natural girls
Comments
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Crunchy, did I just read you are considering zoloft with tamox? Check with your onc on this combo. My onc said many anti depress. interfere with tamoxifen.
No, although I have been told by doctors I should take them (and other meds), I am not taking ANY of those -- I prefer "Choice B" that I mentioned above -- a natural diet/lifestyle approach to treat everything, not all the drugs all my various doctors want me to take!
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They mention PREVENTION!!!
Cancer Rates Continue to Decrease
The "Annual Report to the Nation on the Status of Cancer, 1975-2006" found continued declines in overall cancer rates.http://www.cdc.gov/Features/dsCancerAnnualReport/?s_cid=fb210
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Got it Crunchy, good! I am just not a very good reader!
Jenny: Just got back from the Naturo and I ordered the Iscador. He thinks it will be very good for me since I was (hate the word...) "advanced". The supply is currently held up at the Canadian border. But, he says that it is quite often used in Europe for Stage 4. It is aggressive in going after rogue cells. So, I figure with I3C, calcium D glucarate, tamox. et al...now with iscador, this will be a good mix. It is 7 injections (you inject yourself) every other day. Take a 2 week break and then begin another cycle. It cost me $89.00 Canadian.
Re: Modified Citrus pectin, that apparently is only beneficial around surgery time.
I also have him researching zometa for me as I'm on the fence. I had a D test today. I was on 10,000 for 6 months, we'll see if I'm up to what one doc. in Toronto recommends 125 and up. Fingers crossed. For now I'll go down to 5000.
Hoping you are doing well with your studies!
Take Care Ladies!
Christine0 -
Fairy: My new ND suggested I take the fish oil and actually sold me the bottle she stocks in her office. I have mixed emotions about the fish oil because I so wanted it to be good for me and my immune system etc but I guess the dosage was way out of whack. Kind of makes me lose trust in my ND. Guess I'm going to be looking for a new one. I'm still going to be taking an Omega 3 supplement but at a much lower dose.
Terri
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Hi Terri! The dosage did seem super high, I was told 3,000mg max, its interesting how all of the docs have different ideas on how much to take! very confusing!!
L
ox
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You gals do know that many naturapaths only have a bachelor's degree right?
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yup! mine was an OBGYN prior to, so I feel somewhat confident that she knows her stuff
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Oh good.
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What matters is that the naturopath is familiar with the integrative protocols and goes to the progressive medicine conferences.
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It's pretty scary actually when you put your faith in someone who's supposed to be a professional and they steer you the wrong way. I'm not saying that the high dosage was the cause of my problems - the blood test in 3 weeks will tell but it sure makes you think twice before taking anything she said as gospel.
On another note, I've been on the progesterone cream for 1 month and already the hot flashes have been cut down to about 2x day from about 15 times a day! WONDERFUL !!!!!!!!!
Terri
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Terri! that is awesome!! are you doing 2 weeks on and 2 weeks off?
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Good evening ladies,
Christine-That's awesome. I did my acupuncture today and really loved it. I asked him about the ISCADOR also and he said that he will check into it for me and will be happy to order it, YIPPPYYYY. It sounds like you have a good Naturo
. I hope this works out for us. Thank you for your support .Everybody have a good evening.
Jenny.
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I'm only doing 1 week off, should I be doing 2?
Terri
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I think if you are pre meno its 2 weeks on 2 weeks off, if you are post meno its 3 weeks on 1 week off, but I will have to take a look at my notes, they are at home and I am at work, so I will check when I get home.
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Terry, that is scary, and I hope you are okay. It is discouraging to feel you are doing all you can to be getter and healthy and then you find out something that concerns you. I take three fish oil pills a day, I hope that is alright, I will have to check the mgs...
I see on Osteopathic doctor, so this is an MD of sorts, for supplements, vitamins and all the rest. so far so good.
ISCADOR is a new one on me, (I must have missed the posting here). Will google!
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Hi Spring.. I guess the average dose for fish oil pills is 500 mg (is that right?) so even at 3 pills per day, you're still way under what I was told to take by my ND. I tell you, if I find out that all this worry and all these visits to my ONC, a Hematoligist and a liver specialist are all because of taking too much oil, MY ND IS HISTORY !..lol Like I didn't have enough to worry about with the BC diagnosis and recon...I sisn't need to worry about my blood as well.
Fairy: I'm post meno now so I guess I've been doing it right.3 weeks on 1 week off.
I've been busy with my friend Maria who's had 2 biopsies taken and they suspect cancer. She's waiting for the the results of the path report. I feel sorry for her, it's not an easy time to be going through. It brings back all kinds of memories for me, ones I was hoping to put in the past but I'm glad I can be there for her. Let's pray her results are negative.
Terri
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Terri, your experience is a prime example why we need to doctor shop. I have talked to so many at them at health fairs and I questioned them on their experience with cancer patients. There are good docs and bad docs like everything else. I hope you will tell the ND what happened so he does not do this to someone else. Oh, and ask him for a refund and to pay your other bills why you are at it. I hope your friend will be okay. I am sure she has comfort knowing she has you to help her through it.
So we are back to Iscador. I say that because discussions on this has really brought the fangs out around here. I know Suzanne Somers first brought it to attention and she used it as part of treatment, and of course was accused of promoting quackery. Please ahare with us what you learn Jenni.
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Christine & Jenny ~ Here's some information on Mistletoe or Iscador from the NCI website. Since they're not particularly pro alternatives, I was surprised to see several pages about it: http://www.cancer.gov/cancertopics/pdq/cam/mistletoe (click on each question for additional information)
Terri ~ That is very scary about what happened to you. It's also a shame because, assuming that is what happened, it will most likely give your hematologist and onc a valid reason to question the abilities of a naturopath or wisdom of using one. It sounds like a glaring overdose was recommended to you, but if you're not familiar with a supplement, how would you know??? Kind of scary...
And I'm glad you can be there to support your friend,Terri. I will pray for some good news for her ~ Deanna
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Good morning girls,
Terri: I am sooo sorry for what you are going through. That us A LOT of fish oil. I take 2000mg QD. I hope you find a good ND (when your search begins
). Also, LOTS of HUGS and PRAYERS for your friend Maria. May her results turn up negative. Please keep us informed.VIVRE: I know what they did to Susan Sommers(how sad). You know what is...odd, Most of the celebrities that took the natural approach for their cancer are still with us today, but most of the ones that took the mainstream med approach are...gone (Farrah, Patrick swayze....just to name a couple). I know that talking about this makes some people uncomfortable, but let the fangs come out. I stared BC right in the face and said "bring it on" and well, I'm still here and IT"S not
, those fanged people can't really scare me anymore. What are your thoughts on the EUROPE MISTLETOE extract?Deanna-thank you for the link.
BIG HUGS,
Jenny.
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Hello team green! I am back, not feeling so great but THANKS so much for the positive thoughts, they helped, I am positive of this!
They let me out a day earlier than necessary because I did so well. Yuck though, I hate these drains and it doesn't look like they are coming out today as hoped since they are still draining about 50ccs of fluid daily. I guess its better than being inside my body. I am still numb and very much not looking forward to the nerves regenerating since I couldn't even tolerate the dilauded - face puffed up 2x the size - what a gorgeous sight. Sleeping is tough but Im really trying not to use the sleeping pills. Oh, ps - I hate melatonin. To date, they didn't find anything to be of concern under the nipples - yah but Im still waiting on the path for the rest of the tissue. Dr feels good that there won't be anything.
I feel ok most of the time, sleeping is impossible but I have such a new outlook on life, I know I did well from the green smoothies, the tons of fruits and grains and long walks with my dog. My toxic life is over. My mom has been visiting with me all week so that is an extra bonus bc she is an amazing cook. I hate to be that annoying happy girl, but I am, so I am going with it. I deserve it dammit, we all do! In case you were wondering, Im high on life, not on pills.
Terri - sorry for the fucking bullshit. yes, that is what it is, isn't it? ...when you trust in a dr and they lead you the wrong way. just know it happens to most of us - I was on my third holistic dr and after thousands of dollars- I finally found my one and only (thanks to deni). His lovely wife who runs the front desk told me some ppl go thru ten different drs to get to their 'one'. hang in there and Im so happy that it was figured out before anything too terrible happened.
Merilee - glad the chemo was uneventful! If you suck on ice chips it stops the chemo from giving your mouth sores. ..I read that your regimine doesnt make you lose your hair, is this true?
Ok guys its a little hard to type but I wanted to say thank you and God bless you, the universe loves you - stay strong.
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Oh, you're back!
We missed you. Best to Mom for the good cookin.' Nothing like good food to make a girl feel loved. You will heal. We are so with you.
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PS73 - Sooooo glad to hear you are on the mend!!! Ewwwww those damn drains are a pain. They will be out before you know it. I will be praying for you to get some well needed sleep.
Patty
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PS73, Glad you are on the mend. The drains are a drag but they serve a purpose and you don't want to pull them too soon and then have to have them put back in. Rest, take care and I'm wishing you a speedy recovery.
Vivre, you're so right about the good Doc's and bad Doc's dilemma. I don't know why I just assumed she'd be OK when I query almost every other kind of Dr....lol If I do find out it was because of the fish oil I will call and tell her and also that she should refund my money. As far as the other Dr's go, I didn't have to pay anything as their visits and all the blood tests are covered under our Medicare. But still, I went to at least 6 Dr's app'ts and the time involved not to mention the worry that she's caused me.
Deanna, I haven't even told my ONC yet that they suspect the fish oil...I'm almost afraid to since he was the one who asked if I had extra money to burn when I said I was going to see a ND !
Jenny, The search for another ND is ON ! I do know of one that runs a whole clinic and compounding pharmacy as well but is about 2 hours away. At this rate, it may well be worth the drive.
Terri (Trying to look on the bright side...)
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PS
Never apologize for being happy. Life is too short to be any other way.
CMF doesn't always make people loose their hair, some yes, some no. I hope of course that I am in the No category but I will deal with what ever comes. I did by some Nioxin shampoo and conditioner and a supplement for hair called Biosil. I am giving it my best shot.
So far no mouth sores. I bought Italian ice and brought it to my treatment. I am not holding back on the pampering through this process. Neither Should you!
PS tonight I am going for a massage
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PS!! Yay! So happy to see you back!!! drains are such a drag, and sleeping is hard, but isn't it AMAZING that all of this crap brings us to such a different place, I am with you on the happy train, I can't explain why, but it always happens, when something is taken away, its replaced with something else. I see life so differently since BC.
Terri, I so hope your friend is ok, we will be praying for B9!! I am so sorry you are being dragged back to that time in your life, but what a wonderful person you are to be there for your friend. I am about to have my 4 month follow up with the onc, blood work being done in the next week, I always freak out, and that drags me back too, oh the fun!!
I think Farrah did the iscador, she went to Germany to get the infusions, and it seemed to work, and then she came back to the US. I believe I saw an interview with her German doctor who wanted her to go back to Germany, but by that time she was too weak to travel. The German doctor believes it would have saved her life........who knows......I also saw another interview with one of Cher's band members, he had what they told him here in the US was terminal brain cancer, he went to Europe for iscador treatments, that was years ago he is still alive and NED.
L
ox
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PS73...Hope each day gets better and healing occurs each day and you feel it. I slept on a recliner for two weeks after my surgery..just a suggestion. Could not lay on my side for that long!!Do what is comfortable. Just an idea!0
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Dear PS73,
I compiled a list of "after surgery" tips for the gals on the TNBC site, and they may be of some help for you. You do not have to join to print these out.
http://forum.tnbcfoundation.org/the-after-surgery-tips_topic3104.html
Merilee...Ask your onc to give you a script for "Magic Mouthwash". If you use this before every chemo, you can avoid the mouth sores, as once you get them, it is very difficult to treat. The mouth wash helps alleviate the metal taste also. Also here is a link for the chemo tips I compiled for the women on the TNBC site. They are recommendations/suggestions from the women who post there. Again, you do not have to join to print these out.
http://forum.tnbcfoundation.org/the-chemo-tips_topic3101.html
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Dear Nan, thank you for the information. I had a surgical bra post lumpectomy that I am using and I have a vest type of shirt that holds my grenade drains - it was a donation to a group of lovely women who make cami's for bc patients. Good idea about the airplane pillow, I have one and will try it tonight. My neighbors are so great and lent me a lazy boy recliner which Ive been attempting to sleep in. As far as shaving goes, Im rocking the 70s euro gal thing for a while - too excited for hair to get rid of it - my hubbie is digging it.. My head looks like nathalie portman in v and i do a faux hauk thing but can't wait for it to grow a little to rock the rosemary's baby - mia farrow - Ill dye it strawberry blonde and have fun with it. Merilee and Lorraine- you are so right about being happy I feel like I climbed a huge mountain, the exhileration is bursting at the seams.
..going to help mom make eggplant lasagna now- the egglplant slices replace the pasta and I have firm tofu which Im going to try to talk her into using instead of ricotta (doubt Ill win the battle).
Take care, have my apt with the PS at 4:45 today.
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PS, those drains area a pain, I am just a few weeks out of getting rid of them from my last surgey. The good thing is, it's not forever. But while you have them it seems a long time!
Terri, I am taking 3 fish oil a day now (down from 4) and they are 1000 each. Does that sound concerning? Would 4000 a day be too much, as this is what the Osteopath was suggesting. I am seeing her Monday so will ask about this.
Merilee, I found if I sucked ice I did not get mouth sores. Odd, but it worked. Also, if you develop peripheral neuropathy (pinchy stingy pins and needs - typically hands and feet) - I used 3 TBSP of L-glutamin a day and this stopped it. My ONC's office said there was no medical proof it worked, but it worked for me and many other women, so who cares...
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PS73 ~ You're back! YAY!!! Those drains are a drag, but you will feel wonderful the day they come out, so something to look forward to! Oh, and that eggplant lasagna sounds delish!
Here's a thought-provoking article. I wonder how often this happens. As if drug SEs aren't bad enough, it seems like we can't even be 100% certain the research behind some of them was even done!
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