Can we have a forum for "older" people with bc?

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Comments

  • shuf
    shuf Posts: 79
    edited March 2016

    hi to everyone. My prayers aare with you all. Shuf

  • puffin2014
    puffin2014 Posts: 979
    edited March 2016

    Need prayers. Lew went up on roof this morning (against his son's request) to help with shingling. I heard a thump and thought one of the shingle bundles had slid off the roof, opened the door, and there was Lew on the ground. He slid off the room and landed on the concrete sidewalk face down. He was unconscious, pool of blood spreading across the sidewalk, got an ambulance there. He's had his surgery, they cut a 4" square out of his skull so his brain has room to swell. He's in ICU on a respirator, sedated. The next 72-96 hours are the highest risk for brain swelling.

    His son Ed and 3 sisters have been with me all afternoon, 2 sisters just left for home. Ed's staying with me for a few days.

  • illinoislady
    illinoislady Posts: 46,506
    edited March 2016

    Puffin, I am so very sorry to hear this news. Prayers, healing energies, and all the angels in the loving Universe . I'm so glad so many were with you. I'm sure it was a terrible shock to everyone. Will be thinking of you and Lew. I'm so glad that Ed will be with you too.

    Jackie

  • chisandy
    chisandy Posts: 11,645
    edited March 2016

    Prayers for Lew that the swelling goes down and he heals...and for your peace & comfort till he does.

  • bonnets
    bonnets Posts: 737
    edited March 2016

    Puffin, So sorry to hear about Lew. Praying all goes better than you expect.

  • Seedsally
    Seedsally Posts: 141
    edited March 2016

    Puffin I am new on this topic. 65 y/o recently diagnosed with IDC and waiting on surgery on opposite breast to see if it's bilateral cancer. Then my treatment plan will be formed. Said all that as a way to introduce myself. Now for you. I pray for Lew and for strength for you. Life can throw us such curves. You will get through this and we will be here for you.

  • sandra4611
    sandra4611 Posts: 1,750
    edited March 2016

    First bit of nausea today. Tomorrow is the transplant.

  • illinoislady
    illinoislady Posts: 46,506
    edited March 2016

    Sandra --- Still asking for prayers and the Universe to watch over you and Mike and your family as well. Many thoughts and wishes and hopes. Lots of pleas for positive healing energies for all.

    Jackie


  • illinoislady
    illinoislady Posts: 46,506
    edited March 2016

    Seedsally,

    Welcome to the older women. How kind of you to wish Puffin an Lew well. We are all for each other here and we will be here for you too. It is a nice and generally peaceful thread and often we talk about a variety of subjects as well as cancer dx. and txs. Sorry that is the reason you needed to find us --- sigh !!! Someday, but just not quite yet. Anyway, you sound like you have a good attitude about it all. Likely the pits in the beginning. Sure wasn't anything close to how I hoped to start out my retirement yrs. and because of being diagnosed I'm still working part time at 70. Well, it actually probably keeps me out of trouble and does good things for others.

    We are glad to have you and hope you will come and chat often.

    Blessings,

    Jackie

  • minustwo
    minustwo Posts: 13,796
    edited March 2016

    Puffin - sorry to hear about Lew's accident. Keeping you in my thoughts.

    Sandra - same here - sending thoughts, hugs, prayers for the transplant tomorrow.

  • wren44
    wren44 Posts: 8,073
    edited March 2016

    Puffin and Sandra, Sending hugs for you both. I hope Mike and Lew do well. It sounds like both are in good hands. I will keep you both in my thoughts, especially tomorrow.

  • beergirl
    beergirl Posts: 83
    edited March 2016

    Is there anyone on the boards who has developed ONJ? I am really worried about it. My new dentist just listed me "high risk for ONJ".

  • Seedsally
    Seedsally Posts: 141
    edited March 2016

    Thanks so much for your warm comments Jackie. It is the pits but I guess age has a little to do with my attitude. I have a good husband and loving daughters, grandchildren and friends. I am so grateful for a large loving church family also. But I am amazed at the support I have had here at BCO. The understanding is the one thing that feels so bonding. My heart just goes out to all the people here for what they are going through. I have been reading a lot of posts and did some posts on other topics as well. I felt like I was spinning out of control, lost and afraid until I found this place. With all the information and individual experiences I have read about here I feel like I have a better understanding and am more prepared for what's ahead. God has given me peace and comfort that's amazing. So hugs and hope to all of us

    Sharon

  • ohiofan
    ohiofan Posts: 152
    edited March 2016

    Sandra, thinking of you and Mike and hoping all goes as it should.  

    Puff, praying for you and Lew, too.    What a terrible accident.


  • Chevyboy
    Chevyboy Posts: 10,258
    edited March 2016

    Morning gals! It's been a long time, since I was with you all... And this is where I started over 6 years ago!

    At one time, Jackie is the one who kept this thread going, and it has grown with all you gals! No, wait..... I don't mean you gals have grown, I meant this thread is still thriving.... Ha!

    Lots of "new" gals I see! And hello to all my "friends"!

    Puffin....! I am SO sorry about Lew! OMG, I would have been hysterical!

    Saying a prayer for you guys...

    Sandra... I remember you talking about the problems with your DH! And his Sister, and the bone-marrow-transplant.... Hope things straighten out for you guys.......

    Take good care gals.... Oh wait.... HEY CAROLE! What did you do to your foot????

    Dream quote via Carol's Country Sunshine on Facebook:

  • Seedsally
    Seedsally Posts: 141
    edited March 2016

    Good morning Chevy. My earlier post tells a little about me. Nice to meet you and wonderful to see your upbeat attitude this morning

    Hello to everyone this morning and I truly wish you all a GOOD day

  • Chevyboy
    Chevyboy Posts: 10,258
    edited March 2016

    Seed! I remember when I first heard the news, laying there on that table, watching and listening to the radiologist talking during my MRI... I just asked what does "it" look like? I just "knew" what he was going to say.... And he said, "Well, it looks like cancer, butwewilljustremoveit, giveyouradiationandyouwillbedone!" And then your heart sinks, and you fall off the table, and............ so on! It's been over 6 years, and I am now 78.... oneoftheoldestonesANYwhere! Ha! All is good... Actually, falling and breaking my hip was worse for me than the BC.... but that was over 2 years ago...

    Now I'm just so anxious to get back to working cleaning up my gardens and planting my seeds!

    This thread was what kept me going... I was so afraid, but the gals on here really helped with ALL of my questions... You take care now!

  • ritajean
    ritajean Posts: 4,042
    edited March 2016

    Good morning ladies! Dave has driven up to LongBoat Key to do some condo repairs for some people that he works for at times in Illinois so I have most of the day to myself. I am looking forward to a day just to myself. (pretty selfish, eh?) I've been sitting here leisurely drinking my coffee and have some laundry and cleaning that I need to do around here later. Then I think I will be lazy and just sit out by the pool with a book. The cats love running around the lanai so we'll have a stress-free day for a change.

    Sandra, so good to see a post from you and good to hear that Mike has handled the pre-chemo treatments well. My thoughts and prayers will remain with you as you two travel this journey. You are an amazing lady.

    Puffin...also sending prayers for Lew. Oh my gosh! I would have been petrified! I am glad that you have support with you and hope he improves daily. Please keep us updated when you have time.

    CHEVY....HOW I HAVE MISSED YOU!!!!! I was so glad to see a post from you when I logged on this morning. Don't stay away so long this next time! Your wonderful humor adds so much to this thread!

    Welcome Seedsally. This is a good place to come for support, conversation, and just to chat with some very caring ladies. I'm glad that you joined us.

    Although my grandhildren are 11 hours away from me by car and I don't get to see them daily or weekly as I would really like, I guess I am lucky. I take each of them for their own special week during the summer so I get some good bonding time with them. ......one on one. I am exhausted at the end of each week but it is a good exhaustion. I just plan the entire week all around them. I would love to be closer to them so I could go to their ball games and buy them an ice cream cone after it but my son moves every few years with his job and I would just be getting established in a new community and it would be time to move on.

    Hello to all of you that I haven't mentioned in this post. I hope you are all doing well.



  • puffin2014
    puffin2014 Posts: 979
    edited March 2016

    I had a fitful night's sleep, kept having images of Lew laying on the sidewalk in the puddle of blood. Did finally fall asleep and slept until 5:30. Called the hospital for an update, he'd just gotten back from his head CT, he's moving both legs and his left arm, not moving right arm even to pain which is concerning. Blood pressure still normal and his temp is back to normal. He's still sedated. I'll go in to the hospital about 8 this morning, hope they have the results of the CT by then, and I'm preparing my list of questions for the doctors.

  • termite
    termite Posts: 238
    edited March 2016

    Good morning ladies,

    Puffin - sorry to hear about Lew's accident.  sending and prayers and good thoughts your way 

    Sandra - sending thoughts and  prayers for the transplant tomorrow.

    Chevy,   I was so glad to see a post from you this morning. 

    Welcome Seedsally,  This is a good place to come with a great bunch of ladies.

    I had a pneumonia shot this week and did not know you could get side effects from it. Arm has been swollen at shot point and red with a hard lump on upper part of arm. Also a little upset stomach. Looked it up on the internet and sure enough that's it.

    Today is suppose warm around 52 but cloudy. Hopefully warmer weather is around the corner.

    Sending good thoughts to everyone


  • chisandy
    chisandy Posts: 11,645
    edited March 2016

    Welcome. Seedsally. Getting diagnosed is never easy, but I believe that at our age we actually cope better.

    Sandra, hoping that tomorrow’s transplant marks a new beginning and an upturn for Mike.

    Puffin, prayers that Lew continues to improve neurologically--moving legs and one arm is promising; the right arm sounds like something musculoskeletal rather than neuro is going on (spine is likely intact because at least one arm can move; ability to move both legs rules out stroke). Rotator cuff, maybe? As awful and painful as that can be, it is also repairable. My friend--with severe COPD & a brittle diabetic--broke her hip in Nov. and was initially placed on hospice. She was discharged from hospice to assisted living, her hip is healing to the point where she’s using a walker, and she’s preparing for a trip to L.A. in a couple of weeks to visit her son. (And she will be discharged from assisted living come summer to move in to her & her husband’s new single-story home). So time can be a healer!

  • illinoislady
    illinoislady Posts: 46,506
    edited March 2016

    It's simple things, like a glowing sunset, the sound of a running stream or the fresh smell in a meadow that cause us to pause and marvel at the wonders of life, to contemplate its meaning and significance, who can hold an autumn leaf in their hand, or sift the warm sand on the beach and not wonder at the creator of it all.

    Wendy Moore

  • illinoislady
    illinoislady Posts: 46,506
    edited March 2016

    Just absolutely and totally thrilled to see you, my old friend ( well not in age just time as friends ) Chevy back on the bestest board/forum/thread at BC. Org. Ok, I made that up on the spur of the moment because I know we are ALL special to each other. We are having some difficult issues right now with Puffin ( Lew ) and Sandra ( Mike ) but sending tons of positive requests to the Universe --- God, all the Angels and Guides --- to stand by with all the good healing energies needed for the best outcome for both men. Lots of positive hope for our great friends Puff and Sandra to get through the next coming days as best as one can. We will be holding you all in our thoughts, prayers and supplications for the best of outcomes.

    Sharon/Seedsally --- it is an age thing in many ways. Older people seem to often do REALLY well because our dx. comes so much later than others. That said, oh how sad we do feel for the younger women --- many who have you children to consider. I'll be glad when this disease is all but wiped out, but I sure wish along the way that the younger of us could be spared until they are older if it must happen at all.

    It is raining here today. Ick !!!! I may have to set up my special lights that mimic the sun. Too many things just now, but will see what the latter part of the day is like.

    Will be back later after work.

    Prayers, hugs, lots of love and sure glad to see you back Chevy.

    Blessings,

    Jackie

  • anneb1149
    anneb1149 Posts: 821
    edited March 2016

    Good Morning

    Puffin - so sorry to hear about Lew. How scary. We're there any other injuries like broken bones? MEN drive me crazy by insisting they can do at 70 what they did at 30! And they say women have problems aging? I freely admit that as much as I hate aging, there are somethings I cannot do any more- like lift heavy stuff or climb on chairs to reach something. I really don't know if those inabilities come from aging or BC, but I know I can't do them anymore. Prayers and hugs to both of you.

    Sandra, praying for you and Mike. Here's hoping the procedure works and recovery is smooth and steady.

    Chevy- you have been missed. Hope you are doing well. None of us have your unique twist on things that make us all smile or chuckle, no matter what we are going thru at that moment.

    Carole - so sorry I missed your birthday earlier this week. Hope you had a great day.

    Sally- welcome to our group. You will never find a more compassionate , caring group that always has something to say. We are here for you as you decide exactly what your treatment will entail and will listen to what you're feelings when they are too scary to share with family and friends. We, each of us, have gone through journeys that have had moments that we didn't want to burden our families or friends with. But this is a safe place to vent when necessary.

    But, as the journey moves on, we find that most of us, enjoy each other too much to leave the group. So you will hear about our hobbies, crafts, trips and families. BC is the glue that brought us together, but friendship is what makes the glue stick, no matter what.

    I am a 66 year old widow with 5 kids and, right now 6 incredible grandkids ranging in age from 17 to 2 1/2. But that is going to change in the very near future. My youngest daughter is due to have a little girl by the end of March, her 3rd child, and my oldest son is expecting a second daughter mid-June. While my son lives in SC, Julianna will be born here in So Fla because he runs a very large summer camp here in the summer. I love to read, and my new passion is coloring. Other that that, I think I am best known for travelling. I go from So Fla to Atlanta, where my oldest daughter lives, usually for several monthsat a time, during which I take a road trip or two over to my son in S.C. - about a 3 1/2 hour drive. Right now I have been in Fl since the end of Jan and plan, other than a quick trip to Atlanta at the end of Aptril, to stay here till at least mid -summer because my baby boy (30) is getting married mid June, 6 days before myother son's daughter is due, and he is the best man. And she delivered a week early with her first daughter.

    Welcome to my crazy world.

    Anne

  • Chevyboy
    Chevyboy Posts: 10,258
    edited March 2016

    Ahhhh.... it's good to be "back"..... just been posting on other threads, but this one is my "home-place".... Ha! You too little Jackie... It's fun to meet with you all.... . AND Rita and Anne and Termite! How are YOU doing?

    Yes, it's warmer here also! Just put some tomato seedlings outdoors.... But will bring them in every night until the weather stays above 40 during the night-time....

    Going to meet youngest Daughter Janie for lunch at some Mongolian restaurant ..... It HAS to be good, right? Then stopping on the way home to get a bunch of red mulch, and brown, to make my yard "fancier".... At least the garden areas.... I'll take pictures when it is finished.... like in about 5 years....Winking

  • illinoislady
    illinoislady Posts: 46,506
    edited March 2016

    Happy

    Jackie

  • minustwo
    minustwo Posts: 13,796
    edited March 2016

    Chevy - and some day I will come to Colorado again!!! And we will meet. Thanks for your posts.

  • cactus_pearl7
    cactus_pearl7 Posts: 5
    edited March 2016

    Thank you so much Jackie for your kind and encouraging words

  • Chevyboy
    Chevyboy Posts: 10,258
    edited March 2016

    Morning gals... Cactus... You will be just fine! I started on this thread in 2009, and now it's already 2016 ! I was sooooooo afraid, when I posted the first time... but listening to what the gals told me, really helped!

    Jackie, Carole, Rita, and a few others are STILL here! I've posted on other threads, but this is like "home-base"....

    You know, it's so much easier to talk to each other here, rather than family sometimes... Because they are already concerned with what is going on with you, and they can be more afraid than you are....

    And SOMEtimes we talk about everything ELSE except breast-cancer.... and that's okay too! Just hang in there... grab yourself a cup of coffee, put your feet up, and think about how you can make every day the best there is !


  • Chevyboy
    Chevyboy Posts: 10,258
    edited March 2016

    Oh HEY Minus! How are you doing? Glad to see you.... Yes, we could have a "meet-up"......

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