natural girls
Comments
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Why can't we just follow protocol??? Well, I think we were doing just that when we developed friggin CANCER!!!
I am done trusting "protocol".
Though, you loose nothing talking to the RADs onc. Maybe he will give you more information. Information is power.
Does anybody know how we would go about finding an ONC who is more open to integrative medicine? Or are the two things just diametrically opposed???
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Integrative oncs are out there. Dr Block in Evanston IL is quite reknowned. I know he does a lot of seminars. Perhaps contacting his office will help find someone in your area. If I ever had a recurrance, which I know I will not, that is where I would go. I want the full treatment, not the either/or.
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I found an onc who is at least open minded to certain complementary therapies. For instance, although he would like to see me taking tamox or arimidex to stop estrogen production (even though I am ER-), he supports my decision not to do so. He is also a big proponent of IV C drips. He believes they have been shown to be very effective for certain types of cancer. I found him by googling "open minded oncologists" in my area!
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open minded oncologists -- LOL!!
Vivre, I have the Block book, I need to read that one. Maybe after I finish, Lee, do Brownstein, then Block. Plenty to read!!!
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There is apparently a society for Integrative Oncologists!! And a new book by Abrams and Weil:
http://www.integrativeonc.org/
http://www.amazon.com/dp/0195309448/?tag=googhydr-20&hvadid=3320389857&ref=pd_sl_45vg8jcy9r_b
I swear, you can google anything.
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Jenny...sorry you had to put up with that. Like you don't have enough to deal with without bone-headed comments from out of touch docs!
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seaotter...thanks for the heads up on how to take CoQ 10. I just noticed a post earlier about taking iodoral at least 2 hrs before or after other supplements. I didn't know that! Figuring out HOW to take these things is as time consuming as trying to figure out WHAT to take. Thanks to everyone who passes on the directions!!!
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Luna-I got a handout from my pharmacist on niacin. It says if nausea occurs it could be reactivating a peptic ulcer. Did you have an ulcer in the past? Anyway, it says to discontinue use, so no niacin. I also picked up Dr. Brownstein's book "Drugs that don't work and natural Therapies that Do!" because my DH doc keeps pushing him to take statins. I have not read it yet, but will let you know, or maybe look at it yourself. Looks like it has a lot of info cholesterol, osteoporosis, antidepressants, etc.
Spring-We are always reading! I wonder if we will eventually be able to open our own practice. LOL! Knowlege is power for sure. Every book I read, gives me security that I am on the right path.
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Vivre...Thank you for the response and the info. I'm not aware of ever having an ulcer but the nausea was very much there. Bummer! I really wanted to take it. Will have to figure out another way to get these levels down. Thanks again and yes, I will check out the book.
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Vivre:
I must admit: I had not read the statement from the President of Whole Foods since the firestorm. Indeed, I think I should read it for myself before condemning him.
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Springtime, I just noticed that you wrote: "There is apparently a society for Integrative Oncologists!!"
Not only is there one: that's the organization which conference I attended last week, and that's where I got to meet Dr. Servan-Schreiber.....
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Yaz-thanks for reminding me. Here is the article. Sounds like a lot of common sense to me:
http://www2.wholefoodsmarket.com/blogs/jmackey/2009/08/14/health-care-reform-full-article/
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I'm not here a lot but miss reading Flalady's comments. How is she? I figured you ladies would know.
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I think we should start and Angie's list for stupid/rude doctors. We can call it the BOOB list.
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LOL Merilee!
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Barry, our beloved Deb passed away a few months ago. It still hurts so much to think about her and I cry every time I do. I am not sure if I would be where I am today if not for her. She was my mentor and it is in tribute to her that I stay here, because I think if I can do half as much to help others, the way she helped us, it will keep her spirit alive. She came here daily, so patiently answering all of our questions, with her well researched answers, and her indominable spirit, while facing trials in her own health that ours paled in comparison to. She was constantly blasted and berated on this board for having the gall to to tout alternatives that kept her alive for years after doctors had given up on her. She subjected herself to all sorts of experimental treatments, hoping it would prolong her life and help others. She was one incredible lady.I hope she knows how much she was loved and is missed. It saddened me that she never got the credit she deserved around here. In fact, after the hatefulness she endured from others, I am sure there were some who relished her passing and cheered the fact that she did so much, and died anyway. There are some people who just want to win, no matter what it costs others.
For those of you who never knew FlaLady, look up her name in the members list, and see how often she posted ,and the information she gave us, and the animosity she put up with for doing so.
I will never forget you dear Deb.
Gotta go find some tissue now. . .
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Wow Jenny, I think it is very interesting that he said, "you people".
Perhaps this means more folks are demanding a more personalized approach? That could be very good !! - although it must've been stressful for you to bear the brunt of the docs frustration.
Thanks for the link on integrative docs.
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Hello Ladies and thank you for your understanding re: my "duhhhh" Oncologist
. I left his office yesterday feeling angry, stressed and hurt. I am in the process of looking for an Onco that will at least listen to ME and not treat me as a "number" only to follow "protocol"
. I HAVE A NAME and A LIFE
(he probably wouldn't know it unless he looked at the chart). You Ladies always make me feel better and inspired, Thank you. Jenny.
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Jenny, that is right. sometimes we need to move on.
I just noticed MTG's "cake boobs" or "boob cake"?? what a riot!
Yaz, sorry - I must have missed your update on the Integrative Oncology conference. Can you give highlights? Wouldn't it be wonderful to have one person who could help you with the entire picture? Maybe not so far out, huh? Do you know if there is a list of attendees, or a list of Integrative Oncologists somewhere? I sent a msg to the web site asking too... We need more options.
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Jenny! The fact that he said "you people" WTF!!??? What does THAT mean? WOW! Hang in there sister!
L
ox
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Jenny--
wow that dr really blew it in trying to help you understand why he thought it was important to get rads. Very poor approach.
My two cents having looked at all the data, picking the brain of my rad onc (before treatment) and deciding to get rads--you may want to meet with a rad onc just to get more information. As Deanna says, more info is always better even if it doesn't change your mind. Recurrence rates are lower with rads--don't recall stats but you can look it up. The reason they do them is so that if you have a micro amt of cancer in the breast, other than the initial tumor, radiation can kill it. You don't know what else is in the breast that isn't detected by scans. In my case, I had a lumpectomy and in surgery the dr found another small (4mm) tumor that had been undetected by the mammo or MRI. (Dr said these don't usually pick up tumors smaller than 7 mm). So I felt for me it was especially important to get rads to kill anything else that was in there.
The rad onc can also tell you how they do it so you can see if they are adept at staying away from your heart/lungs. I think that varies a bit by institution. Mine had the beam timed to breathing so that it only went on when I breathed in, which is when the heart moves down and away from that area.
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Jenny ~ I also think you need a new oncologist. "You people" is incredibly condescending and speaks volumes about where his mind and heart are vis-a-vis his patients. One thing that surprised me after I finished tx was a doctor suggesting to me that I change oncs for my followup. I guess I was thinking that my onc had gotten me through the worst of it, and it never occured to me to that someone would change at that point. But you may well be in a relationship with your onc for another 5 years of followup, and I can't imagine ever wanting to go back to someone who spoke to you that way. I certainly wouldn't. Deanna
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Just found out I need another surgery. Found a tiny bump under my arm and It tested positive SHIT
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Oh crap Merilee. Is it in your lymphnodes? Is it the same side as your original lump? How did you find it? What are they recommending after surgery? I am so sorry you have to deal with this now. That sucks!!!
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Oh no, Merilee.
Prayer and good thoughts coming your way.... that it will be quick to remove and well contained.
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I don't know what it will be yet but they are talking about removing lymph nodes on that side. Yes it is on the same side as my bc was
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Please keep us updated on what is going on! Sending you positive, cancer-killing thoughts!!
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Pill That was my feeling too! It sounds like this onc is facing quite a bit of push-back on his "protocol"...he must be very frustrated to say a thing like that!! There is a revolution afoot....and women are making their own choices. That said...Jenny I am sorry that your doctor was so rude to you. He had no right to shoot the messenger.
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Merilee..well that just sucks. My thoughts and prayers are with you.
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{{{Merilee}}} ~ We're all here for you! Please let us know if there's anything we can do. And please keep us posted as you get more info'. So sorry this has happened to you, but glad that it sounds like it was found quickly.... Deanna
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