain/wind lasted about 3 days....there was a local woman impaled by a tree about 5 miles away from me, yesterday, she later died....so it has been extreme weather.
The calves can look full of beans on a morning, and be dead by nightfall. I am waltzing around with the most lethal looking syringe to jab them at the first signs of trouble....have had to miss a Drs appointment and dash to my vets 20 miles away for extra drugs. I always keep in a supply, but vet. recommended a new drug, I've never used it before, that combines strong antibiotic/ morphine/and something to help the lungs breathe easier....but for 2 of them nothing worked....I have 3 more on the 'dicey' list, and probably have given them jabs unnecessarily, but I'd rather do that than them die on me. Cost doesn't come into it. The vet, tells me this new drug is 'very expensive'....I just said 'gimme gimme gimme'...I shall probably say something an awful lot stronger when he sends the bill ! He is a very fair priced vet, he has to be, he has so many animals to care for here, not just a one dog one cat household !!! I do get a few of my drugs from 'other sources' shall we say... he he....half the price my vet charges. He is not pleased, but can't compete with what I can buy them in at, from Ireland, of all places.
To say I have a needle phobia, sounds so stupid when you see me in action with the cows and calves. I screw up my face and shut my eyes tho' while jabbing them, I have to admit !! I hate to hurt things, but its better than losing them. Worse than anything to me is to have to put calcium and magnesium straight into the neck vein of a cow or sheep...I just have to watch so I get the right place, but I come out in an awful sweat to see the great big needle going up into a vein. Its hard when I have an audience, I have to look cool, yet am stood there wetting myself !! Often G/kids come tumbling outside to watch, don't want them to think I am a baby.
Apart from the disease problem I am encountering I am staying close to home, and spending a lot of time just wandering thru' the cattle watching and listening....so I smell of cows, and am just hanging in the kitchen in my grubby clothes right now...no point getting in and out of smelly clothes to go sit down on an evening , I can't settle. I just started some knitting 3 days ago, to pass time on an evening. Knitting a pig for my G/daughter...there is a pig cartoon character on TV that she is mad about, and the pattern came up in a magazine this week. I should just about crack it for Christmas !! Its not just any old pig, its a pig in a dress, so not only do I have to knit this pig, and stuff it, and embroider eyes and cheeks on, I have to dress the damned thing as well. If time gets tight I might have to give her a nude pig !!!!! Knitting is on hold for the time being.
CB I know you asked me about my back op. but I can't remember the name of the op. I THINK it is a laminectomy. (I have it written down somewhere ) I have 3 slipped discs, so thats probably the op. They aren't doing any 'architectural' work, I don't think, nor are they fusing any discs...but I can't remember exactly whats what. I put it to the back of my mind. I know I researched it all some months ago, and sometimes it doesn't work, so that it all has to be gone thru again...just my luck that that will happen. Big race w/end coming up, do you follow World FI racing ?? Its the last race of the season tomorrow, mid day, from Abu Dhabi, so will be glued to TV. My favorite is in pole position, and COULD win all. I often get Nascar very early in the morning, like 2am-3am, but don't follow it closely as I tend to fall asleep at that time, and never know whats going on. Am also watching the Bullrun, that's a good watch. Various race cars getting from New York to somewhere down South, I forget where, all on ordinary roads. Lots of bumps, and encounters with cops to contend with. I don't think its live as all the trees are in full green leaf in New York, and by now they'll all be fallen off. Anyway we get 6 programes out of it ! Anything to do with cars I will watch.
Isabella.
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Well, hello ladies....guess I should say Good evening, since it gets dark so early now. Hard to believe that just a week ago today I was in Florida. Tomorrow I am going to try posting the pic 3jays DH took of the three of us at the winebar in Weston. That was a really neat place...I had never seen wine machines like that before where you could purchase a taste, a half glass or a sample. And wonder of wonders, I found a wine I actually liked...Sweet Reisling. Before chemo, I liked it dry, dry, Pino Grigio was my favorite, but now my tastes are totally changed. So I found one I liked and between that and the margaritas I had on the trip, my INR came up way too thin and the PA came in the treatment room to see what might be causing the change and had to totally go off the coumadin for two days before resuming my usual dosage. So alcohol really does thin the blood....which I sort of knew and they certainly had told me that before, but you know how seeing is believing. Well, now I know it is the truth and besides am back to normal so now it's water most of the time and sometime diet pop.
Tomorrow I should have some time that I can experiment with posting pics on my own, without Barb to do it for me. I am first taking pics out the camera that have already been downloaded since there were probably 400 of them. I am just always afraid to get rid of them since the time Tim lost all our pictures in the computer and never was able to retrieve them. Tonight I am pooped from going to a shower....I made the cookies for it....this was the sister of a friend of mine who had the shower and the entire family always wants my cookies, the little lemon filled poppy seed ones and then the cutouts which have almond flavoring. I told my friend I think this will be the last time since there is too much stress and hair in my kitchen....love the cat to death, but that hair is everywhere and two of the dogs shed so that doesn't help things. Nothing more unappetizing than picking a hair out of the icing. Maybe I will have to do Xmas baking at my Dad's.....oh if I ever find it, I have a really good recipe for fruitcake and I myself do not like traditional fruit cake. This one is a white batter and it has tons of nuts in it and I think the fruit is not candied if I recall. All I know is that is was good. Do you realize Christmas is just around the corner?
Yes, Heart and Soul, this too shall pass. I wonder why your RO says no creams....not even aloe? You WILL love the Look Good, Feel Good.....I never did it, but my friend Lee did and she was just amazed at all the good things they gave to her....she was going on and on, Look at this great Sh--, Lancome, Clinique, Channel, lots of name brands.
Sorry you have had so many unfun things going on in your life Connie.
I am still hoping to go to the get together and will find out on Wed. what my onco is thinking in the way of treatment since he has all the tests and scan results now.
Love reading your posts and your great pics.
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Marybe, you can download pix onto an external hard drive so they will keep. you can
also post them to an external website like Picasa Web albums or Photobucket...
that way you can retrieve them even if your computer burns up...
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I will repost this later on down the page so the ad won't cover it up..
we had houseguests today and went to old town San Diego to play "tourist"
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hey marybe, good to see you on..can'
t believe its ust a week since i met you and barb.how time flys!! r u going to SV reunion? i decided it would be too much for me. one short day with lovely Mr. Fish GS, showed me i can't run around. spent two days for that!! i want MORE of my life back, but... Im surprised that heart n souls' onco is more honest than mine.. i hear, oh no, your out from chemo a yr.. there's nothing left,thats' just such B SH****. i get so tired of it..
isabella, i so love the stories of English farming. hope the cows will be well. 1st husband and i ran a horse farm for my FIL, and we had thoise "storms" as well..and colic, always, in winter. catcha later...hubby here with sand. and soup.. its chilly here (for me) so it'll be just right...3jays
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Knees are still aching, 6 days out from Chemo #6, It took 12 days last time to improve, Meds hep some, if I take the double dose I am a big mess and awant to just take the one OXY and one musclerelaxant. I could take two oxy.
Even have stabbing pains in the bridge of my nose. It seems like it is trying to make white cells in the tiniest of places.
Keep writing I love reading your adventures.
What kind of lotions should I get for radiology treatments. Is there a link that compares. I am very pale, most makeup lines are too light for me.
Hugs Ginger
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