Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

natural girls

1199200202204205338

Comments

  • dlb823
    dlb823 Member Posts: 2,701
    edited August 2010

    Sam ~ I use I3C.  Like you, I had read a lot of negative things about it in articles promoting DIM, and had even switched to DIM for a short period.  But I didn't feel well on it, and when I started reading more, I realized that a lot of those quasi-scientific articles knocking I3C and touting DIM were written by a doctor who is a principal in a company that manufactures DIM.  I can't tell you which one might be better for you.  There are women here who use both.  But just be sure you know the source of what you're reading and look for research links to support claims.    Deanna 

  • mathteacher
    mathteacher Member Posts: 52
    edited August 2010

    As an alternative to DIM or I3C, this formula was recommended because it doesn't block the uptake of iodine to the thyroid like the other products.

    --------------------------------------------------------------Manufacturer's info below:

    What makes OncoSGSTM unique?

    OncoSGSTM contains a specially cultivated, patented form of broccoli seed known as BroccoRaphaninTM. This proprietary and patented variety of broccoli, Brassica Oleracea italica, is naturally rich in glucoraphanin, a glucosinolate that is the direct precursor to sulforaphane. OncoSGSTM is grown and pro­cessed in North America and the intermediate material is shipped to Germany where they extract 99% of the oil from the seed meal using a very clean and non-toxic process called super critical fluid extraction. Only food grade, GRAS (Generally Recognized as Safe), liquid carbon dioxide is used as the Supplement FactsServing Size 1 capsuleServings Per Container 30BroccoRaphanin® (seed) (Brassica oleracea italica) [standardized to contain 10% sulforaphane glucosinolate]*Daily Value not established.Amount Per Serving % Daily Value 500 mg *Per 1 gram of material (2 caps OncoSGS) there is only 1.5 mcg of vitamin K (equivalent of 1 potato), which should make this product acceptable

    Unlike consuming lots of cruciferous veggies, because of the special processing OncoSGS goes through, it does not contain goitrogens and will not block the uptake of iodine by the thyroid.

    --------------------------------------

    I haven't tried it yet--just passing along the info.

  • samsue
    samsue Member Posts: 599
    edited August 2010

    Barbara A,

    My Onc had no interest in my having blood-work done so I went first to my PCP and he did it for me. My cholesterol was up (not high) the LDL us up and the WBC low. Most everything else was borderline low. She didn't look at the paperwork, she just wanted to show me a graft indicating if I didn't take the arimidex I would be XXX more likely to have a recurrence. That's when I searched out someone who would do the saliva testing, etc. Got his name from the compounding pharmacy. They weren't sure if he would take me since some of the names on the list they knew wouldn't. I just made the app't anyway and he said after my tests come back and we know what my levels are, we could have a better understanding on what needs to be done. He does treat other BC patients and uses compounded replacements.

    The DIM he put me on after I sent all the saliva and urine samples away also has I3C, Vit E, Folic and Calcium in it. I've only been on it a couple of days so can't say there are any reactions as yet.

    I've pretty much had everything removed.... Hyst, Ooph, thyroid, are there any more ectomyies? I've probably had them! Yes, I'm a medical miracle.

    I only had the sentinel node removed but thinking the rebounder might help me anyway. I'm also a LMT and do some lymph massage and know it really helps clients. Unfortunately it's hard to find someone locally that does the work too - so I can benefit.

  • stenan
    stenan Member Posts: 1
    edited August 2010

    Hi everyone,

         This is a first post for me so I feel a little awkward.  I received my diagnosis four years ago,  and I am a firm believer of the natural alternatives.  I am actually studying to become a Nutritional Consultant to expand my knowledge and hopefully help others.  I am also seeing a Naturopathic Physician.  I good alternative I have found for Tamoxifen is fresh ground flaxseed.  Be advised with a ND.  Two years on Tamoxifen was enough for me.  I tried Arimidex for 6 weeks and it raised one of the liver enzyme.  Not good, so I stopped.

    Let food be your medicine and medicine be your food

  • DesignerMom
    DesignerMom Member Posts: 730
    edited August 2010

    Hi Everyone.  This is my first post over here, though I have enjoyed reading and learning from all of you . I am wondering if any of you have any natural advice about Shingles/Herpes.  I just completed my 3rd chemo and WHAM I broke out with a very itchy, quarter sized spot on my buttock, just one spot.  I photographed it (that was entertaining) for a few days and e-mailed it to my Onc.  She agreed it might be herpes as I used to get cold sores.  She consulted with my primary, who thought it was Shingles.  I asked if it could be tested. She said it did not matter as the treatment was the same.  I think it would matter to ME to know!  They want me on Acyclovir throughout chemo to prevent possible outbreaks as my immune system is suppressed.  After researching Acyclovir, I find it is a nephrotoxic (toxic on kidneys) agent as is Methotrexate, which is one of my chemo drugs.  I am really not comfortable taking more meds, especially if they could cause kidney damage.  I think I am going to tell my doctors that I have filled the Acyclovir and IF I feel an outbreak coming I will take the big, "stop it" dose immediately?  So my question for all you natural experts is, do you know anything that I should take to prevent Herpes/Shingles?  I have three more chemos and then rads.  Someone told me Lysine, any idea how much?  Any advice would be greatly appreciated.

  • ananda8
    ananda8 Member Posts: 1,418
    edited August 2010

    DesignerMom,

    If you have had chicken pox then your outbreak could be shingles.  If it is take 1000mg per day of L-Lysine as soon as the outbreak occurs and until it clears up.  L-Lysine is an amino acid that slows the reproduction of the shingles virus enabling your immune system battle the virus. 

    I have heard it works with herpes as well.  It has been my experience that taking Lysine every day does not work as a preventative so save it for the first signs of an outbreak.  Do not take with dairy.

  • vivre
    vivre Member Posts: 881
    edited August 2010

    I don't have time to respond to some of the comments lately, because I am off to veggiefest again for the day, but I am just asking all of you to start a prayer chain for my dear friend and website partner, Laura GTO. Her husband had a siezure, and is not doing well. Please remember them in your Sunday prayers.

  • DesignerMom
    DesignerMom Member Posts: 730
    edited August 2010
    notself-Thank you for the info on the Lysine.  I am starting to research whether or not to take Tamo.  As my Onc is totally medically oriented, I am trying to find out all I can that is complementary to help my body fight and stay healthy.  I'm sure I will be back here often, there is so much great info.
  • sam52
    sam52 Member Posts: 431
    edited August 2010

    dlb823 - thank you for your input.It sounds a bit more complicated than I thought, but I am still researching....I think I am still leaning in favour of I3C.

    Meanwhile, having stopped endocrine therapy after 7.5 years as onco wouldn't prescribe any more - (tamox for 2.5 years followed by aromasin for 5), I am taking grape-seed extract, which actually tastes and smells disgusting.......

  • geewhiz
    geewhiz Member Posts: 671
    edited August 2010

    Sam52..try the grapefruit seed extract in some orange juice...voila!! Yucky taste disguised :)

    Vivre..your friends are in my prayers.

    Notself...there is some thinking that some cancers are driven by weakened immune systems. Shingles is the also considered immune system driven...perhaps looking into really boosting that system after chemo might help? 

  • geewhiz
    geewhiz Member Posts: 671
    edited August 2010

    Vivre, or anyone else with an opinion to offer...for those of us that had lymph axillary clearance - do we place ourselves at greater risk for lymphadema with the infrared saunas?

    I am travelling to Germany to get whole body hyperthermia (systemic fever is induced) and I believe in the premise wholeheartedly. I would love to think that I can continue the therapy at home in a sauna.   

  • dlb823
    dlb823 Member Posts: 2,701
    edited August 2010

    Just read and wanted to share this excellent article about calcium supplementation:

    http://www.jonbarron.org/heart-health-program/nl100809/killer-calcium.php

    Laura's husband is in my prayers, vivre.  I know you'll keep us posted  ~ Deanna

  • ananda8
    ananda8 Member Posts: 1,418
    edited August 2010

    geewiz,

    There are several abstracts on PubMed regarding Echinacea and its ability to boost the immune system.  Just do a search on Echinacea. http://www.ncbi.nlm.nih.gov/pubmed

    I can't find the article but somewhere there was a mention on another site that Echinacea should only be taken for two weeks at a time or it starts to lose its effectiveness.  I take it for two weeks and then wait 90 days and take it again. 

    Check with the doctors to make sure there is no interactions with other drugs.  Just because something is natural doesn't mean it's safe. 

  • seaotter
    seaotter Member Posts: 642
    edited August 2010

    geewhiz - My lymphdema expert said not to get my arm above 100 degrees. You might want to contact Binney on the lymphdema thread, she is always willing to help.

    My alternative doc told me POA cat's claw and silver water and great immune boosters. Has anyone checked into silver water?

    Regarding my microcalcifications, I'm going to my breast surgeon and discussing having both breasts removed.I think my girls are ticking time bombs and I'm done!

    vivre - praying for Laura. Please let us know how things are.

    Peace and Blessings, Patty

  • vivre
    vivre Member Posts: 881
    edited August 2010

    VeggieFest was so much fun, but exhausting! My suana buddy was there, and on his way back to Ohio, so I will try to remember to ask him about the lympedema/sauna issues. Remind me if I forget. Even though it was in the 90's here, people loved Phil's portable sauna. The highlight of the weekend for me was seeing a lady with severe fibromyalgia step out of the sauna and declare she felt unbelievable pain relief. I thought she was going to cry. I love my sauna! Did I mention it detoxed my poison ivy exposure?

    Another alternative to DIM/I3C is Myomin. I have been using it since my compounding pharm recommended it for post menopause. I just had a saliva test done, but it makes no sense to me, since I had urine tests done before. So it is hard to figure out the results. However, I just met a wonderful doctor who wrote a new book on hormones which I am reading. When I finish it, she said she would do a Q & A for us on my site, so hopefully we will finally get some good answers. What I love about her book, is that she really makes hormones easy to understand.

    Deanna-that was a great article on calcium. I have never been on the calcium bandwagon because I believe the best way to keep the bones strong is to exercise them, and the best exercise is the rebounder. So I jump everyday! The rebounder was a big hit at veggiefest too. The kids really loved it. It is so much better for them to jump, than sit and watch tv. And everyone is so happy when they rebound. One little girl caught me as I was leaving and told me how much she wanted one for her birthday, but her birthday was over so she was going to ask Santa. So sweet.

    As for Laura's DH. He is still in the hospital. Laura is holding it together, but at bit overwhelmed. Her husband was her rock during her bc ordeal, so she is understandably having a hard time. Just keep praying.

  • SuperMom101
    SuperMom101 Member Posts: 65
    edited August 2010

    The attached research article on "Modern Milk" (and dairy products) published in the Harvard Magazine of Nutrition might be of interest.  As many of you know, I follow Jane Plant's No Dairy Diet and am so thankful I discovered her book over 9 years ago.  

    http://harvardmagazine.com/2007/05/modern-milk.html

    Always curious who else is out there that follows a no dairy diet...

    Best health always,

  • SuperMom101
    SuperMom101 Member Posts: 65
    edited August 2010

    The attached research article on "Modern Milk" (and dairy products) published in the Harvard Magazine of Nutrition might be of interest.  As many of you know, I follow Jane Plant's No Dairy Diet and am so thankful I discovered her book over 9 years ago.  

    http://harvardmagazine.com/2007/05/modern-milk.html

    Always curious who else it out there that follows a no dairy diet...

     Best health always,

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited August 2010

    Great article, SuperMom... it totally underscores my decision to never consume any factory-farmed dairy, only dairy from grass-fed cows on natural God-given reproductive cycles.

    I don't consume much dairy, but I do consume some (from grass-fed cows only), for the good cancer-fighting nutrients like CLA's.

  • SuperMom101
    SuperMom101 Member Posts: 65
    edited August 2010

    Thanks Crunchy Poodle Mama.  Anyone else familiar with the work of several MDs called  www.cancerproject.org where they offer cancer patients cooking classes for a vegan diet?

    I worked with a woman from China who received her PhD in molecular biology and she (interestingly) experienced "female problems" when she first migrated to the states.  So, after many tests, she went to a vegan diet.  Anyway, in her research she told me that a fried chicken thigh had more carcinogens than a pack of cigarettes.  Crazy...huh?

    An ounce of prevention is worth a pound of cure. - Ben Franklin

  • DesignerMom
    DesignerMom Member Posts: 730
    edited August 2010
    supermom- Thanks for that great article on Modern MIlk...I think.  I have been very concerned ever since the FDA aproved use of hormones in milk production (no labeling required), as they say it doesn't alter the milk.  RIGHT!  I think they still won't allow hormone use in Canadian milk, not sure.  Now I see from this article it is far more complex.  Imagine tricking cow bodies to think they are perpetually pregnant to produce more milk!!  Needless to say, the milk is "different".  So here is my next question.  As I DO eat moderate amounts of dairy and have an 11 YO who does too, is organic milk okay?  Does that labeling mean they eat organic?  Can they still give them hormones to make them produce more "organic" milk?  Though I eat extremely healthily, I just don't see being totally dairy-free (sorry, my  German background), what is the healthiest way to consume dairy?  I know the article says skim milk is better because all the drugs are stored in fat.  Please don't tell me I have to drink skim!
  • Luna5
    Luna5 Member Posts: 532
    edited August 2010

    Night Dental Guards....BPAs???

    My night guard is Pro Form Vitacrylic  type 12 (according to the ADA) This is all the info I was able to get from my dentist regarding my mouth guard I am supposed to wear to avoid clenching my teeth.

    I am worried that I may be putting back the dreaded plastic BPAs into my system that I am trying so hard to avoid.    I have been googling and googling and can't find any info as to whether this is a dangerous plastic....All I have been able to find is an article that says children's toys have to be tested but it is not known if mouth guards come under this and that the ADA is not required to test theirs.

    Anyone have any info???  Thank you!!!

  • dlb823
    dlb823 Member Posts: 2,701
    edited August 2010

    Not sure about the night guards, Luna, but here are a few more things to be aware of...

    http://www.ewg.org/healthyhometips/backtoschool?utm_source=full&utm_medium=email&utm_content=first-link&utm_campaign=hht

  • seaotter
    seaotter Member Posts: 642
    edited August 2010

    Hi ladies. I'm doing the bi-mast freak out! I'm going to do this. I would appreciate any help or ideas that would be helpful before and after surgery. What supplements do I stop taking before surgery?

    I'm going through a divorce right now also. I have moved out and I am living alone. I'm trying to keep my spirits up Tongue out.

    Peace and Blessings, Patty

  • dlb823
    dlb823 Member Posts: 2,701
    edited August 2010

    Oh, (((Patty))).  I'm so sorry about your situation.  Pleeeeze PM me if you ever want my phone number just to talk.  I feel so bad for you, I'm almost crying.

    As far as supplements and surgery, definitely no E.  Seems like there are a couple more that I can't think of right now -- possibly Omega3's or other fish oil?  I know others will let you know if there are more.    Deanna

  • my560sel
    my560sel Member Posts: 399
    edited August 2010

    Patty...sorry to hear your news. Ditto on the E and Omega and you may want to add Turmeric to that. I was told to stop EVERYTHING but others will chime in as to what is really necessary to put aside until afterwards...

    Terri

  • hlth4513
    hlth4513 Member Posts: 161
    edited August 2010

    Patty-

    I'm so sorry you are having to go through all of this...you are one strong woman!

    SInce you already  joined LIfe Extension, you are entitled to free consults. You might want to call them and go through each of your supplements with them. They have the people on staff, including naturopathic oncologists, who could give you advice.

    HUGS!

    Beth

  • ananda8
    ananda8 Member Posts: 1,418
    edited August 2010

    No aspirin, No turmeric, No bromelain, No ibuprofen, No Omega 3, No anything that is an anti-inflammatory because all anti-inflammatories cause increased bleeding. 

    It would be good if you showed your doctor all of the supplements you are taking so (s)he can spot any problems. 

    Best wishes for a perfect surgery and pain free recovery.

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited August 2010

    Oh Patty, I'm so sorry to hear about your divorce. I hope you're hanging in there and distracting yourself, maybe with things you haven't been able to do while married. Do you have a good local support network of family/friends?

    As I DO eat moderate amounts of dairy and have an 11 YO who does too, is organic milk okay?  Does that labeling mean they eat organic?  Can they still give them hormones to make them produce more "organic" milk?

    The short answer is, NO, organic milk is not okay in my opinion. Don't buy milk at the store. For organic milk, they're not allowed to give the cows extra hormones, but they ARE allowed to keep them pregnant year-round, which causes an unnaturally high level of hormones that get into the milk. Also, they feed them corn... cows are meant to graze grass, not eat nothing but corn and soy (organic or not)!!  

    What you want is PASTURE-FED milk. Find a local grass-fed dairy farm and grill them about how they are raised, how much of the year the cows are pregnant, etc. Grass-fed milk, contrary to store-bought milk, is full of cancer-fighting nutrients, so you don't need to feel guilty about consuming it... grass-fed milk is NOTHING like the industrial milk (even "organic" milk) from the grocery store.

  • Nan
    Nan Member Posts: 49
    edited August 2010

    Dear Patty (seaotter),

    Please read both of these articles from The Life Extension Foundation. The second link has a list of do's and don'ts as to supplements, etc.

    http://www.lef.org/magazine/mag2009/dec2009_Preventing-Surgery-Induced-Cancer-Metastasis_01.htm

    http://www.lef.org/featured-articles/Cancer-Surgery-Special-Report.htm

  • Mountains1day
    Mountains1day Member Posts: 19
    edited August 2010

    I wonder if goat's milk is subjected to the same process as cow's and if it's healthier?