natural girls
Comments
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Raili welcome. Glad to see you are questioning that very aggressive treatment plan, and hopefully you find an Onc who realizes that all of the body systems need to be taken care of, not just the possible cancer reoccurrance. Instant menopause at age 32 sounds pretty horrifying to me for an early stage cancer. I went through the same concerns as you regarding the decision between masectomy and lumpectomy with radiation. Having a scar didn't concern me, the radiation idea bothered me, but in the end, the masectomy and loss of a breast with all its sensations would have bothered me even more. There are many forums on here where women discuss these decisions and what criteria they used to decide, there are many aspects to consider, and it boils down to what you can envision yourself living with, without regret.
I take tamoxifen and the idea does bother me sometimes, but I couldn't afford all the natural alternative supplements that some of these women are taking in its place, and if I did get a reoccurrance, I would probably regret not taking it. I also have made dietary and lifestyle changes which I feel reduce my risk of reoccurrance, and if there should ever come a reason why the tamoxifen is not good for me any longer, I've decided that I will not do any other type of hormonal therapy, such as the AIs.
Lorraine, sorry to hear of all your troubles. I've used flax for constipation as well, but find that it was more effective for that when I first started taking it, now my body has gotten used to it. My hot flashes have pretty much stopped and are now very rare, but the vaginal "rawness" and poor sensation seems to be not improving at all, despite creams, gels, oils, etc. I'm still looking for solutions to that!
I've found valerian recently for sleep and it seems to work well, as I had started waking up early in the am and not being able to go back to sleep.
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Does anybody have any experience with transfer factor4life classic supplement? A friend's dad used it before, during and after chemo and had good results.
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Lots of images of yellow snow at Seaotter's house....blocking all images from Fairy's house:) But Congrats on the plans you have devised to support your new movement!:) Dr. OZ says you are looking for an S curve:):):):):)
Had some stuff to do when I first got home. And then 24 was on.
Thank you so much to all who lit candles and prayed for me. It only took 2 tries this time to get the IV in, so thank you for that....now it is just a waiting game to see about infection. Thank you to so many of you for being so kind. I skimmed the posts, but will have to read again another day because my brain is always a little foggy after aenestesia. You guys (ya'll in my native language) are the best. When they were ready to take me in, I closed my eyes and thought about the prayers and good vibes I knew you would come through with and I smiled and relaxed and was happy!
Hospital report in time...10 am....To surgery...2 pm...Left Hospital...5...pm...no wrappings...no bra...just a couple of bandages..&...drains. Looks better every hour. Top of them seems to match. Bottoms harder to tell because..... he had to lift the fold on the prophy side which had had most of the infections, 2 TEs put with the final one punctured. That side sagged and stretched and had some thinned out skin around the scar. The cancer side had healed beautifully and was just waiting around for the other side to catch up since July. It did need to have the fold lowered, though. So, can't tell for sure but seems to match more and more even in the short time I've been home. I will be patient. I believe in my plastic surgeon's talent. I also like him and everyone on his staff and have found them to be kind and caring and believe them to have their heads and hearts in the right place.
My head's clearing more as I am writing to you now and watching Olympic figure skating. I have had no pain meds since the hospital. Feeling Good! Feeling non-dizzy enough now to make my late night trip out onto the deck and say "Hi" to God and some people I love who are with God. I will send up a Thank You Prayer for bringing me to all of you special people who have gotten me through these past months.
Thank you again to you wonderful, caring Natural Girls!!!!! You do so much for so many even as you struggle with your own symptoms, decisions and treatments, and research and responsibilities.
You are special.
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Luna ~ So glad to hear that you are feeling so good! To find so much to be grateful for right after your surgery...you inspire me to be so grateful! And your brain might have been foggy, but your great sense of humor was very much intact!! Thanks for a big smile! Continued blessings for speedy healing!
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Luna-Glad to see things went well. Now sending you some healing hugs.
Suzanne-I have been thinking of you too. Hope you are doing well and figuring it all out. More hugs to you do.
Regala, I never heard of that supplement. I tend to not use any "concoctions". I prefer to use specific supplements to my needs.
Bless you all.
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Luna, SO glad it went so well!! Now may you have a speedy and easy recovery!
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Luna: I am so happy to hear you have made it through the exchange and that all of the necessary revisions were successful. An answer to prayer!!! I personally do think that you will need some support quite soon because of your lift and inframammary fold revisions - some sort of post-surgical bra or wireless over-the-counter version.
Bless you!
Deborah
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Luna - sooooo happy that you are doing well. Thanks for the laugh about the yellow snow and yes there is a bunch of it!!! I will continue to pray for a very speedy recovery.
anom - you mention that you don't take calcium. May I ask what you take for the ole bones?
vivre - I am having the pet scan due to pain in my collar bone and before surgery my x-rays showed that I have spots on my lungs and I have nodules on my thyroid (I'm a mess).
Patty
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Patty, shit, when is your apt?
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It is a week from today. I can't wait until it's over!!! Thanks for asking.
Patty
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Luna!! So glad you are home and safe, I LOL'd at your post about blocking images from my house
so funny!! All is ok in that area today, thank goodness! NOW I have a friggin pinched nerve in my neck, WTF!! Its sooooooo painful!! I actually took OTC pain tabs this morning, its been a long time since I did that! I think while running I landed wrong and jacked something, OR I slept weird, who knows! Getting old sucks!!Patty! Shit is right! what the heck!??? You will be fine, I just know it!!!
L
ox
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Hey L, maybe the pinched nerve is from to much prune juice,lol.
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Patty, hopefully all will be clear and your mind will be set at ease!!
Girls... I am thinking about dropping off the board for a while... and not having any further surgeries or procedures. I have sunk into the deepest depression I've been in in years. I've tried not to show it here, but it hurts living every day knowing I will probably never be able to have a surviving baby.
Those of you who have the incredible blessing of children... please give a HUGE hug to your children/grandchildren and spend a moment appreciating what a miracle and a blessing they are. I long for that blessing so much it hurts just to live. Everything I see (whether it's a forum post, or a TV commercial, or neighborhood children playing in the snow -- EVERYTHING) makes my eyes well up with tears, all the time. I just want to go sleep for a while. If you could spare a moment, I would appreciate someone praying that I might find a reason to live.
Love to all of you... you all are the BEST!!!
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Julia-
You can't drop off the boards. We need you here!!
Depression is a horrible thing but at least you are aware that you are depressed. There must be some sort of infertility support groups in Alanta. Maybe you just need to connect with others who have had this problem. It is worth a try.
You are an incredibly nice person and I am sure that your husband loves you very much. You have a reason to live just for him! What would he do if he lost you?
Julia, I know that you have lost numerous babies and that must be heartbreaking. But it doesn't mean that you can never carry one to term. With all of your healthy eating and lifestyle changes, what makes you think it is impossible? You must keep trying. And you can't leave the boards because I (and everyone else) will worry about you. You are one of my favorite members and I would miss you.
Sending you hugs!!!
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Oh Julia please don't leave us. I know you are going through a VERY difficult time and we girls with kids can only imagine but really don't know exactly what you feel. You are sooooo loved here. We are all in this together.
((((((hugs & love))))))))))
Patty
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Oh gosh, y'all are too sweet... now I'm getting weepy again but in a good way. Thank you... today is just a bad day (friend just had baby #7, another friend who was my "infertility buddy" is 14 weeks pregnant with twins -- and she had two other living babies since we started our infertility journey together)... I may stay away from the other forums but I can't stay away from you sweet ladies! My sadness may ooze through now and then, though, and I apologize in advance for that....
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Oh thank you God!!!
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Sorry to hear it. It royally sucks. I SO understand what you are going thru that Im also on the verge of tears! Have you tried meditating and using visualization? ..also when the BC anxiety reaches a high note, there is a breathing technique I do. Push out of your abdomen on the breath in and pull it in on the breath out. It creates a less stressful enviornment on our bodies and the breathing has a sense of calming. Keep trying - I agree. Your time will come and we will all be here to celebrate with you!
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Welcome, Raili. All these wonderful ladies here have already said virtually everything I was going to tell you. I will just echo this part: It is great that you are questioning treatments: please keep questioning, and you'll find the right answers for you. I dropped off chemotherapy 4 years ago when it was firmly established that chemo does nothing for ER+, PR+, HER- tumors. I also turned down Tamoxifen. As soon as I was diagnosed, I "hit the ground running": changed my diet 360 degrees to include 5 to 13/14 servings of fruits/vegetable a day, and got started on well-research supplements (I got and I am still getting a whole lot of information on supplements from this very board. As a result of that, I am continuously adjusting/fine-tuning my supplementation regimen). The alternative/complementary forum is a true blessing to me.
Dear Julia: I am soooo sorry how you are feeling these days. But not surprised at all. I really, really, hope that things change for you in the near future, and I realize how hard this is on you. You are one of the most valuable contributors to this forum. You provide important to life-saving, well-researched information on a daily basis. As sad as it would be to not have you around for a while, I also believe that you have to follow your heart. If you really need a break, I am sure everybody here will miss you very much, but I also hope that's what it would be: a break. Hopefully, you'll come back soon to the Natural Girls. Your home.
Hang on, Julia.
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Wishing you peace, Julia. I am so sorry to hear that you are so sad. I too have been depressed, and it is an awful lonely place. I try to think that we are all in orbit around the sun...sometimes, when we are close, it is easy to feel the light and the warmth and the love of the sun. And sometimes we find ourselves far away, where it feels dark and cold. But we are in orbit... we always come back to the light. Know that you will come back. I hope you will get help if you need to. My heart breaks for you.
Please keep coming back to our thread. You can show us your sadness....we can take it! And we will love you through it!
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Thank you everyone!
Praying and hoping for excellent results for Patty and happy days and dreams come true for Julia.
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Julia-Don't you dare leave us. We cannot help you if you do not let us, so just keep venting with us. You need to let it all out, and there is nothing like a good cry or lots of bitching, so let it all hang out here. We will understand. You must keep in mind that you are still healing from all this bc crap. I have many said many times that the physical part of bc was the easy part for me. The emotional healing took a lot longer. I know how badly you want a child right now, but you have to be patient for a while longer. You have to get truly healthy, mind, body and soul. Only then will you be able to realize your dream. Never, ever give up hope and always keep the faith, that there is a reason for it all. I know it must be really hard to mourn your lost babies, especially since others never got to know them, and did not develop the same love you have. But you need to reach out to those who love you and tell them how you feel. I have a friend who miscarried, and she always told me that it hurt her so much that others could not feel her pain. But we were silient because we just did not know what to say. We were afraid to talk it about it, because we did not know how. Do not hold it in. You need to release all of it. Get your friends and family together, and tell them exactly how you feel, just like you did here. They will surround you with their support too. For whatever reason, it was not the right time for those little angels to be here. Just keep trying to get yourself well, and you will be blessed. I use to work with someone who miscarried twice, and could not get pregnant for over 8 years. Then, for some reason, she finally got pregnant and had 4 kids. The well finally opened up. Please, just concentrate on getting well. PS had some great advice and I would like to add that you need to get out and walk. Exercise releases those happy endorphins that make you feel better. Yoga and TaiChi are great too. I wish you could come to my weekend so you could try these things. Maybe a little getaway is just what you and your DH need?? Hugs to you
Patty, I sure hope the pain you are having is nothing to worry about. Big hugs to you too.
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Ladies, can all of you that believe that Thermography is a better practice than a Mammography please post something on this topic. It is in the 'New Mamograpgy Guidleines Forum' under 'Are Mammograms Radiation? Are they killing us?'. It's a great opportunity to get the word out there to women who are unaware of this technology.
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Making, I have tried so many times to encourage others to look into thermography. I even started a thread called alternatives to mammography, but all the naysayers do is come in to start arguments. I just cannot stand arguing with these people any more and I just stay here in our little natural girls corner. What is so ironic is that the new guidelines will probably save more lives because it will expose women to less radiation, but they just will not believe it. Since this site is run by a mainstream doctor, it does not surprise me that the approach around here is to follow doctors orders, at all costs. I have had 4 thermographs, and I will never have another mammo because I trust therms so much more. My doctor is going to do a powerpoint presentation on the therms, mammos, US, and MRI at the prevention convention I am planning. I hope he will eventually let me post his presentation on my new website, which will be devoted to prevention.
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Any one else read the article in Journal of oncology about aspirin? http://jco.ascopubs.org/cgi/content/abstract/JCO.2009.22.7918v1
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Julia, I am so sorry to hear how depressed you are. I hope you stay around. Isolating yourself at a time like this wouldn't be good for you. Please keep posting so we can help you through. Watch some stupid movies that will make you laugh. Pamper yourself with a long hot luxurious bath. Go in the garden and dig up a dead shrub. That'll get your anger vented, at least it does for me. I dug up lots of ugly shrubs when my marriage unravelled. Don't you dare give up or we'll send a posse after you.
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For those of you who have read Breakthrough, you might remember reading about Dr. Gonzales and his success with treating cancer patients with alternatives. John McCain is currently trying to put a bill through the senate that would mandate more government control over the supplement industry. While regulation may seem like a good idea for safety sake, it may actually do more harm than good. Dr. G. does a great job of explaining why in this letter he penned to McCain:
http://www.anh-usa.org/new_site/?p=2372
Please take the time to read this, and call John MCcain and ask him to stop this bill in committee. It will only end up putting us more at the mercy of big pharma.
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Merilee,
Yes, can you believe this about Aspirin? I wonder what the dosage is, apparently, more than the "baby aspirin" (81mg) you take for heart health. I wonder if taking one regular aspirin a day, like 5x a week would do it? If anybody finds out, Post Here!
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Hi Ladies-I haven't been on here much lately. Lots to catch up on...
Julia-I'm glad to see you're still here. Life is difficult when we are depressed. Especially when it seems nobody can understand our pain. We all need to support each other. You have all of us, and we have YOU! I've read a lot of your posts and you remind me of myself-a real spitfire LOL
Luna-How are you feeling?The thought of surgery, Yuk! and I've only had 2. I hope your results make you smile
Patty-My thoughts are with you.
Vivre-You're so right. The thread is losing it's meaning already and has turned into arguments. We'll, I'd like to think that maybe, somebody saw it, and the result is it might save a life someday-you know "Chaos Theory'. LOL I'm glad your putting the website together and having a convention. That's awesome! I hope I can attend.
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I don't know if you all know about this GREAT website by the Environmental Working Group, but they are asking for people to sign a petition to take to congress in effort to make chemicals in consumer products kids-safe. Here's the link:
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