Can we have a forum for "older" people with bc?
Comments
-
is there a board on here for Long Island and NYC ladies?
0 -
Florida -- I have no idea though we do have some NY ladies here. As I am on it and have been since my diagnosis, there is an Illinois Ladies thread -- but in truth, I seldom go anywhere but the Illinois thread and this one as I am 69 and came on this thread a long time ago. These are the ones close to my heart. You might ask the "mods " or Moderators. I'm sure they would have a high awareness of whether or not there is an actual thread/forum devoted to just NYC and Long Island ladies.
Perhaps some from that area who post here might know and send you an answer. If there is not -- feel free to re-visit here if you like. We are "well" seasoned ladies, meaning a bit older -- 55 and beyond, and this thread came about as we sometimes have slightly different issues from the younger women. If you are new and you do seem to be -- it may be confusing to try and go through all the forums and all the individual threads on them.
Hoping someone will chime in soon for you. There is a wealth of information to be found and utilized here at BC. Org and know that we all hope you will find just what you need.
Blessings and care
Jackie
0 -
I too remember the skating,kick ball, riding bikes,lightning bugs and just spreading a blanket to play barbies. Life and memories are awsome. Sandra trust in your doctor and you will do great. I know it is hard but you will grow as a woman and this to will be a positive memory. Find laughter! Shuf
0 -
Good morning everyone
Welcome Diane and Vanmama. Diane, you have been given good advice here, and the only thing I would add is that you "check out" your team once you get your full diagnosis. I was blessed that I had a connection to a Dr, a pediatric dermatologist, not a cancer Dr, but she had the ability to vet the Drs I was assigned to. They turned out to be leaders in their fields, and well known on a national level, so I put myself in their very capable hands. In my situation, they chose to do chemo before surgery, because I was not only Her2positive, I had 3x the usual amount of cells. I am sure I am not medically accurate in my description, but the Dr drew me pictures so I could understand. I also chose to have the double mastectomy with no reconstruction. My surgeon would not even talk about reconstruction for a full year after the surgery. I am a 65 year old widow with 5 children and six grandchildren (so far). Spending time with them is more important to me than giving more time to BC. My surgery was one year ago this past Jan 28th.
I find there are some things I am not happy with at this point. I realize a lot of the things I am not happy with were there before my diagnosis, but having been thru the BC journey, I want the rest of my life to be a little better. My DD saw a program advertised online that our local hospital offers. It is called the Cancer Recovery Care Center and offers exercise, nutritional and counseling services, all specific to you and your needs. I definitely need the exercise portion - I have never exercised, but lived a pretty active lifestyle (5 kids, 6 grandchildren and a husband for 42 years, plus full time work in a middle school for 15 years) . Now, a walk around the mall does me in for the day. My youngest grandchild is going to DisneyWorld in 7 weeks and I need to build up some stamina for that. I have been in touch with the program, and am waiting to hear if I qualify for the grant, or if I will have to pay the $36/ mo fee. I just sent the forms back today. The man I spoke to said the program is exploding- they used to get about 25 people a month, now they are getting 10-12 people a week. I said tahrs because it is so badly needed.
Moving on, yes ladies I do remember those skates, and used them often on the sidewalks in the Bronx growing up. Jump rope was another very popular activity and in Jr High, we would scarf down our lunches to have time to jump rope in thr schoolyard. At any given time, there would be 6-8 games going.
I am enjoying being back home in Fl. Two grandchildren spent the whole weekend here, while the one that actually lives here spent two nights with his dad.
Carole- so glad to hear tomorrow is Mardi Gras- that means Hot Cross Buns will be available this week. I wait, not so patiently, for them every year. One of my childhood memories that I love!
Have a great day everyone.
Anne
0 -
Diane, This forum about bras and prostheses was started by a woman with very large breasts who had a bmx for medical reasons. She has some photos of before and after that you might find interesting.
https://community.breastcancer.org/forum/82/topic/...
0 -
I, too, remember hopscotch, jacks, kick the can, and other neighborhood fun. I was too uncoordinated to skate! When skateboads came out, my mom was definitely better at it the my sister and I !! Progress isn't always for the better. Kids today may be able to "out computer" me, but I think we were able to handle social circumstances ourselves. If you went home and said someone kicked you, your mom would ask what you did to deserve it. Now I can see helicopter parents all around us, as we are the old people in the neighborhood. Nothing like our childhood...off of soapbox.It is -4 here this afternoon. Had an appointment with PCP this morning....it was COLD! With Ash Wednesday this week, can spring be far behind???
Ohio
0 -
0 -
Ah, I like that Sandra -----now if only we knew EXACTLY what those regrets were.....
Jackie
0 -
Diane - I too chose mastectomy. I had DCIS on one side and dense tissue on the other side, which had been on the "watch list" for several years. My cardiologist did not think radiation was a good option and I agreed. My husband and I agreed that removing the side that was still considered somewhat healthy was best. I had DIEP reconstruction because implants weren't going to be a good idea with my pacemaker. I have not regretted my choice. I did not have any healing issues. Whatever choices out make, will be right for you.
0 -
Hi Ladies,
I have posted this in a few threads to raise awareness of this petition, as I think it's an important cause to all of us. But response has been slow and has basically stalled. I am wondering if many people are not seeing it, so I am now posting it in some of the active threads. I hope you don't mind me doing this. If so, I will delete it.
Some of you might be familiar with Ann Silberman's great blog "Breast cancer...but doctor I hate pink", which has chronicled her journey from diagnosis to metastasis. I know many of us share her concern that Pinktober madness does not necessarily help towards BC research for a cure. She has started a change.org petition requesting that more fundraising dollars be allocated to finding a cure rather than just raising awareness. I am posting the link here, hoping that we all can support this cause, by signing the petition and sharing on social media. Thanks for your support !!
https://www.change.org/p/keep-a-breast-foundation-...;
0 -
This is the "loot" dh and I collected at the Endymion parade on Sat. night.
0 -
A picture of the Queen of Endymion. Royalty do not toss throws. Their floats come first.
0 -
The flambeau carriers of today carry "torches" fueled by bottled butane gas. They carry the bottles strapped to their backs.
0 -
A picture of dh and I, taken by a nice stranger who volunteered.
0 -
Happy Mardi Gras!!!
0 -
Deep in the soul, below pain, below all the distraction of life, is a silence vast and grand--an infinite ocean of calm, which nothing can disturb; nature's own exceeding peace, which "passes understanding." That which we seek with passionate longing, here and there, upward and outward; we find at last within ourselves.
C.M.C.0 -
Love the Mardi Gras pics. Carole. Wow, you were kept busy with all the "loot", huh !!!! There is Mardi Gras tonight over in St. Louis. We never go, but it is going to be soooo cold tonight. I guess in true style -- they don't call it off.
Curious about the deleted post, but guess we will never know. Glad the Mods keep an eye -- but you do wonder what idea someone hoped to present. Obviously had no place here. I'm off to work on a very cold morning with snow everywhere. We shouldn't be getting any more today -- so they say, but the cold and possibility are going to be with us for awhile. Not sure --- but probably close to a week. Sigh !!!! We have had snow before this time of yr. but somehow the truly nearly toasty temps. of a few days ago left me full of hope that this wouldn't happen. Did I jinx us or something????
See you all later -- hoping you all have passable weather.
Blessings,
Jackie
0 -
Carole, I am on the couch watching Carnival on tv hoping to get a glimpse of DGS who is at the parades in Metairie. The extended family always dress in matching costumes with a political theme and always get interviewed. Thanks for posting the great photos. I wish you could add the sounds of the marching bands.
BTW, I thought you said you had an issue with your weight. You look marvelous.
Let the good times roll, Becky.
0 -
Doing some spring cleaning today, going through file drawers. Felt good to purge the Cancer folder, kept reports of course but found a lot that wasn't necessary any more.
0 -
Carole, your pictures are so cool. Thanks for sharing. The son of a friend of mine used to live in Homa, and was on a krewe (I don't know which one). She and her husband always went to Mardis Gras.
0 -
-
Hello ladies, We were lucky this time and only got about half an inch of snow. Te sun was out and little wind, high was 24, but not too bad without the wind. They are saying we may get more on the weekend. Phoo!
Never been to Mardi Gras, looks like a lot of fun.
Been wrestling with my palpitations, tachy cardia and finding a med that will decrease the frequency. Was in the ER again after a 4 hour bout of tachy. Never had it last that long. Still wondering if it might be the Arimidex. Going to have a stress MOnday and see the electro physiology Cardiologist on the 3rd. Ill see what he thinks. Seems the tachy began/got worse after being on the Arimidex. My onc doesnt think so, its a lesser seen SE, but I cud be one who has it, I think. Wearing a cardiac monitor for 2 weeks, had to buy soft bras again, got rid of the ones from the BC surgery, but wearing a bra to bed to put the monitor in is not great! Geeze, seems all the bras are padded, the last thing I need! Hard to find just a plain non-sport soft one, but finally did.
Was the deleted post the one about too much PINK for breast cancer?
OOOOH watching accidents etc on the snow and ice. Got a niece in Nashville, lot of ice there. Snow is better than ice!
Take care, stay warm and safe.
Jean
0 -
DH plays with a samba band and they have a long gig tonight for Mardi Gras. Their dancers have some pretty elaborate costumes. Not like NOLA or Rio, but still very fancy. The post was about Ann Silberman's petition on change.org asking that 50% of BC earnings be used for research. I hope there are enough signers to get fund raisers to pay attention.
We're having the warmest winter on record and the snow pack in the mountains is only 11% and melting. 60 here today and sunny. Wonderful now but we depend on snowpack for summer water and electricity. Looking like rationing might be in the future.
0 -
Those of you who live in areas where Mardi Gras is a big deal may be SHOCKED to hear that there are lots of places in the country that can't pronounce the word and have never heard of the celebration. I never heard a thing about it growing up in Florida or in any of the cities we lived in during our Air Force career. Here in San Antonio you don't hear anything either. I've never been to a Mardi Gras party in all my 66 years!!
0 -
DH is playing with the samba band tonight for a club here that does Mardi Gras. People from New Orleans take it very seriously. In Houston, we knew the people from NO would not be in the office during the festivities. They never let work interfere with a good time. I made gumbo Monday night for dinner but it needed okra. I've found it at New Year's but most stores here don't carry it.
Sandra, We moved here and people were talking about Settende Mai. It's Norwegian constitution day and there's a big parade in my part of Seattle. One time the king & queen of Norway came and were in the parade. Our little downtown bank had tellers who spoke Norwegian and a travel agency to book their trips back to see relatives.
0 -
Lurking
0 -
I love a lurker in the middle of the night.
0 -
Is she the purple one? Lurking at all hours of the night? Hey-ya Blondie! How have you been? Are you going to blow that pop-stand soon?
0 -
Are you balanced? Do you share your time, your energy, your life, as much
with yourself as you do with those around you?. . . . Know your limits.
You are one of the most important people you need to look after and love.
Balance your time, your energy, your life with those around you. You'll be able
to give more freely and joyfully as a result, and you'll be more open to the
gifts of the universe. It's not wrong to give to others.
But it's okay to say yes to ourselves, too.Melody Beattie
0 -
I love lurkers too. Wishing you well as always --- I am wishing, wishing, wishing -- as hard as I can.
Blessings
Jackie
0
